scholarly journals Overcoming Parent Strategies with Down Syndrome (DS) Children

2019 ◽  
Vol 4 (1) ◽  
pp. 54-75
Author(s):  
Tania Nurmalita
Keyword(s):  
Down Syndrome ◽  
Coping Strategy ◽  
Coming Out ◽  
Parenting Program ◽  
Religious Activity ◽  
Outdoor Activity ◽  
Exclusion Criteria ◽  
The Family ◽  
The Impact ◽  
Final Amount

Being a part of the family who has children with special needs like Down Syndrome (DS) of course really challenging for facing daily activities with children with DS around. The aim of this literature review is to reveal about how parents of children with DS applied coping strategy to face daily life and support their child. The sources were collected online from 4 journals databases. Those databases are ProQuest, SAGE Journals, Science Direct, and ERIC. Articles that were taken by researcher were published in year 2009-2019. Researcher found 179 journals and selected by screening inclusion and exclusion criteria, the final amount of conducted and reviewed journals are 12 papers. Based on review that had been done, all of the parents of children with DS did some kinds of coping strategy in parenting. The strategies that used are: attribution technique in accepting their child’s condition, implementing the positive attitude towards their children’s condition, getting more intense in religious activity and got closer to God, looking for the organization and community that related to DS, and also doing more sports or outdoor activity as a coming out purpose. Finding out the parents’ coping strategy and the impact for the DS child will be the basis of conducting parenting program effectively and hopefully this program will be effective in optimizing the development of DS child.

scholarly journals Down syndrome – a challenge for Latvian health care and education system

2018 ◽  
Vol 51 ◽  
pp. 03008
Author(s):  
Julija Cirule-Galuza ◽  
Strale Ilze ◽  
Solvita Jegorenko ◽  
Liga Priedena ◽  
Erika Gintere ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Down Syndrome ◽  
Family Environment ◽  
Genetic Disorder ◽  
Economic Effect ◽  
Institutional Care ◽  
Rehabilitation Services ◽  
The Family ◽  
The Impact

Down syndrome (DS) is a genetic disorder. From 1997 to 2015, 473 DS patients were born in Latvia. Prenatal diagnosis allows terminating pregnancies with high risk of DS. The aim of our research was to assess the impact of environmental quality (family and extra-familial care) on the child's development, range of services for DS patients, and to identify the optimal early support system. Families and specialists were interviewed to analyze differences between children in families and institutional care clients. State financial support for a DS child in the family is less than to a child in institutional care, and does not provide adequate rehabilitation services. Conclusion: the environment (family/institution, available resources, and rehabilitation services) where the child grows up after the birth, determines both their quality of life and level of independence development. If the somatic problem-solving path is clear, then social integration needs to be improved. Support of inter-professional teams for the families is necessary immediately after the diagnostic statement in order to ensure a more favourable family environment and to reduce the risk of institutionalization. Despite the potentially higher early intensive rehabilitation costs, in the course of time we can predict that it will provide an economic effect on the state and improve the patient and their family's quality of life.

scholarly journals Confucianism Perspective on the Position of Women in Society and the Impact of that Perspective on Gender Equality in Vietnam Today

2019 ◽  
Vol 1 (8) ◽  
pp. 10-18
Author(s):  
Nguyen Xuan Phong ◽  
Vu Hong Van ◽  
Pham Duy Hoang
Keyword(s):  
Gender Roles ◽  
Gender Equality ◽  
Coming Out ◽  
Female Population ◽  
Men And Women ◽  
Male Domination ◽  
Use Of Resources ◽  
The Family ◽  
The Impact ◽  
Family Norms

In the 21st century, we try to understand how the roles of men and women have been changed in Vietnam that has firm beliefs of Confucianism in the society. Confucianism in Vietnam instills the concept of male superiority over women. Although the laws in the country establish women’s rights, the norms and practices of society still engender male domination. Vietnam family norms promote the unity of the family while placing women in a subservient position, the traditional culture requires obedience to a father and then to a husband and sons. As per family norms, the power of family decisions also remains with husbands. Men keep contact politically and socially at village meetings and exchange the use of resources and production. With the increase of women taking greater productive roles and earn income, their involvement in decision-making also increases. Due to increased women’s education, female power within the family has also increased. Over that last three decades (Starting in 1986, Vietnam carried out the renovation of the country), these traditional views on gender roles influenced by Confucianism have changed drastically, although it is still looked down upon for women to work outside the house, it is slowly being accepted and almost 71.1% of the female population in Vietnam is actively participating the workforce (General Statistics Office of Vietnam, 2019). On the other hand, the male domination over the woman on the family has eased out, and many men do help out with household chores and looking after children while the woman works. Although this population is much lesser than the expectations, it is still a change from the Confucianism principles where the male remains dominant and authoritative. Although there are instances to prove that Vietnam is coming out of its traditional views on gender roles, it is still far behind concerning gender equality compared to globally desirable standards. It is expected that modernization will bring about the empowerment of women and a balance between men and women in both family and society.

