scholarly journals Adherence to Therapy, Physical and Mental Quality of Life in Patients with Multiple Sclerosis

2021 ◽  
Vol 11 (7) ◽  
pp. 672
Author(s):  
Alessandra Buja ◽  
Guendalina Graffigna ◽  
Simona F. Mafrici ◽  
Tatjana Baldovin ◽  
Carlo Pinato ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Behavioral Interventions ◽  
Positive Association ◽  
Cross Sectional Study ◽  
Health Index ◽  
Online Questionnaire ◽  
Cross Sectional ◽  
Adherence To Therapy

Ensuring multiple sclerosis (MS) patients’ adherence to therapy is often challenging, but it is crucial to their survival and health-related quality of life (HRQoL). The aim of the present study was to outline connections between adherence, physical and mental HRQoL, levels of psychological readiness to engage in a treatment, levels of social support, anthropometric, socio-demographic and clinical factors in patients suffering from MS. This cross-sectional study involved a sample of 237 Italian MS patients. A survey was conducted with a structured self-administered online questionnaire using validated measures of quality of life, adherence to therapy and anthropometric, socio-demographic, psychological and clinical variables. A path analysis was used to test the overall structure of the associations between the variables. The pathway indicates a positive association between mental health index and a stronger degree of engagement and being or having been in a long-term relationship. Physical health index was positively associated with age, having an occupation, and having a specific form of MS. Having had relapses in the previous year raised the odds of better adherence to therapy, while an increase in Body Mass Index (BMI) reduced them. Our findings could help in the management of MS patients, promoting behavioral interventions that take the psychological and socio-demographic peculiarities of each patient into account with a view to improving their adherence to therapy.

scholarly journals Quality of life in multiple sclerosis: The differential impact of motor and cognitive fatigue

2021 ◽  
Vol 7 (1) ◽  
pp. 205521732199604
Author(s):  
Sabina David Ruban ◽  
Claudia Christina Hilt ◽  
Thor Petersen
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Short Form ◽  
Cross Sectional Study ◽  
University Hospital ◽  
Cognitive Fatigue ◽  
Cross Sectional ◽  
Impact Scale ◽  
Assessment And Treatment

Background Multiple sclerosis is a chronic disease leading to reduced quality of life. Objectives To investigate whether motor and cognitive fatigue impact differently on aspects of quality of life among patients with multiple sclerosis, independently from bodily disability. Methods 79 patients with multiple sclerosis from Aalborg University Hospital, Denmark were included in an observational, cross-sectional study. Each subject completed two separate questionnaires regarding fatigue (Fatigue Scale for Motor and Cognitive Functions and Modified Fatigue Impact Scale) and one regarding quality of life (Short Form 36). Disability was measured with the Expanded Disability Status Scale (EDSS)-scores obtained from patient records. Results All fatigue scores were significantly correlated to all areas of quality of life (p < 0,05). This remained significant after adjustment for age, disease duration and EDSS-score. When looking at each type of fatigue separately, cognitive fatigue correlated mainly with mental health aspects of quality of life and motor fatigue with physical health areas of quality of life. Conclusion Increased motor and cognitive fatigue lead to a differential reduction in physical and mental quality of life, independently of bodily disability. This underlines the importance of proper assessment and treatment of fatigue among patients with multiple sclerosis.

Quality of life in multiple sclerosis patients in Spain

2002 ◽  
Vol 8 (6) ◽  
pp. 527-531 ◽  
Author(s):  
C-H Chang ◽  
D Cella ◽  
O Fernández ◽  
G Luque ◽  
P de Castro ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Well Being ◽  
Cross Sectional Study ◽  
Self Report ◽  
Regression Analyses ◽  
Cross Sectional ◽  
Scale Scores ◽  
Multiple Sclerosis Patients

Objective: The cross-sectional study evaluated the psychometric properties of the Functional Assessment of Multiple Sclerosis (FAMS) Spanish version and its use in measuring quality of life (QOL) of multiple sclerosis (MS) patients in Spain. Methods: The FAMS is a factorially derived self-report scale designed to assess six primary aspects of QOL of patients with MS: Mobility, Symptoms, Emotional Well-Being, General Contentment, Thinking and Fatigue, and Family/Social Well-Being. Its Spanish translated version was used to assess QOL of 625 MS patients recruited in an outpatient clinic setting from 58 hospitals in Spain. Internal consistency of the Spanish FAMS was evaluated. Multiple regression analyses were performed to identify significant predictors from demographic, clinical and treatment characteristics, and Kurtzke Expanded Disability Status Scale (EDSS) scores in predicting FAMS scale scores. Results: Most of the patients are females (66%), and 74% were of the relapsing-remitting (RR) clinical subtype. Cronbach’s alpha coefficients were high (range=0.78-0.96), indicating subscale homogeneity comparable to that of the original English version. Linear multivariate regression analyses revealed that the EDSS is a dominant variable in predicting all the FAMS subscales, especially mobility (R2=0.51) and the total scores. Conclusions: The Spanish FAMS is a psychometrically valid instrument that allows clinicians and clinical researchers the ability to measure the QOL concerns of MS patients in Spain.

