scholarly journals Illness Perceptions of COVID-19 in Europe: Predictors, Impacts and Temporal Evolution

2021 ◽  
Vol 12 ◽  
Author(s):  
David Dias Neto ◽  
Ana Nunes da Silva ◽  
Magda Sofia Roberto ◽  
Jelena Lubenko ◽  
Marios Constantinou ◽  
...  

Objective: Illness perceptions (IP) are important predictors of emotional and behavioral responses in many diseases. The current study aims to investigate the COVID-19-related IP throughout Europe. The specific goals are to understand the temporal development, identify predictors (within demographics and contact with COVID-19) and examine the impacts of IP on perceived stress and preventive behaviors.Methods: This was a time-series-cross-section study of 7,032 participants from 16 European countries using multilevel modeling from April to June 2020. IP were measured with the Brief Illness Perception Questionnaire. Temporal patterns were observed considering the date of participation and the date recoded to account the epidemiological evolution of each country. The outcomes considered were perceived stress and COVID-19 preventive behaviors.Results: There were significant trends, over time, for several IP, suggesting a small decrease in negativity in the perception of COVID-19 in the community. Age, gender, and education level related to some, but not all, IP. Considering the self-regulation model, perceptions consistently predicted general stress and were less consistently related to preventive behaviors. Country showed no effect in the predictive model, suggesting that national differences may have little relevance for IP, in this context.Conclusion: The present study provides a comprehensive picture of COVID-19 IP in Europe in an early stage of the pandemic. The results shed light on the process of IP formation with implications for health-related outcomes and their evolution.

2011 ◽  
Vol 21 (11) ◽  
pp. 1495-1507 ◽  
Author(s):  
A. Rani Elwy ◽  
James Yeh ◽  
Jason Worcester ◽  
Susan V. Eisen

Many people with depression recognize their symptoms as depression, but fail to seek treatment for a number of years. We aimed to explore the reasons for this. Thirty primary care patients who screened positive for depression participated in semistructured, face-to-face interviews. Transcripts were analyzed using grounded thematic analysis. Patients who sought depression treatment emphasized their understanding of depression, their belief that treatment would work, and the negative consequences that would ensue if they did not seek treatment. Patients who did not seek treatment emphasized that treatment would not be effective, thought that depression would not last very long, and believed that depression did not affect their everyday lives. Patients’ illness perceptions of depression were represented by and organized using the framework of the Self-Regulation Model of Illness Behavior. This model might be useful for planning patient activation intervention studies to increase the uptake of depression treatment in primary care.


BMJ Open ◽  
2021 ◽  
Vol 11 (2) ◽  
pp. e042298
Author(s):  
Jia Hwei Ng ◽  
Jaclyn Vialet ◽  
Michael A Diefenbach

IntroductionPatient education is a crucial component in the management of chronic kidney disease (CKD); however, many education programmes do not tailor to patients’ disease-related belief and emotional reactions. According to Leventhal’s self-regulation model, such beliefs and reactions, known as illness perceptions, are a part of patients’ understanding of their disease and treatment-related actions. The existing research of illness perception in the field of nephrology has been heterogenous in terms of study outcomes and in study population; and the evidence of how illness perceptions affect behavioural and decisional outcomes is limited. This scoping review aims to map and summarise the evidence of published literature on illness perception among patients with CKD not yet treated by dialysis and kidney failure.Methods and analysisThis study bases its approach on Joanna Brigg’s Institute Guidelines on scoping review methods. The search strategy was developed together with a medical information specialist. Searches will be performed on acceptance of publication in the following databases: PubMed, EMBASE, PsycINFO via Ovid, Scopus and the Cumulative Index to Nursing and Allied Health Literature. Searches will be run without incorporating a date restriction in order to capture content from the databases’ inception to present day. Search terms including ‘illness perception’, ‘kidney disease’ and ‘kidney failure’ will be screened in titles and abstracts. Two independent researchers will screen the abstracts and full text for full eligibility. We will include studies focusing on illness perception of patients with CKD with estimated glomerular filtration rate <60 mL/min/1.73 m2, kidney failure or recipients of kidney transplant. We will exclude patients <18 years of age, patients with acute kidney injury and non-English articles. All demographic data, study design and study findings will be collected and analysed using a data abstraction tool.Ethics and disseminationThis study does not require internal review board approval. We will present the findings of this scoping review in a peer-reviewed journal.


2021 ◽  
Author(s):  
Qiqi Zhang ◽  
Wenzhe Zhou ◽  
Di Song ◽  
Yanqian Xie ◽  
Hao Lin ◽  
...  

Abstract Purpose: To explore the predictive effect of illness perceptions on vision-related quality of life (VRQoL) in Chinese glaucoma patients.Methods: In this cross-sectional study, 97 patients with glaucoma completed the Brief Illness Perception Questionnaire (BIPQ), the Glaucoma Quality of Life-15 (GQL-15), and a questionnaire with sociodemographic and clinical information. Correlation analysis and hierarchical linear regression analysis were performed.Results: The BIPQ total score was positively correlated with the scores of the total GQL-15 and its four dimensions. Chronic comorbidities, type of glaucoma, best-corrected visual acuity (BCVA), mean defect (MD) of visual field in the better eye, and identity in the BIPQ were the critical predictors of VRQoL. Illness perceptions independently accounted for 7.8% of the variance in the VRQoL of glaucoma patients.Conclusions: Patients with stronger illness perceptions who perceive themselves as having more glaucoma symptoms are likely to experience worse VRQoL. Illness perceptions in glaucoma patients deserve clinical attention, and further studies are needed to examine whether cognitive interventions targeting illness perceptions can improve VRQoL.


