Patient-oriented and culturally-adapted (POCA) health care translation model

2019 ◽  
pp. 30-46
Author(s):  
Shanshan Lin ◽  
Meng Ji
2018 ◽  
Vol 56 (6) ◽  
pp. 1218-1236
Author(s):  
Leopoldo J. Cabassa ◽  
Yamira Manrique ◽  
Quisqueya Meyreles ◽  
Lucia Capitelli ◽  
Richard Younge ◽  
...  

Latinos with serious mental illness (SMI) experience health and health care disparities and may benefit from interventions that improve access to, coordination of, and receipt of primary care services. The aim of this qualitative study was to examine the experiences of Latinos with SMI and at risk for cardiovascular disease participating in Bridges to Better Health and Wellness (B2BHW), a culturally-adapted health care manager intervention delivered in a public outpatient mental health clinic. A total of 29 Latino participants completed a post-intervention survey that included an open-ended question about the three things they liked most about B2BHW; a subset of 16 participants participated in one of three post-intervention focus groups. Results indicate that what mattered most to participants was the health education they received, the positive relationships they formed with their health care managers, the care coordination assistance they obtained, and the motivation and activation they gained from this intervention. Study findings suggest that key elements of the health care manager intervention (e.g., care coordination, and patient activation) shaped participants' experiences with B2BHW and were perceived as beneficial.


2016 ◽  
Vol 2016 ◽  
pp. 1-4 ◽  
Author(s):  
S. M. Yasir Arafat

Background. The patient-doctor relationship is an important issue in health care as it is linked to patient satisfaction, treatment adherence, and treatment outcome. The PDRQ-9 is brief instrument which has an excellent overall internal consistency to measure it.Objective. It was aimed at developing a culturally adapted and validated Bangla version of Patient-Doctor Relationship Questionnaire (PDRQ-9).Method. Data were collected during the period of May 2015 to July 2015 from 50 patients by interviewing with the final Bangla version of PDRQ-9 obtained by ideal translation-back translation procedure with nonprobability purposive consecutive sampling and analyzed by Statistical Package of Social Science (SPSS) 16.0 and Microsoft Excel 2007 version software.Result. The internal consistency of Bangla PDRQ-9 was measured by Cronbach’sαwhich was 0.97. Only one factor was extracted from varimax rotation factor analysis with high commonalities between the items.Conclusion. Bangla version of PDRQ-9 is valid, accepted, and widely applicable in clinical practice, research, public health, and primary health care in Bangladesh.


2018 ◽  
Vol 76 (6) ◽  
pp. 683-710 ◽  
Author(s):  
Benjamin Lê Cook ◽  
Sherry Shu-Yeu Hou ◽  
Su Yeon Lee-Tauler ◽  
Ana Maria Progovac ◽  
Frank Samson ◽  
...  

Racial/ethnic minorities in the United States are more likely than Whites to have severe and persistent mental disorders and less likely to access mental health care. This comprehensive review evaluates studies of mental health and mental health care disparities funded by the National Institute of Mental Health (NIMH) to provide a benchmark for the 2015 NIMH revised strategic plan. A total of 615 articles were categorized into five pathways underlying mental health care and three pathways underlying mental health disparities. Identified studies demonstrate that socioeconomic mechanisms and demographic moderators of disparities in mental health status and treatment are well described, as are treatment options that support diverse patient needs. In contrast, there is a need for studies that focus on community- and policy-level predictors of mental health care disparities, link discrimination- and trauma-induced neurobiological pathways to disparities in mental illness, assess the cost effectiveness of disparities reduction programs, and scale up culturally adapted interventions.


2020 ◽  
pp. 147332502093237
Author(s):  
Rita Sørly ◽  
Vår Mathisen and ◽  
Siv Kvernmo

The approach to standardized services in Norwegian mental health care is tailored to the needs of the majority population, focusing on diagnoses and overshadows an approach that understands, values and emphasizes Sámi storytelling and everyday life. This study aims to contribute knowledge regarding the promotion of user involvement in mental health care from the perspectives of Sámi mental health care users. A narrative approach offers an opportunity to unravel an indigenous approach to mental health care and user involvement. People organize their storytelling according to culturally available narratives. This paper focuses on 9 Sámi men’s and women’s stories related to user involvement in mental health care services. Through a thematic analysis of personal stories, we emphasize how the participants make sense of their needs as patients in a culturally adapted mental health context and their experiences living in Sámi core areas. The following four themes are identified as prerequisites for user involvement in services: (1) the expectation of raising children to be independent, (2) the importance of accepting and recognizing the Sámi identity, (3) the need to live in close relations with nature and family, and 4) the right to be in the Sámi mode. Based on the results of our analysis, we find that user involvement among Sámi mental health care users is related to important Sámi values and norms within the culture and that treatment without these important values ​​could adversely affect user involvement in mental health services.


2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Søren Kabell Nissen ◽  
Anders Fournaise ◽  
Jørgen T. Lauridsen ◽  
Jesper Ryg ◽  
Christian H. Nickel ◽  
...  