scholarly journals Association between sexuality and quality of life in older adults

2021 ◽  
Vol 55 ◽  
Author(s):  
Edison Vitório de Souza Júnior ◽  
Diego Pires Cruz ◽  
Cristiane dos Santos Silva ◽  
Randson Souza Rosa ◽  
Gabriele da Silva Santos ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Educational Interventions ◽  
Cross Sectional Study ◽  
Northeastern Brazil ◽  
Online Questionnaire ◽  
Cross Sectional ◽  
Training Development ◽  
Regression Tests

ABSTRACT Objective: To analyze the association between the experiences of sexuality and quality of life in older adults. Method: Cross-sectional study developed with a total of 300 older adults living in northeastern Brazil. Data collection was carried out entirely online between August and October 2020. Participants completed the online questionnaire containing three instruments for assessing bio sociodemographic data, sexuality and quality of life. Data analysis was performed using the Mann-Whitney, Kruskal-Wallis, Spearman correlation and multivariate linear regression tests, adopting a 95% confidence interval (p < 0.05). Results: Older adults experience better affective relationships and have better quality of life in sensory abilities and intimacy. In the regression analysis, only affective relationships (β = 0.510; [95% CI: 0.340–0.682]; p < 0.001) and physical and social adversities (β = −0.180; [95% CI:−1.443–0.434]; p < 0.001) remained associated with the general quality of life of older adults. Conclusion: Health professionals must invest in training, development of individual and group educational interventions, in addition to promoting the strengthening of bonds between older adults so that they feel free and comfort in expressing their intimate needs.

scholarly journals Is the Concept of Quality of Life Relevant for Multiple Sclerosis Patients with Cognitive Impairment? Preliminary Results of a Cross-Sectional Study

PLoS ONE ◽  
2012 ◽  
Vol 7 (1) ◽  
pp. e30627 ◽  
Author(s):  
Karine Baumstarck ◽  
Jean Pelletier ◽  
Valérie Aghababian ◽  
Françoise Reuter ◽  
Irina Klemina ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Cognitive Impairment ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Preliminary Results ◽  
Multiple Sclerosis Patients

scholarly journals Associations between Activity Pacing, Fatigue, and Physical Activity in Adults with Multiple Sclerosis: A Cross Sectional Study

2020 ◽  
Vol 5 (2) ◽  
pp. 43 ◽  
Author(s):  
Ulric S. Abonie ◽  
Femke Hoekstra ◽  
Bregje L. Seves ◽  
Lucas H. V. van der Woude ◽  
Rienk Dekker ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Multiple Sclerosis ◽  
Perceived Risk ◽  
Cross Sectional Study ◽  
Health Related Quality ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related

Fatigue is common in people with multiple sclerosis (MS). Activity pacing is a behavioral way to cope with fatigue and limited energy resources. However, little is known about how people with MS naturally pace activities to manage their fatigue and optimize daily activities. This study explored how activity pacing relates to fatigue and physical activity in people with MS. Participants were 80 individuals (60 females, 20 males) with a diagnosis of MS. The participants filled in questionnaires on their activity pacing, fatigue, physical activity, and health-related quality of life, 3–6 weeks before discharge from rehabilitation. The relationships between the variables were examined using hierarchical regression. After controlling for demographics, health-related quality of life, and perceived risk of overactivity, no associations were found between activity pacing and fatigue (β = 0.20; t = 1.43, p = 0.16) or between activity pacing and physical activity (β = −0.24; t = −1.61, p = 0.12). The lack of significant associations between activity pacing and fatigue or physical activity suggests that without interventions, there appears to be no clear strategy amongst people with MS to manage fatigue and improve physical activity. People with MS may benefit from interventions to manage fatigue and optimize engagement in physical activity.

scholarly journals Women’s Quality of Life at 6 Weeks Postpartum: Influence of the Discomfort Present in the Puerperium

2019 ◽  
Vol 16 (2) ◽  
pp. 253 ◽  
Author(s):  
Juan Martínez-Galiano ◽  
Antonio Hernández-Martínez ◽  
Julián Rodríguez-Almagro ◽  
Miguel Delgado-Rodríguez ◽  
Ana Rubio-Alvarez ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Ad Hoc ◽  
Cross Sectional Study ◽  
Postnatal Period ◽  
Study Data ◽  
Mean Difference ◽  
Postpartum Woman ◽  
Online Questionnaire ◽  
Cross Sectional

