Validating the Support Needs Approach for Patients (SNAP) tool in primary care: a person-centred approach for patients with advanced chronic obstructive pulmonary disease (COPD)

2018 ◽  
Vol 68 (suppl 1) ◽  
pp. bjgp18X697301
Author(s):  
Carole Gardner ◽  
Gail Ewing ◽  
Morag Farquhar
Keyword(s):  
Primary Care ◽  
Health Care Professionals ◽  
Content Validity ◽  
Depression Scale ◽  
Criterion Validity ◽  
Postal Survey ◽  
Face Validity ◽  
Chronic Obstructive ◽  
Support Needs ◽  
The Impact

BackgroundPrimary care is at the forefront of COPD management. A person-centred approach is advocated, yet patients have difficulty in articulating their needs to health care professionals (HCPs). The Support Needs Approach for Patients (SNAP) tool aims to enable patients to identify and express their support needs but its validity is unknown.AimTo establish the face, content and criterion validity of the SNAP tool in advanced COPD.MethodTwo-stage mixed method primary care study involving patients with advanced COPD, and their carers. Stage 1: Face and content validity assessed though focus groups involving patients and carers (n = 12), considering the appropriateness, relevance and completeness of the SNAP tool. Data analysed using thematic analysis within a Framework Approach. Stage 2: Content and criteria validity assessed in a postal survey through patient self-completion of the SNAP tool and disease impact measures (Chronic Respiratory Questionnaire, COPD Assessment Test, and Hospital Anxiety and Depression Scale). Content validity assessed using summary statistics; criterion validity via correlations between tool items and impact measures.ResultsThe SNAP tool has good face, content and criterion validity. Patients and carers found the tool patient-friendly and potentially useful. No items on the tool were redundant, and clear correlations were found between tool items and the majority of items/sub-scales of the impact measures.ConclusionThe SNAP tool has good face validity; content and criteria validity will be reported. It has the potential to facilitate person-centred care by enabling patients to express their support needs to HCPs. Future work will pilot SNAP in clinical practice.

scholarly journals Support Needs Approach for Patients (SNAP) tool: a validation study

BMJ Open ◽  
2019 ◽  
Vol 9 (11) ◽  
pp. e032028
Author(s):  
A Carole Gardener ◽  
Gail Ewing ◽  
Silvia Mendonca ◽  
Morag Farquhar
Keyword(s):  
Content Validity ◽  
Depression Scale ◽  
Criterion Validity ◽  
Postal Survey ◽  
Research Network ◽  
Chronic Obstructive ◽  
Support Needs ◽  
Informal Carer ◽  
Stage 1 ◽  
The Impact

ObjectivesPatient-identified need is key to delivering holistic, supportive, person-centred care, but we lack tools enabling patients to express what they need to manage life with a long-term condition. The Support Needs Approach for Patients (SNAP) tool was developed to enable patients with advanced chronic obstructive pulmonary disease (COPD) identify and express their unmet support needs to healthcare professionals (HCPs), but its validity is unknown. This study aimed to establish face, content and criterion validity of the SNAP tool.DesignTwo-stage mixed-methods study involving patients with advanced COPD and their carers. Stage 1: Face and content validity assessed though focus groups involving patients and carers considering appropriateness, relevance and completeness of the SNAP tool. Data were analysed using conventional content analysis. Stage 2: Content and criterion validity assessed in a postal survey through patient self-completion of the SNAP tool and disease impact measures (Chronic Respiratory Questionnaire, COPD Assessment Test, and Hospital Anxiety and Depression Scale). Content validity assessed using summary statistics; criterion validity via correlations between tool items and impact measures.Settings and participantsTwo hundred and forty patients and carers participated. Stage 1 patient and informal carer participants were recruited from two primary care practices and Stage 2 patients from 28 practices. Participating practices located in the East of England were recruited via the NIHR Clinical Research Network: Eastern.ResultsPatients and carers found the tool patient-friendly and comprehensive, with potential clinical utility. No tool items were redundant. Clear correlations were found between tool items and the majority of items in the impact measures.ConclusionsThe SNAP tool has good face, content and criterion validity. It has potential to support the delivery of holistic, supportive, person-centred care by enabling patients to identify and express their unmet support needs to HCPs.

