scholarly journals Participation of Children with Spina Bifida: A Scoping Review Using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY) as a Reference Framework

Medicina ◽  
2018 ◽  
Vol 54 (3) ◽  
pp. 40 ◽  
Author(s):  
Indrė Bakanienė ◽  
Laura Žiukienė ◽  
Vaida Vasiliauskienė ◽  
Audronė Prasauskienė
Keyword(s):  
Spina Bifida ◽  
Contextual Factors ◽  
Population Based ◽  
International Classification Of Functioning ◽  
Cross Sectional ◽  
Reference Framework ◽  
School Participation ◽  
Scoping Reviews ◽  
Participation Restrictions

Background and objectives. Participation is a fundamental right of the child, regardless of his health status. Assessing and supporting the participation of children with spina bifida (SB) presents a significant challenge for practitioners. The purpose of this study was to examine what is known about the participation of children with SB. Materials and Methods. The framework for scoping reviews from Arksey & O’Malley was used. A literature search in Cumulative Index to Nursing and Allied Health Literature (CINAHL), Medical Literature Analysis and Retrieval System Online (Medline), PsychINFO and the Education Resources Information Centre (ERIC) databases retrieved 136 papers, 10 of which met the criteria for inclusion and were selected for analysis. Synthesis of the results on participation within occupational domains of leisure, school and community, and factors influencing participation of children with SB was performed. Results. All the included studies were non-experimental and used cross-sectional, population-based or qualitative design. Most studies analysed social participation or participation in physical activities, except one that focused on school participation. Data from these studies have shown that children with SB experience greater participation restrictions compared to their typical peers or children with other chronic diseases. The participation was mainly affected by contextual factors. Relationships between pathology and participation were not sufficiently validated. Conclusions. There is little research on the participation of children with SB. Future studies must consider contextual factors and interventions facilitating or impeding participation.

scholarly journals Application of International Classification of Functioning, Disability and Health (ICF) in individuals with spinal cord injury

2011 ◽  
Vol 69 (3) ◽  
pp. 513-518 ◽  
Author(s):  
Janaina Vall ◽  
Carlos Mauricio de Castro Costa ◽  
Laura França Pereira ◽  
Tatiane Temmy Friesen
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Cross Sectional Study ◽  
Social Attitudes ◽  
International Classification ◽  
International Classification Of Functioning ◽  
Cross Sectional ◽  
Cord Injury ◽  
The City

After spinal cord injury is common functionality is affected. OBJECTIVE: To evaluate the functionality of patients with spinal cord injury. METHOD: Cross-sectional study by means of the International Classification of Functionality (ICF). 109 adults with spinal cord injury in the city of Curitiba, Brazil were evaluated. RESULTS: The categories most compromised in body were intestines and bladder, sexuality, energy, sleep, emotion and weight. In the domain activities and participation, there was greater difficulty in tasks of bathing, toilet and dressing, self care and leisure. In the domain environmental factors, the categories classified as facilitators were: medications, orthoses and wheelchair, attitude of family, transport, social foresight and health services. The categories classified as barriers were: attitude of authorities, social attitudes, education and work. CONCLUSION: The application of the ICF in persons with spinal cord injury demonstrated a series of disabilities and limitations.

scholarly journals Marfan syndrome in adolescence: adolescents’ perspectives on (physical) functioning, disability, contextual factors and support needs

2019 ◽  
Vol 178 (12) ◽  
pp. 1883-1892 ◽  
Author(s):  
Jessica Warnink-Kavelaars ◽  
Anita Beelen ◽  
Tine M. H. J. Goedhart ◽  
Lisanne E. de Koning ◽  
Frans Nollet ◽  
...  
Keyword(s):  
Marfan Syndrome ◽  
Physical Functioning ◽  
Contextual Factors ◽  
Children And Youth ◽  
International Classification Of Functioning ◽  
Support Needs ◽  
Disability And Health ◽  
School Sports ◽  
Perceived Impact

