Grandmothers as Kinship Care Providers: Predictors of Elevated Psychological Distress

2012 ◽  
Author(s):  
Susan Kelley ◽  
Deborah Whitley ◽  
Peter Campos
2000 ◽  
Vol 24 (3) ◽  
pp. 311-321 ◽  
Author(s):  
Susan J Kelley ◽  
Deborah Whitley ◽  
Theresa Ann Sipe ◽  
Beatrice Crofts Yorker

2017 ◽  
Vol 6 (5) ◽  
pp. 323-330 ◽  
Author(s):  
Michelle Hadjiconstantinou ◽  
Hamidreza Mani ◽  
Naina Patel ◽  
Miles Levy ◽  
Melanie Davies ◽  
...  

Objective Polycystic ovary syndrome (PCOS) is a lifelong condition. Its symptoms have been linked with psychological consequences, but less attention has been given to the daily implications of living with PCOS. We aimed to explore women’s experiences living with PCOS, and the potential acceptability of group education sessions for this target group. Methods Women with PCOS were recruited from an ethnically diverse UK community. Twelve semi-structured interviews were conducted. Analysis was underpinned by the constant comparative approach and involved the identification and exploration of key themes. Results Participants reported a range of symptoms linked with PCOS, including problems relating to menstruation and weight difficulties. Hirsutism was reported as the most distressing symptom. Emergent themes included perceptions about symptoms and delays in receiving a diagnosis; psychological distress; practical implications of living with the condition; coping with PCOS and perceived support needs. Some findings were specific to cultural backgrounds. Participants were supportive of the idea of group education for women with PCOS and suggested a need to provide education within the community and health care providers. Discussion Women with PCOS experience high psychological distress and difficulties with coping with their condition. Suggested strategies to reduce the negative psychological impact include education at various levels.


2003 ◽  
Vol 12 (3) ◽  
pp. 197-205 ◽  
Author(s):  
Therese S. Richmond ◽  
Donald Kauder ◽  
Janice Hinkle ◽  
Justine Shults

• Background Improving outcomes after serious injury is important to patients, patients’ families, and healthcare providers. Identifying early risk factors for long-term disability after injury will help critical care providers recognize patients at risk. • Objectives To identify early predictors of long-term disability after injury and to ascertain if age, level of disability before injury, posttraumatic psychological distress, and social network factors during hospitalization and recovery significantly contribute to long-term disability after injury. • Methods A prospective, correlational design was used. Injury-specific information on 63 patients with serious, non–central nervous system injury was obtained from medical records; all other data were obtained from interviews (3 per patient) during a 2½-year period. A model was developed to test the theoretical propositions of the disabling process. Predictors of long-term disability were evaluated using path analysis in the context of structural equation modeling. • Results Injuries were predominately due to motor vehicle crashes (37%) or violent assaults (21%). Mean Injury Severity Score was 13.46, and mean length of stay was 12 days. With structural equation modeling, 36% of the variance in long-term disability was explained by predictors present at the time of injury (age, disability before injury), during hospitalization (psychological distress), or soon after discharge (psychological distress, short-term disability after injury). • Conclusions Disability after injury is due partly to an interplay between physical and psychological factors that can be identified soon after injury. By identifying these early predictors, patients at risk for suboptimal outcomes can be detected.


2017 ◽  
Vol 5 (1) ◽  
pp. 91-96 ◽  
Author(s):  
Hassan Mahmoodi ◽  
Farzaneh Golboni ◽  
Haidar Nadrian ◽  
Moradali Zareipour ◽  
Shayesteh Shirzadi ◽  
...  

AIM: The aim of this study was to investigate the mother-father differences in Postnatal Psychological Distress (PPD) and its determinants among the parents with 8-weeks old children.MATERIALS AND METHODS: In this cross-sectional study, applying simple random sampling, 306 postnatal parents with an 8-weeks old infant in Saqqez County, Iran, were invited to answer the General Health Questionnaire-28 (GHQ-28) items through the telephone interview. Fifty-eight subjects declined to participate in the study (Response Rate = 81.04%). The data were analysed using the SPSS Statistics v. 21.RESULTS: About 16.9% of all the parents had PPD. The difference in the prevalence of PPD in three dimensions between the two groups were statistically significant (p < 0.01): social dysfunction (25.8% for fathers vs. 5.6% for mothers), somatic disorders (21% for fathers vs. 7.3% for mothers), and anxiety (21% for fathers vs. 6.5% for mothers). The mode of delivery of the mothers and the level of education, the number of children, monthly income, and being consent with pregnancy among the fathers were significant predictors for PPD.CONCLUSION: The level of PPD was more prevalent among the new fathers compared to the new mothers. Among the fathers, but not the mothers, socioeconomic characteristics were contributed to PPD. Considering the differences in risk factors for maternal and paternal PPD, our findings may help family health care providers and policymakers in designing gender-specific intervention programs and diagnosis tools aimed at PPD prevention among new parents.


