scholarly journals Secondary health conditions in individuals with acquired long-term disabilities

2021 ◽  
Vol 57 (1) ◽  
pp. 158-171
Author(s):  
Marlena Duda

The aim of this study is to advance our understanding of the secondary health conditions (SHCs) experienced by individuals with acquired long-term disabilities. This review is based on published literature and addresses the nature and perspectives associated with the phenomenon of disability, as well as the terminology used to describe it. The current understanding of SHCs limits and explains the range of information on somatic and mental illness with respect to the following criteria: SHCs are secondary to the primary disorder, they are preventable and modifiable, they manifest in different ways and for different durations of time, and that they exacerbate the severity of the primary condition. This review attempts to describe particular aspects associated with functioning in the context of acquired physical disabilities, practical implications of research on this subject, and perspectives for the future.

2016 ◽  
Vol 20 (3) ◽  
pp. 153-159
Author(s):  
Jen Waring ◽  
Jerome Carson

Purpose – The purpose of this paper is to provide a profile of Jen Waring. Design/methodology/approach – Jen provides a short biographical description of her life. She is then interviewed by Jerome. Findings – Jen talks about her long battle with mental health problems and what has sustained her over this time. She talks about the crucial importance of support from both loved ones and professionals, as well as medication. Research limitations/implications – Single case studies are of course just one person’s story. Given Jen is an academic biologist, she not only has a unique way of looking at mental illness, she can see the potential of developing approaches in the biological understanding for people experiencing mental distress. Practical implications – Jen’s account shows the need for long-term support for more severe mental health problems. There are no quick fixes! It also highlights the need for interventions at biological, psychological and social levels. Social implications – People need “somewhere to live, someone to love and something meaningful to do” (Rachel Perkins). Many sufferers do not have all three. Services may only be able to provide two of these. Originality/value – Accounts of mental illness recovery by academics can often provide the authors with amazing insights into the world of the mentally distressed. They can also serve as an inspiration to the many students who experience mental distress.


2015 ◽  
Vol 23 (2) ◽  
pp. 9-11
Author(s):  
Geeta Rana ◽  
Alok Kumar Goel

Purpose – This paper aims to describe how Birla creates a strong pipeline of people who are ready to lead the organization in the future. Design/methodology/approach – It explains the origins of the group’s global-manufacturing leadership program (GMLP), the form it takes and the results it has achieved. Findings – It reveals that the program aims to shape the manufacturing leaders of tomorrow through exposing them to world-class technologies and processes, state-of-the-art research and continuous learning and development opportunities. Practical implications – It reveals that of the five GMLP candidates recruited in 2011, three have become independent unit heads, one in China and two in India. Social implications – It outlines the company belief that retaining and developing the skills of its existing workforce is at least as important as importing new talent when faced with increasing competition and growing pressure to cut costs in its main markets. Originality/value – It demonstrates that the program is designed to ensure that each participant is able to understand and anticipate customer needs, influence colleagues without too openly expressing authority and develop and communicate the company’s long-term vision.


2016 ◽  
Vol 24 (3) ◽  
pp. 227-234 ◽  
Author(s):  
Crystle Martin

Purpose This paper demonstrates the impact of recognition and valuation of youth interest on potential career trajectory and future pathway choices. Design/methodology/approach This paper presents data from two ethnographies. The first ethnography is of an online professional wrestling fan community, which took place between October 2012 and May 2013. The second ethnography is of the online Scratch community, Scratch is a free online coding program. Observations of the community took place between October 2014 and October 2015, with interviews ongoing as of the writing of this paper. Findings This paper details the importance of valuing youth learning and the impact that receiving recognition and valuation can have on youths’ future choices. Research limitations/implications This research focuses on two online communities and presents four examples of the phenomena of valuation and recognition described in the paper. To draw broad conclusions, a wider sample would be required. Practical implications This paper can offer examples to practitioners and researcher alike as to what the impacts of valuing youth learning in interest-driven contexts can be for youth long-term learning and career trajectory and forms that the valuation of interest to support growth and interest can take. Originality/value The paper demonstrates the importance of valuing learning in all parts of youths’ lives and the impact that the valuation can have on the future pathways and career trajectory of youth.