scholarly journals Engaging and Empowering Parents of Children with Down Syndrome-The Role of Parents Support Group

2018 ◽  
Vol 17 (1) ◽  
Author(s):  
Asrul Abdul Wahab ◽  
Ezura Madiana Md. Monoto
Keyword(s):  
Down Syndrome ◽  
Support Group ◽  
Intervention Program ◽  
Public Awareness ◽  
Well Being ◽  
Individual Autonomy ◽  
Children With Down Syndrome ◽  
The Family ◽  
Role Of Parents ◽  
The Impact

Children with Down syndrome are known to have intellectual disability, developmental milestone delay and may also have associated medical conditions. Having a child with Down syndrome could be physically and emotionally challenging to the affected family members. The impact on a family can be multifaceted which can alter the family dynamics and harmony. Most parents felt inadequate with the information given by the healthcare providers. Parents support group plays an important role to support and provide information and resources to other parents of children with Down syndrome. The knowledge and experience on raising the children with Down syndrome are shared with the new parents. This includes the importance of Early Intervention Program (EIP), inclusive education, the benefits of People with Disability card, sharing success story of people with Down syndrome and providing emotional support to the family to boost their confidence and keeping up their positive spirit in raising their children, regardless of their religions and beliefs. Apart from that, we also organize and participate in activities to raise public awareness, advocating for the rights, inclusion and well being of people with Down syndrome, through social and mass media and annual celebration of World Down Syndrome Day on the 21st March. We promote the benefits of inclusive environment so that people with Down syndrome are able to enjoy full and equal rights on an equal basis with other people; enabling them to live, work and participate with confidence and individual autonomy, fully included in society alongside their friends and peers. As healthcare professionals and parents of a child with Down syndrome, we are sharing our own experiences in engaging with other parents of children with Down syndrome to understand the issues and concerns, sharing resources available around them and ways to support them throughout the journey of raising a child with Down syndrome.

Sleeping to Dream, Develop, and Resist Decline

2021 ◽  
Author(s):  
Katharine Hughes ◽  
Payal Khosla ◽  
Lauren Pisani ◽  
Goffredina Spanò ◽  
Jamie O. Edgin
Keyword(s):  
Down Syndrome ◽  
Language Learning ◽  
Neural Development ◽  
Poor Sleep ◽  
Critical Periods ◽  
Age Related ◽  
The Family ◽  
Potential Factor ◽  
Age Related Cognitive Decline ◽  
The Impact

Sleep quality is increasingly recognized as a potential factor influencing healthy cognitive and neural development across the lifespan. It is becoming more recognized as an important factor for persons with Down syndrome, and this chapter describes the most recent literature regarding sleep disturbance, its correlates, and findings from animal models in this population. The authors discuss the relation of poor sleep to behavioral, brain, and cognitive dysfunction and highlight the family consequences for altered sleep in children with Down syndrome. These pervasive sleep deficits have the potential to derail cognitive development during critical periods for language learning and could also exacerbate age-related cognitive decline. The authors hope that this compilation of evidence regarding sleep deficits in persons with Down syndrome will help facilitate more treatment studies for sleep disorders in this population, including treatments aimed at poor sleep in infants, as well as mid-adulthood, which may lessen or delay the impact of the pathological progression of Alzheimer’s disease. Methodological challenges to sleep research are discussed, and future directions for this field are highlighted.