Background: Discomfort during the puerperium period is very frequent in the lives of women but the influence of this discomfort on the women’s quality of life has been little studied. The objective of this study is to establish the association between discomfort and frequent problems of women in the puerperium and their quality of life score. Methods: A cross-sectional study on postpartum Spanish women was performed. Women older than 18 years and who had had a live birth were included. Less than 1% of women refused to participate in the study. Data were collected on socio-demographic, obstetric and newborn variables, on maternal problems/ discomfort in the postnatal period and on parameters that are quality of life indicators. An ad hoc online questionnaire which included the SF-36 Health Survey was used. Crude mean difference (cMD) and adjusted mean difference (aMD) were calculated through multiple linear regression. Results: 2990 women participated in the study. The greater problems causing quality of life loss were depressive symptoms (aMD = −12.40, CI 95%: −10.79, −14.01), lactation problems (aMD = −4.30, CI 95%: −2.97, −5.63), problems for sexual intercourse after childbirth (aMD = −6.34, CI 95%: −5.07, −7.60) and urinary incontinence (aMD = −4.97, CI 95%: −6.30, −3.65), among others. These have been detected as risk factors that affect the quality of life of the postpartum woman. Conclusions: The discomfort and problems manifested in the 6 weeks after childbirth have an influence that deeply affects the quality of life of postpartum women.

scholarly journals Depression and quality of life in mothers of children with pervasive developmental disorders

2010 ◽  
Vol 18 (1) ◽  
pp. 33-40 ◽  
Author(s):  
Maria Ângela Fávero-Nunes ◽  
Manoel Antônio dos Santos
Keyword(s):  
Quality Of Life ◽  
Pervasive Developmental Disorders ◽  
Developmental Disorders ◽  
Family Income ◽  
Positive Association ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Demographic Profile ◽  
Quality Of Life Scale

The aim of this study was to evaluate the prevalence of dysphoria/depressive symptoms in mothers of autistic children and to identify correlations between quality of life and socio-demographic profile. An exploratory, descriptive and cross-sectional study was carried out, involving 20 mothers, by applying a socio-demographic profile questionnaire, the Brazilian version of the Beck Depression Inventory (BDI) and the WHOQOL-Bref quality of life scale. Dysphoria/depression criteria were found in 15% of the mothers. Overall quality of life was evaluated as positive in 70%, however only 40% were satisfied with their health. The Physical domain (mean=69.4) was perceived as the best, and environment domain as the worst (mean=60.8). Quality of life had a positive association with family income and level of education, and a negative association with depression. Considering the results, further research, especially on those variables that were not statistically relevant, is suggested.

scholarly journals Association between quality of life and severity of menopausal symptoms among Saudi women in Al-Ahsa

2021 ◽  
Vol 11 (12) ◽  
pp. 82
Author(s):  
Ola Mousa ◽  
Fatemah M. Alkhars ◽  
Mashael T. Al Shawaf ◽  
Enas A. Al Omran ◽  
Rawan A. Alkhawajah ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Rating Scale ◽  
Negative Impact ◽  
Positive Association ◽  
Cross Sectional Study ◽  
Menopausal Symptoms ◽  
Reproductive Age ◽  
Cross Sectional ◽  
Saudi Women

Background and objective: Menopause is not an illness. It is a normal physiologic process at the time that marks the end of the menstrual cycles. The severity, frequency, duration, and impact of these menopausal symptoms vary from woman to woman according to their age, and they affect the overall quality of life. The aim of this study is to verify the severity of menopausal symptoms experienced by Saudi women in Al Ahsa, and to identify the association between the severity of menopausal symptoms and their effects on the quality of life of Saudi women.Methods: An analytical cross- sectional study involved 427 women aged 45-60 years old. They were randomly collected by researchers who interviewed them in outpatient clinics and obstetrics and gynecology wards from 6 hospitals by using the Menopause Rating Scale (MRS) questionnaire and the Menopause Specific Quality of Life (MENQOL) questionnaire between February 15, 2021 and May 15, 2021.Results: The average age of participants was between 45-49. The MRS shows that mild symptoms were found in 47.8% of participants, while severe symptoms were 10.6%. The most common symptoms were physical and somatic. The Menopause Specific Quality of Life shows that 52.2% of the participants suffer from mild bothersome, while 7.5% have extremely bothersome. There was a strong positive association between menopause specific quality of life, and menopausal symptoms.Conclusions: There was a positive correlation between menopausal symptoms and the quality of life of women. Menopausal symptoms have a negative impact on the quality of women's lives. Therefore, the policy makers in the ministry of health could strengthen providing health programmes and health services to women in this age group, besides women in the reproductive age. This can be accomplished by including modules related to the special health needs of menopausal women in the primary center's health programs.

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