P4-224: Assessing dementia caregiver burden in Chinese family caregivers in Singapore

2006 ◽  
Vol 2 ◽  
pp. S582-S583
Author(s):  
Lin Kiat Yap ◽  
Yen Ni Goh ◽  
Linda Mary Henderson
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Chinese Family ◽  
Dementia Caregiver

Caregiver Burden and Depression Among Chinese Family Caregivers: the Role of Self-compassion

Mindfulness ◽  
2020 ◽  
Vol 11 (7) ◽  
pp. 1647-1654 ◽  
Author(s):  
Shuo Xu ◽  
Huiping Zhang ◽  
Jingxin Wang
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Chinese Family ◽  
Self Compassion

scholarly journals Social support and depressive symptoms among family caregivers of older people with disabilities in four provinces of urban China: the mediating role of caregiver burden

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Yaqin Zhong ◽  
Jian Wang ◽  
Stephen Nicholas
Keyword(s):  
Social Support ◽  
Depressive Symptoms ◽  
Older People ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
People With Disabilities ◽  
Cognitive Capacity ◽  
Chinese Family ◽  
Negatively Associated

Abstract Background To examine the relationship between social support and depressive symptoms of Chinese family caregivers of older people with disabilities, and to evaluate the role of caregiver burden as a potential mediator of that relationship. Methods A survey questionnaire was completed face-to-face by 567 primary family caregivers of older people with disabilities in four provinces in China. Covariates that may affect depressive symptoms, such as the characteristics of disabled people (socio-economic factors, functional and cognitive capacity) and caregivers (caregiver duration and self-rated health of caregivers) were collected. Social support was measured by the Multidimensional Scale of Perceived Social Support (MSPSS); depressive symptoms were assessed by the shortened 10 item version of Center for Epidemiological Studies Depression scale (CES-D); and the caregiver burden was assessed by the Zarit Burden Interview (ZBI). Results The prevalence of depressive symptoms among caregivers was 37.7%. Higher levels of social support was negatively associated with lower depressive symptoms. This relationship was partially mediated by the caregiver burden, where higher levels of the caregiver burden were negatively associated with depressive symptoms. Furthermore, caregivers who were women, spent extended time in caregiving and were in poor health, reported significantly higher depressive symptoms. Conclusions Our results indicated that social support was negatively associated with depressive symptoms in family caregivers and in the caregiver burden. The caregiver burden partially mediated the social support-depressive symptoms association. Interventions for family caregivers should include increasing social support, health monitoring and structured interventions to reduce the caregiver burden and attenuate family caregivers’ depressive symptoms.

The Caregiver Burden Alert: A Graphic Tool for Dementia Caregiver Burden Screening and Referral

2017 ◽  
Vol 30 (3) ◽  
pp. 103-109 ◽  
Author(s):  
Ellen L. Brown ◽  
Nicole Ruggiano ◽  
James T. Meadows
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Home Care Services ◽  
Primary Care Providers ◽  
Evidence Based ◽  
Care Providers ◽  
Standardized Measures ◽  
Dementia Caregiver ◽  
Care Services ◽  
Effective Interventions

Annually, 5.4 million people are affected by Alzheimer’s disease and other forms of dementia (AD), most of whom are cared for by unpaid family caregivers and are medically supervised by primary care providers (PCPs). AD caregivers report feelings of satisfaction in their ability to provide care, though they often experience caregiver burden (CB) from the extensive physical and emotional effort involved in AD caregiving, especially when providing care to someone with advanced AD. Standardized measures have been developed to assess for CB among AD caregivers, and effective interventions have been developed for reducing CB. However, there currently lacks a standardized, feasible approach for CB screening. This article presents an innovative, evidence-based tool to prompt CB screening and referrals among AD caregivers receiving home care services.

Managing Caregiver Burden among Families of Patients with End-Stage Renal Disease

2019 ◽  
Vol 21 (1) ◽  
Author(s):  
Yemisi Okikiade Oyegbile ◽  
Petra Brysiewicz
Keyword(s):  
Renal Disease ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
End Stage Renal Disease ◽  
Qualitative Data ◽  
Government Support ◽  
Implementation Phase ◽  
The Family ◽  
Stage Renal Disease ◽  
End Stage

Family caregivers of patients with end-stage renal disease (ESRD) play a significant role in providing substantial care for a prolonged period for their sick relatives, often with very limited resources, making it a difficult environment. Government support for family caregivers of patients with ESRD is lacking in Nigeria, increasing their vulnerability to caregiver burden and its consequences. An action research study using a complimentary mixed-method approach was used to develop the intervention model for managing caregiver burden. Quantitative data were collected to measure the extent of caregiver burden using a Zarit Burden Interview questionnaire for 96 family caregivers, while individual in-depth interviews with 15 participants provided the qualitative data. Integrating the quantitative and qualitative data led to the identification of four moderators to manage the caregiver burden in this study. The model for managing caregiver burden was developed from the findings, using stressors and associated moderators of caregiving, and the role played by culture and finance in this context. An implementation checklist was developed, which was used by registered nurses to implement the concepts in the model with the family caregivers during the model implementation phase. Family caregivers of patients with ESRD need to be supported by nurses during the caregiving process. Nurses can increase caregivers’ identity and knowledge of the disease as a way of preventing the family caregivers from being overwhelmed by their caregiving role.

