scholarly journals The impact of orthopedic surgery on parents of children affected by cerebral palsy: a preliminary study in Greece

Folia Medica ◽  
2019 ◽  
Vol 61 (3) ◽  
pp. 384-388 ◽  
Author(s):  
Assimina Tsibidaki ◽  
Haridimos Tsibidakis ◽  
Anastasia Tsamparli ◽  
Doxa Kotzia ◽  
Artemisia Panou
Keyword(s):  
Cerebral Palsy ◽  
Orthopedic Surgery ◽  
Medical Problem ◽  
Structured Interviews ◽  
Entire Family ◽  
Intact Families ◽  
Economic Class ◽  
Preliminary Study ◽  
The Impact

Background: Cerebral palsy (CP) is a serious disorder with an important impact not only on the affected person but also on parents and the entire family. CP children often undergo surgery with long stay hospitalization. Aim: The aim of the study was to highlight the impact of orthopedic surgery on parents of children affected by cerebral palsy in Greece. Materials and methods: The semi-structured interviews of 80 parents (40 fathers and 40 mothers) of nuclear and intact families were collected. All parents were of Greek nationality, belonged to the middle socio-economic class and had at least one child affected by CP candidate to orthopedic surgery. Results: The majority of parents’ perception was that CP is a condition requiring special education, need for specialized services and a medical problem that affects the entire family. Their expectations after orthopedic surgery were focused mainly on child’s healing and hope to have a “healthy” child, while expectations from future surgery were focused on improving child’s quality of life, movement and gait. Conclusions: Parents of CP children have different perceptions of the clinical condition and a variety of expectations about orthopedic surgery and its outcomes.

scholarly journals Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population – SPARCLE 3 study protocol

BMC Neurology ◽  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Catherine Arnaud ◽  
Carine Duffaut ◽  
Jérôme Fauconnier ◽  
Silke Schmidt ◽  
Kate Himmelmann ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Cerebral Palsy ◽  
Young People ◽  
General Population ◽  
Transition Period ◽  
Well Being ◽  
Personal Factors ◽  
The Impact

Abstract Background Effective inclusion in society for young people with disabilities is increasingly seen as generating opportunities for self-development, and improving well-being. However, significant barriers remain in the vast majority of activities meaningful for young adults. Research argues that various personal (disabilities, health) and environmental (access to the resources needed, accessible environment, discrimination, lack of personal economic independence) factors contribute to limited participation. However, previous studies conducted in young people with cerebral palsy (CP) mainly investigated the transition period to adulthood, and did not fully consider the whole range of impairment severity profiles or environmental barriers. In this study, we will use the follow-up of the SPARCLE cohort and a comparison group from the general population (1) to investigate the impact of the environment on participation and quality of life of young adults with CP, (2) to determine predictors of a successful young adulthood in educational, professional, health and social fields, (3) to compare quality of life and frequency of participation in social, work and recreational activities with the general population, (4) to document on participation and quality of life in those with severe disabilities. Methods The SPARCLE3 study has a combined longitudinal and cross-sectional design. Young adults with CP aged 22 to 27 years in 6 European regions previously enrolled in the SPARCLE cohort or newly recruited will be invited to self-complete a comprehensive set of questionnaires exploring participation (daily life and discretionary activities), health-related quality of life, body function, personal factors (health, personal resources), and contextual factors (availability of needed environmental items, family environment, services provision) during home visits supervised by trained researchers. Proxy-reports or adapted questionnaires will be used for those with the most severe impairments. The recruitment of a large group from the general population (online survey) will enable to identify life areas where the discrepancies between young people with CP and their able-bodied peers are the most significant. Discussion This study will help identify to what extent disabilities and barriers in environment negatively affect participation and quality of life, and how previous valued experiences during childhood or adolescence might modulate these effects.

scholarly journals Professionals’ views on working in the field of domestic violence and abuse during the first wave of COVID-19: a qualitative study in the Netherlands

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Nicole E. van Gelder ◽  
Ditte L. van Haalen ◽  
Kyra Ekker ◽  
Suzanne A. Ligthart ◽  
Sabine Oertelt-Prigione
Keyword(s):  
Domestic Violence ◽  
The Netherlands ◽  
Working Conditions ◽  
Critical Evaluation ◽  
Physical Contact ◽  
Structured Interviews ◽  
Online Tools ◽  
The Impact ◽  
Domestic Violence And Abuse

