scholarly journals Validation of the Spanish version of the QoL-AD scale in Alzheimer disease patients, their carers, and health professionals

2012 ◽  
Vol 27 (1) ◽  
pp. 4-10 ◽  
Author(s):  
M. Gómez-Gallego ◽  
J. Gómez-Amor ◽  
J. Gómez-García
Author(s):  
Gabriela Pizelli Mocco Grillo ◽  
Aline Miranda Da Fonseca Marins ◽  
Rosâne Mello

ResumoObjetivo: Conhecer a percepção do cuidador sobre a hospitalização do idoso com Doença de Alzheimer. Método: Trata-se de um estudo descritivo, exploratório, de natureza qualitativa, realizado com onze cuidadores familiares de idosos com doença de Alzheimer. Os dados foram coletados no período de Abril a Junho de 2013 por meio de entrevista semiestruturada. A análise dos dados foi pautada no Discurso do Sujeito Coletivo. Resultados: Emergiram duas ideias centrais síntese: piora da função cognitiva do idoso com doença de Alzheimer durante o processo de hospitalização e o despreparo da equipe de saúde para cuidar de um idoso com demência.Conclusão: De acordo com os resultados obtidos, urge a necessidade de capacitação e/ou especialização dos profissionais de saúde para atender o idoso com demência e sua família. A família é parte integrante do cuidado a esse idoso, sendo fundamental compreendê-la e assisti-la como uma unidade social complexa.Descritores: Cuidadores, Doença de Alzheimer, Idoso, Hospitalização. AbstractObjective: To investigate the perception of the caregiver about the hospitalization of the elderly with Alzheimer disease. Method: This is a descriptive study, exploratory and qualitative in nature, performed with 11 family caregivers of elderly with Alzheimer disease. The data were collected during the period from April to June 2013 through semi-structured interview. The data analysis was based on the Collective Discourse of the Subjects. Results: Two summary central ideas emerged: worsening of cognitive function in the elderly with Alzheimer disease during the process of hospitalization and the lack of health staff to take care of an elderly with dementia. Conclusion: According to the results obtained, there is urgent need for training and/or specialization of health professionals to meet the elderly with dementia and their families. The family is an integral part of the care that elderly, being critical to understand it and watched it as a social unit complex.Descriptors: Caregivers, Alzheimer Disease, Elderly, Hospitalization. ResumenObjetivo: Investigar la percepción del cuidador acerca de la hospitalización de las personas mayores con la enfermedad de Alzheimer. Método: Este es un estudio descriptivo, exploratorio y de naturaleza cualitativa, realizado con 11 cuidadores familiares de ancianos con enfermedad de Alzheimer. Los datos fueron recolectados durante el periodo de abril a junio de 2013 a través de la entrevista semi-estructurada. El análisis de los datos se basa en el discurso de los sujetos colectivos. Resultados: Surgieron dos ideas centrales resumen: empeoramiento de la función cognoscitiva en los ancianos con enfermedad de Alzheimer durante el proceso de hospitalización y la Falta de personal sanitario a cuidar de un anciano con demencia. Conclusión: De acuerdo a los resultados obtenidos, existe la urgente necesidad de formación y/o especialización de los profesionales de la salud para atender a los ancianos con demencia y sus familias. La familia es una parte integral de la atención que los ancianos, siendo fundamental para entenderla y verla como una unidad social compleja.Descriptores: Cuidadores, Enfermedad de Alzheimer, Ancianos, Hospitalización.


Author(s):  
Nahuel Magrath Guimet ◽  
Ismael Luis Calandri ◽  
Pablo Miguel Bagnati ◽  
Matthew Wynn ◽  
Ricardo Francisco Allegri

ABSTRACT Background: Frontotemporal dementia (FTD) is a neurodegenerative disease and is one of the most common causes of dementia in people under 65. There is often a significant diagnostic delay, as FTD can be confused with other psychiatric conditions. A lack of knowledge regarding FTD by health professionals is one possible cause for this diagnostic confusion. Objectives: The aim of this study was to adapt and validate the Frontotemporal Dementia Knowledge Scale (FTDKS) in Spanish. Methods: A translation was done, following cross-cultural adaptation guidelines, which consisted of forward translation, blind back translation, and an analysis by a committee of experts. For the present study, 134 professionals from different health areas responded the Spanish version of the FTDKS. The statistical analysis was performed using R version 4.0.0 “Arbor day” and the Psych, sjPlot packages. Results: The Spanish version of the FTDKS had good reliability and internal consistency (Cronbach alpha 0.74.). The sample's mean score was 19.78 (range = 4-32, SD 6.3) out of a maximum of 36 points. Conclusions: The results obtained show that the Spanish version has good psychometric properties. The FTDKS is applicable in our environment and can be a useful tool to evaluate the knowledge of health professionals regarding frontotemporal dementia.


