scholarly journals Engaging and Empowering Parents of Children with Down Syndrome-The Role of Parents Support Group

2018 ◽  
Vol 17 (1) ◽  
Author(s):  
Asrul Abdul Wahab ◽  
Ezura Madiana Md. Monoto
Keyword(s):  
Down Syndrome ◽  
Support Group ◽  
Intervention Program ◽  
Public Awareness ◽  
Well Being ◽  
Individual Autonomy ◽  
Children With Down Syndrome ◽  
The Family ◽  
Role Of Parents ◽  
The Impact

Children with Down syndrome are known to have intellectual disability, developmental milestone delay and may also have associated medical conditions. Having a child with Down syndrome could be physically and emotionally challenging to the affected family members. The impact on a family can be multifaceted which can alter the family dynamics and harmony. Most parents felt inadequate with the information given by the healthcare providers. Parents support group plays an important role to support and provide information and resources to other parents of children with Down syndrome. The knowledge and experience on raising the children with Down syndrome are shared with the new parents. This includes the importance of Early Intervention Program (EIP), inclusive education, the benefits of People with Disability card, sharing success story of people with Down syndrome and providing emotional support to the family to boost their confidence and keeping up their positive spirit in raising their children, regardless of their religions and beliefs. Apart from that, we also organize and participate in activities to raise public awareness, advocating for the rights, inclusion and well being of people with Down syndrome, through social and mass media and annual celebration of World Down Syndrome Day on the 21st March. We promote the benefits of inclusive environment so that people with Down syndrome are able to enjoy full and equal rights on an equal basis with other people; enabling them to live, work and participate with confidence and individual autonomy, fully included in society alongside their friends and peers. As healthcare professionals and parents of a child with Down syndrome, we are sharing our own experiences in engaging with other parents of children with Down syndrome to understand the issues and concerns, sharing resources available around them and ways to support them throughout the journey of raising a child with Down syndrome.

Efficacy of Crisis Intervention

Crisis ◽  
1999 ◽  
Vol 20 (2) ◽  
pp. 78-85 ◽  
Author(s):  
Thomas Reisch ◽  
Petra Schlatter ◽  
Wolfgang Tschacher
Keyword(s):  
Crisis Intervention ◽  
Intervention Program ◽  
Suicide Ideation ◽  
Indirect Evidence ◽  
Well Being ◽  
Term Therapy ◽  
Contributing Factors ◽  
Step Therapy ◽  
Long Term Therapy ◽  
The Impact

This study assesses the efficacy of the treatment approach implemented in the Bern Crisis Intervention Program, where particular emphasis is placed on the remediation of suicide ideation and suicidal behavior, and depression, fear, and phobia are generally considered to be contributing factors. Four questionnaires addressing psychopathology, emotional well-being, social anxiety, and personality were administered prior to and after the treatment of 51 patients over a period of 2 to 3 weeks. The reduction of symptoms contributing to suicidal ideation and behavior was interpreted as indirect evidence of an antisuicidal effect of the program. Significant improvements were found in the psychopathology ratings, with depression and anxiety showing the largest reductions. The impact on personality and social phobia, however, was only moderate, and on average patients still exhibited symptoms after attending the program. This residual symptomatology points to the necessity of introducing a two-step therapy approach of intensive intervention targeted at the precipitating causes of the crisis, augmented by long-term therapy to treat underlying problems.

Orthodontic Aspects on the Chronological and Dental Age in Children with Down Syndrome

2018 ◽  
Vol 69 (1) ◽  
pp. 208-213
Author(s):  
Mariana Pacurar ◽  
Bogdan Dragomir ◽  
Alina Silvana Szalontay ◽  
Cristian Romanec
Keyword(s):  
Down Syndrome ◽  
Emotional Disorders ◽  
Metabolic Diseases ◽  
Genetic Disorder ◽  
Signs And Symptoms ◽  
Deciduous Teeth ◽  
Healthy Children ◽  
Dental Maturation ◽  
Children With Down Syndrome ◽  
The Family