2016 ◽  
Vol 24 (2) ◽  
Author(s):  
Tessa Trappes-Lomax

Purpose Long-term health problems put great pressures on health and social care services. Supporting ‘self-care’ has measurable benefits in helping patients cope better, but is difficult to do in practice. This review aims to help improve services by exploring existing evidence about the views of patients and GPs. Design/methodology/approach The search terms were identified following detailed discussion with service users. Five databases (PUBMED, CINAHL, TRIP, SCIE and PSYCINFO) were interrogated against pre-set questions and criteria. The data were managed in EndNote v6 and analysed in a series of Word tables. Findings 37 community-based studies were identified, covering diverse chronic illnesses. Analysis of ‘barriers and enablers’ showed a very complex picture, with health systems often actively inhibiting the responsiveness and flexibility which support self-care. Directly seeking service user and practitioner views could shape more effective services Research limitations/implications Further research is needed into: the purpose and outcomes of user involvement, the relationship between integrated care and self-care, how patient motivation and resilience can be encouraged in primary care and the effect of current incentive schemes on self-care support Due to organisational changes, eligible studies were reviewed by one researcher only and these were mainly qualitative studies lacking generalisability. However, the results spanned a range of settings and health conditions. They are also clearly supported by later primary research findings Practical implications Several evidence-based, achievable opportunities to improve self-care support in primary care settings are identified Originality/value This service-user study, offers detailed analysis of what helps or hinders self-care in everyday life


2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Shari-Estelle Gassmann ◽  
Robin Nunkoo ◽  
Victor Tiberius ◽  
Sascha Kraus

Purpose This paper aims to formulate the most probable future scenario for the accommodation sharing sector within the next five to ten years. It addresses the following six thematic aspects: relevance, different forms of accommodation sharing, users, hosts, platforms, and finally, industry regulation. Design/methodology/approach This study identifies the most likely holistic future scenario by conducting a two-stage Delphi study involving 59 expert panelists. It addresses 33 projections for six thematic sections of the accommodation sharing industry: relevance, different forms of accommodation sharing, users, hosts, platforms, and finally, industry regulation. Findings The results indicate that the number of shared accommodations and users of home-sharing will increase. Moreover, the cost advantage is the predominant driver for users to engage in the accommodation sharing segment, and for the hosts, the generation of an extra income is the primary incentive. Finally, the regulation within this industry is expected to be more effective in the foreseeable future. Practical implications The results are critical, not only to advance our theoretical understanding and stimulate critical discussions on the long-term development of accommodation sharing but also to assist governments and policymakers who have an interest in developing and regulating this sector and developers seeking business opportunities. Originality/value While there is ample knowledge about the past and current development of accommodation sharing in tourism, little is understood about its potential future development and implications for consumers, the economy, and society. To date, no scientific research is available that develops scenarios about the future of accommodation sharing.


