scholarly journals Perceived Stigma among Family Members of Persons Suffering from Mental Illness: A Narrative Exploration from West Bengal, India

Author(s):  
Bidisha Banerjee ◽  
Shikha Dixit

In this paper, we report the findings of a qualitative study that, aims to understand the family members’ subjective experiences with perceived stigma of mental illness. The theoretical standpoint and the research method for the study employed are social constructivist theory and narrative inquiry respectively. We conducted semi-structured and in-depth interviews with family members and others accompanying patients to an outpatient unit of a psychiatric clinic. The professionals and the administrative staff at the clinic gave additional interviews. The constant comparative method was employed for the analysis of the narratives. The findings suggest the existence of perceived and direct stigma among family members. Family members shared their concerns relating to the disclosure of illness, its receptions, its interpretation by others, and the possible impact of the disclosure on the family. Professionals and staff at the clinic shared their perceptions regarding the manifestations of perceived stigma among families. In this study, we gathered an emic understanding of family stigma in the context of West Bengal, India. The findings are discussed in the context of current literature on stigma in India.

2019 ◽  
Vol 6 (2) ◽  
pp. 64-69
Author(s):  
Rama Kumari Lamichhane

Introductions: Stigma and unfavorable view of people towards mental illness is prevailing in Nepal due to lack of awareness. Stigma among family members of people with mental illness has a serious impact on the outcome. This study aims to identify the level of perceived stigma by family members and association with selected demographical variables. Methods: A cross-sectional research design was used to assess the stigma perceived by family members of patients visiting psychiatry outpatient department of Patan Hospital, Patan Academy of Health Sciences during 12 August to Sep 7, 2018. Questionnaire on socio-demographic variables and self-stigma of mental illness scale was used to interview the family members to assess the level of perceived stigma. Chi-square was used to examine the association between demographic variables and stigma, p < 0.05 was considered significant. Results: Out of 180 family interviewed 94 (52.2%) had perceived high level of stigma and 86 (47.8%) low level of stigma. There was significant association between age and perceived stigma (p value=0.030) at 95% of significance. Conclusions: More than half of the family members of psychiatric patients had perceived high level of stigma and was associated with the age.


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Mayssa Rekhis ◽  
Sami Ouanes ◽  
Abir Ben Hamouda ◽  
Rym Rafrafi

Purpose This study aims to assess the awareness about the rights of people with mental illness in the main psychiatric hospital in Tunisia among the service users, the family members and the staff. Design/methodology/approach The Convention of Rights of People with Disabilities mandates that State Parties initiate and maintain campaigns and human rights training to promote understanding of the rights of people with mental illnesses, considered as a main factor for their fulfillment. Service users, family members and staff evaluated, through a survey, the importance of ten rights for persons with mental illness, stated in the convention. Findings Disparities were found in the perception of the different rights by and between the three groups. The highest levels of awareness were associated with the freedom from torture or degrading treatment and the right to live with dignity and respect, whereas the lower importance were assigned to the right to participation in recovery plans, to give consent and to exercise legal capacity. Originality/value The lack of awareness and the poor perception of rights of people with mental illness is one of the barriers to their achievement. More training and awareness raising is necessary.


2016 ◽  
Vol 4 (1) ◽  
Author(s):  
Aditi Rana

Mental illness is a growing reality of our times. Usually in a typical Indian family, the parents act as the primary caregivers for the child suffering from mental disorder. For adult sufferers, it can also be siblings or offspring, and  at times even spouse or partner. Research on the experiences of families of mentally ill people has been minimal in the Indian context. This study aims to shift the focus from the mentally ill patients to the suffering of the caregivers and families of the patient keeping in mind the interconnected well being of the family in a collectivist culture. Following a qualitative approach, narratives have been taken from the family members of mentally ill (narratives of 8 families with mentally ill person) and also the mental health professionals (two) through semi structured interviews. The findings suggest that the family members suffer from a significant amount of stress accompanied by burden. Also, they feel secluded from the society and experience a lack of assistance to deal with the mentally ill member of the family.


Author(s):  
Andrea E. Reupert ◽  
Kirsten T. Green ◽  
Darryl J. Maybery

The process of establishing care plans for families affected by parental mental illness is outlined in this article. Based on the feedback of families involved, the original objective of developing crisis plans was broadened to incorporate “care” components. Accordingly, family care plans included planning for possible future crises, such as a parent's hospitalization, as well as long-term goals, for example, education plans for the children. It was found that identifying both crisis and care components enhanced existing social supports within the family and involved pre-negotiating and coordinating agency supports for family members. The general principles and basic components of family care plans are outlined, and the implications for workers' roles conclude the article.


2011 ◽  
Vol 18 (5) ◽  
pp. 651-661 ◽  
Author(s):  
Hanna-Mari Pesonen ◽  
Anne M Remes ◽  
Arja Isola

This article is based on a qualitative longitudinal study that followed the subjective experiences of both people living with dementia and their family members during the early stages of the illness. The purpose of this article is to describe and reflect on the ethical and methodological issues that occurred during data collection. The article focuses on the situation of the person with dementia and the family member and the role of the researcher when conducting the research interviews. Based on the results of this study, conducting research interviews with people with dementia and their family members poses several ethical and methodological challenges that must be addressed. In doing so, ethically sound dementia-specific research methods will be actively developed enhancing our understanding of living with dementia and providing new insights into the care of people with dementia and their family members.