Genetics is a key discipline in medicine, but also a clinical discipline with medical and social implications. The interest in reducing the number of genetic disorders and recognizing the risk of them repeating when a family confronts itself with a genetic anomaly becomes more and more important in the hierarchy of prophylactic emergencies. Presenting themselves as metabolic diseases (monogenic mutations) or malformations (polygenic and multifactorial heredity) because of their frequency, these disorders position themselves on an ascendant curve. They become difficult to deal with for the society, for the family and for the interested individual and cause emotional disorders. The Down syndrome is the most frequent type of genetic disorder. It is characterized by a specific set of signs and symptoms. People with Down syndrome require special medical care that, apart from the family, must include a team of doctors of various specializations and also a dentist. They are predisposed to hearing and sight disorders and thyroid problems as well. In 50% of the cases there are also anomalies of the heart, and the risk of leukaemia is 20 times higher. Some of them even develop an Alzheimer type dementia during their life. The people with Down syndrome can have an average IQ up to a moderate form of handicap. In particular, the studies on Down syndrome in dentistry are quite frequent, but they focus more on cavities, periodontal disease and hypodontia. In spite of this, the connection of Down syndrome and dental eruption is less studied. Consequently, the present study is intended to fill this missing part from the specialized literature, focusing on the relation between the Down syndrome and the chronological and dental ages in children. The health of the oral cavity is neglected in these patients, their parents focusing more on the treatment of the other systemic disorders of their children; the lack of interest is reflected in their poor oral hygiene.The trial group included 94 children with mixt dentition, aged between 6 and 12, divided as follows: 36 children with Down syndrome enrolled at the Educational Centre for Inclusive Education no. 1 of Tg. Mures and Alpha Transilvana Foundation. The chronology and the eruption sequences are subjected to certain variations and they are influenced by the presence of cavities, the premature loss or, on the contrary, the prolonged retention of deciduous teeth as well as dental anchylosis. Dental maturation is less subjected to variations, as it is a progressive, continuous and cumulative process. The presence of Down syndrome in children generates a delay in teeth eruption by 1.27 years compared to the data identified in the specialized literature and to the information obtained on the healthy children included in the study.

Family tourism: Interpersonal interaction, existential authenticity and quality of tourist experience

2021 ◽  
pp. 135676672110224
Author(s):  
Han Chen ◽  
Yan Jiao ◽  
Xiaoyi Li ◽  
Kun Zhang
Keyword(s):  
Nuclear Family ◽  
Emotional Experience ◽  
Effective Interaction ◽  
Tourism Industry ◽  
Interpersonal Interaction ◽  
The Family ◽  
Tourist Experience ◽  
Role Of Parents ◽  
The Impact

The functional value experience of family tourism has often been paid attention both by tourists themselves and the tourism industry, but the individual value experience of parents in family tourism has been neglected. Family tourism shifts the scenario of interpersonal interaction between families from home, the conventional environment, to a non-conventional one. This change in the interactive situation will inevitably bring about changes in interpersonal interaction behavior and individual perception, especially to tourists who take on the role of parents in a nuclear family. This study enriches the examination of the family tourism experience by exploring the interpersonal interaction, existential authenticity travel experiences, and quality of tourist experience perceived by parents in family tourism. The main findings are: 1) In the non-conventional environment of tourism, effective interaction between tourists and their families helps to improve tourists’ emotional experience and satisfaction; 2) Three aspects of existential authenticity are the internal causes of the impact of interpersonal interaction on emotional experience and satisfaction; 3) Differences in parental roles make important discrepancies between men and women’s perception of family tourism experiences. This study provides insights to understanding the family tourism market and brings valuable findings to the area of family tourism marketing and management.

scholarly journals Family Variables and Quality of Life in Children with Down Syndrome: A Scoping Review

2021 ◽  
Vol 18 (2) ◽  
pp. 419
Author(s):  
Anna Lee ◽  
Kathleen Knafl ◽  
Marcia Van Riper
Keyword(s):  
Quality Of Life ◽  
Down Syndrome ◽  
Scoping Review ◽  
Personal Development ◽  
Well Being ◽  
Future Research ◽  
Cross Sectional ◽  
Children With Down Syndrome ◽  
Family Variables

The purpose of this scoping review was to identify the family and child quality of life variables that have been studied in relation to one another in children with Down syndrome, the frequency with which different relationships have been studied, and the extent to which family variables were the focus of the research aims. A literature search was conducted to find studies published between January 2007 and June 2018. The initial search yielded 2314 studies; of these, 43 were selected for a final review. Researchers most often addressed family resources and family problem-solving and coping concerning child personal development and physical well-being. Little attention to child emotional well-being was observed, with none considering family appraisal of child emotional well-being. The relationship between family variables and child QoL rarely was the primary focus of the study. Methodologically, most reviewed studies used cross-sectional designs, were conducted in North America and based on maternal report. From future research considering the issues found in this review, healthcare providers can obtain an in-depth understanding of relationships between children and family variables.

