scholarly journals Understanding burnout among parents of children with complex care needs: A scoping review informed by a stakeholder consultation

2021 ◽  
Author(s):  
Nathalie Patty ◽  
Karen van Meeteren ◽  
Agnes Willemen ◽  
Carlo Schuengel
Keyword(s):  
Scoping Review ◽  
Grey Literature ◽  
Complex Care ◽  
Risk And Resilience ◽  
Care Needs ◽  
Stakeholder Consultation ◽  
Scoping Reviews ◽  
Comprehensive Search ◽  
Complex Care Needs ◽  
The Impact

Background: The concept of parental burnout has been proposed to be helpful for describing and understanding the impact of parenting children with complex care needs (CCN). The objective of this scoping review was to investigate the aims, methods, and results of research on burnout among parents of children with CCN, and to inform the interpretation as well as implications for research and practice through a stakeholder consultation.Methods: The scoping review was guided by the JBI Reviewers’ Manual for scoping reviews. Primary studies on burnout among parents of children with CCN were identified through a comprehensive search of peer reviewed and grey literature. Metadata and findings were extracted and compiled for further synthesis and interpretation, guided by a stakeholder consultation, involving parents of children with CCN (n = 6), healthcare professionals (n = 3), and researchers (n = 3). The stakeholder consultation was structured according to a Delphi consultation method. Results: A total of 57 articles were eligible for inclusion. Prevalence of burnout among parents of children with CCN varied between 20 and 77%. Parents of children with CCN reported on average higher burnout scores than parents of children without CCN. While all studies focused on parents with children with CCN, very few studies specifically focused on burnout within the context of parenting a child with CCN. Stakeholders endorsed the importance of studies into the multifactorial determination of burnout in the context of having children with CCN. Conclusion:The concept of parental burnout highlights the extremes of stress and burden experienced by parents of children with CCN. By focusing more on contextualized definitions of parental burnout, research may unravel the complex interplay between personal and contextual factors pertaining to risk and resilience.

scholarly journals Programmes to support transitions in care for children and youth with complex care needs and their families: a scoping review protocol

BMJ Open ◽  
2020 ◽  
Vol 10 (6) ◽  
pp. e033978
Author(s):  
Shelley Doucet ◽  
Janet A Curran ◽  
Sydney Breneol ◽  
Alison Luke ◽  
Emilie Dionne ◽  
...  
Keyword(s):  
Scoping Review ◽  
Transitional Care ◽  
Research Policy ◽  
Children And Youth ◽  
Advisory Council ◽  
Complex Care ◽  
Care Needs ◽  
Transitions In Care ◽  
Scoping Reviews ◽  
Complex Care Needs

IntroductionChildren and youth with complex care needs (CCNs) and their families experience many care transitions over their lifespan and are consequently vulnerable to the discontinuity or gaps in care that can occur during these transitions. Transitional care programmes, broadly defined as one or more intervention(s) or service(s) that aim to improve continuity of care, are increasingly being developed to address transitions in care for children and youth with CCNs. However, this literature has not yet been systematically examined at a comprehensive level. The purpose of this scoping review is to map the range of programmes that support transitions in care for children and youth with CCNs and their families during two phases of their lifespan: (1) up to the age of 19 years (not including their transition to adult healthcare) and (2) when transitioning from paediatric to adult healthcare.Methods and analysisThe Joanna Briggs Institute methodology for scoping reviews (ScR) will be used for the proposed scoping review. ScR are a type of knowledge synthesis that are useful for addressing exploratory research questions that aim to map key concepts and types of evidence on a topic and can be used to organise what is known about the phenomena. A preliminary search of PubMed was conducted in December 2018.Ethics and disseminationEthical approval is not required where this study is a review of the published and publicly reported literature. The research team’s advisory council will develop a research dissemination strategy with goals, target audiences, expertise/leadership, resources and deadlines to maximise project outputs. The end-of-grant activities will be used to raise awareness, promote action and inform future research, policy and practice on this topic.

