scholarly journals Burden in Family Caregivers of Cancer Patients: The Association with Depression, Religiosity and Religious Coping

2019 ◽  
Vol 4 (4) ◽  
pp. 171-182
Author(s):  
Shim Vun Kong ◽  
Ng Chong Guan
Keyword(s):  
Multivariate Analysis ◽  
Religious Coping ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Healthcare Providers ◽  
Tertiary Hospital ◽  
Sociodemographic Factors ◽  
Local Data ◽  
Cancer Caregiving

Introduction: Cancer caregiving is challenging and often associated with significant burden in family caregivers. Yet, the healthcare providers often overlook the needs of the caregivers. Local data on cancer caregiving is still lacking. In line with the increasing cancer cases worldwide, there is a need to examine factors influencing the caregiver burden, and to find ways to improve the quality of life of the caregivers. Objectives: The study aimed to determine the caregiver burden rate among the local family caregivers of cancer patients, and to examine the associations between the caregiver burden and their sociodemographic factors, clinical factors, levels of depression, religiosity, and religious coping patterns. Methods: 127 family caregivers of cancer patients in a government tertiary hospital in Sarawak, Malaysia were recruited cross-sectionally using non-random sampling method. The associations between the variables were examined through bivariate analyses (Chi-Square test), followed by multivariate analysis to determine the factor(s) that were significantly associated with the caregiver burden. Results: The caregiver burden rate among local cancer caregivers was 55.6%. Two factors remained significant after adjusted in multivariate analysis. Caregivers who were the offspring of cancer patients experienced significantly fewer burden than non-offspring caregivers (OR 0.41, CI 0.18 – 0.94, p = 0.035). Also, the caregiver depression was significantly associated with the caregiver burden (OR 4.26, CI 1.87 – 9.72, p = 0.001). There were no significant associations found between the religiosity and religious coping with the caregiver burden on multivariate level. Conclusion: Caregiver burden is common among family caregivers of cancer patients. Caregivers who are the children or grandchildren of cancer patients are less likely to experience caregiver burden, whereas caregivers who have probable depression are more likely to experience caregiver burden. Future studies should assess the effects of specific intervention strategies in helping these caregivers.

Protective preparation: a process central to family caregivers of persons with mild cognitive impairment

2017 ◽  
Vol 30 (3) ◽  
pp. 375-384 ◽  
Author(s):  
Ching-Lin Wang ◽  
Li-Min Kuo ◽  
Yi-Chen Chiu ◽  
Hsiu-Li Huang ◽  
Huei-Ling Huang ◽  
...  
Keyword(s):  
Cognitive Impairment ◽  
Mild Cognitive Impairment ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiving ◽  
Healthcare Providers ◽  
Theory Approach ◽  
Face To Face ◽  
The Family ◽  
The Impact

ABSTRACTBackground:To develop a theoretical model explaining the longitudinal changes in the caregiving process for family caregivers of persons with mild cognitive impairment (MCI) in Taiwan.Methods:A longitudinal, grounded theory approach using in-depth face-to-face interviews and an open-ended interview guide. We conducted 42 interviews over a two-year period; each participant was interviewed at least once every six months. All participants were interviewed in their home. The participants total of 13 family caregivers of persons with MCI.Results:One core theme emerged: “protective preparation.” This reflected the family caregiving process of preparation for a further decline in cognitive function, and protection from the impact of low self-esteem, accidents, and symptoms of comorbidities for the family member with MCI. Protective preparation contained three components: ambivalent normalization, vigilant preparation, and protective management.Conclusions:Interventions to help family caregivers manage the changes in persons with MCI can reduce caregiver burden. Our findings could provide a knowledge base for use by healthcare providers to develop and implement strategies to reduce caregiver burden for family caregivers of persons with MCI.

Modifiable factors associated with caregiver burden among family caregivers of terminally ill Korean cancer patients

2014 ◽  
Vol 22 (5) ◽  
pp. 1243-1250 ◽  
Author(s):  
Seok-Joon Yoon ◽  
Jong-Sung Kim ◽  
Jin-Gyu Jung ◽  
Sung-Soo Kim ◽  
Samyong Kim
Keyword(s):  
Cancer Patients ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Terminally Ill ◽  
Factors Associated ◽  
Modifiable Factors

scholarly journals Caregiver burden among family caregivers of incurable cancer patients in two eastern Mediterranean countries

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Samy A. Alsirafy ◽  
Radfan Nagy ◽  
Amneh D. Hassan ◽  
Radwa Fawzy ◽  
Ahmad A. M. Abdelhafeez ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Eastern Mediterranean ◽  
Treatment Plan ◽  
Performance Status ◽  
Incurable Cancer ◽  
Mediterranean Countries ◽  
Late Loss ◽  
Basic Adls

Abstract Background Although family caregivers (FCs) play an important role in the care provided to incurable cancer patients in our region, little is known about the burden they experience. This study was conducted to determine the prevalence of caregiver burden (CB) among FCs of incurable cancer patients in two Eastern Mediterranean countries and to identify factors that may be associated with significant CB. Methods The study included 218 FCs, 165 from Egypt and 53 from Saudi Arabia. The 22-item Zarit Burden Interview (ZBI-22) was used to assess caregiver burden CB. Significant CB was defined as a ZBI-22 score ≥ 21. The assistance with basic ADLs was classified into 3 levels according to FCs’ assistance with early/middle/late-loss basic ADLs. The relationship between CB and the assistance with ADLs and other factors was studied. Results The mean (SD) ZBI-22 score among FCs was 23.4 (9.3) and the majority (128/218, 59%) had significant CB. Eighty-nine percent of FCs assisted with at least one basic ADL. Assistance with late-loss basic ADLs, best supportive care treatment plan and poorer performance status were associated with higher CB (p < 0.0001, =0.018 and = 0.005). However, in logistic regression analysis, only assistance with late-loss ADLs was independently associated with significant CB (OR = 3.4 [95%CI:1.2–9.7], p = 0.024). Conclusion A substantial proportion of FCs of incurable cancer patients in our region experience significant CB. Family caregivers assisting with late-loss basic ADLs are at risk of significant CB and should be routinely screened for CB.