Abstract Although essential for providing optimal adolescent patient support, knowledge of the impact of Marfan syndrome in adolescence is limited. To explore adolescents’ perceived impact of Marfan syndrome on (physical) functioning (activities, participation), disability (limitations, restrictions), contextual factors and support needs, we interviewed 19 adolescents with Marfan syndrome. Audio-recordings were transcribed, coded and analysed using thematic analysis. Identified themes were “difficulties in keeping up with peers” and “being and feeling different from peers”. Furthermore, an adolescent Marfan syndrome-specific International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY) model derived from the data describing the adolescent perceived impact of Marfan syndrome on functioning, disability and its contextual factors. Adolescents perceived problems in keeping up with peers in school, sports, leisure and friendships/relationships, and they could not meet work requirements. Moreover, participants perceived to differ from peers due to their appearance and disability. Contextual factors: coping with Marfan syndrome, self-esteem/image, knowledge about Marfan syndrome, support from family/friends/teachers, ability to express needs and peer-group acceptation acted individually as barrier or facilitator for identified themes. Conclusion: Adolescents with Marfan syndrome perceived limitations and restrictions in (physical) functioning. They perceived problems in keeping up with peers and perceived to differ from peers due to their appearance and disability. This warrants awareness and tailored physical, psychosocial, educational and environmental support programmes to improve (physical) functioning and empowerment of adolescents with Marfan syndrome.What is known:• Marfan syndrome is a hereditary connective tissue disorder.• Marfan syndrome affects multiple systems.What is new:• Adolescents with Marfan syndrome perceive (1) problems in keeping up with peers in school, sports, leisure, friendships/relationships and work (2) to differ from peers due to their appearance and disability.• An adolescent Marfan syndrome-specific International Classification of Functioning, Disability and Health for Children and Youth model derived from the data describing the adolescent perceived impact of Marfan syndrome on functioning, disability and contextual factors.

scholarly journals Developing Core Sets for Persons Following Amputation Based on the International Classification of Functioning, Disability and Health as a Way to Specify Functioning

2009 ◽  
Vol 33 (2) ◽  
pp. 117-129 ◽  
Author(s):  
Friedbert Kohler ◽  
Alarcos Cieza ◽  
Gerold Stucki ◽  
Jan Geertzen ◽  
Helena Burger ◽  
...  
Keyword(s):  
Consensus Conference ◽  
International Classification ◽  
World Health ◽  
International Classification Of Functioning ◽  
Functional Impairments ◽  
Disability And Health ◽  
Cross Sectional ◽  
Core Sets ◽  
Icf Core Sets

Amputation is a common late stage sequel of peripheral vascular disease and diabetes or a sequel of accidental trauma, civil unrest and landmines. The functional impairments affect many facets of life including but not limited to: Mobility; activities of daily living; body image and sexuality. Classification, measurement and comparison of the consequences of amputations has been impeded by the limited availability of internationally, multiculturally standardized instruments in the amputee setting. The introduction of the International Classification of Functioning, Disability and Health (ICF) by the World Health Assembly in May 2001 provides a globally accepted framework and classification system to describe, assess and compare function and disability. In order to facilitate the use of the ICF in everyday clinical practice and research, ICF core sets have been developed that focus on specific aspects of function typically associated with a particular disability. The objective of this paper is to outline the development process for the ICF core sets for persons following amputation. The ICF core sets are designed to translate the benefits of the ICF into clinical routine. The ICF core sets will be defined at a Consensus conference which will integrate evidence from preparatory studies, namely: (a) a systematic literature review regarding the outcome measures of clinical trails and observational studies, (b) semi-structured patient interviews, (c) international experts participating in an internet-based survey, and (d) cross-sectional, multi-center studies for clinical applicability. To validate the ICF core sets field-testing will follow.Invitation for participation: The development of ICF Core Sets is an inclusive and open process. Anyone who wishes to actively participate in this process is invited to do so.

scholarly journals The International Classification of Functioning, Disability and Health: a systematic review of observational studies

2014 ◽  
Vol 17 (2) ◽  
pp. 437-451 ◽  
Author(s):  
Luciana Castaneda ◽  
Anke Bergmann ◽  
Ligia Bahia
Keyword(s):  
Systematic Review ◽  
Observational Studies ◽  
Qualitative Methodology ◽  
Epidemiological Studies ◽  
International Classification ◽  
International Classification Of Functioning ◽  
Disability And Health ◽  
Cross Sectional ◽  
Core Set

