scholarly journals IMPORTÂNCIA DA ASSISTÊNCIA DA TERAPIA OCUPACIONAL AO CUIDADOR DE CRIANÇAS COM CÂNCER EM CUIDADOS PALIATIVOS

2021 ◽  
Vol 9 (209) ◽  
pp. 1-23
Author(s):  
VIVIAN SILVA DE OLIVEIRA DE SOUZA
Keyword(s):  
Palliative Care ◽  
Occupational Therapy ◽  
Literature Review ◽  
Final Stage ◽  
Critical Stage ◽  
The Family ◽  
Bibliographic Search ◽  
Great Possibility ◽  
Support Information

Cancer has a great possibility of cure, however there is a group of patients who can reach the critical stage and no longer respond to conventional therapies, making it impossible to obtain a cure. In such cases, it will be necessary to provide other types of care in order to provide support, information and comfort to patients in the final stage of life and their families, which characterizes Palliative Care. In pediatrics, palliative care is centered on the child and the family. This study aimed to conduct a literature review on the intervention of Occupational Therapy with caregivers of children in Palliative Care, due to childhood and juvenile cancer. We searched for articles that corresponded to the descriptors that could support this study, however the search resulted in only two articles, a factor that made the study turn to a bibliographic search. Despite the reduced number of articles on occupational therapy in caring for children in palliative care, this study made it possible to present the importance of the attention and contribution of Occupational Therapy in caring for caregivers of children in the final stage of life.

scholarly journals Cancer Patient in The Final Stage of Life Undergoing Palliative Care: The Family Caregiver Experience

2020 ◽  
pp. 696-702
Author(s):  
Raphaell Phillipe Souza Barbosa ◽  
Jaqueline Brito Vidal Batista ◽  
Betânia Maria Pereira Santos ◽  
Mônica Isabel Abrantes Leite Costa ◽  
Marinalvo Sandro de Lima Santos ◽  
...  
Keyword(s):  
Palliative Care ◽  
Cancer Patient ◽  
Family Caregiver ◽  
Final Stage ◽  
The Family

Objetivo: Compreender a vivência do cuidador familiar de paciente com câncer na fase final de vida em cuidados paliativos. Método: Estudo exploratório com abordagem qualitativa, realizado em um hospital da cidade de João Pessoa – PB. Foram entrevistados 15 cuidadores familiares, no período de maio a julho de 2019. Utilizou-se um roteiro semiestruturado para coletar os dados. As informações foram analisadas conforme a técnica de análise de conteúdo. Resultados: A análise do material empírico possibilitou a construção de duas categorias temáticas: I – Repercussões na saúde física e psicológica do cuidador familiar e II – Perspectivas de futuro diante da proximidade de morte do seu ente querido. Conclusão: É importante que o profissional utilize na sua assistência ferramentas que facilitem o processo de adaptação do cuidador à nova situação, buscando reduzir sobrecargas físicas e emocionais, e o preparando, para que ele possa dar continuidade a sua vida após a perda.

scholarly journals Conceptions about palliative care: literature review

2008 ◽  
Vol 21 (3) ◽  
pp. 504-508 ◽  
Author(s):  
Ednamare Pereira da Silva ◽  
Dora Sudigursky
Keyword(s):  
Palliative Care ◽  
Literature Review ◽  
Ethical Issues ◽  
Symptom Control ◽  
Family Quality Of Life ◽  
Life And Death ◽  
The Family ◽  
Humanistic Approach ◽  
The Individual

This literature review study aimed to identify the conceptions of palliative care mentioned in Brazilian journals. The databases LILACS, SciELO and BDENF were used. In total, 47 articles were selected, published from 2000 to 2006. The conceptions found refer to the concept of palliative care, understood as integral care for individuals in terminal conditions, emphasizing the physical, psychosocial and spiritual aspects of the individual and the family; quality of life; care based on a humanistic approach and valuation of life; pain and symptom control; ethical issues about life and death; multidisciplinary approach; dying as a natural process; the priority of care over cure; communication, spirituality and mourning support. These conceptions are considered highly important in palliative care; however, there is a lack of services and centers to deliver these types of care.

scholarly journals “It’s Always Been a Second Class Cancer”: An Exploration of the Experiences and Journeys of Bereaved Family Carers of People with Sarcoma