Perceived social support in Chinese family caregivers of patients with dementia

2021 ◽  
Author(s):  
Jufang Li ◽  
Gexin Gao ◽  
Yawei Zeng ◽  
Yuping Wu ◽  
Xiaoling Zhu ◽  
...  
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Perceived Social Support ◽  
Chinese Family

scholarly journals A Clinical Bridge between Family Caregivers and Older Adults: The Contribution of Patients’ Frailty and Optimism on Caregiver Burden

2021 ◽  
Vol 18 (7) ◽  
pp. 3406
Author(s):  
Alberto Sardella ◽  
Vittorio Lenzo ◽  
Angela Alibrandi ◽  
Antonino Catalano ◽  
Francesco Corica ◽  
...  
Keyword(s):  
Older Adults ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Frailty Index ◽  
Dispositional Optimism ◽  
Related Factors ◽  
Life Orientation Test ◽  
Life Orientation ◽  
Frailty Status ◽  
Personal Time

The association between caregiver burden and the physical frailty of older adults has been the object of previous studies. The contribution of patients’ dispositional optimism on caregiver burden is a poorly investigated topic. The present study aimed at investigating whether older adults’ multidimensional frailty and optimism might contribute to the burden of their family caregivers. The Caregiver Burden Inventory was used to measure the care-related burden of caregivers. The multidimensional frailty status of each patient was evaluated by calculating a frailty index, and the revised Life Orientation Test was used to evaluate patients’ dispositional optimism. The study involved eighty family caregivers (mean age 64.28 ± 8.6) and eighty older patients (mean age 80.45 ± 7.13). Our results showed that higher frailty status and lower levels of optimism among patients were significantly associated with higher levels of overall burden and higher burden related to the restriction of personal time among caregivers. Patients’ frailty was additionally associated with caregivers’ greater feelings of failure, physical stress, role conflicts, and embarrassment. Understanding the close connection between patient-related factors and the burden of caregivers appears to be an actual challenge with significant clinical, social, and public health implications.

Factors of Dementia Caregiver Burden Differentially Contribute to Desire to Institutionalize

2021 ◽  
pp. 089198872110361
Author(s):  
John T. Martin ◽  
Kimberly R. Chapman ◽  
Christopher Was ◽  
Mary Beth Spitznagel
Keyword(s):  
Factor Analysis ◽  
Linear Regression ◽  
Factor Structure ◽  
Caregiver Burden ◽  
Living Arrangements ◽  
Regression Analyses ◽  
Loved One ◽  
Dementia Caregiver ◽  
Future Work ◽  
Made In

The experience of dementia caregiver burden is multidimensional. Little is known about how different aspects of burden contribute to the consideration of moving a loved one to a structured living facility. In the present study, caregiver burden (Zarit Burden Interview; ZBI) and consideration of structured living arrangements (Desire to Institutionalize Scale; DIS) were self-reported by 339 caregivers. Exploratory factor analysis was used to determine the ZBI factor structure; these factors were then examined via hierarchical linear regression for prediction of DIS. Factor analysis indicated a 4-factor ZBI solution: Impact on Life, Guilt, Embarrassment/Frustration, and Escape/Uncertainty. Regression analyses indicated that only Escape/Uncertainty ( p < .001) was associated with DIS. Of the 4 identified factors of caregiver burden, desire to escape the caregiving role was most related to consideration of structured living arrangements. Future work should explore longitudinal contribution of this factor to determine its role in actual changes made in living arrangements.

scholarly journals Benefits finding among Chinese family caregivers of stroke survivors: a qualitative descriptive study

BMJ Open ◽  
2020 ◽  
Vol 10 (10) ◽  
pp. e038344
Author(s):  
Yong-Xia Mei ◽  
Beilei Lin ◽  
Weihong Zhang ◽  
Dong-Bin Yang ◽  
Shan-Shan Wang ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Healthy Lifestyle ◽  
Chinese Family ◽  
Stroke Survivors ◽  
Chinese Community ◽  
Structured Interviews ◽  
Research Reporting ◽  
Positive Attitudes ◽  
Qualitative Descriptive ◽  
Caregiver Burdens

ObjectivesThe caregiving experience includes both caregiver burdens and benefits finding. However, the benefits obtained by family caregivers of stroke survivors in Chinese community dwellings are unknown. The objective of this study was to explore the benefits experienced by family caregivers of stroke survivors in Chinese community dwellings.DesignA qualitative descriptive design was used, fulfilling the consolidated criteria for the Standards for Reporting Qualitative Research reporting guidelines. Semi-structured interviews were conducted with 20 family caregivers of stroke survivors. The interviews were audiotaped, transcribed and analysed. Thematic analysis was performed to analyse the interview transcripts.Setting and participantsHome interviews were conducted with family caregivers of stroke survivors in two communities in Zhengzhou, China.ResultsThe family caregivers of stroke survivors experienced various benefits from caregiving. There were both internal benefits (increases in knowledge and skills, the development of positive attitudes, and the development of a sense of worthiness and achievement) and external benefits (family growth and gains in social support), which interact to create a healthy lifestyle.ConclusionOur findings provide a comprehensive perspective in understanding the benefits perceived by family caregivers of stroke survivors. This study provides insights into interventions focused on identifying benefits finding in six domains that may help reduce negative emotions and promote the mental health of caregivers.

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