scholarly journals Hemoglobin disorders in Europe: a systematic effort of identifying and addressing unmet needs and challenges by the Thalassemia International Federation

2021 ◽  
Vol 11 (1) ◽  
Author(s):  
Michael Angastiniotis ◽  
Lily Cannon ◽  
Eleni Antoniou ◽  
Angelo Loris Brunetta ◽  
George Constantinou ◽  
...  

Hemoglobin disorders (thalassemia and sickle cell disease) are a group of hereditary anemias that today occur across the world. The recent population movement has led to a steady increase of carriers and patients in all countries of the European Union. Requiring complex monitoring and treatment and, as a consequence, well-organized and nationally coordinated, supported and funded services, these lifelong conditions are now visible to healthcare services in the EU. The purpose of this study is to provide an overview of the current situation pertaining to these disorders, as perceived by the patient/parent community that the Thalassemia International Federation (TIF) represents. The aim is to establish a comprehensive understanding of the situation and unmet needs faced by migrants with thalassemia. The implementation of activities by TIF in 2018-2020 to identify and address these challenges, paves the way to increased awareness, education and policy changes building on international expertise and knowledge that will enable the provision of state-of-art clinical management services thus guaranteeing an improved quality of life. A bird’s eye view of the prevalence of these disorders is presented contributing to the further understanding of challenges met by both patients and healthcare professionals in the receipt and provision of quality healthcare respectively.

Energies ◽  
2020 ◽  
Vol 14 (1) ◽  
pp. 35
Author(s):  
Elżbieta Szostak ◽  
Piotr Duda ◽  
Andrzej Duda ◽  
Natalia Górska ◽  
Arkadiusz Fenicki ◽  
...  

Although Poland is one of the leading recipients of the waste stream in the European Union (EU), it is at the same time below the average in terms of efficiency of their use/utilization. The adopted technological solutions cause waste processing rates to be relatively low in Poland. As a result, the report of the Early Warning and Response System (EWRS) of the EU indicated Poland as one of the 14 countries of the EU which are at risk in terms of possibility of achieving 50% recycling of waste. This article discusses the implemented technological solutions, and shows the profitability of the investment and the values of the process heat demand both for extractor and reactor. The experimental part analyzed the composition of the input and output of the process and compared it to the required fuel specifications. Attention was drawn to the need to improve the recycling process in order to increase the quality of manufactured fuel components. As potential ways of solving the problem of low fuel quality, cleaning the sorted reaction mass from solid particles and extending the technological line with a distillation column have been proposed. The recommended direction of improvement of the technology is also the optimization of the process of the reactor’s purification and removal of contaminants.


2020 ◽  
Vol 16 (1) ◽  
pp. 71-87
Author(s):  
Muzna Ashfaq ◽  

This study examines role of quality of service as a predictor of customer satisfaction in private hospitals. Using a sample of customers of selected private hospitals in Karachi, this study used reliability statistics, Pearson correlation analysis, and OLS regression techniques to analyse the data. The results show that private hospitals are trying to deliver healthcare service that is at par with the expected standards set by their customers. The findings of this study will help management of these hospitals to develop and implement appropriate and effective strategies that would be helpful in delivering quality healthcare services to the patients.


Author(s):  
G. Olevsky

The article studies role of knowledge in business and analyzes tendencies of the formation of knowledge-intensive entrepreneurship (business) in the EU. It is shown that for small and medium-sized enterprises prospects of expansion of knowledge production and sales of products and services are associated with the internationalization of business. The author proposes the matrix of decision-making entrepreneurs, depending on the completeness and quality of information at their disposal on the market.


IG ◽  
2021 ◽  
Vol 44 (4) ◽  
pp. 287-300
Author(s):  
Michèle Knodt ◽  
Rainer Müller ◽  
Sabine Schlacke ◽  
Marc Ringel

The European Commission's “Fit for 55” package of July 2021 provides for a significant increase in renewable energy and energy efficiency targets in the European Union (EU). However, the EU’s competences in the energy sector are severely limited and subject to sovereignty. Already in 2018, the EU adopted a Governance Regulation that provides for a hardening of the otherwise only soft governance in the areas of renewable energies and energy efficiency due to the lack of European competences. It is intended to ensure that the Commission's recommendations for improving national energy and climate plans are implemented by the member states. An analysis of the quality of implementation of these recommendations now shows that this has a positive effect in areas with harder soft governance but still needs improvement. Increasing the targets of regulatory action cannot be successful without revising the Governance Regulation and hardening soft governance along with it. Otherwise, the EU is not fit for its 55 percent target in 2030.


Author(s):  
Address Malata ◽  
Jennifer Hall ◽  
Martha Kamanga

Many single interventions are available to enhance access to and quality of maternal health services but none alone can significantly reduce the rate of maternal mortality in a population. Factors such as rapid urbanisation, political unrest, changes in fertility rates, or growing numbers of institutional births, change the scenario of maternal risk and call for reappraisal of a country’s maternal health strategy and programme priorities. Strategies to improve maternal health, such as the Global Strategy for Women’s and Children’s Health, act as a roadmap to ensure that every woman and her newborn survive. It is vital to consider both the whole reproductive, maternal, neonatal, child, and adolescent health continuum of care, and all levels of healthcare, from community to tertiary settings to improve maternal health. Furthermore, women must be empowered to take decisions about their own health and access to quality healthcare services must be improved.