Abstract Background The COVID-19 pandemic and lockdown evoked great worries among professionals in the field of domestic violence and abuse (DVA) as they expected a rise of the phenomenon. While many countries reported increased DVA, the Netherlands did not. To understand this discrepancy and the overall impact of the lockdown on DVA support services, we interviewed DVA professionals about their experiences with DVA during the rise of COVID-19, the impact of the lockdown on clients and working conditions, and views on eHealth and online tools. Methods Semi-structured interviews were conducted among 16 DVA professionals with various specializations. This data was analyzed using open thematic coding and content analysis. Results Most professionals did not see an increase in DVA reports but they did notice more severe violence. They experienced less opportunities to detect DVA and worried about their clients’ wellbeing and the quality of (online) care. Furthermore, their working conditions rapidly changed, with working from home and online, and they expressed frustration, insecurity and loneliness. Professionals feel eHealth and online tools are not always suitable but they do see them as an opportunity to increase reach and maintain services when physical contact is not possible. Conclusion This study suggests DVA was probably under-detected during the lockdown rather than not having increased. The Dutch system heavily relies on professionals to detect and report DVA, suggesting a need for critical evaluation of the accessibility of professional help. Professionals experienced significant challenges and should themselves be supported psychologically and in their changed work practices to maintain their ability to aid survivors.

The Impact of Privatization on Minority Faith Prison Chaplains in Canada

2021 ◽  
Vol 75 (3) ◽  
pp. 199-206
Author(s):  
Adar Abdulkadir ◽  
Ibrahim J. Long
Keyword(s):  
Spiritual Care ◽  
Correctional Facilities ◽  
Correctional Institutions ◽  
Structured Interviews ◽  
Federal Prison ◽  
For Profit ◽  
Major Shift ◽  
Prison Chaplains ◽  
The Impact

Canadian federal prison chaplaincy underwent a major shift in 2013 when the provision of its services was privatized and outsourced to a single for-profit company. This article presents a summary of the experiences and concerns expressed by minority faith chaplains serving in federal correctional institutions following privatization. It is based on ten in-depth, semi-structured interviews with minority faith prison chaplains. The results show that minority faith federal prison chaplains are concerned about increased levels of bureaucratization that have compromised the quality of spiritual care available to prisoners, reductions in resources for chaplains, and increased levels of emotional exhaustion and frustration among themselves and fellow minority faith chaplains serving in Canadian correctional facilities.

scholarly journals Impact of Periodontal Disease on the Quality of Life of Older People in Indonesia: A Qualitative Study

2021 ◽  
pp. 238008442110419
Author(s):  
M. Hijryana ◽  
M. MacDougall ◽  
N. Ariani ◽  
L.S. Kusdhany ◽  
A.W.G. Walls
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Environmental Factors ◽  
Periodontal Disease ◽  
Older People ◽  
Structured Interviews ◽  
Research Perspective ◽  
The Impact ◽  
People’S Perceptions

Introduction: The impact of periodontal disease on oral health–related quality of life (OHRQoL) has often been investigated from a quantitative research perspective, which is based on clinical findings and an OHRQoL questionnaire. Very few studies have examined the issue from the view of qualitative research. To our knowledge, there have been no previous qualitative studies focusing the effect of periodontal disease on OHRQoL in Indonesian older people. Objectives: To explore and understand the impact of periodontal disease on the OHRQoL of older people as a subjective reflection in relation to periodontal disease experiences. Methods: Semi-structured interviews were conducted in a sample of 31 older people with generalized chronic periodontitis. Thematic analysis was used to identify the key issues in participants’ accounts. The analysis was undertaken by 2 independent coders to ensure reliability. To achieve thematic saturation, successive interviews were undertaken until 5 sequential interviews did not bring new themes. Results: Participants reported the negative effects likely related to periodontal disease. The impacts of periodontal disease were described by these older people as affecting more than pain, physical discomfort, and physical function restrictions. Periodontal disease also affected their psychological and social aspects of daily living. In addition, this study identified themes related to individual and environmental factors that may modify and personalize periodontal disease experiences. Furthermore, this study identified a misleading belief that problems related to periodontal disease were a normal part of aging, which might influence individuals’ expectations toward oral health. Relatedly, participants frequently reported that the progression of tooth mobility to tooth loss was an inevitable part of the aging process. Conclusions: Periodontal disease negatively affected participants’ OHRQoL. It is fundamental to understand older people’s perceptions toward their periodontal disease as well as individual and environmental factors that may have an influence on their periodontal disease experiences. Knowledge Transfer Statement: This study is a reflection of Indonesian older people’s subjective periodontal disease experiences. Therefore, the present study can be used to understand older people’s perceptions, attitudes, behaviors, and experiences toward periodontal disease and how this disease may affect their quality of life. This study also highlights a widespread and misleading belief that oral problems related to periodontal disease are an inevitable part of aging in this study population.

