scholarly journals Personalised Support and Services for Persons with Disabilities – mapping of Nordic models

2021 ◽  
Author(s):  
Lars Lindberg
Keyword(s):  
Health Care ◽  
People With Disabilities ◽  
Nordic Countries ◽  
Freedom Of Choice ◽  
Persons With Disabilities ◽  
Personal Assistance ◽  
Nordic Region ◽  
The Individual

In what way and how can models for personalised support such as personal budgeting strengthen the implementation of the UN Convention on the Rights of Persons with Disabilities? Personal budgeting refers to a sum of money that is granted to the individual on the basis of an assessment of the need for service and calculation of a budget for this purpose. The individual can buy the service he needs for his budget. Personal budgeting is in use in social and health care in several countries. In the Nordic region, personal assistance is the main example of such solutions, but other models have also been tried and adopted in social and health care, such as systems of freedom of choice and increased opportunities for users to choose a provider. The report presents a number of personalised systems for support for people with disabilities that have been implemented in the Nordic countries and their experiences. The mapping was carried out jointly by the Nordic Welfare Center and the Finnish Institute for Health and Welfare (THL). The report will be considered when forming a proposal for a future reform of support and services for people with disabilities in Finland.

scholarly journals Personal assistance in Sweden – Support and service for persons with certain functional impairments

2016 ◽  
Vol 23 (1-2) ◽  
pp. 18-28
Author(s):  
Kerstin Gynnerstedt ◽  
Hans Bengtsson
Keyword(s):  
Decision Process ◽  
Disability Policy ◽  
The Political ◽  
Functional Impairments ◽  
Persons With Disabilities ◽  
Personal Assistance ◽  
Functional Disabilities ◽  
The Individual ◽  
The Right ◽  
Legal Right

The political goal and the aim of Swedish disability policy today is to give persons with disabilities the same opportunities as others to participate in society and to live together with others – the principles of normalisation and integration. Two particular acts came into force on the 1st of January 1994, the Act concerning Support and Service for Persons with Certain Functional Impairments (LSS) and the Act concerning Assistance Compensation (LASS). LSS gives persons with severe functional disabilities, either physical or mental, the legal right to 10 different kinds of support and services. One of the most important elements in LSS is the right to personal assistance. The idea of personal assistance is to provide support that is tailor-made to the individual as far as possible and to optimise the person’s influence over how the support is arranged. The aim of this article is to describe and analyse the right personal assistance from an administrative perspective. The focus is on the application and decision process and the development of this support during the years. 

scholarly journals Telehealth Use By Persons with Disabilities During the COVID-19 Pandemic

2021 ◽  
Vol 13 (2) ◽  
Author(s):  
Carli Friedman ◽  
Laura VanPuymbrouck
Keyword(s):  
Health Care ◽  
Health Care Access ◽  
Secondary Analysis ◽  
People With Disabilities ◽  
Census Bureau ◽  
United States Census ◽  
United States Census Bureau ◽  
Persons With Disabilities ◽  
Care Access ◽  
Second Year

Telehealth use rapidly expanded during the COVID-19 pandemic. Understanding if, and how, people from disabilities used telehealth during the pandemic is vital to assuring this evolving and increasingly common form of health care is equitably developed and delivered to avoid reproducing the health disparities people with disabilities already face. Our aim was to explore the use of telehealth among people with disabilities during the pandemic. We conducted a weighted secondary analysis of United States Census Bureau data (April-July 2021) from 38,512 (unweighted) people with disabilities. Our findings revealed 39.8% of people with disabilities used telehealth during the second year of the pandemic, ranging from 34.5% of people with hearing disabilities to 43.3% of people with mobility disabilities. There were also differences in telehealth use based on sociodemographics. Telehealth promises to open doors to more equitable health care access for many people with disabilities, but only if access barriers are removed.

scholarly journals SCIENTIFIC AND METHODOLOGICAL MECHANISMS OF SOCIAL AND ECONOMIC PROTECTION OF PERSONS WITH DISABILITIES

2019 ◽  
pp. 21-28
Author(s):  
Genrikh Kazarian
Keyword(s):  
Health Care ◽  
Social Protection ◽  
People With Disabilities ◽  
Employment Services ◽  
Persons With Disabilities ◽  
Regional Employment ◽  
The People ◽  
Mechanism Of Interaction

The article deals with the peculiarities of social and economic provision of persons with disabilities. The problems of social protection of the people with disabilities are identified. It is proposed to create more effective and tight mechanism of interaction between regional employment services and health care expert commissions. There is the necessity to expand the range of state bodies, which are responsible for implementation of certain areas of social and economic provision of persons with disabilities, and to clarify their responsibilities.

