Emancipatoir organisatieonderzoek naar de invoering van een cliëntvolgsysteem

KWALON ◽  
2015 ◽  
Vol 20 (2) ◽  
Author(s):  
Yvonne Timmermans ◽  
Annemiek Stoopendaal
Keyword(s):  
Qualitative Research ◽  
Organizational Change ◽  
Intellectual Disabilities ◽  
Building Trust ◽  
The People ◽  
Change In Practice ◽  
People With Intellectual Disabilities

Emancipatory qualitative research into an organizational change from the perspective of clients with intellectual disabilities and their attending professionals Emancipatory qualitative research into an organizational change from the perspective of clients with intellectual disabilities and their attending professionals This emancipatory research studied the effects of an organizational change in an institute for people with intellectual disabilities both from the perspective of clients and of their attending professionals. Data was collected through observations followed by interviews. First, professionals were interviewed to obtain an image of the organizational change in practice. Then, the clients were observed and interviewed. The sequencing of these methods enabled the interviews with the people with intellectual disabilities by building trust and by using concrete examples that came to the fore during the observations.

scholarly journals Sexual Health in Spanish People with Intellectual Disability: the Impact of the Lockdown due to COVID-19

2021 ◽  
Author(s):  
M. Dolores Gil-Llario ◽  
Irene Díaz-Rodríguez ◽  
Vicente Morell-Mengual ◽  
Beatriz Gil-Juliá ◽  
Rafael Ballester-Arnal
Keyword(s):  
Sexual Abuse ◽  
Sexual Behavior ◽  
Sexual Health ◽  
Intellectual Disabilities ◽  
Sexual Activity ◽  
Policy Implications ◽  
The People ◽  
People With Intellectual Disabilities ◽  
Technological Improvements ◽  
The Impact

Abstract Introduction The lockdown due to COVID-19 affected the sexual health of the people with intellectual disabilities by differentially modifying the frequency and characteristics of people’s sexual activity depending on whether or not they lived with a partner during this period. The aim of this study was to analyze the extent to which the sexual behavior of people with intellectual disabilities (with and without a partner) was affected during the lockdown. Methods The sample consisted of 73 people with intellectual disabilities between 21 and 63 years old (M = 39.63; SD = 10.11). The variables analyzed were the physical, social, and technological environment during the lockdown, sexual appetite, sexual behavior, online sexual activity, and sexual abuse. The data were collected between the months of May and June of 2020. Results The lockdown increased the sexual appetite of a third of the sample (38%), especially the youngest participants. Sexual activity focused on autoeroticism and online behavior, particularly sending nude images of oneself (88%) and viewing pornography (83.6%). Rates of sexual abuse during this period were relatively high (6.8%). Conclusions The sexual activity of people with ID was important during the lockdown, and they had to adapt to the circumstances of isolation in a similar way to the general population. Technological improvements in terms of devices and connection quality at home allowed their sexual behavior to be reoriented, opening the door to new risks for the sexual health of people with ID. Policy Implications Cybersex and the increase in sexual abuse due to confinement are aspects that should be included in programs to improve the sexual health of this group.

Care and rehabilitation institutions for people with intellectual disabilities during the COVID-19 pandemic: Polish experiences

2021 ◽  
pp. 002087282110604
Author(s):  
Monika Parchomiuk
Keyword(s):  
Intellectual Disabilities ◽  
Psychosocial Functioning ◽  
People With Disabilities ◽  
Institutional Support ◽  
Educational Services ◽  
Online Questionnaire ◽  
The People ◽  
Research Goal ◽  
People With Intellectual Disabilities ◽  
Residential Rehabilitation

People with intellectual disabilities benefit from many forms of institutional support, which include residential, rehabilitation, and educational services. Changes caused by the pandemic, especially the introduction of new rules relating to various aspects of life, raised several challenges and problems in the functioning of these institutions and for the people with disabilities during the COVID-19 pandemic. The research concerned facilities providing services for people with intellectual disabilities in Poland during the pandemic. The research goal was to determine what changes took place in the rehabilitation and care institutions during the pandemic in terms of their organization and the functioning of their clients and personnel. An online questionnaire was used. The respondents were institution employees. Data showed a number of preventive, educational, and supportive activities carried out by the institutions. Adverse changes in the psychosocial functioning of people with intellectual disabilities and other problems during the pandemic were reported.

Assessment

2018 ◽  
pp. 79-112
Author(s):  
Owen Barr ◽  
Bob Gates
Keyword(s):  
Mental Health ◽  
Intellectual Disabilities ◽  
Nursing Care ◽  
Nursing Interventions ◽  
Physical And Mental Health ◽  
Nursing Assessment ◽  
The People ◽  
Social Abilities ◽  
People With Intellectual Disabilities ◽  
Pain Distress

It is a professional requirement of nursing regulators such as the Nursing and Midwifery Council and the Nursing and Midwifery Board of Ireland that all nursing interventions should be based upon, and underpinned by, an accurate and structured nursing assessment of a person’s physical, mental, and social abilities and needs. Nurses need to have an understanding of how to assess changes in a person’s physical and mental health, including their level of pain, distress, and ability to make informed decisions, and how this may fluctuate in different settings and across the lifespan. They also need to be alert to the risks of diagnostic overshadowing when undertaking assessments, from which they will plan nursing care in collaboration with the people with intellectual disabilities and their carer/carers.