ISO 9001 and ISO/IEC 17025

2017 ◽  
Vol 34 (3) ◽  
pp. 406-417 ◽  
Author(s):  
José Barradas ◽  
Paulo Sampaio
Keyword(s):  
Measuring Equipment ◽  
Iso 9001 ◽  
Structured Interviews ◽  
Quality Management Systems ◽  
Content Type ◽  
Customer Perception ◽  
Accredited Laboratories ◽  
The Impact ◽  
Level Of Importance

Purpose According to the ISO 9001 standard, all the certified companies should calibrate their measuring equipment. By doing so, companies can guarantee, with rigor and quality, its measurement and use reliable data for monitoring the quality of their products. However, a metrology laboratory is not required to have an ISO 9001 certification or ISO/IEC 17025 accreditation. At this moment, there are companies with their quality management systems certified according to the ISO 9001 standard which have metrology laboratories to make internal checks of their measuring equipment. On the other hand, there are companies with ISO/IEC 17025-accredited laboratories. Finally, there are companies that have their QMS certified according to ISO 9001 and also their metrology laboratory accredited by ISO/IEC 17025. In this case the metrology laboratory must comply with the requirements of both standards. Thus, the purpose of this paper is to analyze the level of importance of the ISO 9001 and ISO/IEC 17025 standards from the perspective of a metrology laboratory. Design/methodology/approach The research methodology used to conduct this research was supported in case studies that had been carried out in nine metrology laboratories. The information was gathered based on semi-structured interviews. Findings After an analysis and discussion over the data obtained, the authors verified that the impact on customer perception is significantly positive, if the metrology laboratory is simultaneous certified and accredited. Originality/value From the laboratories perspective, the issue analyzed in this paper is of the utmost importance and the aim is to give the contribution in order to clarify this kind of organizations of which could be the best option for their context.

scholarly journals “We have a ticking time bomb”: a qualitative exploration of the impact of canine epilepsy on dog owners living in England

2020 ◽  
Vol 16 (1) ◽  
Author(s):  
Amy E. Pergande ◽  
Zoe Belshaw ◽  
Holger A. Volk ◽  
Rowena M. A. Packer
Keyword(s):  
Quality Of Life ◽  
Lifestyle Changes ◽  
Idiopathic Epilepsy ◽  
Clinical Aspects ◽  
Structured Interviews ◽  
Online Groups ◽  
Additional Support ◽  
Almost All ◽  
The Impact

Abstract Background Idiopathic epilepsy is a common neurological condition in dogs. Previous research has focused on clinical aspects of seizure management in dogs with idiopathic epilepsy with little attention given to the emotional and logistical challenges for their owners. The current study aimed to explore the impacts of owning a dog with idiopathic epilepsy on owner quality of life and lifestyle, using qualitative methods. Methods Owners of dogs with idiopathic epilepsy living in England were recruited via social media and word of mouth, and then selected using purposive sampling to participate in face-to-face semi-structured interviews. Epilepsy management was explored through in-depth accounts of owner experiences and influencing factors. Interviews were recorded and transcribed verbatim and thematic analysis was used to construct key themes. Results Twenty-one interviews were completed. Almost all owners had made lifestyle changes in order to care for their dog, including substantial modifications to routines and, in some cases, employment. Many owners discussed a very emotionally close dog-owner bond, and described experiencing frequent feelings of fear, stress and uncertainty regarding their dog’s health. Friends, family and colleagues did not always understand the magnitude of commitment required to care for a dog with idiopathic epilepsy. This, combined with a fear of leaving their dog unsupervised, had social implications in some instances and lead to increased use of the Internet and online groups for peer support. Conclusions The commitment required to care for a dog with idiopathic epilepsy, and the lifestyle changes made by their owners, may be far greater than previously estimated. Further consideration of these factors by veterinary professionals and the friends and families of owners of dogs with idiopathic epilepsy could improve owner quality of life, and facilitate the provision of additional support.