Objective: To systematically review the use of the International Classification of Functioning, Disability and Health (ICF) in observational studies. Methods: This study is a systematic review of articles that use the ICF in observational studies. We took into account the observational design papers available in databases such as PubMed, Lilacs and SciELO, published in English and Portuguese from January 2001 to June 2011. We excluded those in which the samples did not comprise individuals, those about children and adolescents, and qualitative methodology articles. After reading the abstracts of 265 identified articles, 65 met the inclusion criteria. Of these, 18 were excluded. The STROBE (Strengthening the Reporting of Observational Studies in Epidemiology) adapted Checklist, with 15 items needed for observational studies, was applied to the 47 remaining articles. Any paper that met 12 of these criteria was included in this systematic review. Results: 29 articles were reviewed. Regarding the ICF application methodology, the checklist was used in 31% of the articles, the core set in 31% and the ICF categories in 31%. In the remaining 7%, it was not possible to define the applied methodology. In most papers (41%), qualifiers were used in their original format. As far as the area of knowledge is concerned, most of the studies were related to Rheumatology (24%) and Orthopedics (21%). Regarding the study design, 83% of the articles used cross-sectional studies. Conclusion: Results indicate a wide scientific production related to ICF over the past 10 years. Different areas of knowledge are involved in the debate on the improvement of information on morbidity. However, there are only a few quantitative epidemiological studies involving the use of ICF. Future studies are needed to improve data related to functioning and disability.

scholarly journals Predicting Depression among Jordanian Adults with Disabilities According to the International Classification of Functioning, Disability and Health: A Pilot Study

Disabilities ◽  
2021 ◽  
Vol 1 (4) ◽  
pp. 450-458
Author(s):  
Megan Griffin ◽  
Bria Mitchell-Gillespie ◽  
Hiba Hashim ◽  
Rawan AlHeresh
Keyword(s):  
Pilot Study ◽  
Physical Disability ◽  
International Classification Of Functioning ◽  
Comorbid Condition ◽  
Chi Square ◽  
Cross Sectional ◽  
Prevalence Of Depression ◽  
Patient Health ◽  
Cross Sectional Design

Individuals with disabilities face marginalization in society and are more likely to experience depression compared to the general population. Despite this, the health system in Jordan is not adequately equipped to screen for or manage depression as a comorbid condition. A pilot study using a cross-sectional design was used for this study. Eligible participants were between the ages of 18 and 85, had a physical disability and resided in Jordan. Depression was measured using the Patient Health Questionnaire-9, and risk factors were measured using a sociodemographic survey. Descriptive statistics were used to report on the prevalence of depression and Chi square and Kendall Tau B tests were used to identify relationships between independent variables and depression. The study found that 40.62% of the sample met the criteria for depression. Those who were not married were found to be at higher risk for depression. The analysis also demonstrated that the number of people in a household was positively correlated with depression. This study fills in gaps concerning the prevalence of depression and its correlates among Jordanian adults with a physical disability. Professionals in Jordan, including rehab specialists, have a role in both screening for and preventing depression, and this study acts as a point of reference for these professionals. This pilot study may initiate larger studies to better understand this relationship in Jordan.

scholarly journals The association between individual and contextual factors and functional dentition status among adults in Rio Grande do Sul State, Brazil: a multilevel study

2011 ◽  
Vol 27 (1) ◽  
pp. 173-182 ◽  
Author(s):  
Annie Pozeczek Koltermann ◽  
Jessye Melgarejo do Amaral Giordani ◽  
Marcos Pascoal Pattussi
Keyword(s):  
Urban Areas ◽  
Tooth Loss ◽  
Contextual Factors ◽  
Level Structure ◽  
Total Sample ◽  
Population Based ◽  
Cross Sectional ◽  
Younger Adults ◽  
Population Based Study ◽  
Functional Dentition

Functional dentition plays an important role in maintaining masticatory function, which is closely related to the number of teeth present in the mouth. The objective of this study was to investigate the association between individual and contextual factors and functional dentition (defined as the presence of at least 20 teeth) in Brazilian adults. This was a multilevel cross-sectional population-based study with a two-level structure and a total sample of 10,407 adults from 84 municipalities (counties). The exposures at both levels were demographic, socioeconomic, and oral health treatment-related. Multivariate analyses showed that higher prevalence rates of functional dentition were associated (p < 0.01) with municipalities having higher mean income and fluoridated water supply and with individuals living in urban areas, younger adults, males, those with more schooling and higher income, those that reported having visited the dentist in the previous 12 months, and those with access to information on prevention. The findings suggest that research on tooth loss and functional dentition should take different socioeconomic factors into account.

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