Abstract Background Focus on frailty status has become increasingly important when determining care plans within and across health care sectors. A standardized frailty measure applicable for both primary and secondary health care sectors is needed to provide a common reference point. The aim of this study was to translate the Clinical Frailty Scale (CFS) into Danish (CFS-DK) and test inter-rater reliability for key health care professionals in the primary and secondary sectors using the CFS-DK. Methods The Clinical Frailty Scale was translated into Danish using the ISPOR principles for translation and cultural adaptation that included forward and back translation, review by the original developer, and cognitive debriefing. For the validation exercise, 40 participants were asked to rate 15 clinical case vignettes using the CFS-DK. The raters were distributed across several health care professions: primary care physicians (n = 10), community nurses (n = 10), hospital doctors from internal medicine (n = 10) and intensive care (n = 10). Inter-rater reliability was assessed using intraclass correlation coefficients (ICC), and sensitivity analysis was performed using multilevel random effects linear regression. Results The Clinical Frailty Scale was translated and culturally adapted into Danish and is presented in this paper in its final form. Inter-rater reliability in the four professional groups ranged from ICC 0.81 to 0.90. Sensitivity analysis showed no significant impact of professional group or length of clinical experience. The health care professionals considered the CFS-DK to be relevant for their own area of work and for cross-sectoral collaboration. Conclusion The Clinical Frailty Scale was translated and culturally adapted into Danish. The inter-rater reliability was high in all four groups of health care professionals involved in cross-sectoral collaborations. However, the use of case vignettes may reduce the generalizability of the reliability findings to real-life settings. The CFS has the potential to serve as a common reference tool when treating and rehabilitating older patients.


2017 ◽  
Vol 23 (2) ◽  
pp. 252-272 ◽  
Author(s):  
Daniela D’Angelo ◽  
Antonella Cinzia Punziano ◽  
Chiara Mastroianni ◽  
Annamaria Marzi ◽  
Roberto Latina ◽  
...  

Family satisfaction is an important outcome of palliative care and is a critical measure for health care professionals to address when assessing quality of care. The FAMCARE-2 is a widely used measure of family satisfaction with the health care received by both patient and family in palliative care. In this study, a team of Italian researchers culturally adapted the FAMCARE-2 to the Italian language and psychometrically tested the instrument by measuring satisfaction of 185 family caregivers of patients admitted into two palliative care services. FAMCARE-2 showed excellent levels of internal consistency (Cronbach’s α coefficient = .96) and test–retest reliability ( r = .98, p < .01). The confirmatory factor analysis showed a single-factor structure with good fit. Satisfaction levels were significantly correlated with family caregivers being females with less education, patient length of care, and place of assistance and death. This scale can help health care professionals identify which aspects of care need improvement and enable family caregivers to manage their challenging role.


2018 ◽  
Vol 28 (Supp) ◽  
pp. 485-492 ◽  
Author(s):  
Dawn Edge ◽  
Paul Grey

Objective: To determine how to improve the cultural appropriateness and accept­ability of an extant evidence-based model of family intervention (FI), a form of ‘talking treatment,’ for use with African Caribbean service users diagnosed with schizophrenia and their families.Design: Community partnered participa­tory research (CPPR) using four focus groups comprising 31 key stakeholders.Setting: Community locations and National Health Service (NHS) mental health care settings in northwest England, UK.Participants: African Caribbean service us­ers (n=10), family members, caregivers and advocates (n=14) and health care profes­sionals (n=7).Results: According to participants, com­ponents of the extant model of FI were valid but required additional items (such as racism and discrimination and different models of mental health and illness) to im­prove cultural appropriateness. Additionally, emphasis was placed on developing a new ethos of delivery, which participants called ‘shared learning.’ This approach explicitly acknowledges that power imbalances are likely to be magnified where delivery of interventions involves White therapists and Black clients. In this context, therapists’ cultural competence was regarded as funda­mental for successful therapeutic engage­ment and outcomes.Conclusions: Despite being labelled ‘hard-to-reach’ by mainstream mental health services and under-represented in research, our experience suggests that, given the opportunity, members of the African Carib­bean community were highly motivated to engage in all aspects of research. Participat­ing in research related to schizophrenia, a highly stigmatized condition, suggests CPPR approaches might prove fruitful in developing interventions to address other health conditions that disproportionately affect members of this community.Ethn Dis. 2018;28(Suppl 2): 485-492; doi:10.18865/ed.28.S2.485.


2018 ◽  
Vol 5 ◽  
pp. 233339361880738
Author(s):  
Catarina Wallengren ◽  
Kristina Rosengren ◽  
Richard Sawatzky ◽  
Joakim Ohlen

There is evidence that low suitability and comprehensibility of printed education materials (PEMs) affects patients’ and relatives’ ability to read and comprehend information. However, few instruments measure the suitability of written information, and none exist in the Swedish language. The aim was to describe the translation and adaptation of the Suitability and Comprehensibility of Materials (SAM+CAM) instrument into the Swedish language and health care context and to explore challenges related to this process. The SAM+CAM instrument was translated and culturally adapted in five steps: forward translation, synthesis, back translation, expert review, and pretests. Differences were found when translating and culturally adapting the SAM+CAM instrument in the areas of semantic, idiomatic, and experiences. Participants revealed several clarity inconsistencies between items. They also identified linguistic differences and unfamiliar wording; they found that the instrument was perplexing to use and lacked knowledge regarding the specific health care areas in the examined PEMs. The cultural perspective is a significant factor that influences the usability of PEMs. Therefore, expert groups of participants are useful when adapting instruments to different cultures. The Swedish SAM+CAM instrument requires experienced and highly qualified raters.


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