Patient and clinician experiences of a computerised cognitive battery for use after concussion: a preliminary qualitative study

2020 ◽  
pp. 1-16
Author(s):  
C. Macleod ◽  
L. J. Surgenor ◽  
W. Levack ◽  
J. Hackney ◽  
A. Theadom ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Cognitive Testing ◽  
Qualitative Description ◽  
Future Research ◽  
Structured Interviews ◽  
Neuropsychological Battery ◽  
Negative Experiences ◽  
Select Group ◽  
Clinician Experiences ◽  
Neurological Research

Abstract Objective: The Cognition Battery of the National Institute of Health (NIH) Toolbox for Assessment of Neurological and Behavioural Function is a computerised neuropsychological battery recommended for clinical practice, neurological research and clinical trials. We investigated the utility of the NIH Toolbox Cognition Battery (NIHTB-CB) for people with concussion. Methods: In this small qualitative study, semi-structured interviews were conducted with five adults with concussion who were participating in a larger study using the NIHTB-CB. Three clinician participants and two cultural advisors familiar with the tool were also interviewed. Interview transcripts were analysed using a general thematic approach and qualitative description. Results: Participants described both positive and negative experiences with the NIHTB-CB and using qualitative description, their experiences were organised into three broad themes: (1) using technology for cognitive testing made sense, (2) there were some cultural relevance questions and (3) cognitive testing after concussion could have challenges. They were positive about the computerised format and range of domains assessed for the concussion context but identified the contextual relevance of some content as having potential to impact on performances. Conclusion: This was a small study examining the experiences of a select group of participants, but nevertheless does suggest a need for future research validating the NIHTB-CB for use in different cultural and clinical contexts.

Learnings from implementing telemonitoring – the LITE study

2019 ◽  
Vol 27 (4) ◽  
pp. 346-356 ◽  
Author(s):  
Josephine S.F. Chow ◽  
Veronica Eugenia Gonzalez-Arce ◽  
Andrew Knight ◽  
Nutan Maurya ◽  
Friedbert Kohler
Keyword(s):  
Chronic Disease ◽  
Qualitative Study ◽  
Clinical Outcomes ◽  
Current Literature ◽  
Design Methodology ◽  
Structured Interviews ◽  
Content Type ◽  
Clinician Experiences ◽  
Purposive Sample ◽  
Roll Out

Purpose A recent study on the implementation of telemonitoring has provided an opportunity to explore how telemonitoring could be further developed to enhance better patient, carer and clinician experiences for patients living with chronic disease. The purpose of this paper is to identify the challenges and lessons of the telemonitoring implementation and to identify strategies to inform future implementation. Design/methodology/approach A qualitative study was conducted with a purposive sample using semi-structured interviews to explore their views about the issues identified in the research aims. Interview themes were informed by current literature and the findings from local studies. Interviews were recorded, transcribed verbatim and analyzed thematically. Findings A total of 16 participants were interviewed. Overall the recruitment of 56 percent were from identified potential participants. Five core themes were identified, linking different aspects of the telemonitoring implementation: impact of telemonitoring; implementation and management lessons; program risks; program main changes from beginning; and future strategies and recommendations. Originality/value This study will inform the wider roll out of telemonitoring across the region with the goal of ensuring future interventions achieve better clinical outcomes, patient, carer experience and deliver better value.

The art and science of recruitment to a cancer rapid autopsy programme: A qualitative study exploring patient and clinician experiences

2020 ◽  
pp. 026921632096759
Author(s):  
Erin Tutty ◽  
Philomena Horsley ◽  
Rowan Forbes Shepherd ◽  
Laura E. Forrest
Keyword(s):  
Qualitative Study ◽  
Patient Selection ◽  
Structured Interviews ◽  
Art And Science ◽  
Team Members ◽  
Palliative Intent ◽  
Recruitment Challenges ◽  
Clinician Experiences ◽  
Rapid Autopsy

Background: CASCADE is a successful, Australia-first cancer rapid autopsy programme. Patients are recruited to the programme by their clinician once they understand that further treatment has only palliative intent. Despite its value, rapid autopsy is a rare research method owing partly to recruitment challenges. Aim: This research aimed to explore (1) how, in practice, clinicians select and recruit patients to the programme and (2) patient experiences of this process. Design: This was a qualitative study grounded in phenomenology. CASCADE team members (clinicians and researchers) and patients participated in semi-structured interviews. Data were analysed using an inductive, team-based approach to thematic analysis. Participants: Interviews were conducted with 31 participants (11 patients and 20 CASCADE team members). Results: Patient selection and recruitment to a rapid autopsy programme is both an art and science. In practice, patient selection is a subjective process that involves assessing a patient’s psychosocial suitability for the programme. Trust and rapport are necessary for informing this assessment and to create an environment conducive to discussing rapid autopsy. Clinicians have also crafted their own ways of delivering information about CASCADE, with both clinicians and patients acknowledging that, if not handled sensitively, recruitment could cause distress. Overall, patients were satisfied with the way in which they were recruited. Conclusion: Findings provide insight into how clinicians successfully select and recruit patients to a rapid autopsy programme and suggests that discussing such topics are acceptable to end-of-life patients. This research also raises thought-provoking questions about the ‘gatekeeping’ role of clinicians in recruitment.