20 Validation of the support needs approach for patients (SNAP) tool to enable patients with advanced copd to identify and express their support needs to healthcare professionals

2018 ◽  
Vol 8 (3) ◽  
pp. 367.2-367
Author(s):  
Carole Gardener ◽  
Gail Ewing ◽  
Morag Farquhar
Keyword(s):  
Palliative Care ◽  
Content Validity ◽  
Healthcare Professionals ◽  
Depression Scale ◽  
Criterion Validity ◽  
Postal Survey ◽  
Support Needs ◽  
Framework Approach ◽  
The Face ◽  
The Impact

IntroductionPatient identified need is key to delivering a person-centred approach in supportive and palliative care. The support needs approach for patients (SNAP) tool aims to enable patients with advanced COPD to identify and express their support needs to healthcare professionals (HCPs) but its validity is unknown.AimTo establish the face content and criterion validity of the SNAP tool in advanced COPD.MethodsTwo-stage mixed method primary care study involving patients with advanced COPD and their carers. Stage 1: Face and content validity assessed though focus groups involving patients and carers (n=12) considering appropriateness relevance and completeness of the SNAP tool. Thematic data analysis within a Framework Approach. Stage 2: Content and criterion validity assessed in a postal survey through patient self-completion of the SNAP tool and disease impact measures (chronic respiratory questionnaire COPD assessment test and hospital anxiety and depression scale). Content validity assessed using summary statistics; criterion validity via correlations between tool items and impact measures.ResultsThe SNAP tool has good face content and criterion validity. Patients and carers found the tool patient-friendly with potential clinical utility. No tool items were redundant. Clear correlations were found between tool items and the majority of items/sub-scales of the impact measures.DiscussionThe SNAP tool has good face content and criterion validity. It has the potential to support the delivery of supportive and palliative care in advanced COPD by enabling patients to identify and express their support needs to HCPs. Future work will pilot SNAP in clinical practice.

scholarly journals Face and content validity of the Carer Support Needs Assessment Tool (CSNAT), and feasibility of the CSNAT intervention, for carers of patients with chronic obstructive pulmonary disease

2021 ◽  
pp. 174239532199943
Author(s):  
Kerry Micklewright ◽  
Morag Farquhar
Keyword(s):  
Chronic Obstructive Pulmonary Disease ◽  
Needs Assessment ◽  
Pulmonary Disease ◽  
Content Validity ◽  
Assessment Tool ◽  
Chronic Obstructive ◽  
Support Needs ◽  
Obstructive Pulmonary Disease ◽  
Carer Support ◽  
The Impact

Objectives Informal carers of patients with Chronic Obstructive Pulmonary Disease (COPD) have unmet support needs. Evidence relating to carers’ support needs in chronic conditions informed version 3 of the Carer Support Needs Assessment Tool (CSNAT) which forms part of an intervention to identify and address carer support needs. Aim of study: to establish the face and content validity of CSNAT v3 for use with COPD carers and explore their views on delivery of the CSNAT Intervention in practice. Methods Focus groups conducted September-October 2019 in non-clinical settings recruited eleven COPD carers (two to six participants per group). COPD patients ( n = 2) attended one group to facilitate carer attendance, the impact of which is discussed. Most participating carers were female ( n = 10); carers’ ages ranged 52–79 years. Results CSNAT v3 was easy to understand and complete, and all 15 domains were considered relevant and appropriate, suggesting good face and content validity. The demeanour, relational skills, and knowledge of the CSNAT facilitator appeared more important to carers than being a certain practitioner type. Discussion COPD carers considered the CSNAT Intervention an acceptable way of identifying and responding to their needs. The intervention could potentially be delivered through a range of services.

scholarly journals ‘I’m fine!’: Assertions of lack of support need among patients with chronic obstructive pulmonary disease: A mixed-methods study

2021 ◽  
pp. 174239532110003
Author(s):  
A Carole Gardener ◽  
Caroline Moore ◽  
Morag Farquhar ◽  
Gail Ewing ◽  
Efthalia Massou ◽  
...  
Keyword(s):  
Chronic Obstructive Pulmonary Disease ◽  
Pulmonary Disease ◽  
Mixed Method ◽  
Self Report ◽  
Design Stage ◽  
Chronic Obstructive ◽  
Support Needs ◽  
Obstructive Pulmonary Disease ◽  
Stage 1 ◽  
The Impact

Objectives To understand how people with Chronic Obstructive Pulmonary Disease (COPD) disavow their support needs and the impact on care. Methods Two stage mixed-method design. Stage 1 involved sub-analyses of data from a mixed-method population-based longitudinal study exploring the needs of patients with advanced COPD. Using adapted criteria from mental health research, we identified 21 patients who disavowed their needs from the 235 patient cohort. Qualitative interview transcripts and self-report measures were analysed to compare these patients with the remaining cohort. In stage 2 focus groups (n = 2) with primary healthcare practitioners (n = 9) explored the implications of Stage 1 findings. Results Patients who disavowed their support needs described non-compliance with symptom management and avoidance of future care planning (qualitative data). Analysis of self-report measures of mental and physical health found this group reported fewer needs than the remaining sample yet wanted more GP contact. The link between risk factors and healthcare professional involvement present in the rest of the sample was missing for these patients. Focus group data suggested practitioners found these patients challenging. Discussion This study identified patients with COPD who disavow their support needs, but who also desire more GP contact. GPs report finding these patients challenging to engage.