2020 ◽  
Vol 18 (1) ◽  
Author(s):  
Miriam Galvin ◽  
Tommy Gavin ◽  
Iain Mays ◽  
Mark Heverin ◽  
Orla Hardiman

Abstract Background Quality of life is a basic goal of health and social care. The majority of people with Amyotrophic Lateral Sclerosis (ALS) are cared for at home by family caregivers. It is important to recognize the factors that contribute to quality of life for individuals to better understand the lived experiences in a condition for which there is currently no curative treatment. Aim To explore individual quality of life of people with ALS and their informal caregivers over time. Methods Over three semi-structured home interviews, 28 patient-caregiver dyads provided information on a range of demographic and clinical features, psychological distress, caregiver burden, and individual quality of life. Quality of life data were analysed using quantitative and qualitative methods with integration at the analysis and interpretation phases. Results Individual Quality of Life was high for patients and caregivers across the interviews series, and higher among patients than their care partners at each time point. Family, hobbies and social activities were the main self-defined contributors to quality of life. The importance of health declined relative to other areas over time. Friends and finances became less important for patients, but were assigned greater importance by caregivers across the illness trajectory. Psychological distress was higher among caregivers. Caregiver burden consistently increased. Conclusion The findings from this study point to the importance of exploring and monitoring quality of life at an individual level. Self-defined contributory factors are relevant to the individual within his/her context. As an integrated outcome measure individual quality of life should be assessed and monitored as part of routine clinical care during the clinical encounter. This can facilitate conversations between health care providers, patients and families, and inform interventions and contribute to decision support mechanisms. The ascertainment of self-defined life quality, especially in progressive neurodegenerative conditions, mean health care professionals are in a better position to provide person-centred care.


2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Azizeh Alizadeh ◽  
Hamid Reza Khankeh ◽  
Mohammad Barati ◽  
Yazdan Ahmadi ◽  
Arash Hadian ◽  
...  

Abstract Background Novel corona virus, named COVID-19, has spread rapidly to other countries like Italy, Iran and South Korea and affected all people, especially health-care providers. Therefore, due to the rapid spread of the disease in Iran, the aim of the present study was to explore psychological distress experienced by Iranian health-care providers in the first few weeks of the corona virus outbreak. Methods The present qualitative study was conducted on 18 Iranian health-care providers exposed to COVID − 19 using a content analysis method. Purposeful sampling was used to select the participants and continued until data saturation was reached. Data were collected using semi-structured interviews and then the qualitative data were analyzed through direct content analysis. Results By analyzing 236 primary codes, two main categories were extracted from the experiences of health-care providers during corona virus outbreak. The first category included Occupational demands with three sub-categories: nature of illness, Organizational demands and social demands. The second category was Supportive resources included personal support and social support. Conclusions The results of this study found that there were some barriers and challenges to medical personnel exposed to COVID-19 that caused psychological distress. Some of these problems related to the nature of illness, others related to social and organizational demands and some of supportive resources buffer the relationship between occupational demands and psychological distress.


2003 ◽  
Vol 84 (1) ◽  
pp. 135-142 ◽  
Author(s):  
Claudia Lawrence-Webb ◽  
Joshua N. Okundaye ◽  
Gayle Hafner

Current issues regarding the education of children with disabilities who are placed with kinship caregivers are highlighted using qualitative data on low-income African American kinship care providers who are 40–70 years old. Examined are the historical and social implications of kinship care, and the challenges facing the formal education of these children. Also explored are suggestions of kinship caregivers for improving the relationship between the school and their grandchildren. Kinship caregivers continue to highly value education as a priority for the children in their care. Despite difficulties in interacting with schools, kinship caregivers identify collaborative relationships they want with education providers.


2020 ◽  
Vol 4 (Supplement_1) ◽  
Author(s):  
Arati Mokashi ◽  
Margaret L Lawson ◽  
Sandra Gotovac ◽  
Greta R Bauer

Abstract Little is known about youth accessing gender-affirming care in Canada. Trans Youth CAN! is a prospective 24-month cohort study of youth referred for puberty suppression/gender affirming hormones, examining pathways to care, medical, social, and family outcomes. Eligible participants were pubertal, aged &lt;16, naïve to puberty blockers/cross-sex hormones, and recruited at their first endocrine appointment, along with their parent/caregiver (P/C), from clinics in 10 Canadian cities. Baseline sociodemographic, health, and family data were collected from interviewer-assisted youth surveys, self-completed (P/C) surveys, and clinic medical records. Youth data included day-to-day discrimination (InDI-D), depression, (MDS), psychological distress (Kessler-6), gender distress (TYC-GDS), gender positivity (TYC-GPS), and P/C support (self-report by youth and P/C). Pathways to accessing gender-affirming medical care included wait times, prior providers seen, length of time seeking care, and age accessing care. P/C data included parental conflict and consideration/involvement in conversion therapy. Baseline data were collected from 09/2017 to 06/2019 on 174 youth and 160 P/Cs. 78.7% of youth were assigned female at birth. 8.1% of those assigned female at birth, and 8.3% of those assigned male at birth, reported a primarily non-binary identity. 25.7% of youth had one or more immigrant P/Cs; 20.5% were Indigenous; and 15.5% were from rural areas. In the past year, 52.9% of youth reported engaging in self-harm, 32.6% had suicidal ideation, and 13.8% had attempted suicide. Bivariate correlations showed that longer wait times were associated with being older when youth first spoke to someone about their gender, seeing more provider types before first endocrine appointment, P/C report of time spent seeking hormone treatment, and lifetime discrimination. Youth with higher current P/C support were younger at their first appointment. Older youth at first appointment had also been older when they first met with someone outside the family about their gender, and had spent a longer time seeking hormone treatment. These youth also had higher gender distress, lower gender positivity, higher psychological distress, higher depression, experienced higher lifetime and past-year discrimination, and had lower average P/C support. P/Cs reported 8.8% of youth had participated in conversion therapy, while an additional 9.7% had considered having their youth participate. Current or past parental conflict about youths’ gender identity was reported by 40.1%, but was not associated with age of accessing care, types of providers seen, length of time accessing care, or age at first appointment. This research will help fill gaps in knowledge for health care providers about youth accessing gender affirming medical care, enhancing gender-affirming care and support for these youth and their parents/families.


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