2019 ◽  
Vol 34 (8) ◽  
pp. 1254-1261 ◽  
Author(s):  
Raymond Vanholder ◽  
Vianda S Stel ◽  
Kitty J Jager ◽  
Norbert Lameire ◽  
Fiona Loud ◽  
...  

Abstract Kidney transplantation offers better outcomes and quality of life at lower societal costs compared with other options of renal replacement therapy. In this review of the European Kidney Health Alliance, the current status of kidney transplantation throughout Europe and suggestions for improvement of transplantation rates are reported. Although the European Union (EU) has made considerable efforts in the previous decade to stimulate transplantation activity, the discrepancies among European countries suggest that there is still room for improvement. The EU efforts have partially been neutralized by external factors such as economic crises or legal issues, especially the illicit manipulation of waiting lists. Hence, growth in the application of transplantation throughout Europe virtually remained unchanged over the last few years. Continued efforts are warranted to further stimulate transplantation rates, along with the current registration and data analysis efforts supported by the EU in the Effect of Differing Kidney Disease Treatment Modalities and Organ Donation and Transplantation Practices on Health Expenditure and Patient Outcomes project. Future actions should concentrate on organization, harmonization and improvement of the legal consent framework, population education and financial stimuli.


2014 ◽  
Vol 60 (No. 1) ◽  
pp. 31-48
Author(s):  
E. Cihelková

The European Union pays a primary attention to the development of neighbouring relations; it means the relations with countries in the immediate vicinity of its external borders. This is done for the sake of prosperity, stability and the spread of democratic values in the world. In this sense, a kind of the privileged region have always created the states of the Southern and Eastern or eventually Northern Mediterranean with which the European Economic Community began to develop cooperation immediately after its formation. Then since the mid-1990s, the EU set out a goal to create a Euro-Mediterranean free trade area and thus to move closer to the interlacing of the two entities in the form of integration. The outline of the process of development of Euro-Mediterranean relationships (including the changes of bilateral approaches and the conditioning factors) is the objective of this article. It is divided into three sections, which cover different stages of the development of these relationships over time and escalate in terms of two-way approaches to a new quality of cooperation (including the three stated research questions). The result of these relationships could become a Euro-Mediterranean Alliance that is outlined as a differentiated form of multilateralism in the conclusions of the paper.


2018 ◽  
Vol 7 (4.34) ◽  
pp. 11
Author(s):  
Lina Iziana Ghazali ◽  
Aziz Amin

In recent years, healthcare face challenges to be more responsive to the increased demands of public for better quality of care. In order to ensure public received with good healthcare services, the most important employees are nursing professionals who are responsible to emphasise on delivering quality and efficient. Based on literature, innovation can become a good solution to increase patient care quality. Healthcare depend on their nurses to continuous innovate their ways of working that actually improve nursing practice. Previous study found that leadership is important antecedent of innovative behaviour. This study is an attempt to examine transformational leadership on innovative behaviour among nurses. The structural equation modelling has been proposed and will be used to test the impact of transformational leadership towards innovative behaviour.    


2020 ◽  
Vol 9 (3) ◽  
pp. 978
Author(s):  
Kateryna O. RODIONOVA ◽  
Volodymyr M. STESHENKO ◽  
Ivan V. YATSENKO

The main objectives of the research were such: to define the concept of cold chain as an object of legal regulation; to find out the content and features of the EU legislation on the safety and quality of meat and meat products during cold chain and its use in Ukraine; to characterize the legal bases of the current legislation of Ukraine on ensuring the safety and quality of meat and meat products during cold chain, to formulate proposals and recommendations aimed at improving the national legislation of Ukraine by approximating it to the EU legislation, which sets requirements for the safety and quality of meat and meat products throughout cold chain. To achieve the abovementioned objectives, the following methods were used: comparative legal, analytical, systemic, dialectical, generalizing, specific-search, structural-functional, semantic, methods of deduction and induction, etc. The content and features of the legal regulation of the safety and quality of meat and meat products in the current legislation of the European Union and Ukraine have been clarified. For the first time, the definition of the term 'cold chain' has been proposed by reference to it in author's editorial, which should influence its clearer scientific and practical understanding. It is determined that the temperature regimes of cold processing, storage and transportation of meat and meat products in Ukraine are regulated by a large number of legal acts, in particular: national standards of Ukraine (DSTU), technical regulations, technological instructions, rules of transportation, etc. It is found that national legal acts do not provide a systematic understanding of the particularities of cold chain legal regulation in the meat processing industry in order to ensure the safety and quality of meat and meat products. As a result of departmental inconsistency, the existing storage temperature parameters for the same product type in different legal acts differ from each other, which does not allow to determine the actual storage periods at different stages of the cold chain. In addition, current legal acts in Ukraine do not provide for constant monitoring of the temperature of cold-processed meat and meat products throughout all cold chain units and the hygienic condition of refrigerators throughout the shelf life. As a result, the cold chain is very difficult to be controlled and requires a large number of factors to be taken into account in order to bring safe and high-quality meat and meat products to the end consumer. According to the results of the research, proposals and recommendations are formulated to improve the national legislation of Ukraine governing the cold chain in the meat processing industry.


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