scholarly journals Psychometric evaluation and cultural adaptation of the Spanish version of the “Scale for End-of Life Caregiving Appraisal”

2018 ◽  
Vol 17 (03) ◽  
pp. 314-321
Author(s):  
José Manuel Hernández-Padilla ◽  
Matías Correa-Casado ◽  
José Granero-Molina ◽  
Alda Elena Cortés-Rodríguez ◽  
Tamara María Matarín-Jiménez ◽  
...  
Keyword(s):  
Factor Analysis ◽  
Construct Validity ◽  
End Of Life ◽  
Exploratory Factor Analysis ◽  
Content Validity ◽  
Criterion Validity ◽  
Spanish Version ◽  
Validity Index ◽  
Content Validity Index ◽  
The Impact

AbstractObjectiveTo translate, culturally adapt, and psychometrically evaluate the Spanish version of the “Scale for End-of Life Caregiving Appraisal” (SEOLCAS).MethodObservational cross-sectional study. Convenience sample of 201 informal end-of-life caregivers recruited in a southern Spanish hospital. The reliability of the questionnaire was assessed through its internal consistency (Cronbach's α) and temporal stability (Pearson's correlation coefficient [r] between test-retest). The content validity index of the items and the scale was calculated. Criterion validity was explored through performing a linear regression analysis to evaluate the SEOLCAS’ predictive validity. Exploratory factor analysis was used to examine its construct validity.ResultsThe SEOLCAS’ reliability was very high (Cronbach's α = 0.92). Its content validity was excellent (all items’ content validity index = 0.8–1; scale's validity index = 0.88). Evidence of the SEOLCAS’ criterion validity showed that the participants’ scores on the SEOLCAS explained approximately 79.3% of the between-subject variation of their results on the Zarit Burden Interview. Exploratory factor analysis provided evidence of the SEOLCAS’ construct validity. This analysis revealed that two factors (“internal contingencies” and “external contingencies”) explained 53.77% of the total variance found and reflected the stoic Hispanic attitude toward adversity.Significance of resultsThe Spanish version of the SEOLCAS has shown to be an easily applicable, valid, reliable, and culturally appropriate tool to measure the impact of end-of-life care provision on Hispanic informal caregivers. This tool offers healthcare professionals the opportunity to easily explore Hispanic informal end-of-life caregivers’ experiences and discover the type of support they may need (instrumental or emotional) even when there are communicational and organizational constraints.

scholarly journals Effects of Person-Centered Care Using a Digital Platform and Structured Telephone Support for People With Chronic Obstructive Pulmonary Disease and Chronic Heart Failure: Randomized Controlled Trial

10.2196/26794 ◽  
2021 ◽  
Vol 23 (12) ◽  
pp. e26794
Author(s):  
Lilas Ali ◽  
Sara Wallström ◽  
Andreas Fors ◽  
Emmelie Barenfeld ◽  
Eva Fredholm ◽  
...  
Keyword(s):  
Primary Care ◽  
Health Care Professionals ◽  
Self Efficacy ◽  
Chronic Obstructive ◽  
Telephone Support ◽  
Obstructive Pulmonary Disease ◽  
Digital Platform ◽  
Centered Care ◽  
Composite Scores ◽  
General Self Efficacy

Background Chronic obstructive pulmonary disease (COPD) and chronic heart failure (CHF) are characterized by severe symptom burden and common acute worsening episodes that often require hospitalization and affect prognosis. Although many studies have shown that person-centered care (PCC) increases self-efficacy in patients with chronic conditions, studies on patients with COPD and CHF treated in primary care and the effects of PCC on the risk of hospitalization in these patients are scarce. Objective The aim of this study is to evaluate the effects of PCC through a combined digital platform and telephone support for people with COPD and CHF. Methods A multicenter randomized trial was conducted from 2018 to 2020. A total of 222 patients were recruited from 9 primary care centers. Patients diagnosed with COPD, CHF, or both and with internet access were eligible. Participants were randomized into either usual care (112/222, 50.5%) or PCC combined with usual care (110/222, 49.5%). The intervention’s main component was a personal health plan cocreated by the participants and assigned health care professionals. The health care professionals called the participants in the intervention group and encouraged narration to establish a partnership using PCC communication skills. A digital platform was used as a communication tool. The primary end point, divided into 2 categories (improved and deteriorated or unchanged), was a composite score of change in general self-efficacy and hospitalization or death 6 months after randomization. Data from the intention-to-treat group at 3- and 6-month follow-ups were analyzed. In addition, a per-protocol analysis was conducted on the participants who used the intervention. Results No significant differences were found in composite scores between the groups at the 3- and 6-month follow-ups. However, the per-protocol analysis of the 3-month follow-up revealed a significant difference in composite scores between the study groups (P=.047), although it was not maintained until the end of the 6-month follow-up (P=.24). This effect was driven by a change in general self-efficacy from baseline. Conclusions PCC using a combined digital platform and structured telephone support seems to be an option to increase the short-term self-efficacy of people with COPD and CHF. This study adds to the knowledge of conceptual innovations in primary care to support patients with COPD and CHF. Trial Registration ClinicalTrials.gov NCT03183817; http://clinicaltrials.gov/ct2/show/NCT03183817