scholarly journals Geriatric Resource Teams: Equipping Primary Care Practices to Meet the Complex Care Needs of Older Adults

Geriatrics ◽  
2019 ◽  
Vol 4 (4) ◽  
pp. 59 ◽  
Author(s):  
Gwendolen Buhr ◽  
Carrissa Dixon ◽  
Jan Dillard ◽  
Elissa Nickolopoulos ◽  
Lynn Bowlby ◽  
...  
Keyword(s):  
Older Adults ◽  
Primary Care ◽  
Cognitive Impairment ◽  
Assessment Process ◽  
Complex Care ◽  
Care Needs ◽  
Care Practices ◽  
Primary Care Practices ◽  
Complex Care Needs ◽  
The Impact

Primary care practices lack the time, expertise, and resources to perform traditional comprehensive geriatric assessment. In particular, they need methods to improve their capacity to identify and care for older adults with complex care needs, such as cognitive impairment. As the US population ages, discovering strategies to address these complex care needs within primary care are urgently needed. This article describes the development of an innovative, team-based model to improve the diagnosis and care of older adults with cognitive impairment in primary care practices. This model was developed through a mentoring process from a team with expertise in geriatrics and quality improvement. Refinement of the existing assessment process performed during routine care allowed patients with cognitive impairment to be identified. The practice team then used a collaborative workflow to connect patients with appropriate community resources. Utilization of these processes led to reduced referrals to the geriatrics specialty clinic, fewer patients presenting in a crisis to the social worker, and greater collaboration and self-efficacy for care of those with cognitive impairment within the practice. Although the model was initially developed to address cognitive impairment, the impact has been applied more broadly to improve the care of older adults with multimorbidity.

scholarly journals Intensive care units follow-up: a scoping review protocol

BMJ Open ◽  
2020 ◽  
Vol 10 (11) ◽  
pp. e037725
Author(s):  
Danielle Prevedello ◽  
Marco Fiore ◽  
Jacques Creteur ◽  
J C Preiser
Keyword(s):  
Quality Of Life ◽  
Intensive Care ◽  
Scoping Review ◽  
Grey Literature ◽  
Icu Discharge ◽  
Scoping Reviews ◽  
The Impact

IntroductionIncreasing numbers of patients are surviving critical illness, leading to growing concern about the potential impact of the long-term consequences of intensive care on patients, families and society as a whole. These long-term effects are together known as postintensive care syndrome and their presence can be evaluated at intensive care unit (ICU) follow-up consultations. However, the services provided by these consultations vary across hospitals and units, in part because there is no validated standard model to evaluate patients and their quality of life after ICU discharge. We describe a protocol for a scoping review focusing on models of ICU follow-up and the impact of such strategies on improving patient quality of life.Methods and analysisIn this scoping review, we will search the literature systematically using electronic databases (MEDLINE - from database inception to June 15th 2020) and a grey literature search. We will involve stakeholders as recommended by the Joanna Briggs Institute approach developed by Peters et al. The research will be conducted in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews guidelines.Ethics and disseminationThis study does not require ethics approval, because data will be obtained through a review of published primary studies. The results of our evaluation will be published in a peer-reviewed journal and will also be disseminated through presentations at national and international conferences.

scholarly journals Menstrual experience of adolescents in the USA: protocol for a scoping review

BMJ Open ◽  
2021 ◽  
Vol 11 (2) ◽  
pp. e040511
Author(s):  
Ronke Olowojesiku ◽  
Deborah J Shim ◽  
Bryanna Moppins ◽  
Daye Park ◽  
Jasmine O Patterson ◽  
...  
Keyword(s):  
Social Services ◽  
Scoping Review ◽  
Low Income ◽  
Research Team ◽  
Grey Literature ◽  
The Body ◽  
Primary Study ◽  
Scoping Reviews ◽  
The Usa ◽  
The Impact