Theoretical Model for Forming Hardiness for Persons with Disabilities

2019 ◽  
Vol 8 (2) ◽  
pp. 66-71
Author(s):  
Екатерина Михальчи ◽  
Ekaterina Mihal'chi
Keyword(s):  
Theoretical Model ◽  
People With Disabilities ◽  
Current Direction ◽  
Persons With Disabilities ◽  
The Individual ◽  
American Scientist

The article presents the results of the study of the component of hardiness, in the opinion of students of inclusive groups. Based on the data obtained on the components of hardiness, theoretical model of the formation of hardiness for persons with disability was compiled. In the well-known model of the hardiness of the American scientist Maddy S. and his colleagues added the volitional qualities - courage and resilience, as a "national" component of the construct of the viability of the individual, as well as the individual's overall psychological ability - responsibility. The study of hardiness, as the psychological quality of the individual, is currently the current direction in the psychology of disability. The developed theoretical model of the formation of hardiness includes the components of physical, social and personal components and can be used as the basis for the content of the adaptation discipline “Psychology of Hardiness” for people with disabilities.

scholarly journals Personal Assistance to People with ASD in Czechia: Between Positive Discrimination and Ableism

2019 ◽  
Vol 17 (4) ◽  
pp. 629-642
Author(s):  
Хелена Вадюрова ◽  
Виктория Шмидт
Keyword(s):  
Path Dependence ◽  
People With Disabilities ◽  
Autism Spectrum ◽  
Personal Assistance ◽  
Contemporary Politics ◽  
Positive Discrimination ◽  
Independent Life ◽  
The Individual ◽  
The Right ◽  
The Impact

Contemporary politics concerning those with Autism Spectrum Disorder (ASD) revolves around a contest between the medical perspective of autism as a pathology in need of a cure and the autism acceptance perspective, which maintains that autism is a normal human variation. Neither of these extremes provides a sustainable solution to the dilemma of empowerment and care for the people with ASD. Even more, each of the extremes runs the risk of reproducing ableism, a cultural status quo that privileges an able-bodied 'norm' and re-establishes hierarchies of ability upon people with ASD. The call for personal assistance, a pillar of independent life for people with disabilities, reframes the policy of the individual approach for people with ASD by ensuring better continuity between assessment and intervention. The current Czech policy concerning people with disabilities remains aligned with the approach introduced in the late 1980s that divides people with disabilities into categories according to the degree of their dependence instead of refining the approach in line with needs assessment and individualizing interventions. How do different actors respond to the obvious lack of personal assistance to people with ASD? This article examines the impact of governmental bodies responsible for disability policy, the regional authorities and civil society actors on reproducing post-socialist path dependence on medicalised assessment, the centralised approach to funding, and the univocity with residential care. We apply the 'Assessing Personal Assistance Schemes', a multi-faceted set of criteria aimed at monitoring the right to independent life, for indicating options concerning sustainable switching to personal assistance.

scholarly journals INSTITUTIONALIZED CHAOS INSTEAD OF INDEPENDENT LIVING. FORCED MODERNIZATION AND ASSISTANT SERVICES IN POLAND

2020 ◽  
Vol 19 (3) ◽  
pp. 73-92
Author(s):  
Ewa Giermanowska ◽  
Mariola Racław ◽  
Dorota Szawarska
Keyword(s):  
Social Life ◽  
Independent Living ◽  
Public Discourse ◽  
People With Disabilities ◽  
Social Consequences ◽  
Persons With Disabilities ◽  
Personal Assistance ◽  
Governmental Organizations ◽  
Non Governmental Organizations ◽  
State Of Affairs

Personal assistance for people with disabilities in Poland is not available as part of a comprehensive state policy; it is instead a dispersed, fragmented service based on projects. There is a lack of both a national strategy for independent living (including solutions for personal assistance as a key tool) and a plan for deinstitutionalisation of support services. A disabled person as an independent entity seems to be invisible to legislators, despite the postulates regarding “tailor-made” services or “profiling of help” present in public discourse. At the same time, uncoordinated changes are taking place regarding support for people with disabilities, including assistance services. They are partly forced by Poland’s ratification (2012) of the Convention on the Rights of Persons with Disabilities, and partly due to grassroots social innovations of non-governmental organizations. In the article, the authors analyse the factors responsible for the current state of affairs in the context of the theory of imposed modernization, emphasizing the superficiality of institutional changes. They will refer to critical research of public policies (so-called street level bureaucracies) analysing the daily practices of public officials and the social consequences for their recipients. The limitations of the model of personal assistance services as services including disabled people in the mainstream of social life will also be discussed.