Opposite-Sex Relationship Questionnaire for Male Adolescents: Development and Psychometric Evaluation

2018 ◽  
Vol 9 ◽  
Author(s):  
Nasim Bahrami ◽  
Masoumeh Sibmar ◽  
AbouAli Vedadhir ◽  
Hamid Alavi Majd ◽  
Averil Parker
Keyword(s):  
Content Validity ◽  
Psychometric Evaluation ◽  
Peer Pressure ◽  
Face Validity ◽  
Male Adolescents ◽  
Family Attitudes ◽  
Opposite Sex ◽  
Coefficient Omega ◽  
The Impact ◽  
Qualitative Phase

We used a mixed-methods, sequential, exploratory design. In the qualitative phase, an in-depth interview approach was used to identify the properties and dimensions to be included in the Opposite-Sex Relationship Questionnaire for Male Adolescents (OSRQMA). In the quantitative phase, the psychometric properties of the OSRQMA were evaluated according to the concepts of face, content, and construct validity. Reliability and stability were assessed with Cronbach's alpha (α) and McDonald's coefficient omega (ω), and with test–retest analysis respectively. A preliminary questionnaire was developed, including 61 items that emerged from the qualitative phase of the study. Based on the impact scores for face validity, and the cutoff points for the content validity ratio (CVR) and content validity index (CVI), the preliminary questionnaire was reduced to 53 items. The Kaiser criteria (eigenvalues >1) and scree plot tests demonstrated that 22 items forming four factors, which were labelled ‘innate predilection’, ‘abstinence’, ‘family attitudes’, and ‘peer pressure’, were optimum, accounting for an estimated 53.449% of the variance. These scales had acceptable levels of internal consistency (α = .854, ω = 0.977) and stability (r = .892, p < .001).

scholarly journals Preparedness of community-based organisations in biohazard: reliability and validity of an assessment tool

2019 ◽  
Vol 7 (3) ◽  
pp. e000124
Author(s):  
Fatemeh Rezaei ◽  
Mohammad R Maracy ◽  
Mohammad H Yarmohammadian ◽  
Ali Ardalan ◽  
Mahmood Keyvanara
Keyword(s):  
Factor Analysis ◽  
Content Validity ◽  
Assessment Tool ◽  
Reliability And Validity ◽  
Criterion Validity ◽  
Face Validity ◽  
Community Based ◽  
Validity Data ◽  
Health Authorities ◽  
Control And Prevention

The purpose of this study was to develop a tool for community-based health organisations (CBHOs) to evaluate the preparedness in biohazards concerning epidemics or bioterrorism. We searched concepts on partnerships of CBHOs with health systems in guidelines of the Centers for Disease Control and Prevention and literature. Then, we validated the researcher-made tool by face validity, content validity, exploratory factor analysis (EFA), confirmatory factor analysis (CFA) and criterion validity. Data were collected by sending the tool to 620 CBHOs serving under supervision of Iran’s ministry of health. Opinions of health professionals and stakeholders in CBHOs were used to assess face and content validity. Factor loads in EFA were based on three-factor structure that verified by CFA. We used SPSS V.18 and Mplus7 software for statistical analysis. About 105 health-based CBHOs participated. After conducting face validity and calculating content validity ratio and content validity index, we reached 54 items in the field of planning, training and infrastructure. We conducted construct validity using 105 CBHOs. Three items exchanged between the fields according to factor loads in EFA, and CFA verified the model fit as Comparative Fit Index, Tucker-Lewis index and root mean square error of approximation were 0.921, 0918 and 0.052, respectively. The Cronbach’s of the whole tool was 0.944. Spearman correlation coefficient confirmed criterion validity as coefficient was 0.736. Planning, training and infrastructure fields are the most important aspects of preparedness in health-based CBHOs. Applying the new assessment tool in future studies will show the weaknesses and capabilities of health-based CBHOs in biohazard and clear necessary intervention actions for health authorities.

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