scholarly journals THE USER’S PERSPECTIVE ON THE DAY CENTER SERVICE FOR PEOPLE WITH DEMENTIA

2021 ◽  
Author(s):  
Luana Oliveira ◽  
Virgínia Maffioletti ◽  
Maria Baptista ◽  
Marcia Dourado ◽  
Valeska Marinho

Background: The participation of health service users in satisfaction studies has provided important indicators of service quality. Objectives: To identify and analyze the perception of people with dementia about their experiences in a multidisciplinary Day Center health service. Method: A qualitative descriptive study carried out through the application of a semi-structured interviews to 17 patients with mild to moderate dementia. The data analysis was performed using the Framework method. Results: We identified two main themes: the experience and reasons to attend the Day Center and participants’perceptions of the service. The second theme was divided into six sub-themes: the Day Center as a treatment space, an occupation, a socialization space, a welcoming space, the trust in the team, and suggestions and satisfaction with the service. Participants reported confidence in the treatment provided and in the team. They considered being at the Day Center important to their physical and psychological health. The main reasons were being able to leave the house and get busy, the possibility of socializing and the feeling of happiness generated by being at the Day Center. They also demonstrated satisfaction with the service in general. Conclusion: Individuals with mild cognitive impairment and mild and moderate dementia may provide feasible and reliable information about health services provided.

2021 ◽  
pp. 104973232110041
Author(s):  
Candidus C. Nwakasi ◽  
Kate de Medeiros ◽  
Foluke S. Bosun-Arije

Some Nigerians, in their effort to make sense of dementia symptoms, use descriptions that may stigmatize people with dementia and their families. This qualitative descriptive study focused on the everyday understanding of dementia and the impact of stigma on the caregiving experiences of informal female Nigerian dementia caregivers. Semi-structured interviews were conducted with a purposive sample of 12 adult informal female caregivers in Nigeria and analyzed for themes. Afterward, results were presented to focus groups of 21 adult Nigerians residing in the United States for more contextual insight on the findings. The three major themes were misconceptions about dementia symptoms, caregiving protects against stigmatization, and stigma affects caregiving support. Overall, we argue that knowledge deficit, poor awareness, and traditional spiritual beliefs combine to drive dementia-related stigmatization in Nigeria. Strategies such as culturally appropriate dementia awareness campaigns and formal long-term care policies are urgently needed to help strengthen informal dementia caregiving in Nigeria.


Stroke ◽  
2016 ◽  
Vol 47 (suppl_1) ◽  
Author(s):  
Xichenhui Qiu ◽  
Janet W SIT ◽  
Haixia Feng

Introduction: Among the estimated 22.5 million stroke survivors in China, 78% of them require home care. Previous research has indicated that culture can have a significant impact on caregivers’ perceptions of the caregiving role. There is a dearth of research on stroke caregivers’ perceptions within the Chinese culture. Objective: To explore how Chinese culture influences the perceptions of the caregiving role among stroke caregivers. Methods: In this qualitative descriptive study, 14 stroke caregivers were recruited from a 1800-bed regional hospital in China. Caregivers were on average 58 years old (range 46-74), 78% female, 50% spouse-caregivers and 50% children-caregivers. Caregivers spent on average 14 hours per day (range 5-24) providing care. All were 1st time caregivers who had provided stroke caregiving < 12 months. Individual, semi-structured interviews were conducted. Qualitative content analysis was performed. Strategies to achieve trustworthiness include triangulation of the data in the analysis process, member checking and peer debriefing. Results: Three themes emerged from the interviews. (1) Caregiving is a natural expected part of life. All caregivers accepted caregiving for the sick family member as an expected part of life. This perception is deeply rooted in Chinese culture. (2) Caregiving is a culturally prescribed obligation. Spouse caregivers believe that it is their moral obligation to take care of their sick life partner. Female caregivers emphasized their position and role in the family to take up caregiving for sick relative. (3) Caregiving is an expression of reciprocal love within the immediate family. Tangible caregiving and support during adversity are viewed as expression of reciprocal love among family members. Particularly, the children-caregivers believed in the virtue of filial piety and perceived stroke caregiving as a means of repaying their parents. Conclusions: Our findings highlight an underlying acceptance and devotion of undertaking stroke caregiving within the Chinese culture. Researchers and clinicians that plan to develop an intervention to support Chinese stroke caregivers need to consider integrating these findings.