scholarly journals 301 Older Farmers' Experiences of Musculoskeletal Disorders

2019 ◽  
Vol 48 (Supplement_3) ◽  
pp. iii17-iii65
Author(s):  
John Cunningham ◽  
Austin Kerin ◽  
Rose Galvin ◽  
Katie Robinson
Keyword(s):  
Qualitative Study ◽  
Musculoskeletal Disorders ◽  
Future Research ◽  
Full Time ◽  
Structured Interviews ◽  
Patient Centered ◽  
Part Time ◽  
Health Promoting ◽  
Time Basis ◽  
Older Farmers

Abstract Background Almost a third (n=41,000) of all Irish farm holders are aged 65 years or older. Older farmers are vulnerable to Musculoskeletal Disorders (MSD’s) both by virtue of the nature of their work and their age. MSD’s are a known risk factor for workplace accidents and farming is the highest risk occupation in Ireland. This study aimed to explore older farmers’ experiences of living with and accessing healthcare for MSD’s. Methods A qualitative study design employing semi-structured interviews was employed. Nine Irish farmers aged 65 years and over with current or previous experience of MSD's were recruited. All participants continued to farm on either a full-time or part-time basis. Data were analysed using thematic analysis. Results Four themes describing older farmers' experiences of MSD’s and healthcare were identified; (1) acceptance of MSD’s as inevitable (2) biomechanical and biological beliefs about MSD’s (3) resilience and a commitment to continuing work in response to MSD’s (4) scepticism and avoidance of healthcare. Conclusion To the best of our knowledge this is the first qualitative study of older Irish farmers’ experiences of MSD’s. Findings reveal that older farmer’s experiences differ significantly from those reported by other occupational groups. Commitment to continue working permeated the findings of this study and shaped older farmers' experiences and responses to MSD's. Older farmers accept MSD’s and pain as inevitable consequences of farming, and they respond to MSD’s with stoicism. Lack of healthcare provider knowledge about farming culture and practices contributes to older farmers' negative healthcare experiences and avoidance of healthcare. Given the prevalence of MSD’s in this population future research should focus on developing and evaluating appropriate health promoting and patient-centered interventions to support continued safe farming for older Irish farmers.

“I am a healthcare practitioner”: A qualitative exploration of massage therapists’ professional identity

2019 ◽  
Vol 17 (2) ◽  
Author(s):  
Amanda Baskwill ◽  
Meredith Vanstone ◽  
Del Harnish ◽  
Kelly Dore
Keyword(s):  
Professional Identity ◽  
Service Providers ◽  
Patient Empowerment ◽  
Healthcare Providers ◽  
Qualitative Description ◽  
Future Research ◽  
Structured Interviews ◽  
Massage Therapist ◽  
Individualized Care ◽  
Massage Therapists

AbstractBackgroundA division has been described among massage therapists, some who identify as healthcare providers while others identify as service providers. The perceived division creates confusion about what it means to be a massage therapist.ObjectiveThis qualitative study answered, “How do massage therapists in Ontario describe their professional identity?”MethodsQualitative description (QD) was used and data were collected from 33 massage therapists using semi-structured interviews.ResultsThe resulting description of massage therapists’ identity in Ontario is the first of its kind. The identity described includes passion as professional motivation in practice, the importance of confidence and competence, a focus on the therapeutic relationship, individualized care, and patient empowerment, and a desire to be recognized for their role within the healthcare system.ConclusionThere is still much to be investigated about massage therapists’ identity. Future research will explore whether this description resonates with a larger sample of massage therapists in Ontario.

scholarly journals ‘Thinking you're old and frail’: a qualitative study of frailty in older adults

