scholarly journals Experiences of Mothers of Children Born with Celebral Palsy in Oshana Region: Namibia

2019 ◽  
Vol 12 (1) ◽  
pp. 72
Author(s):  
Sankombo Marian ◽  
Emmanuel Magesa ◽  
Nakakuwa Fillipine
Keyword(s):  
Cerebral Palsy ◽  
Sampling Method ◽  
High Stress ◽  
Final Diagnosis ◽  
Psychological Problem ◽  
Health Concern ◽  
Educational Support ◽  
Children With Cerebral Palsy ◽  
Stress Levels ◽  
Reducing Stress

Cerebral Palsy is a neurological disorder caused by a non-progressive brain injury or malformation that occurs while the child's brain is under development. This type of birth defects, pose a public health concern to the society, immediate family members and individual parents. The parents’ expectations to have a normal child becomes a nightmare when the child they were expecting is born with cerebral palsy. Therefore, revealing the experiences of mothers of children born with Cerebral Palsy is important in the process of finding ways to support these mothers and their children. The study explores and describes the experience of mothers of children with cerebral palsy. A qualitative approach following phenomenological, explorative and descriptive design was used to explore and reveal the experiences of mothers of children with Cerebral Palsy. The population for this particular study consisted of mothers of children with cerebral palsy in Oshana region and a sample was drawn from this population using purposive sampling method. Data were collected through indepth interview with 12 (twelve) mothers. The transcribed interviews and narratives from the research notes were organised into codes, main themes and sub-themes. Mothers were shocked, worried and were in the state of disbelief when they learnt about the condition of their children. They felt guilty about the child’s disability and blamed themselves as the reason for the disability of their children. They were traumatized by a family member or spouse who failed to accept the child with cerebral palsy. In order to alleviate the psychological stress, trauma, pain and disappointments, it is of utmost importance to develop an educational support program in the form of a stress coping framework to support these mothers to cope with the high stress levels. centers where they can overcome their psychological problem. There is a need for a coordinating body or counselling centers where parents of children with cerebral palsy should be referred after the final diagnosis is made to give appropriate direction and couselling to these parents, thus reducing stress levels.  

scholarly journals Cerebral Palsy: Parental Stress of Caregivers

Psico-USF ◽  
2021 ◽  
Vol 26 (2) ◽  
pp. 357-368
Author(s):  
Mayara Barbosa Sindeaux Lima ◽  
Edson Marcos Leal Soares Ramos ◽  
Fernando Augusto Ramos Pontes ◽  
Simone Souza da Costa Silva
Keyword(s):  
Cerebral Palsy ◽  
Parental Stress ◽  
High Stress ◽  
Motor Impairment ◽  
Intervention Strategies ◽  
Descriptive Statistics ◽  
Stress Index ◽  
Parental Distress ◽  
Support Intervention ◽  
Children With Cerebral Palsy

Abstract The aim of this research was to investigate indicators of parental stress among caregivers of children with Cerebral Palsy. The study covered a total of 132 participants who responded to the following instruments: Sociodemographic Inventory, Gross Motor Function Classification System, and Parental Stress Index (PSI). Data were analyzed using descriptive statistics. The sample was composed mainly of mothers (97%); most of the children were classified under the most severe levels of motor impairment (61%). Regarding the PSI, almost half of the sample experienced high levels of parental stress (46.2%). The PSI domain with the highest percentage of caregivers with high stress was Parental Distress (60.6%). Most caregivers prioritize the needs of the child with Cerebral Palsy over their own needs more than they expected (90%). These results may support intervention strategies aimed at minimizing parental stress.

scholarly journals Relationship between Level of Stress and Social Support among Parents of Children with Cerebral Palsy

2020 ◽  
Vol 5 (14) ◽  
pp. 105-110
Author(s):  
Noor Amiera Alias ◽  
Nur Khairun Amani Razali Azizan ◽  
Noor Azliyana Azizan
Keyword(s):  
Social Support ◽  
Cerebral Palsy ◽  
Open Access ◽  
Health Professional ◽  
Publishing House ◽  
High Stress ◽  
Stressful Situation ◽  
Children With Cerebral Palsy ◽  
International Publishing ◽  
Open Access Article

Social support helps prevent and decrease the stressful situation of the family's experience in providing care to children with cerebral palsy. Thus, this study aims to determine the significant relationship between social support and the level of stress among parents of children with cerebral palsy. The study revealed that the majority of the parents with cerebral palsy children who had high stress levels had perceived low social support. Therefore, this study may provide a guideline to the health professional to deliver support to assist the best adaptation in facing the issues.  Keywords: Parents; Cerebral Palsy; Social support; Stress eISSN: 2398-4287© 2020. The Authors. Published for AMER ABRA cE-Bs by e-International Publishing House, Ltd., UK. This is an open access article under the CC BYNC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). Peer–review under responsibility of AMER (Association of Malaysian Environment-Behaviour Researchers), ABRA (Association of Behavioural Researchers on Asians) and cE-Bs (Centre for Environment-Behaviour Studies), Faculty of Architecture, Planning & Surveying, Universiti Teknologi MARA, Malaysia. DOI: https://doi.org/10.21834/ebpj.v5i14.2187

scholarly journals The Effectiveness Of Writing The Letter Of Gratitude Technique In Reducing The Stress Level Of Islamic Boarding School Student