The importance of support and forms of kinesiotherapeutic activity of family members of persons affected by Parkinson’s disease

2019 ◽  
Vol 6 (1) ◽  
pp. 1-7
Author(s):  
Aleksandra Wróbel ◽  
Piotr Wróbel ◽  
Ewa Otfinowska
Keyword(s):  
Quality Of Life ◽  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Family Support ◽  
Family System ◽  
Well Being ◽  
Entire Family ◽  
Permanent Disability ◽  
The Impact

Parkinson’s disease is a chronic and progressive degenerative disease of the central nervous system. The disorder is classified as extra pyramidal system diseases. In order to improve the patient’s condition and increase the level of quality of life, pharmacological treatment and rehabilitation are used to eliminate progressive disability. The help of the surrounding environment affects not only the course of the disease, but above all the emotional well-being of the patient. Family support and its participation in the whole therapeutic process greatly optimize its results. The aim of this work is to present the most important issues regarding kinesiotherapy in Parkinson’s disease and to demonstrate the impact of the involvement of the whole family system on the course and results of therapy. Kinesiotherapy as an element of treatment plays a very important role in the process of improving and adapting the patient to perform daily nursing activities. Kinesiotherapeutic treatments have not only a significant impact on the symptoms occurring in the course of the disease, but also on the overall health. The individual selection of therapy and the involvement of the entire team of therapists is extremely important in eliminating both movement and extrinsic symptoms. The correct implementation of the physiotherapist’s recommendations, the patient’s involvement, as well as the active participation of the patient’s environment, is a condition for the effectiveness of the entire process of maintaining health and fitness. Kinesiotherapy prevents permanent disability and helps maintain the longest possible independence and good quality of life. The involvement of the entire family support system has an impact on the results of the therapy.

scholarly journals Factors Related to Oral Health-Related Quality of Life of Independent Brazilian Elderly

2013 ◽  
Vol 2013 ◽  
pp. 1-8 ◽  
Author(s):  
Karla Giovana Bavaresco Ulinski ◽  
Mariele Andrade do Nascimento ◽  
Arinilson Moreira Chaves Lima ◽  
Ana Raquel Benetti ◽  
Regina Célia Poli-Frederico ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Negative Impact ◽  
Female Gender ◽  
Lower Class ◽  
Structured Interviews ◽  
Cross Sectional ◽  
Posterior Teeth ◽  
The Impact

The aim of this cross-sectional study was to assess the factors associated with the impact of oral health on the quality of life in a sample of 504 Brazilian independent elderly. Data collection included oral examinations and structured interviews. The simplified form of the Oral Health Impact Profile (OHIP-14) was used to measure OHRQoL. Information on sociodemographic characteristics, use of dental services, and subjective measures of health was collected. Poisson regression within a hierarchical model was used to data analyses. The following variables were associated with a negative impact on OHRQoL: female gender (PR = 1.40; CI 95%: 1.11–1.77); lower class (PR = 1.58; CI 95%: 1.13–2.20); up to 3 occluding pairs of posterior teeth (PR = 1.88; CI 95%: 1.13–3.14); at least one untreated caries (PR = 1.28; CI 95%: 1.06–1.54); curative reasons for the last dental appointment (PR = 1.52; CI 95%: 1.15–2.00); poor self-perception of oral health (PR = 2.49; CI 95%: 1.92–3.24); and poor perception of dental care provided (PR = 1.34; CI 95%: 1.12–1.59). The younger elderly also noticed this negative impact. These findings showed that the clinical, sociodemographic, and subjective factors evaluated exerted a negative impact on OHRQoL in elderly people. Health authorities must address all these factors when planning interventions on oral health for this population.

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