2015 ◽  
Vol 36 (7) ◽  
pp. 1483-1500 ◽  
Author(s):  
KRYSTAL WARMOTH ◽  
IAIN A. LANG ◽  
CASSANDRA PHOENIX ◽  
CHARLES ABRAHAM ◽  
MELISSA K. ANDREW ◽  
...  
Keyword(s):  
Older Adults ◽  
Qualitative Study ◽  
Physical Activities ◽  
Future Research ◽  
Activity Levels ◽  
Theory Approach ◽  
Structured Interviews ◽  
Institutional Settings ◽  
Perceptions And Attitudes ◽  
Grounded Theory Approach

ABSTRACTMany older adults experience what is clinically recognised as frailty but little is known about the perceptions of, and attitudes regarding, being frail. This qualitative study explored adults' perceptions of frailty and their beliefs concerning its progression and consequences. Twenty-nine participants aged 66–98 with varying degrees of frailty, residing either in their homes or institutional settings, participated in semi-structured interviews. Verbatim transcripts were analysed using a Grounded Theory approach. Self-identifying as ‘frail’ was perceived by participants to be strongly related to their own levels of health and engagement in social and physical activity. Being labelled by others as ‘old and frail’ contributed to the development of a frailty identity by encouraging attitudinal and behavioural confirmation of it, including a loss of interest in participating in social and physical activities, poor physical health and increased stigmatisation. Using both individual and social context, different strategies were used to resist self-identification. The study provides insights into older adults' perceptions and attitudes regarding frailty, including the development of a frailty identity and its relationship with activity levels and health. The implications of these findings for future research and practice are discussed.

scholarly journals A Qualitative Study on Prehabilitation before Total Hip and Knee Arthroplasties: Integration of Patients’ and Clinicians’ Perspectives

Disabilities ◽  
2021 ◽  
Vol 1 (4) ◽  
pp. 361-376
Author(s):  
Somayyeh Mohammadi ◽  
Holly Reid ◽  
Wendy Watson ◽  
Morag Crocker ◽  
Julie M. Robillard ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Online Education ◽  
Family Caregivers ◽  
Learning Preferences ◽  
Qualitative Description ◽  
Structured Interviews ◽  
Definitive Answer ◽  
Content Learning ◽  
Knee Oa ◽  
Educational Modules

To explore and integrate the perspectives of patients with hip and knee osteoarthritis (OA), their caregivers, and clinicians who are working with these patients about current preoperative rehabilitation (“prehab”) content and delivery. Participants were individuals with hip (n = 46) or knee OA (n = 14), their family caregivers (n = 16), and clinicians working with patients with hip/knee OA (n = 15). In semi-structured interviews and focus groups, participants answered questions regarding barriers to accessing prehab, gaps in prehab content, learning preferences, and delivery formats. Interviews were audiotaped and transcribed verbatim. Data were analyzed using Qualitative Description method. Four main themes were identified: (1) “I didn’t get any of that” discusses barriers in accessing prehab; (2) “I never got a definitive answer” highlights necessary information in prehab; (3) “better idea of what’s going to happen” emphasizes the positive and negative aspects of prehab; (4) “a lot of people are shifting to online” describes participants’ perspectives on online education. Our findings confirm the need for prehab education and the potential of online prehab education. The results inform the development of prehab educational modules based on users’ input.

The perception of episiotomy among Iranian women: a qualitative study

2022 ◽  
Vol 30 (1) ◽  
pp. 30-40
Author(s):  
Malihe Ghiasvand ◽  
Fatemeh Nahidi ◽  
Sedigheh Sedigh Mobarakabadi ◽  
Hamid Sharif Nia ◽  
Hamid Alavi Majd
Keyword(s):  
Qualitative Study ◽  
Healthcare Systems ◽  
Health It ◽  
Physical And Mental Health ◽  
Structured Interviews ◽  
Negative Experiences ◽  
Appropriate Care ◽  
Women’S Perceptions ◽  
Conventional Content Analysis ◽  
Second Category

Background Around 70% of women who give birth vaginally experience perineal injury during childbirth, which may happen spontaneously or as a result of the incision made to facilitate childbirth. There are very few studies on the perceptions of episiotomy recipients about these services. Therefore, investigating these women's perception is crucial for providing appropriate care. Methods This qualitative study examined 20 women from hospitals and health centres who had undergone episiotomy using in-depth semi-structured interviews. Data were analysed using conventional content analysis and the accuracy and rigour of the data were assessed using the Lincoln and Guba criteria. Results The ‘change in perception and behaviour’ theme encompassed one category of negative experiences and views about episiotomy and a second category covering positive views. Conclusions Women's perceptions of episiotomy contained both positive and negative views. Since healthcare systems should support mothers' physical and mental health, it is recommended that health policymakers devise plans to boost factors that lead to positive views and eliminate those contributing to negative experiences and views.