2021 ◽  
Vol 7 (1) ◽  
pp. 79-85
Author(s):  
Miftahul Khaer ◽  
Ahmad Yasser Mansyur ◽  
Ahmad Ridfah ◽  
Andi Ahmad Ridha
Keyword(s):  
Stress Level ◽  
High Stress ◽  
Boarding School ◽  
Educational Process ◽  
Test Method ◽  
Control Group ◽  
Significant Difference ◽  
Stress Levels ◽  
Reducing Stress ◽  
Experimental Group

Stress can cause various problems that distrupt the life of students and their educational process at the boarding school. This study aims to see the effectiveness of writing a letter of gratitude in reducing stress levels of the students at the Darul Arqam Gombara Islamic Boarding School Makassar. This study is an experimental research used pretest-posttest control group design. The subjects in this study found 14 people (8 people in the experimental group and 6 people in the control group) who were students who indicated experiencing stress. The measuring instrument used in this study is the stress level scale compiled by the researcher, with a reliability value of 0.785. Analysis of the data used is nonparametric analysis with the Mann Whitney U-test method. The results of this study indicate that the intervention of writing a letter of gratitude is effective in reducing stress levels in students. These results can be seen from the significant difference after being given treatment in the experimental group and the control group with a p-value = 0.029 (p <0.05) with a mean of 8.81 for the experimental group and a mean of 4.1 for the control group. As the conclusion, the technique of writing gratitude letters is effective in reducing the stress level of students, so it can be used by students who have high stress levels.

scholarly journals Hope Facilitators in Parents with Children Suffering from Cerebral Palsy: A Qualitative Study

2021 ◽  
Vol In Press (In Press) ◽  
Author(s):  
Hossein Alibakhshi ◽  
Manoochehr Azkhosh ◽  
Bahman Bahmani ◽  
Mohammad Saeed Khanjani ◽  
Farahnaz Mohammadi Shahboulaghi
Keyword(s):  
Cerebral Palsy ◽  
Content Analysis ◽  
Qualitative Study ◽  
Sampling Method ◽  
Analysis Method ◽  
Ample Evidence ◽  
Content Analysis Method ◽  
Children With Cerebral Palsy ◽  
Data Saturation ◽  
Promising Treatment

Background: There is ample evidence indicating that the parents of children with cerebral palsy report the experience of hope, despite all problems to which they are exposed. Objectives: This study aimed to explain the factors facilitating hope regarding the experiences of parents having children suffering from cerebral palsy. Methods: This qualitative study was carried out using the content analysis method. The experiments of 17 parents (11 females and 6 males) having children with cerebral palsy were collected in in-depth unstructured interviews in 2019, and then content analysis was performed using Strauss and Corbin’s approach. The purposive sampling method was used as long as data saturation was reached. After that, the collected data were analyzed using the content analysis method. Results: In this study, several factors were extracted as facilitators of hope in parents of children with cerebral palsy. These effective facilitating factors were classified into four main categories: promising treatment, positive beliefs, motivational drivers, and support networks. Conclusions: Various factors can be effective in promoting hope in parents of children with cerebral palsy, the detection of which would help developing educational and counseling programs and providing support for such parents.

Prevalence of Speech Problems and the Use of Augmentative and Alternative Communication in Children With Cerebral Palsy: A Registry-Based Study in Norway

2010 ◽  
Vol 19 (1) ◽  
pp. 12-20 ◽  
Author(s):  
Guro Andersen ◽  
Tone R. Mjøen ◽  
Torstein Vik
Keyword(s):  
Cerebral Palsy ◽  
Motor Function ◽  
Gestational Age ◽  
Augmentative And Alternative Communication ◽  
Alternative Communication ◽  
Gross Motor ◽  
Gross Motor Function ◽  
Children With Cerebral Palsy ◽  
Communicative Abilities ◽  
Normal Speech

Abstract This study describes the prevalence of speech problems and the use of augmentative and alternative communication (AAC) in children with cerebral palsy (CP) in Norway. Information on the communicative abilities of 564 children with CP born 1996–2003, recorded in the Norwegian CP Registry, was collected. A total of 270 children (48%) had normal speech, 90 (16%) had slightly indistinct speech, 52 (9%) had indistinct speech, 35 (6%) had very indistinct speech, 110 children (19%) had no speech, and 7 (1%) were unknown. Speech problems were most common in children with dyskinetic CP (92 %), in children with the most severe gross motor function impairments and among children being totally dependent on assistance in feeding or tube-fed children. A higher proportion of children born at term had speech problems when compared with children born before 32 weeks of gestational age 32 (p > 0.001). Among the 197 children with speech problems only, 106 (54%) used AAC in some form. Approximately 20% of children had no verbal speech, whereas ~15% had significant speech problems. Among children with either significant speech problems or no speech, only 54% used AAC in any form.

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