2019 ◽  
Vol 13 ◽  
Author(s):  
Geicielle Karine de Paula ◽  
Fernanda Garcia Bezerra Góes ◽  
Aline Cerqueira Santos Santana da Silva ◽  
Juliana Rezende Montenegro Medeiros de Moraes ◽  
Liliane Faria da Silva ◽  
...  

RESUMOObjetivo: analisar o uso de estratégias lúdicas no cuidado à criança hospitalizada na perspectiva da equipe de Enfermagem. Método: trata-se de um estudo qualitativo, descritivo, no setor da Pediatria de um hospital municipal, por meio de entrevistas semiestruturadas com 15 profissionais de enfermagem, cujos dados foram submetidos à técnica de Análise de Conteúdo, na modalidade Análise Temática. Resultados: entende-se que as estratégias lúdicas são compreendidas majoritariamente como uma forma de entreter/distrair as crianças hospitalizadas. Utilizam-se materiais hospitalares, brincadeiras, desenhos, conversa/amizade, vestimentas diferenciadas e contação de histórias, especialmente, durante os cuidados procedimentais. Identificam-se, contudo, fatores limitantes do uso dessas estratégias lúdicas no cuidado à criança, como a escassez de recursos/materiais/investimentos, o medo das crianças em relação aos profissionais e aos procedimentos, a falta de tempo e a presença dos familiares. Conclusão: avalia-se que os fatores limitantes precisam ser superados para a garantia do atendimento integral às crianças hospitalizadas, considerando que o brincar é um direito garantido legalmente, além de contribuir para a recuperação mais prazerosa e para o pleno desenvolvimento infantil. Descritores: Saúde da Criança; Criança Hospitalizada; Enfermagem; Enfermagem Pediátrica; Jogos e Brinquedos; Cuidado de Enfermagem. ABSTRACT Objective: to analyze the use of play strategies in hospitalized child care from the perspective of the Nursing team. Method: this is a qualitative, descriptive study in the pediatrics sector of a municipal hospital, through semi-structured interviews with 15 nursing professionals, whose data were submitted to the Content Analysis technique in the Thematic Analysis modality. Results: it is understood that play strategies are understood mainly as a way to entertain/distract hospitalized children. Hospital materials, games, drawings, conversation/friendship, differentiated clothing and storytelling are used, especially during procedural care. However, there are limitations to the use of these play strategies in child care, such as scarce resources/materials/investments, children's fear of professionals and procedures, lack of time and the presence of family members. Conclusion: it is estimated that the limiting factors need to be overcome to guarantee the integral care of hospitalized children, considering that playing is a legally guaranteed right, as well as contributing to a more pleasant recovery and to the full development of children. Descriptors: Child Health; Hospitalized Child; Nursing; Pediatric Nursing; Games and Toys; Nursing Care. RESUMEN Objetivo: analizar el uso de estrategias lúdicas en el cuidado al niño hospitalizado en la perspectiva del equipo de Enfermería. Método: se trata de un estudio cualitativo, descriptivo, en el sector de la Pediatría de un hospital municipal, por medio de entrevistas semiestructuradas con 15 profesionales de enfermería, cuyos datos fueron sometidos a la técnica de Análisis de Contenido, en la modalidad Análisis Temático. Resultados: se entiende que las estrategias lúdicas son comprendidas mayoritariamente como una forma de entretene/distraer a los niños hospitalizados. Se utilizan materiales hospitalarios, juegos, dibujos, conversación/amistad, vestimentas diferenciadas y cuenta de historias, especialmente, durante los cuidados procedimentales. Se identifican, sin embargo, factores limitantes del uso de esas estrategias lúdicas en el cuidado al niño, como la escasez de recursos / materiales / inversiones, el miedo de los niños hacia los profesionales y los procedimientos, la falta de tiempo y la presencia de los familiares. Conclusión: se evalúa que los factores limitantes necesitan ser superados para la garantía de la atención integral a los niños hospitalizados, considerando que el jugar es un derecho garantizado legalmente, además de contribuir para la recuperación más placentera y para el pleno desarrollo infantil. Descriptores: Salud del Niño; Niño Hospitalizado; Enfermería; Enfermería Pediátrica; Juego e Implementos de Juego; Atención de Enfermería. 