IntroductionIn recent years, there has been a growing desire to address issues related to menstruation, particularly for adolescent girls. In low-income and middle-income countries, prior literature review of the adolescent menstrual experience suggests the need for further research into the impact and efficacy of interventions with this population. There is evidence to suggest the need for initiatives and research in higher-income countries like the USA. To date, the body of research on adolescent menstrual experience in the USA remains uncharacterised. Therefore, we propose a scoping review of the literature on this subject to better inform on areas for future primary study.Methods and analysesUsing the framework proposed by Arksey and O’Malley and expounded on by Levac et al and the Joanna Briggs Institute, we will search electronic databases (MEDLINE, CINAHL, PsycINFO, Web of Science, ProQuest Public Health Database, Social Science Citation Index, Social Services Abstracts and SocINDEX) and grey literature for relevant studies in consultation with experienced librarians. The abstracts and full-text from each reference will be screened by two independent reviewers for inclusion. Bibliographic data, study characteristics and themes will be extracted from studies selected for inclusion using a rubric created by the research team. Findings will be summarised and a list of subject areas for future primary research will be generated in consultation with stakeholders. The review will be conducted using the Preferred Reporting Items from Systematic Reviews and Meta-Analyses extension for Scoping Reviews guidelines.Ethics and disseminationFormal ethics training for this study is not required, as the research team will review publicly available studies. Stakeholders working in adolescent and menstrual health were consulted in designing this review. We will share key findings with stakeholders and in scholarly journals at the conclusion of the review.

scholarly journals Addressing Needs of Older Adults in Low-Income Independent Living Facilities in Community Health

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 328-329
Author(s):  
Lisa Rauch ◽  
Toby Adelman ◽  
Daryl Canham ◽  
Nancy Dudley
Keyword(s):  
Older Adults ◽  
Community Health ◽  
Low Income ◽  
Independent Living ◽  
Complex Care ◽  
Care Needs ◽  
Term Care ◽  
Undergraduate Nursing ◽  
Complex Care Needs ◽  
The Impact

Abstract Access to quality care in long-term care settings including independent living facilities is needed for a diverse high-risk aging U.S. population. There is an urgent need to assess and address complex care needs of older adults living longer with chronic conditions and serious illness. However, a system to assess and identify health problems, intervene, and evaluate outcomes is lacking. This session presents learnings from a pilot study developed in collaboration with Nurse Managed Centers at low-income independent living facilities for older adults and undergraduate nursing students in community health practice. We will discuss the adaptation of the Omaha System for provision of care in independent living facilities to address complex care needs. Finally, we will discuss the impact of this project and its potential for healthcare transformation in independent living facilities and transformation of education in undergraduate nursing programs.

scholarly journals Interagency collaboration models for people with mental ill health in contact with the police: a systematic scoping review

BMJ Open ◽  
2018 ◽  
Vol 8 (3) ◽  
pp. e019312 ◽  
Author(s):  
Adwoa Parker ◽  
Arabella Scantlebury ◽  
Alison Booth ◽  
Jillian Catherine MacBryde ◽  
William J Scott ◽  
...  
Keyword(s):  
Mental Health ◽  
Mental Health Professionals ◽  
Scoping Review ◽  
Police Officers ◽  
Grey Literature ◽  
Interagency Collaboration ◽  
Cochrane Library ◽  
Scoping Reviews ◽  
Health Related ◽  
The Impact