Author(s):  
K.S. Kosik ◽  
L.K. Duffy ◽  
S. Bakalis ◽  
C. Abraham ◽  
D.J. Selkoe

The major structural lesions of the human brain during aging and in Alzheimer disease (AD) are the neurofibrillary tangles (NFT) and the senile (neuritic) plaque. Although these fibrous alterations have been recognized by light microscopists for almost a century, detailed biochemical and morphological analysis of the lesions has been undertaken only recently. Because the intraneuronal deposits in the NFT and the plaque neurites and the extraneuronal amyloid cores of the plaques have a filamentous ultrastructure, the neuronal cytoskeleton has played a prominent role in most pathogenetic hypotheses.The approach of our laboratory toward elucidating the origin of plaques and tangles in AD has been two-fold: the use of analytical protein chemistry to purify and then characterize the pathological fibers comprising the tangles and plaques, and the use of certain monoclonal antibodies to neuronal cytoskeletal proteins that, despite high specificity, cross-react with NFT and thus implicate epitopes of these proteins as constituents of the tangles.


Pflege ◽  
2020 ◽  
Vol 33 (5) ◽  
pp. 299-307
Author(s):  
Domenika Wildgruber ◽  
Jana Frey ◽  
Max Seer ◽  
Kristina Pinther ◽  
Clemens Koob ◽  
...  

Zusammenfassung. Hintergrund: Die Corona-Pandemie führte zu einer starken Beanspruchung von Health Professionals, deren allgemeine berufliche Situation mit einem hohem Belastungserleben verbunden ist. Quantitative Daten zum Belastungserleben der im Gesundheitswesen Tätigen in der Corona-Pandemie und mögliche Auswirkungen auf das Arbeitsengagement fehlen bis dato für Deutschland. Methode: Mittels einer Querschnittsbefragung wurden das Stresserleben, die Sorge um die Gesundheit und das Arbeitsengagement von Health Professionals deutschlandweit erhoben. Das „snapshot survey“ nutzte neben selbst entwickelten Fragen Items eines validierten Instrumentes zur Erfassung des Arbeitsengagements. Über soziale Medien wurden in Form einer Gelegenheitsstichprobe Health Professionals zur Teilnahme eingeladen. Es konnten 1168 gültige Fälle ausgewertet werden. Die Teilnehmenden waren mehrheitlich Pflegende (80 %, n = 855). Ergebnisse: Es zeigt sich, dass Health Professionals mit Direktkontakt zu COVID-19-Erkrankten im Gegensatz zu Befragten ohne Kontakt ein höheres Stresslevel angeben (MW = 3,81, SD = 1,09 vs. MW = 3,44, SD = 1,12, t(1062) = 5,40, p < 0,001; ε = 0,33), sich am meisten Sorgen um die Gesundheit ihrer Angehörigen sowie von Freundinnen und Freunden machen und dass diese Sorgen größer als bei Health Professionals ohne Kontakt sind (MW = 4,45, SD = 0,84 vs. MW = 4,19, SD = 0,94, t(1062) = 4,74, p < 0,001; ε = 0,29). Die Korrelationsanalysen (r = –0,182, p < 0,001) und die multiple Regressionsanalyse (β = –0,182, p < 0,001) ergaben, dass das Arbeitsengagement mit steigendem, pandemiebedingtem Stress abnimmt. Diskussion: Es zeigen sich theoriekonforme Zusammenhänge zwischen Anforderungen, Stresserleben und Arbeitsengagement. Im Vergleich zu früheren Studien ist das Arbeitsengagement in der Stichprobe gering. Zur Reduktion psychischer Belastungsfaktoren in einer Pandemie liegen vielfältige Empfehlungen vor, die nun auch in der Breite für Deutschland zur Anwendung kommen sollten. Hierzu zählen beispielsweise pandemiespezifische Präventionspläne oder die Schaffung eines sanktionsfreien Arbeitsumfeldes.


Crisis ◽  
2020 ◽  
pp. 1-5
Author(s):  
Ruthmarie Hernández-Torres ◽  
Paola Carminelli-Corretjer ◽  
Nelmit Tollinchi-Natali ◽  
Ernesto Rosario-Hernández ◽  
Yovanska Duarté-Vélez ◽  
...  