2019 ◽  
Vol 13 ◽  
Author(s):  
Edna Andréa Pereira de Carvalho ◽  
Shirlei Moreira da Costa Faria ◽  
Natália Ribeiro Ramos ◽  
Karla Rona da Silva

Objetivos: elaborar um instrumento na modalidade de protocolo que permita a uniformidade das ações de Enfermagem em remoção de órgãos sólidos para transplantes. Método: trata-se de estudo qualitativo, descritivo, com foco na construção de um instrumento tecnológico do tipo protocolo, respeitando-se as seguintes etapas: revisão integrativa; coleta de dados por meio de entrevistas semiestruturadas; apreciação dos dados por meio da Análise de Conteúdo; elaboração da proposta de protocolo e utilização do Índice de Validade do Conteúdo para a validação.  Resultados esperados: espera-se disponibilizar, para os centros transplantadores, um protocolo que auxilie o enfermeiro na sistematização das ações de Enfermagem em cirurgias de remoção de órgãos para transplantes, contribuindo para a qualidade e segurança da assistência prestada a adultos e crianças submetidos a transplantes. Descritores: Protocolos Clínicos; Cuidados de Enfermagem; Transplante de Órgãos; Aloenxerto; Competência Profissional; Fluxo de Trabalho. ABSTRACT Objectives: to elaborate an instrument in the protocol modality that allows uniformity of Nursing actions in the removal of solid organs for transplants. Method: this is a qualitative, descriptive study, focusing on the construction of a protocol-type technological instrument, respecting the following steps: integrative review; data collection through semi-structured interviews; data appreciation through Content Analysis; elaboration of the protocol proposal and use of the Content Validity Index for validation. Expected results: It is expected to make available to transplantation centers a protocol that assists nurses in the systematization of Nursing actions in transplantation organ removal surgeries, contributing to the quality and safety of care provided to adults and children undergoing transplantation. Descriptors: Clinical Protocols; Nursing Care; Organ Transplantation; Allografts; Professional Competence; Workflow.RESUMEN Objetivos: elaborar un instrumento en la modalidad de protocolo que permita la uniformidad de las acciones de enfermería en la extracción de órganos sólidos para trasplante. Método: se trata de un estudio cualitativo, descriptivo, centrado en la construcción de un instrumento tecnológico de tipo protocolo, respetando los siguientes pasos: revisión integradora; recopilación de datos a través de entrevistas semiestructuradas; apreciación de datos a través del Análisis de Contenido; elaboración de la propuesta de protocolo y uso del índice de validez de contenido para la validación. Resultados esperados: se espera que se ponga a disposición para los centros de trasplante, un protocolo que ayude el enfermero en la sistematización de las acciones de Enfermería en cirugías de extracción de órganos de trasplante, contribuyendo para la calidad y seguridad de la atención prestada en adultos y niños sometidos a trasplantes. Descriptores: Protocolos Clínicos; Atención de Enfermería; Transplante de Órganos; Aloinjertos; Competencia Profesional; Flujo de Trabajo. 


2020 ◽  
pp. 019394592094225
Author(s):  
Aprel F. Ventura ◽  
Carolyn E. Horne ◽  
Patricia B. Crane ◽  
Samuel Sears

The insertable cardiac monitor (ICM) is technology for diagnosing cardiac arrhythmias. The perception of those living with the device and how this relates to self-care management is unknown. The aim of this study was to explore the experiences of those with undiagnosed cardiac symptoms living with an ICM. This study used a qualitative descriptive design. Analysis of data was by intraparticipant analysis, interparticipant analysis, and interrelationships. Three global categories emerged: (a) influences on self-care, (b) dealing and (c) monitoring. Self-care management after insertion of the ICM was determined by the participant’s perception of health, what symptoms they were experiencing and whether there was a positive or negative experience with the clinician. Many indicated little to no regular communication regarding symptoms and ICM results. Increasing communication relevant to management of health and long-term findings may assist in enhancing physical and psychological health.


2017 ◽  
Vol 25 ◽  
pp. e14203
Author(s):  
Larissa Lages Ferrer de Oliveira ◽  
Maria Cristina Soares Figueiredo Trezza ◽  
Géssyca Cavalcante de Melo ◽  
Amuzza Aylla Pereira dos Santos ◽  
Maria Elisângela Torres de Lima Sanches ◽  
...  