scholarly journals It’s the fear of the unknown: Transition from higher education for young autistic adults

Autism ◽  
2019 ◽  
Vol 23 (6) ◽  
pp. 1575-1585 ◽  
Author(s):  
Jonathan Vincent
Keyword(s):  
Higher Education ◽  
Young People ◽  
Identity Development ◽  
Qualitative Study ◽  
Higher Education Institutions ◽  
Future Research ◽  
Structured Interviews ◽  
Recent Graduates ◽  
Autistic Adults ◽  
Education Courses

More young people with a diagnosis of autism are enrolling and successfully completing higher education courses than ever before and this is set to increase; however, while there is a burgeoning body of literature surrounding the transition into this stage of education, there is a paucity of research that investigates the transition as this population exit higher education. This exploratory qualitative study is one of the first to identify the specific experiences of young autistic adults making this transition, drawing on semi-structured interviews with 21 students and recent graduates. Findings indicate that transition out of higher education is challenging on both practical and psychological levels, manifested by feelings of anxiety and loss. However, there is also evidence that the same phenomenon can also be understood as a positive departure with important implications for identity development. Findings are discussed in relation to future research and implications for practice in higher education institutions.

Palliative care in the emergency department: A qualitative study exploring barriers, facilitators, desired clinician qualities, and future directions

2021 ◽  
pp. 1-6
Author(s):  
Alexa Gips ◽  
Bethany-Rose Daubman ◽  
Laura A. Petrillo ◽  
Jason Bowman ◽  
Kei Ouchi ◽  
...  
Keyword(s):  
Emergency Department ◽  
Palliative Care ◽  
Qualitative Study ◽  
Barriers And Facilitators ◽  
Future Research ◽  
Structured Interviews ◽  
Two Phase ◽  
Financial Model ◽  
The Future ◽  
The Impact

Abstract Objective To describe the perceived qualities of successful palliative care (PC) providers in the emergency department (ED), barriers and facilitators to ED–PC, and clinicians’ perspectives on the future of ED–PC. Method This qualitative study using semi-structured interviews was conducted in June–August 2020. Interviews were analyzed via a two-phase Rapid Analysis. The study's primary outcomes (innovations in ED–PC during COVID) are published elsewhere. In this secondary analysis, we examine interviewee responses to broader questions about ED–PC currently and in the future. Results PC providers perceived as successful in their work in the ED were described as autonomous, competent, flexible, fast, and fluent in ED language and culture. Barriers to ED–PC integration included the ED environment, lack of access to PC providers at all times, the ED perception of PC, and the lack of a supporting financial model. Facilitators to ED–PC integration included proactive identification of patients who would benefit from PC, ED-focused PC education and tools, PC presence in the ED, and data supporting ED–PC. Increased primary PC education for ED staff, increased automation, and innovative ED–PC models were seen as areas for future growth. Significance of results Our findings provide useful information for PC programs considering expanding their ED presence, particularly as this is the first study to our knowledge that examines traits of successful PC providers in the ED environment. Our findings also suggest that, despite growth in the arena of ED–PC, barriers and facilitators remain similar to those identified previously. Future research is needed to evaluate the impact that ED–PC initiatives may have on patient and system outcomes, to identify a financial model to maintain ED–PC integration, and to examine whether perceptions of successful providers align with objective measures of the same.

scholarly journals Language Socialization Through an Oral Academic Presentation in an EFL Environment: A Qualitative Study

2020 ◽  
Author(s):  
Remart Dumlao
Keyword(s):  
Qualitative Study ◽  
Student Teachers ◽  
Classroom Environment ◽  
English Language ◽  
Language Socialization ◽  
Public University ◽  
Future Research ◽  
Structured Interviews ◽  
Epistemic Stance ◽  
Field Notes

This article reports on a qualitative study that explored language socialization through an oral academic presentation in an EFL environment. Drawing from the notions of language socialization (Ochs & Schieffelin, 2011) and Community of Practice (Lave & Wenger, 1991), this paper sought to understand how learners negotiate their competence, as well as their identity in the oral academic activity. The participants were twenty-five student-teachers majoring in the English language at one Thai public university. Data were collected from classroom oral academic presentation transcript, multiple semi-structured interviews, classroom video-taped, and field notes. Results of data analyses pointed out that participants negotiated and constructed their identity in three main themes: (a) constructing their identities through epistemic stance, (b) through being passive and resistant learners, and (c) struggling sense of membership in an oral academic presentation. The findings also reflected that learner's identity in this study is a dynamic process involving many pedagogical factors, incidences, and the classroom environment. These pedagogical factors, as well as implications and considerations for future research, are discussed in the article.

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