2020 ◽  
Author(s):  
Olena Nizalova ◽  
Katerina Gousia ◽  
Julien Forder

Abstract Background: Obesity is a known predictor of disability and functional limitations, and, in turn, of health care use. In this study, we aim to explore whether obesity is also a significant risk factor for future long-term care use, overall and by type of care. Methods: We use multinomial logistic regression analysis on data from the English Longitudinal Study of Ageing (ELSA) for individuals aged 65 and older between 2002 and 2011. Selection issues are tackled using the rich set of control variables, exploiting the data’s longitudinal structure and accounting for loss to follow-up (including death). Control factors include health-related behaviours (physical activity, alcohol and tobacco consumption), functional limitations (related to ADLs, iADLs and mobility) and specific existing health conditions, notably diabetes, high blood pressure and cardio-vascular diseases. Results: We find that obese older people are 25% (p<0.01) more likely to receive informal or privately paid care in the future, but this does not hold for formal care. This is an additional direct effect after controlling for a wide range of health conditions and functional limitations. We document some evidence that this effect is due to the development of new functional limitations. Sensitivity analyses suggest that the results are robust to controlling for prediabetes, subjective health, depression, or unobserved heterogeneity. Conclusions: This study provides new evidence of a positive direct effect of obesity on the future use of long-term care services. Accordingly, it adds evidence of further economic benefits to any overall evaluation of policies to promote a healthy weight in the population, particularly in the older population.


BMJ Open ◽  
2019 ◽  
Vol 9 (8) ◽  
pp. e030590 ◽  
Author(s):  
Nan Greenwood ◽  
Carole Pound ◽  
Sally Brearley

ObjectivesOlder informal carers play an increasingly important role in supporting others with long-term health conditions. This study aimed to explore in depth the perspectives of older carers (70+ years) supporting others with a variety of conditions and disabilities focusing on their thoughts and experiences about when they are unable to continue caring.DesignQualitative with four focus groups.SettingGreater London, UK.Participants28 older carers (70+ years) recruited from the voluntary sector participated in this study. Most were women and many were spouses caring for partners with age-related conditions such as dementia, arthritis and visual impairment. Nearly a third were parents of adult children with severe physical or cognitive disabilities.FindingsThematic analysis identified two main aspects for carers when contemplating the future—when they are unable to care in the short term or long term if they die or can no longer manage. Themes included the following: the impact of age, health conditions and relationships on future planning; anxiety about future care; carers’ ambivalence and challenges in broaching the subject; interventions that might help older carers talk about and plan for the future of those they care for.ConclusionsServices need to be open to talking about this difficult topic. Our findings suggest that frank discussions about when older carers cannot care and having plans in place, whether these are financial or address other practical issues, makes it easier for all concerned. However, this issue is not easily broached and its timing and ways to access this support must be carefully and individually gauged. Future research with more diverse demographic groups is needed to improve understanding of these carers’ perspectives. Research is also needed to develop interventions to support older carers to talk about and plan for the future.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 362-362
Author(s):  
Victoria Raveis ◽  
Anita Nirenberg ◽  
Yumeng Liu ◽  
Simona Kwon

Abstract Breast cancer treatment advances have lengthened the survivorship period. Limited attention has focused on the myriad issues breast cancer survivors experience related to their cancer and other health conditions as they age. Focus groups, conducted Fall 2019 – Spring 2020 with a diverse sample of breast cancer survivors from the New York metropolitan region (N=28) explored survivors’ healthcare encounters and goals, quality of life, survivorship lifestyle, other health conditions and risks, e.g. emergence of COVID-19. Participants were 40-82 years old (57% were 56 or older); racially diverse (57% White, 18% Black, 14% Hispanic, 11% Bi-racial); 32% were married/partnered and 57% were parents. Mean diagnosis age was 51. Treatments received included lumpectomy (64%), chemotherapy (57%), radiation (46%), hormonal therapy (39%), and single/bilateral mastectomy (36%). Survivors expressed the importance of restoring normality in their life and the necessity to be pro-active in ensuring their health issues were addressed in medical encounters. Person-centered care and clinician engagement was valued, but not routinely experienced. Survivors evaluated treatment options not just on being cancer-free, but on how it would impact their whole life. They expressed concerns about the future and anxiety over long-term survival. Long term survivors, recipients of early experimental and/or extensive treatments, worried about an emergence of long-delayed adverse health consequences and complications managing other health issues in the future, particularly as they grew older. COVID-19 raised additional health concerns, particularly among those with high risk health conditions due to prior cancer treatments; various self-mandated protective activities were integrated into their self-care practices.


Sign in / Sign up

Export Citation Format

Share Document