ObjectiveTo identify existing evidence on interagency collaboration between law enforcement, emergency services, statutory services and third sector agencies regarding people with mental ill health.DesignSystematic scoping review. Scoping reviews map particular research areas to identify research gaps.Data sources and eligibilityASSIA, CENTRAL, the Cochrane Library databases, Criminal Justice Abstracts, ERIC, Embase, MEDLINE, PsycINFO, PROSPERO and Social Care Online and Social Sciences Citation Index were searched up to 2017, as were grey literature and hand searches. Eligible articles were empirical evaluations or descriptions of models of interagency collaboration between the police and other agencies.Study appraisal and synthesisScreening and data extraction were undertaken independently by two researchers. Arksey’s framework was used to collate and map included studies.ResultsOne hundred and twenty-five studies were included. The majority of articles were of descriptions of models (28%), mixed methods evaluations of models (18%) and single service evaluations (14%). The most frequently reported outcomes (52%) were ‘organisational or service level outcomes’ (eg, arrest rates). Most articles (53%) focused on adults with mental ill health, whereas others focused on adult offenders with mental ill health (17.4%). Thirteen models of interagency collaboration were described, each involving between 2 and 13 agencies. Frequently reported models were ‘prearrest diversion’ of people with mental ill health (34%), ‘coresponse’ involving joint response by police officers paired with mental health professionals (28.6%) and ‘jail diversion’ following arrest (23.8%).ConclusionsWe identified 13 different interagency collaboration models catering for a range of mental health-related interactions. All but one of these models involved the police and mental health services or professionals. Several models have sufficient literature to warrant full systematic reviews of their effectiveness, whereas others need robust evaluation, by randomised controlled trial where appropriate. Future evaluations should focus on health-related outcomes and the impact on key stakeholders.

scholarly journals Palliative care for people who use substances during communicable disease epidemics and pandemics: a scoping review protocol

BMJ Open ◽  
2021 ◽  
Vol 11 (10) ◽  
pp. e053124
Author(s):  
Daniel Z Buchman ◽  
Philip Ding ◽  
Samantha Lo ◽  
Naheed Dosani ◽  
Rouhi Fazelzad ◽  
...  
Keyword(s):  
Palliative Care ◽  
Scoping Review ◽  
Literature Search ◽  
Communicable Disease ◽  
Scientific Journal ◽  
Grey Literature ◽  
Care Access ◽  
Scoping Reviews ◽  
Disease Epidemics ◽  
The Impact

IntroductionCommunicable disease epidemics and pandemics magnify the health inequities experienced by marginalised populations. People who use substances suffer from high rates of morbidity and mortality and should be a priority to receive palliative care, yet they encounter many barriers to palliative care access. Given the pre-existing inequities to palliative care access for people with life-limiting illnesses who use substances, it is important to understand the impact of communicable disease epidemics and pandemics such as COVID-19 on this population.Methods and analysisWe will conduct a scoping review and report according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews reporting guidelines. We conducted a comprehensive literature search in seven bibliographical databases from the inception of each database to August 2020. We also performed a grey literature search to identify the publications not indexed in the bibliographical databases. All the searches will be rerun in April 2021 to retrieve recently published information because the COVID-19 pandemic is ongoing at the time of this writing. We will extract the quantitative data using a standardised data extraction form and summarise it using descriptive statistics. Additionally, we will conduct thematic qualitative analyses and present our findings as narrative summaries.Ethics and disseminationEthics approval is not required for a scoping review. We will disseminate our findings to healthcare providers and policymakers through professional networks, digital communications through social media platforms, conference presentations and publication in a scientific journal.

scholarly journals Telemedicine in primary healthcare for the quality of care in times of COVID-19: a scoping review protocol

BMJ Open ◽  
2021 ◽  
Vol 11 (7) ◽  
pp. e046227
Author(s):  
Cícera Renata Diniz Vieira Silva ◽  
Rayssa Horácio Lopes ◽  
Osvaldo de Goes Bay Júnior ◽  
Miguel Fuentealba-Torres ◽  
Ricardo Alexandre Arcêncio ◽  
...  
Keyword(s):  
Quality Of Care ◽  
Scoping Review ◽  
Primary Healthcare ◽  
Scientific Journal ◽  
Grey Literature ◽  
Open Science ◽  
Stakeholder Consultation ◽  
Scoping Reviews ◽  
Review Protocol