scholarly journals Tolerance and inclusive competence as the main components of an inclusive culture

2019 ◽  
Vol 70 ◽  
pp. 10006
Author(s):  
Tatyana Lisovskaya ◽  
Tatyana Zhuk
Keyword(s):  
Intellectual Disabilities ◽  
Disabled Children ◽  
Intellectually Disabled ◽  
Social Rehabilitation ◽  
The People ◽  
People With Intellectual Disabilities ◽  
The Republic ◽  
Main Components

The article raises the problems of the formation of an inclusive culture of teachers working with intellectually disabled children in centers of social and professional rehabilitation for the people with special psychophysical development needs (hereinafter referred to as the SPDN). Two components of an inclusive culture are presented: tolerance and inclusive competence. The mechanism of professional and social rehabilitation of people with intellectual disabilities is shown on the example of Brest region of the Republic of Belarus.

“When other people try to understand”: exploring the experiences of people with intellectual disabilities, who also have mental health problems

2020 ◽  
Vol 14 (3) ◽  
pp. 91-101
Author(s):  
Sasha Martine Mattock ◽  
Kieron Beard ◽  
Amy Baddeley
Keyword(s):  
Mental Health ◽  
Mental Health Services ◽  
Focus Group ◽  
Health Services ◽  
Intellectual Disabilities ◽  
Mental Health Problems ◽  
Health Problems ◽  
Content Type ◽  
The People ◽  
People With Intellectual Disabilities

Purpose Recent guidelines from the National Institute of Health and Care Excellence highlight that service users (SUs) with intellectual disabilities and co-occurring mental health problems rarely get the opportunity to share their experiences of mental health services. Over the past 20 years, policy documents have stated that these individuals (SUs) must be included in decisions about their care. Research suggests that often this is not the case. Therefore, this paper aims to create a space for SUs to share their experiences of mental health services, and what they found helpful. Design/methodology/approach A focus group was held with five SUs, two psychologists and two researchers. The audio recording of the discussion was transcribed and analysed using thematic analysis. Findings Three main themes were identified, namely, “relationships with others”, “inclusion and communication” and “challenges”. This focus group highlighted that although some SUs felt supported, they reported having little control in their lives and wanted to be listened to. Research limitations/implications Including a SU in the planning and facilitation of the focus group would have made this research more inclusive. Practical implications The implications of this research suggest that by listening to and involving SUs and developing more person-centred services, recovery rates may increase as the services provided would be more targeted. Originality/value Very little research has previously been conducted to explore SUs’ experiences. This paper highlights the value of being heard and the knowledge that is often lost if the authors do not take the time to listen to the people for whom a service is designed.

scholarly journals Using PAR to promote social justice for older people and people with intellectual disabilities

2019 ◽  
Author(s):  
Katie Wright-Bevans ◽  
Michael Richards
Keyword(s):  
Qualitative Research ◽  
Health Promotion ◽  
Qualitative Study ◽  
Intellectual Disabilities ◽  
The Other ◽  
Participatory Methods ◽  
Research Projects ◽  
Participatory Action ◽  
People With Intellectual Disabilities ◽  
Community Choir

Qualitative research methods and participatory action research (PAR) share many intrinsic and complementary qualities. We present two cases, one adopted a broader PAR approach, a health promotion project with men with intellectual disabilities, and the other used participatory methods within a longitudinal qualitative study exploring the benefits of community choir participation. We discuss the nature of the methods adopted and how they helped and hindered both research projects. We conclude that despite some common challenges, qualitative studies can benefit from drawing on PAR principles.

Close Intimate Relations between People with Intellectual Disabilities Constructivist Research: The Polish Perspective

2021 ◽  
Vol 35 (1) ◽  
Author(s):  
Remigiusz Kijak
Keyword(s):  
Intellectual Disabilities ◽  
Social Conditions ◽  
The People ◽  
Qualitative Nature ◽  
Methodological Procedures ◽  
The Subject ◽  
People With Intellectual Disabilities ◽  
Partner Relationships ◽  
Intimate Relations ◽  
Linguistic Means

The issues raised in this article are not often mentioned in the source literature. Available studies demonstrate that partnership issues for people with intellectual disabilities appear to be among the ignored problems. Empirical evidence indicates the participation of people with disabilities in the realization of these roles, but their realization is burdened with difficulties resulting from individual predispositions and social conditions. I am directing my research on partner relationships towards a constructivist–interpretative paradigm based on ontological relativism (the multiplicity of meanings given to the category of relationship can be observed at this point, arising in subjective reconstructions—statements—of the people surveyed), subjective epistemology (arising in the course of the research, which is co-created by the cognitor and the subject), and the naturalism of methodological procedures, which means the rejection of advanced statistics in favor of cognition of the true experiences of the subjects. I have assumed a qualitative nature for the research and the biographical method was used. The research aimed to answer the questions: How are the relationships of people with intellectual disabilities understood? What meaning do people with intellectual disabilities assign to love and relationships and their own intimate relations (sexuality)? A literal linguistic analysis of the statements of those tested with the Atlas.ti software is presented in the results. The article depicts the way people with intellectual disabilities describe their relationships, how they feel in the relationships they create, and thus, what linguistic means of expression they use to communicate their intentions and expectations with respect to their partner.

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