Abstract. Background: Suicide is a leading cause of death among Spanish-speaking individuals. Suicide stigma can be a risk factor for suicide. A widely used measure is the Stigma of Suicide Scale-Short Form (SOSS-SF; Batterham, Calear, & Christensen, 2013 ). Although the SOSS-SF has established psychometric properties and factor structure in other languages and cultural contexts, no evidence is available from Spanish-speaking populations. Aim: This study aims to validate a Spanish translation of the SOSS-SF among a sample of Spanish-speaking healthcare students ( N = 277). Method: We implemented a cross-sectional design with quantitative techniques. Results: Following a structural equation modeling approach, a confirmatory factor analysis (CFA) supported the three-factor model proposed by Batterham and colleagues (2013) . Limitations: The study was limited by the small sample size and recruitment by availability. Conclusion: Findings suggest that the Spanish version of the SOSS-SF is a valid and reliable tool with which to examine suicide stigma among Spanish-speaking populations.


Crisis ◽  
2017 ◽  
Vol 38 (2) ◽  
pp. 73-81 ◽  
Author(s):  
Lindsay L. Sheehan ◽  
Patrick W. Corrigan ◽  
Maya A. Al-Khouja ◽  

Abstract. Background: Past scholarly efforts to describe and measure the stigma surrounding suicide have largely viewed suicide stigma from the perspective of the general public. Aims: In the spirit of community-based participatory research (CBPR), the current study brought together a diverse stakeholder team to qualitatively investigate the suicide stigma as experienced by those most intimately affected by suicide. Method: Seven focus groups (n = 62) were conducted with suicide attempt survivors, family members of those who died by suicide, and suicide loss therapists. Results: Themes were derived for stereotypes (n = 30), prejudice (n = 3), and discrimination (n = 4). People who attempted suicide were seen as attention-seeking, selfish, incompetent, emotionally weak, and immoral. Participants described personal experiences of prejudice and discrimination, including those with health professionals. Conclusion: Participants experienced public stigma, self-stigma, and label avoidance. Analyses reveal that the stigma of suicide shares similarities with stereotypes of mental illness, but also includes some important differences. Attempt survivors may be subject to double stigma, which impedes recovery and access to care.


Crisis ◽  
2014 ◽  
Vol 35 (2) ◽  
pp. 110-122 ◽  
Author(s):  
Inês Areal Rothes ◽  
Margarida Rangel Henriques ◽  
Joana Barreiros Leal ◽  
Marina Serra Lemos

Background: Although intervention with suicidal patients is one of the hardest tasks in clinical practice, little is known about health professionals’ perceptions about the difficulties of working with suicidal patients. Aims: The aims of this study were to: (1) describe the difficulties of professionals facing a suicidal patient; (2) analyze the differences in difficulties according to the sociodemographic and professional characteristics of the health professionals; and (3) identify the health professionals’ perceived skills and thoughts on the need for training in suicide. Method: A self-report questionnaire developed for this purpose was filled out by 196 health professionals. Exploratory principal components analyses were used. Results: Four factors were found: technical difficulties; emotional difficulties; relational and communicational difficulties; and family-approaching and logistic difficulties. Differences were found between professionals who had or did not have training in suicide, between professional groups, and between the number of patient suicide attempts. Sixty percent of the participants reported a personal need for training and 85% thought it was fundamental to implement training plans targeted at health professionals. Conclusion: Specific training is fundamental. Experiential and active methodologies should be used and technical, relational, and emotional questions must be included in the training syllabus.


1999 ◽  
Vol 15 (3) ◽  
pp. 196-205 ◽  
Author(s):  
Rosario Martínez-Arias ◽  
Fernando Silva ◽  
Ma Teresa Díaz-Hidalgo ◽  
Generós Ortet ◽  
Micaela Moro

Summary: This paper presents the results obtained in Spain with The Interpersonal Adjective Scales of J.S. Wiggins (1995) concerning the variables' structure. There are two Spanish versions of IAS, developed by two independent research groups who were not aware of each other's work. One of these versions was published as an assessment test in 1996. Results from the other group have remained unpublished to date. The set of results presented here compares three sources of data: the original American manual (from Wiggins and collaborators), the Spanish manual (already published), and the new IAS (our own research). Results can be considered satisfactory since, broadly speaking, the inner structure of the original instrument is well replicated in the Spanish version.


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