2017 ◽  
Vol 79 (2) ◽  
pp. 115-131 ◽  
Author(s):  
Sevgi Nehir ◽  
Nurgül Güngör Tavşanli ◽  
Çiğdem Özdemir ◽  
Tuğba Akyol

This study was performed with the objective of determining hopelessness and perception of illness in cancer patients. This was a descriptive and regressional study. The study was performed between January and June 2014 on 105 outpatients at the oncology clinic of Manisa Government Hospital in Turkey’s western. A patient information form, the Beck Hopelessness Scale, and the illness perception questionnaire were used to collect data, and data analysis was performed using the program Statistical Package for Social Sciences 15.0. Percentages, t test, Kruskal–Wallis, one-way analysis of variance, and Pearson correlation were used in the evaluation of research data. The hopelessness levels of cancer patients participating in the study were at a medium level. As patients’ scores on the hopelessness scale and its subscales increase, so their illness perception scores also increase. The hopelessness levels of patients whose illness perception was good were lower; that is, as patients’ hopelessness levels fell, their illness perceptions and view of their illness were affected in a positive way.


Author(s):  
Rieneke T. Lugtenberg ◽  
◽  
Stefanie de Groot ◽  
Ad A. Kaptein ◽  
Maarten J. Fischer ◽  
...  

Abstract Purpose In the phase II DIRECT study a fasting mimicking diet (FMD) improved the clinical response to neoadjuvant chemotherapy as compared to a regular diet. Quality of Life (QoL) and illness perceptions regarding the possible side effects of chemotherapy and the FMD were secondary outcomes of the trial. Methods 131 patients with HER2-negative stage II/III breast cancer were recruited, of whom 129 were randomly assigned (1:1) to receive either a fasting mimicking diet (FMD) or their regular diet for 3 days prior to and the day of neoadjuvant chemotherapy. The European Organisation for Research and Treatment of Cancer (EORTC) questionnaires EORTC-QLQ-C30 and EORTC-QLQ-BR23; the Brief Illness Perception Questionnaire (BIPQ) and the Distress Thermometer were used to assess these outcomes at baseline, halfway chemotherapy, before the last cycle of chemotherapy and 6 months after surgery. Results Overall QoL and distress scores declined during treatment in both arms and returned to baseline values 6 months after surgery. However, patients’ perceptions differed slightly over time. In particular, patients receiving the FMD were less concerned and had better understanding of the possible adverse effects of their treatment in comparison with patients on a regular diet. Per-protocol analyses yielded better emotional, physical, role, cognitive and social functioning scores as well as lower fatigue, nausea and insomnia symptom scores for patients adherent to the FMD in comparison with non-adherent patients and patients on their regular diet. Conclusions FMD as an adjunct to neoadjuvant chemotherapy appears to improve certain QoL and illness perception domains in patients with HER2-negative breast cancer. Trialregister ClinicalTrials.gov Identifier: NCT02126449.


Stroke ◽  
2021 ◽  
Vol 52 (Suppl_1) ◽  
Author(s):  
Rondalyn Dickens ◽  
Tirisham Gyang ◽  
Sadie B Sanders ◽  
Alexis N Simpkins ◽  

Introduction: Patient centered research in stroke health care disparities is needed. Due to a call for the development of theory-based interventions for the reduction of stroke through behavior change, there have been new studies looking at the perception of an individual’s risk of stroke to create prevention models from those results. Leventhal’s Common Sense Model of Self-Regulation posits that individuals form beliefs about their illness and treatment that determines how they cope and their health behaviors in the future. The Illness Perceptions Questionnaire-Revised (IPQ-R) and Brief Illness Perceptions Questionnaire (BIPQ) are validated measures of these illness beliefs. Methods: A literature review was conducted with the following search criteria: (“illness perception” OR “illness belief”) AND (“stroke” OR “TIA” OR “transient ischemic attack” OR “cerebrovascular event” OR “cerebrovascular accident” OR “CVA”). MEDLINE, WorldCat, PubMed, George Smathers Library, and Google Scholar Database were searched. Systematic reviews and meta-analyses were excluded. Results: The initial results had 452 articles and 21 were chosen for data analysis. These articles were grouped into four categories: IPQ-R, IPQ-R & Medication Adherence, BIPQ, and BIPQ & Medication Adherence. Patients were most concerned about having another stroke and their symptoms becoming chronic. Medication beliefs are a stronger predictor of treatment adherence. Lastly, patients with stronger illness identity, causal beliefs, negative consequences, and lower coherence leads to greater distress in patients and caregivers. Conclusions: These results demonstrate that patients overall have concerns about their treatments, chronicity of stroke symptoms, and recurrence, and these concerns may not be effectively addressed during the routine clinic care demonstrated by effects on treatment adherence and patient and caregiver distress. Thus, patient perceptions questionnaires may be in particular a useful tool for health care disparities research in stroke.


2017 ◽  
Vol 23 (3) ◽  
pp. 365-380 ◽  
Author(s):  
Annamária Szentes ◽  
Gyöngyi Kökönyei ◽  
Andrea Békési ◽  
Ildikó Bokrétás ◽  
Szabolcs Török

Background: The purpose of this study was to explore the differences in illness perception between children with cancer and other chronic diseases. A secondary aim was to examine the similarities and differences between the illness perception of these children and their parents. Methods: The Revised Illness Perception Questionnaire (IPQ-R) was used to measure the children’s and parents’ illness perceptions. In this study, 184 children (ages 8–18 years) and their caregivers completed the questionnaires. Results: This study shows that children with cancer feel that they have greater control over their treatment compared to the other two groups. The children’s parents have more pessimistic views of the illness than their children. Conclusion: Examinations of illness perceptions among paediatric cancer patients and their families are essential in designing psychosocial interventions for these families. The clinical value of our results can help better understand the cancer-specific features of illness perceptions.


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