Objetivo: analisar as vivências de conforto e desconforto da mulher durante o trabalho de parto e parto. Método: estudo descritivo qualitativo realizado em três maternidades de Maceió-AL com 40 puérperas de julho a setembro de 2014 através de entrevista semiestruturada, tendo como referencial teórico a Teoria do Conforto de Katharine Kolcaba. Resultados: apesar do crescimento da humanização do parto, muitas mulheres estão aquém dessa realidade, sendo pouco ouvidas sobre o que lhe traria conforto ou desconforto no momento do seu parto. O nascimento do filho, a assistência dos profissionais, o acompanhante, a dor, a episiorrafia e o aumento das dores devido ao uso do “soro” estão entre as principais vivências de conforto e desconforto relatadas. Conclusão: conforto e/ou desconforto podem influenciar a satisfação da mulher durante o seu parto, requerendo por parte da equipe de saúde um olhar humanizado para efetivação do cuidado. . ABSTRACTObjective: to analyze the experiences of comfort and discomfort of women during labor and childbirth. Method: a qualitative descriptive study carried out in three maternity hospitals in Maceió-AL with 40 puerperal women, from July to September 2014, through semi-structured interviews, based on the theoretical framework of Katharine Kolcaba’s Theory of Comfort. Results: despite the increase in the humanization of childbirth, many women cannot live this reality, being little heard about what would bring comfort or discomfort to them at the time of their childbirth. The childbirth, the assistance, the companion, the pain, the episiotomy and the increase of pain due to the use of oxytocin are among the main experiences of comfort and discomfort reported. Conclusion: comfort and / or discomfort can influence the woman’s satisfaction during childbirth, requiring the health team a humanized look for effective care. RESUMENObjetivo: analizar las vivencias de comodidad y incomodidad de la mujer durante el trabajo de parto y parto. Método: estudio descriptivo cualitativo realizado en tres maternidades de Maceió-AL con 40 puérperas de julio a septiembre de 2014 a través de entrevista semiestructurada, teniendo como referencial teórico la Teoría del Confort de Katharine Kolcaba. Resultados: a pesar del crecimiento de la humanización del parto, muchas mujeres no viven esa realidad, siendo poco oídas sobre lo que le traería comodidad o incomodidad en el momento de su parto. El nacimiento del hijo, la asistencia de los profesionales, el acompañante, el dolor, la episiorrafia y el aumento de los dolores debido al uso del oxytocin, están entre las principales vivencias de copmodidad e incomodidad relatadas. Conclusión: comodidad y/o incomodidad pueden influenciar la satisfacción de la mujer durante su parto, requiriendo por parte del equipo de salud una mirada humanizada para la efectividad del cuidado. DOI: http://dx.doi.org/10.12957/reuerj.2017.14203


2019 ◽  
Vol 13 ◽  
Author(s):  
Leticia Werner Rêgo ◽  
Gisele Martins ◽  
Cristiane Feitosa Salviano

Objetivo: compreender o impacto social da doença renal crônica em adolescentes submetidos à hemodiálise. Método: trata-se de estudo qualitativo, descritivo, com adolescentes dos 12 aos 18 anos, que realizavam hemodiálise na unidade hospitalar de Terapia Renal Substitutiva, por meio de entrevista semiestruturada. Analisaram-se os dados segundo o método de pesquisa de narrativas e figura. Resultados: identificaram-se três categorias temáticas: Modificações causadas pela hemodiálise que interferem na rotina; Sentimentos do adolescente associados à doença e à hemodiálise; Sentimentos da família associados à doença e à hemodiálise na perspectiva do adolescente. Conclusão: concluiu-se que o adolescente passa por modificações importantes em seu cotidiano, tanto pelas restrições necessárias para o controle da doença quanto pelas alterações fisiológicas. Revela-se, além disso, que sentimentos como tristeza e medo também permeiam o atendimento a este paciente. Descritores: Insuficiência Renal Crônica; Diálise Renal; Rede social; Adolescente; Família.Abstract Objective: to understand the social impact of chronic kidney disease in adolescents undergoing hemodialysis. Method: this is a qualitative, descriptive study with adolescents from 12 to 18 years old, who underwent hemodialysis in the hospital unit of Renal Replacement Therapy, through semi-structured interviews. Data was analyzed according to the narrative and figure research method. Results: three thematic categories were identified: Modifications caused by hemodialysis that interfere in the routine; Adolescent feelings associated with the disease and hemodialysis; Family feelings associated with the disease and hemodialysis from the adolescent's perspective. Conclusion: it was concluded that the adolescent undergoes important changes in their daily life, both due to the restrictions necessary to control the disease and physiological changes. Moreover, feelings such as sadness and fear also permeate the care of this patient. Descriptors: Renal Insufficiency, Chronic; Renal Dialysis; Social Networking; Adolescent; Family. Resumen Objetivo: comprender el impacto social de la enfermedad renal crónica en adolescentes sometidos a hemodiálisis. Método: se trata de un estudio cualitativo y descriptivo con adolescentes de 12 a 18 años que se sometieron a hemodiálisis en la unidad hospitalaria de Terapia de Reemplazo Renal, a través de entrevistas semiestructuradas. Los datos se analizaron de acuerdo con el método de investigación de narrativas y figura. Resultados: se identificaron tres categorías temáticas: modificaciones causadas por hemodiálisis que interfieren en la rutina; Sentimientos adolescentes asociados con la enfermedad y la hemodiálisis; Sentimientos de la familia asociados con la enfermedad y la hemodiálisis desde la perspectiva del adolescente. Conclusión: se concluyó que el adolescente sufre cambios importantes en su vida diaria, tanto por las restricciones necesarias para controlar la enfermedad como por cambios fisiológicos. También se revela que sentimientos como la tristeza y el miedo también impregnan el cuidado de este paciente. Descriptores: Insuficiencia Renal Crónica; Diálisis Renal; Red Social; Adolescente; Familia.