IntroductionTelemedicine gained strength in primary healthcare (PHC) during the COVID-19 pandemic. Thus, there is a need to know its scope, technologies used and impacts on people’s health. This study will map telemedicine use in PHC around the world and its impacts on quality of care in the context of the COVID-19 pandemic.MethodsThis is a scoping review protocol developed according to Arksey and O'Malley and Levac et al, based on the Joanna Briggs Institute manual, and guided by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews (PRISMA-ScR). The records will be mapped in the following multidisciplinary health sciences databases: Virtual Health Library, PubMed, Scopus, Web of Science, CINAHL and Embase. Searches will also be conducted on Google Scholar, preprint repositories and specific COVID-19 databases (grey literature). Quantitative data will be analysed using descriptive statistics, while thematic analysis will be performed for qualitative data. Preliminary findings will be presented to stakeholders to identify missing studies and develop effective dissemination strategies.Ethics and disseminationResults will be disseminated through publication in an open access scientific journal, scientific events, and academic and community newspapers. Ethical approval was obtained due to stakeholder consultation, but will not involve the direct participation of patients. Link to the protocol record in the Open Science Framework (OSF) (osf.io/q94en).

scholarly journals The role of the registered nurse in supporting frailty in care homes

2019 ◽  
Vol 28 (13) ◽  
pp. 833-837 ◽  
Author(s):  
Lynn Craig
Keyword(s):  
Care Delivery ◽  
Nutrition Status ◽  
Complex Care ◽  
Care Needs ◽  
Crucial Component ◽  
Unplanned Admissions ◽  
Complex Care Needs ◽  
The Impact ◽  
Negative Health Outcomes

People in nursing and residential homes are more likely to suffer frailty. Registered nurses are a crucial component of the care delivery service and can offer support to patients who have complex care needs and comorbidities and are at risk of unplanned admissions to secondary care. This article explores frailty and the role of the nurse in assessing for frailty. Three aspects of patient care—nutrition status, polypharmacy and exercise and cognitive function—are discussed as areas where nurses can target their interventions in order to support those considered as frail, aiming to reduce the impact of frailty and negative health outcomes.

Impact of Targeted Treatment on the Prevalence and Intensity of Schistosomiasis in Primary School Children in Africa: A Scoping Review

2020 ◽  
Author(s):  
Nathan Chanhanga ◽  
Pisirai Ndarukwa ◽  
Moses John Chimbari
Keyword(s):  
Scoping Review ◽  
Primary Schools ◽  
Grey Literature ◽  
Targeted Treatment ◽  
Primary School Children ◽  
World Health ◽  
Treatment Modalities ◽  
Targeted Interventions ◽  
Scoping Reviews ◽  
The Impact

Abstract BackgroundSchistosomiasis one of the major neglected tropical diseases that cause considerable public health problems in more than 78 tropical and subtropical countries. The disease is most prevalent among children who carry a disproportionately high worm load. Various interventions such as, Mass Drug Administration, snail control, safe water provision and health education on schistosomiasis have been implemented independently or jointly in an effort to control, reduce and ultimately eliminate this parasitic disease. The proposed review willquantify and evaluate the impact of these targeted interventions on the prevalence and intensity of schistosomiasis infection in African primary schools.MethodologyThe Arkseys and O’Malley framework for scoping reviews will be used to conduct the study. We will systematically search for eligible literature from peer-reviewed articles and grey literature. Databases such as Google Scholar, Medline, PubMed and EBSCO host will be searched. In addition, websites like the World Health Organization and government websites will also be searched for articles on the impact of targeted treatment on the prevalence and intensity of schistosomiasis in African primary schools. The scoping review will the conducted on studies that were published from 2000 to 2020. The Population Intervention, Comparison and Outcome (PICO) framework will be implemented to evaluate the eligibility of the research question. The results of the search will be reported utilizing the Preferred Reporting Items for Systematic Reviews and Meta-analysis (PRISMA) flow diagram. Furthermore, quality assessment for the selected primary studies will be conducted using the Mixed Methods Appraisal Tool (MMAT)Version 2018. Discussion We expect to gather research articles on various interventions and treatment modalities that have been implemented to reduce the prevalence and intensity of schistosomiasis infection in African primary schools. This will allow us to quantify and evaluate the overall impact of the targeted treatment to reduce morbidity due to schistosomiasis. Findings from this scoping review will be disseminated in print and electronic to policy makers, researchers and academics through publication in accredited journals and at conferences or congresses.

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