2020 ◽  
Vol 2 (2) ◽  
pp. 7-14
Author(s):  
Sakinah Al Muniroh Nasution ◽  
Wardiyah Daulay

Family member with mental illness causes inferiority, shamefulness, and minimal function in the community.  In some cases, mentally ill patients withdrawn from interaction and refuse to communicate.  The objective of the research was to analyze the correlation between self-esteem and social interaction in the family with mentally ill patients in Kelurahan Medan Sunggal, Medan. This was a descriptive quantitative study with correlation method. The samples were 18 family members who suffered from a mental disorder, with purposive sampling technique. The data collection using questionnaires and data analyses is undergone with univariate analysis and frequency distribution.  The bivariate analysis applied Spearman's Rho test. The result of the research showed that 15 respondents (83.3%) had high self-esteem and 11 respondents (61.1%) had a good social interaction. There was a significant correlation between self-esteem and social interaction in a family with a mentally ill patient (P-value = 0.012) with positive direction (r = 0.576). It is concluded that a high self-esteem correlates well with the social interaction among the family members with mental illness. It is recommended for family members to maintain their self-esteem and social interaction capacity. A mentally disorder person should get social support from family, health care providers, the government, and society.


2012 ◽  
Vol 4 (4) ◽  
pp. 2901-2908
Author(s):  
Francisco Arnoldo Nunes de Miranda ◽  
Samia Valério Ozório Dutra ◽  
João Mário Pessoa Júnior ◽  
Clara Tavares Rangel ◽  
Marta Batista da Silva

Objetivo: Analisar a opinião dos familiares na Estratégia Saúde da Família sobre o doente, a doença mental e a família. Método: Pesquisa operacional ou Investigação em Sistemas de Saúde, descritiva e quantitativa, realizada com 154 familiares. Resultados: 68% dos familiares discordam totalmente de que alcoolismo é doença mental; 50% discordam pouco como diferenciar um doente mental de uma pessoa normal; 30 % dos familiares concordam pouco de ser agressivo; 32% concordam totalmente como lugar do louco no hospício; 75% discordam totalmente que internar uma pessoa em hospital psiquiátrico significa rejeição da família; e 82% concordam totalmente em dar suporte à família para cuidar. Conclusão: Reflete uma aparente novidade nos modos de cuidar e perplexidade ao assumir este protagonismo, embora, sejam cuidadores habituais dos portadores


2016 ◽  
Vol 5 (2) ◽  
pp. 102
Author(s):  
Yenni Melia

Madness is a symptom of a disease caused by psychiatric symptoms. Many factors become the cause of insanity, therefore need many approaches in healing. The process of healing the family involvement factor is an important factor. This study discusses family efforts to support the cure of psychiatric patients at psychiatric hospital of Prof. HB. Sa’anin. The research was conducted by qualitative method by following the steps suggested by Miles and Huberman. Data were collected using observation techniques, interviews and documentation studies. The informant consists of the main informant, the family of the mental illness patient and the supporting informant, the hospital officer. The results reveal the efforts provided by the family in the healing of mental illness patients, among others, by providing motivation to return to normal conditions. Another factor that causes healing is the economic and educational factor of family members. What is unique is that ethnic role factors have an effect on patient healing. Strategies that can be done to involve the family in healing is to establish mutual communication and the resignation nature of family members. Gila adalah gejala penyakit yang disbabkan oleh gejala kejiwaan. Banyak faktor yang menjadi penyebab kegilaan, oleh karena itu perlu banyak pendekatan dalam penyembuhannya. Dalam proses penyembuhan tersebut faktor keterlibatan keluarga adalah faktor penting dalam proses penyembuhan. Studi ini membahas tentang upaya keluarga dalam mendukung penyembuhan pasien sakit jiwa di rumah sakti jiwa Prof. HB. Sa’anin. Penelitian dilakukan dengan metode kulitatif dengan mengikuti langkah-langkah yang disarankan Miles dan Huberman. Data dikumpulkan dengan menggunakan teknik observasi, wawancara dan studi dokumentasi. Informan penelitian terdiri dari informan utama, yaitu keluarga pasien penyakit jiwa dan informan pendukung, yaitu petugas rumah sakit. Hasil penelitian mengungkapkan upaya yang diberikan oleh keluarga dalam penyembuhan pasien penyakit jiwa antara lain dengan memberikan motivasi untuk kembali ke kondisi normal. Faktor lain yang menjadi penyebab kesembuhan adalah faktor ekonomi dan pendidikan anggota keluarga. Yang unik adalah, faktor peran etnis ikut berpengaruh dalam upaya penyembuhan pasien. Strategi yang dapat dilakukan untuk melibatkan keluarga dalam penyembuhan adalah dengan menjalin komunikasi timbal balik dengan sesama anggota keluarga dan sifat pasrah anggota keluarga.


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