Cancers ◽  
2021 ◽  
Vol 13 (11) ◽  
pp. 2670
Author(s):  
Moira O’Connor ◽  
Greta Smith ◽  
Ashleigh Pantaleo ◽  
Darren Haywood ◽  
Rhys Weaver ◽  
...  
Keyword(s):  
Palliative Care ◽  
Family Member ◽  
The Body ◽  
Social Constructionist ◽  
Family Carers ◽  
Writing Therapy ◽  
The Family ◽  
Qualitative Descriptive ◽  
Bereaved Family ◽  
Delays In Diagnosis

Sarcomas are a group of rare and aggressive cancers, which develop in bones and connective tissue throughout the body. Sarcomas account for only 1–2% of all cancers worldwide; however, mortality rates for sarcoma are high with approximately two in four sarcoma patients dying following a diagnosis. Delays in diagnosis, poor management of symptoms, patients’ high symptom loads and high carer burden are all associated with carer distress, which may lead to complications after bereavement. The experience of having a family member referred for palliative care is also distressing for carers, with the realisation that their family member is dying. This study aimed to explore the experiences of bereaved family carers of people diagnosed with sarcoma. A qualitative descriptive design using a social constructionist framework was adopted. Interviews were conducted with sixteen participants, and thematic analysis was used to identify patterns in the data. Four overarching themes emerged: beginning the journey; moving through treatment; transitioning to palliative care; and experiencing bereavement. The narratives were coherent and potent, and people reflected on their journeys. Interventions and supports for bereaved carers could include opportunities for counselling to support reflections, supports for developing a narrative such as writing therapy, and preparation for the death of the family member.

scholarly journals Effects of dignity therapy on palliative patients’ family members: A systematic review

2021 ◽  
pp. 1-10
Author(s):  
Leonor Grijó ◽  
Carolina Tojal ◽  
Francisca Rego
Keyword(s):  
Systematic Review ◽  
Palliative Care ◽  
End Of Life ◽  
Meaning In Life ◽  
Family Members ◽  
Cochrane Library ◽  
Publication Date ◽  
Dignity Therapy ◽  
Bibliographic Search ◽  
Palliative Patients

Abstract Objective Dignity therapy (DT) is a kind of psychotherapy that identifies the main concerns of end-of-life patients that affect their perception of dignity and helps them to find a new meaning in life. Most prior studies on DT analyze outcomes for palliative care patients. The aim of this systematic review is to explore the outcomes of DT in palliative care patients’ family members. Method In June 2020, a bibliographic search was performed using the terms “Dignity Therapy” and “Palliative Care” in the following databases: Cochrane library, TRIP database, PUBMED, Scopus, and Web of Knowledge. Of the 294 articles found, 8 met the selection criteria and were considered in the present study. No articles were excluded based on their publication date. Results Family members generally believe that DT helps them to better prepare the patient's end-of-life and overcome the bereavement phase. The legacy document was considered a source of comfort, and most would recommend DT to other people in their situation. DT is generally considered as important as any other aspect of the patient's treatment. Significance of results There is evidence of the benefits of DT for palliative patients’ family members. However, there are still few studies that evaluate these outcomes. The existing evidence is poorly generalized, and thus, further studies are needed to deeply explore the benefits of this therapy both for patients and their families.

Compliance with Prescribed Adaptive Equipment: A Literature Review

2000 ◽  
Vol 63 (2) ◽  
pp. 65-75 ◽  
Author(s):  
Trish Wielandt ◽  
Jenny Strong
Keyword(s):  
Occupational Therapy ◽  
Literature Review ◽  
Activities Of Daily Living ◽  
Daily Living ◽  
Current Practice ◽  
Functional Independence ◽  
Under Five ◽  
Functional Potential ◽  
And Training

This article describes a literature review that examined the topic of the postdischarge compliance of individuals with prescribed adaptive equipment. Assisting individuals to accomplish tasks relevant to their activities of daily living and thereby achieve functional independence is central to the role of occupational therapy. The prescription of adaptive equipment is a frequently used intervention. The rationale for prescribing adaptive equipment is that it maximises a client's functional potential, allows for independence in activities of daily living and fosters confidence as a result of being able to accomplish such tasks. All studies that surveyed compliance with prescribed adaptive equipment between 1963 and 1996 were reviewed. The factors that reportedly affect compliance by individuals can be considered under five discrete categories: medical-related, client-related, equipment-related, assessment-related and training-related. On the basis of the findings of this literature review, recommendations are made for further research, specifically investigating methods that therapists could incorporate into current practice to address the problem of non-compliance with prescribed adaptive equipment.

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