Review of the impact Covid-19 has on the Psychosocial factors affecting Well-Being

2021 ◽  
pp. 3404-3408
Author(s):  
Sheila Menon FBSCH ◽  
Vidya Bhagat
Keyword(s):  
Psychosocial Factors ◽  
Health Workers ◽  
Public Awareness ◽  
Cost Effective ◽  
Well Being ◽  
Security Measures ◽  
Post Traumatic Stress ◽  
Negative Effects ◽  
Factors Affecting ◽  
The Impact

The COVID-19 pandemic has had a significant impact on the psychosocial factors that effect people globally. Particularly affected are children, students and health workers and the common symptoms identified are stress, anxiety disorders, depression and post-traumatic stress disorder. In addition, the various security measures implemented to ensure public safety have adversely affected relationships between people. This study directs public awareness to the value of psychotherapeutic support. Tele-therapy can be offered easily to people both at home or in the workplace, providing both cost effective and time sensitive solutions during times of crisis. The current review article provides an overview of the importance of maintaining psychological well-being during a pandemic and the identifies the role that empathetic communication has on wellbeing. The literature review was completed using electronic databases such as PubMed, Medline, and Scopus databases using the keywords covid-19, affected groups, affected relationships, psychology and its technological interventions, negative effects of pandemic so on.

scholarly journals Overcoming Parent Strategies with Down Syndrome (DS) Children

2019 ◽  
Vol 4 (1) ◽  
pp. 54-75
Author(s):  
Tania Nurmalita
Keyword(s):  
Down Syndrome ◽  
Coping Strategy ◽  
Coming Out ◽  
Parenting Program ◽  
Religious Activity ◽  
Outdoor Activity ◽  
Exclusion Criteria ◽  
The Family ◽  
The Impact ◽  
Final Amount

Being a part of the family who has children with special needs like Down Syndrome (DS) of course really challenging for facing daily activities with children with DS around. The aim of this literature review is to reveal about how parents of children with DS applied coping strategy to face daily life and support their child. The sources were collected online from 4 journals databases. Those databases are ProQuest, SAGE Journals, Science Direct, and ERIC. Articles that were taken by researcher were published in year 2009-2019. Researcher found 179 journals and selected by screening inclusion and exclusion criteria, the final amount of conducted and reviewed journals are 12 papers. Based on review that had been done, all of the parents of children with DS did some kinds of coping strategy in parenting. The strategies that used are: attribution technique in accepting their child’s condition, implementing the positive attitude towards their children’s condition, getting more intense in religious activity and got closer to God, looking for the organization and community that related to DS, and also doing more sports or outdoor activity as a coming out purpose. Finding out the parents’ coping strategy and the impact for the DS child will be the basis of conducting parenting program effectively and hopefully this program will be effective in optimizing the development of DS child.

scholarly journals PROGRAM INTERVENSI PENGEMBANGAN KECAKAPAN BERBICARA ANAK DOWN SYNDROME

2016 ◽  
Vol 13 (2) ◽  
pp. 288
Author(s):  
Lely Kurniawati ◽  
Zaenal Alimin ◽  
Pudji Asri
Keyword(s):  
Down Syndrome ◽  
Mixed Methods ◽  
Speech Intelligibility ◽  
Quantitative Research ◽  
Teaching And Learning ◽  
Intervention Program ◽  
Speech Development ◽  
Intervention Programs ◽  
Children With Down Syndrome ◽  
Development Of Language

Speech and language is an initial capability to be owned subsidiaries as capital to be able to interact and communicate. Intervention is given to those who experience barriers to development including speech development of language in children with Down syndrome. This study aims to formulate intervention programs in accordance with the development and needs of children with Down syndrome. This study to determine the speech development in children with down syndrome and the efforts that have been undertaken to help develop their speaking skills. This study used mixed methods with sequential exploratory design, which is a design study that combines qualitative and quantitative research gradually. Results from this study showed that the ability to speak the child is still limited to the pronunciation of the word without any specialhandling. The program consists of interventions designed aspects of understanding of the vocabulary, syntax and schematically drawn based on the child's development. The results of the implementation of this program showed improvement in the children speak a few words. This program can be implemented in teaching and learning in the classroom. More attention in children can help children with Down syndrome improve speaking ability.Keywords: intervention program, speech intelligibility, down syndrome, mixed methods

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