scholarly journals INTERNATIONAL PROTECTION OF THE RIGHT OF EQUAL ACCESS TO HEALTH CARE OF PEOPLE WITH DISABILITIES

2018 ◽  
Vol 28 (6) ◽  
pp. 2057-2061
Author(s):  
Momchil Mavrov
Keyword(s):  
Health Care ◽  
United Nations ◽  
Access To Health Care ◽  
People With Disabilities ◽  
Fundamental Rights ◽  
Equal Access ◽  
Persons With Disabilities ◽  
Access To Health ◽  
The United Nations ◽  
The Right

The right to equal access to health care is a fundamental irrevocable right for every person which should be guaranteed in every legal system. It is clear from the established international standards in the field of health that the right of access to healthcare guarantees universal access on an equal basis to really available quality and acceptable health services and health facilities. According to the World Health Organization, access to health services also includes health promotion and disease prevention. In regard to people with disabilities and disadvantaged people, ensuring effective access to healthcare is extremely important, in mind their vulnerability and increased need for moral, social and financial support. The international community has always paid serious attention to the protection of the fundamental rights and freedoms of people with disabilities, especially their health care rights. Evidence for this positive policy is the many legal acts adopted within the United Nations system and within the European Union.The most important of these acts are the Universal Declaration of Human Rights, the International Covenant on Economic, Social and Cultural Rights, the International Convention on the Elimination of All Forms of Racial Discrimination, the Convention on the Elimination of All Forms of Discrimination against Women, the Convention on the Rights of the Child, the Convention on the Rights of Persons with Disabilities, all adopted by the United Nations, as well as the Charter of Fundamental Rights of the European Union, the European Disability Strategy and other European acts. The listed legal instruments proclaim the right of every person to the highest attainable standard of health and as an element of it is protected and the right to equal access to quality health care for all persons.At the same time with creating an appropriate legal framework to protect the health rights of people with disabilities, specialized bodies have been set up within the United Nations system and within the European Union to monitor and control the implementation of international treaties. This approach of the international community deserves support, as only the introduction of comprehensive and adequate measures could provide for a sufficiently high level of protection of the rights of persons with disabilities, who as full citizens of society should have equal and appropriate conditions for full exercising their subjective health rights, without discrimination on the basis of their disability.

scholarly journals Lessons of the pandemic as an incentive to modernize the support system for people with disabilities

2021 ◽  
Vol 5 (3) ◽  
pp. 69-83
Author(s):  
Leila N. Natsun
Keyword(s):  
Health Care ◽  
Social Protection ◽  
Objective Assessment ◽  
People With Disabilities ◽  
Living Alone ◽  
Psychological State ◽  
Persons With Disabilities ◽  
The Disabled ◽  
Distance Selling ◽  
The Impact

The relevance of this study is determined by the need for an objective assessment of changes in the socio-economic situation of the population most vulnerable categories, in particular persons with disabilities, during the coronavirus pandemic. The past 2020 was marked by large-scale changes in the daily life of the population, especially its vulnerable categories. People with disabilities have experienced stress not only due to the need for self-isolation, but also due to a decrease in the availability and quality of critical areas of life. The purpose of this work is to formulate proposals aimed at improving social policy in relation to people with disabilities in Russia, taking into account the consequences of the coronavirus pandemic. The information base of the work was formed by the results of a sociological survey, demonstrating the changes that have occurred during the coronavirus pandemic in the financial situation of people with disabilities, the availability of health care and social protection services for them, psychological state and behavior. It is shown how much the help of volunteers and distance selling were in demand during this period on the part of the disabled. It was found that disabled people living alone were less likely to notice the impact of the pandemic and the introduced quarantine measures on their lives. Among the answers of the lonely respondents, there was also a large share of negative assessments which showed us that society is not ready for integration, the possibility of an independent life, and the media activities in terms of covering the problems which people with disabilities have. The novelty of the study is in identifying the differentiation of the reaction of people with disabilities to a pandemic situation, depending on the type of disabilities observed in them, as well as on the influence of the living alone factor. It is also substantiated that during the period of self-isolation, distance selling played a compensatory role, reducing the tension of the problem with the inaccessibility of the environment for the disabled. On the basis of empirical data, it was confirmed that the period of the pandemic was associated with a decrease in the accessibility of services in the field of health care and social protection for people with disabilities. In the final part of the study, recommendations were formulated regarding the improvement of the social support existing system for people with disabilities, taking into account the experience of the changes that occurred in the life of the group during the coronavirus pandemic.

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