2020 ◽  
Author(s):  
Ka Man Leung ◽  
Pak-Kwong Chung ◽  
William Chu

Abstract Background: This study was part of a 15-week sitting light volleyball (SLVB) intervention programme which examined the effectiveness of the intervention on physical and psychological attributes of adults with physical disabilities (PWPD) in Hong Kong. SLVB was a new sport, combing Paralympic volleyball and light volleyball. Gaining an in-depth understanding of the perceptions and experiences of PWPD in the SLVB intervention is critical to further develop SLVB as a PA intervention and sport. Using a social–ecological model (SEM), (a) the participants’ experiences regarding the intervention were assessed and (b) the suitability and feasibility of the SLVB intervention to PWPD were qualitatively examined. Methods: Twenty participants (mean age = 53.52 years standard deviation (SD = 9.02), 60% female participants; 25% had at least a college degree) attended our semi-structured interviews. Results: Using content analysis, their experiences at the individual or intrapersonal level (physical and psychological health, enjoyment, novelty, competence autonomy); interpersonal levels (socialization, teamwork, social support); organizational and community levels (perceived sport venue environment, venue accessibility, safety, dissemination of information, and community facilities); and policy level (resources allocation by the government) were obtained. The participants also commented on the suitability and feasibility of the SLVB intervention for PWPD, contents and coaching, modified rules, duration of session and scheduling, and number of participants and coaches. Conclusion: This qualitative study identified several themes for engaging PWPD in SLVB, and demonstrated that adopting a multilevel approach to intervention in SLVB has positive outcomes to participants. In general, SLVB is suitable and feasible to PWPD. The study contributes to an in-depth understanding of the experiences among PWPD in the SLVB intervention, which is very critical to the further development of SLVB in terms of a PA intervention and sport.


2021 ◽  
Author(s):  
Stephanie Anne Piotrowski

This qualitative descriptive study aimed to present findings from four primary teachers and their perceptions of mindfulness practices with young children. Using open-ended and semi-structured interviews, these teachers in the school system shared their experiences with mindfulness practices in their classrooms. This study, using a thematic analysis, indicated that teachers felt there to be benefits of including mindfulness practices in their classrooms but have found that there are various issues that may hinder successful implementation. Integrating different mindfulness practices in the classroom could allow childhood well-being to be improved though holistic approaches.


2020 ◽  
Vol 30 (12) ◽  
pp. 1876-1887
Author(s):  
Jenny McLeish ◽  
Merryl Harvey ◽  
Maggie Redshaw ◽  
Jane Henderson ◽  
Reem Malouf ◽  
...  

Postnatal care is the aspect of maternity care with which women in England are least satisfied. Little is known about first-time mothers’ expectations of postnatal care, or how these expectations relate to their experiences and appraisal of care. Thirty-two first-time mothers took part in a longitudinal qualitative descriptive study, based on two semi-structured interviews—the first in pregnancy, and the second 2 to 3 months after birth. Trajectory analysis was used to identify the thematic patterns in the relationships between postnatal care expectations, needs, experiences, and confidence. Five trajectories were identified, showing that mothers’ satisfaction with postnatal care and confidence were primarily influenced not by the extent to which their expectations were met but the varied extent to which their individual postnatal needs were met. Rapid and responsive assessment of needs both antenatally and postnatally, and appropriate adjustment of care, is key in supporting women effectively at this time.


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