Adolescents' Perceptions of The Impact of Caregiving on The Family

2007 ◽  
Author(s):  
Sharon B. Hamill ◽  
Tayari Shorter ◽  
Sarah Singleton ◽  
Carrie Page ◽  
Tabitha Pierce
Keyword(s):  
The Family ◽  
The Impact

The effect of brain vitalization activity on dementia incidence in elderly at Budi Luhur Nursing Home of Yogyakarta, Kasongan, Bantul

2020 ◽  
Vol 1 (3) ◽  
pp. 43-50
Author(s):  
Firstyono Miftahul Aziz ◽  
Suratini Suratini
Keyword(s):  
Nursing Home ◽  
The Elderly ◽  
Control Group ◽  
P Value ◽  
Sampling System ◽  
Randomized Sampling ◽  
Care For The Elderly ◽  
Dementia Incidence ◽  
The Family ◽  
The Impact

For some people, dementia is considered as a disease that is common in elderly, regardless the impact of dementia. Taking care for the elderly with dementia brings stress for the family. It can cause and increase the family burden. Brain vitalization gymnastics is one of the methods to improve memory. The study aims to investigate the effect of brain vitalization activity on dementia incidence in elderly at Budi Luhur Nursing Home of Yogyakarta. The study used Quasi Experimental with Pretest-Posttest control group and randomized sampling system. The samples were taken randomly as many as 26 respondents and were divided into two groups namely 13 respondents of experimental group and 13 respondents of control group. The statistical test used Wilcoxon Match Pairs Test. The result showed that Wilcoxon Match pairs test obtained p value 0,003, which is smaller than 0,005. There is an effect of brain vitalization activity on dementia incidence in elderly at Budi Luhur Nursing Home of Yogyakarta

The Impact of Parole Upon the Family

1961 ◽  
Vol 3 (3) ◽  
pp. 291-297
Author(s):  
Patrick Deehy
Keyword(s):  
The Family ◽  
The Impact

Orthodontic Aspects on the Chronological and Dental Age in Children with Down Syndrome

2018 ◽  
Vol 69 (1) ◽  
pp. 208-213
Author(s):  
Mariana Pacurar ◽  
Bogdan Dragomir ◽  
Alina Silvana Szalontay ◽  
Cristian Romanec
Keyword(s):  
Down Syndrome ◽  
Emotional Disorders ◽  
Metabolic Diseases ◽  
Genetic Disorder ◽  
Signs And Symptoms ◽  
Deciduous Teeth ◽  
Healthy Children ◽  
Dental Maturation ◽  
Children With Down Syndrome ◽  
The Family

Genetics is a key discipline in medicine, but also a clinical discipline with medical and social implications. The interest in reducing the number of genetic disorders and recognizing the risk of them repeating when a family confronts itself with a genetic anomaly becomes more and more important in the hierarchy of prophylactic emergencies. Presenting themselves as metabolic diseases (monogenic mutations) or malformations (polygenic and multifactorial heredity) because of their frequency, these disorders position themselves on an ascendant curve. They become difficult to deal with for the society, for the family and for the interested individual and cause emotional disorders. The Down syndrome is the most frequent type of genetic disorder. It is characterized by a specific set of signs and symptoms. People with Down syndrome require special medical care that, apart from the family, must include a team of doctors of various specializations and also a dentist. They are predisposed to hearing and sight disorders and thyroid problems as well. In 50% of the cases there are also anomalies of the heart, and the risk of leukaemia is 20 times higher. Some of them even develop an Alzheimer type dementia during their life. The people with Down syndrome can have an average IQ up to a moderate form of handicap. In particular, the studies on Down syndrome in dentistry are quite frequent, but they focus more on cavities, periodontal disease and hypodontia. In spite of this, the connection of Down syndrome and dental eruption is less studied. Consequently, the present study is intended to fill this missing part from the specialized literature, focusing on the relation between the Down syndrome and the chronological and dental ages in children. The health of the oral cavity is neglected in these patients, their parents focusing more on the treatment of the other systemic disorders of their children; the lack of interest is reflected in their poor oral hygiene.The trial group included 94 children with mixt dentition, aged between 6 and 12, divided as follows: 36 children with Down syndrome enrolled at the Educational Centre for Inclusive Education no. 1 of Tg. Mures and Alpha Transilvana Foundation. The chronology and the eruption sequences are subjected to certain variations and they are influenced by the presence of cavities, the premature loss or, on the contrary, the prolonged retention of deciduous teeth as well as dental anchylosis. Dental maturation is less subjected to variations, as it is a progressive, continuous and cumulative process. The presence of Down syndrome in children generates a delay in teeth eruption by 1.27 years compared to the data identified in the specialized literature and to the information obtained on the healthy children included in the study.

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