scholarly journals Impact of Culture and Religion on End-of-Life Decisions Among Advanced Cancer Patients in Developing Countries

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 244-244
Author(s):  
Justina Yevu Johnson ◽  
Lori Popejoy
Keyword(s):  
Decision Making ◽  
Developing Countries ◽  
End Of Life ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Healthcare Providers ◽  
Advanced Cancer Patients ◽  
End Of Life Decisions ◽  
Primary Family

Abstract Palliative care and end of life decisions are important components of quality care at the end-of-life. Individual’s perception of cancer diagnosis is affected by their customs and traditions, religious orientations and stigma. Culture and religion as a social determinant of health affects people’s interpretation of health and illness and is a major factor in deciding the type of care at end of life and death. The purpose of the review was to identify factors related to culture and/or religion that impact decision making at end of life among advanced cancer patients their primary family caregivers and healthcare providers. An extensive literature search was conducted in Psych Info, PubMed, Philosophy Index, Atlas Religion, and Academic Search Premier databases for primary studies on the topic. Primary studies conducted only in developing countries and among healthcare providers, advanced cancer patients and their primary family caregivers were included. Five studies met the inclusion criteria: two primary studies, one methodological paper, and two on perspectives. The studies reported economic status of the patient, family, culture, and religious beliefs as factors that affected decision making at the end of life. Improving cancer care in developing countries requires the accommodation of the culture, traditions, and religious beliefs of both healthcare providers, patients and family. Culturally appropriate care model is therefore needed to enhance palliative and end of life care in developing countries. Leininger’s Cultural Care Theory seem an appropriate path to take.

scholarly journals Psychometric Properties of the Family Inventory of Resources for Management in a Sample of Iranian Family Caregivers of Cancer Patients

2016 ◽  
Vol 2016 ◽  
pp. 1-5
Author(s):  
Seyed Reza Mirsoleymani ◽  
Camelia Rohani ◽  
Mahsa Matbouei ◽  
Malihe Nasiri ◽  
Parvaneh Vasli
Keyword(s):  
Psychometric Properties ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Internal Consistency ◽  
Convergent Validity ◽  
Convenience Sample ◽  
Significant Difference ◽  
The Family ◽  
Good Internal Consistency

Objective. The aim of this study was to investigate the psychometric properties of the Family Inventory of Resources for Management (FIRM) in a sample of family caregivers of cancer patients. Methods. In this methodological study, construct validity of the FIRM was evaluated by known groups and convergent validity in a convenience sample of family caregivers of cancer patients (n=104) referred to the outpatient oncology wards of five educational hospitals in Tehran from January to April 2016. Reliability was determined by assessing the internal consistency and stability of the instrument. Results. The known-groups findings showed that there is a significant difference between the scores of the FIRM in family caregivers with different levels of caregiver burden (p<0.001). Also, the results of convergent validity showed that there is a moderate negative correlation (r=-0.50; p<0.001) between the total scores of the FIRM and the scores of the caregiver burden inventory (CBI). The FIRM showed a good internal consistency (α=0.85) and a good stability of the test-retest reliability result. Conclusions. There is a sound psychometric basis for the use of the Persian translation of the FIRM for family studies in the Iranian population.

scholarly journals Acceptance and commitment therapy for fatigue interference in advanced gastrointestinal cancer and caregiver burden: protocol of a pilot randomized controlled trial

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Catherine E. Mosher ◽  
Ekin Secinti ◽  
Kurt Kroenke ◽  
Paul R. Helft ◽  
Anita A. Turk ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Family Caregivers ◽  
Acceptance And Commitment Therapy ◽  
Caregiver Burden ◽  
Pilot Trial ◽  
Mental Health Service Use ◽  
Link Type ◽  
Commitment Therapy ◽  
Gi Cancer ◽  
Acceptance And Commitment

Abstract Background Fatigue interference with activities, mood, and cognition is one of the most prevalent and bothersome concerns of advanced gastrointestinal (GI) cancer patients. As fatigue interferes with patient functioning, family caregivers often report feeling burdened by increasing responsibilities. Evidence-based interventions jointly addressing cancer patient fatigue interference and caregiver burden are lacking. In pilot studies, acceptance and commitment therapy (ACT) has shown promise for addressing symptom-related suffering in cancer patients. The current pilot trial seeks to test a novel, dyadic ACT intervention for both advanced GI cancer patients with moderate-to-severe fatigue interference and their family caregivers with significant caregiving burden or distress. Methods A minimum of 40 patient-caregiver dyads will be randomly assigned to either the ACT intervention or an education/support control condition. Dyads in both conditions attend six weekly 50-min telephone sessions. Outcomes are assessed at baseline as well as 2 weeks and 3 months post-intervention. We will evaluate the feasibility, acceptability, and preliminary efficacy of ACT for improving patient fatigue interference and caregiver burden. Secondary outcomes include patient sleep interference and patient and caregiver engagement in daily activities, psychological flexibility, and quality of life. We will also explore the effects of ACT on patient and caregiver physical and mental health service use. Discussion Findings will inform a large-scale trial of intervention efficacy. Results will also lay the groundwork for further novel applications of ACT to symptom interference with functioning and caregiver burden in advanced cancer. Trial Registration ClinicalTrials.gov, NCT04010227. Registered 8 July 2019.

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