scholarly journals It’s What We Do: Māori Carers Talk About Roles, Challenges, and Coordination in Caring for Older Family Members

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 508-508
Author(s):  
Mary Simpson ◽  
Kirstie McAllum ◽  
Christine Unson ◽  
Stéphanie Fox ◽  
Te Oha Hancock
Keyword(s):  
New Zealand ◽  
Family Member ◽  
Living Arrangements ◽  
Family Members ◽  
Family Care ◽  
Direct Care ◽  
Cultural Groups ◽  
Ongoing Research ◽  
Aotearoa New Zealand ◽  
Age Related

Abstract As the population of Aotearoa/New Zealand heads towards one-in-four being aged over 65-years-and-over by 2040, it is anticipated that family members will play an increasingly important role in caring for older relatives with chronic and age-related health issues. Multi-generational, and in particular three-generational living arrangements, combined with family care of older relatives are a growing trend; a trend already even evident among Māori communities. This paper reports on a study that explored the care experiences and expectations of 14 past and current Māori carers (aged 23 to 72-years) of older relatives. Interviews were audio-recorded, transcribed verbatim, and coded independently. The initial thematic analysis revealed nine themes and participants were invited to feedback on the summary in person or in writing. The feedback resulted in the original themes being collapsed into four (with subthemes): “Care is Normal”; “Collective Coordination of Care”; “Insider-Carer—Outsider Perspectives on Caring”; and “Societal Influences on Family Care/Carers”. Firstly, these themes highlight how Māori cultural norms infuse direct care, support, and coordination roles within family care of the older family member. Secondly, they reveal the challenges for family carers in talking about their work with others, especially (thirdly) in the face of negative attitudes towards care and carers of an older family member within wider society. These findings have implications for cultural and wider socio-political influences in socialising different groups to carer role expectations. If society is to better prepare future caregivers for their role, ongoing research is needed with the various cultural groups in Aotearoa/New Zealand.

scholarly journals FUTURE PLANNING AMONG OLDER CAREGIVERS OF FAMILY MEMBERS WITH INTELLECTUAL DISABILITY OR MENTAL ILLNESS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S287-S287 ◽  
Author(s):  
Fei Wang ◽  
Yangdi Han
Keyword(s):  
Mental Illness ◽  
Intellectual Disability ◽  
Family Member ◽  
Family Members ◽  
Institutional Care ◽  
Family Care ◽  
Future Planning ◽  
Ideal Situation ◽  
Older Caregivers ◽  
The Ideal

Abstract Objectives: This study aims to examine future planning among older caregivers for family members with intellectual disability or mental illness, focusing on preferences, predictors and barriers. Method: Data were drawn from 260 caregivers (aged 50 or older) to a family member with intellectual disability or mental illness in Shanghai, China. Caregivers rated six types of future care arrangement under three circumstances: (1) the ideal situation, (2) unable to provide care due to age-related illnesses, and (3) caregivers are deceased. Socio-demographic factors associated with future planning were examined using multinomial logistic regression. Caregivers also rated twelve barriers to future planning. Results: Government-subsidized care facility is the most preferable care arrangement across the three circumstances. While continuing family care was still preferred if caregivers were to become sick or deceased, it was a less preferred option in the ideal situation. Common barriers were the cost of institutional care and the inadequate skills of the staff. Regarding the predictors of future planning, the older the caregivers were, the less likely they had no future plans. Caregivers were more likely to prefer family care over institutional care if their family members had mild impairment. Caregivers of a family member with mental illness were more likely to have no future planning than caregivers of a family member with intellectual disability. Conclusion: This study identified the needs of older caregivers for future planning specific to different circumstances. It also identified demographic profiles of future planning and the caregiver population at risk of no future planning.

scholarly journals Migrant Caregivers of Older People in Spain: Qualitative Insights into Relatives’ Experiences

2020 ◽  
Vol 17 (8) ◽  
pp. 2953
Author(s):  
María José Morales-Gázquez ◽  
Epifanía Natalia Medina-Artiles ◽  
Remedios López-Liria ◽  
José Manuel Aguilar-Parra ◽  
Rubén Trigueros-Ramos ◽  
...  
Keyword(s):  
Older People ◽  
Family Member ◽  
Culture Shock ◽  
Family Members ◽  
Family Care ◽  
Traditional Structure ◽  
Gradual Process ◽  
The Family ◽  
Phenomenological Design ◽  
Depth Interviews

The traditional structure of families is undergoing profound changes, causing the so-called “crisis of family care.” This study describes the experiences and emotions of the family member who hires migrant caregivers for the older people. This is a qualitative study using a phenomenological design with nine women participants between 53 and 72 years of age. The data collection was carried out through two in-depth interviews and a focus group. There were three major topics: (1) the women in this study recognized that they were not able to take care of the family member directly, due to their responsibilities as female workers and mothers. The fact that migrant caregivers were chosen was conjunctural, where economic reasons were more important. (2) The family members supported the caregivers by teaching them about care and also resolving conflicts produced by culture shock. (3) Trusting the caregiver was a gradual process; the family members felt a complex set of emotions (insecurity, gratitude for the help, moral obligation). In conclusion, they wanted a caregiver who would provide the elder dependent with the love and compassion that they, as daughters, would provide if they had time to do so. The family became the caregiver’s managers and assumed the responsibility of training and helping them.

scholarly journals The social work professionalisation project before the 1990s in Aotearoa New Zealand: The dream

2016 ◽  
Vol 28 (3) ◽  
pp. 15-25 ◽  
Author(s):  
Sonya Hunt
Keyword(s):  
Social Work ◽  
New Zealand ◽  
Review Of Literature ◽  
Critical Research ◽  
Ongoing Research ◽  
Aotearoa New Zealand ◽  
The Social ◽  
History Of ◽  
Definition Of ◽  
Critical Consideration

INTRODUCTION: The meaning and purpose of social work has always been debated within the social work profession. The profession dreams of contributing towards a better, fairer, civil society locally and internationally. This article explores the professionalisation of social work in Aotearoa New Zealand. This exploration has been undertaken as background for an ongoing research project.METHOD: A critical consideration of the different theoretical and historical dimensions and interests at work that impacted on the journey of professionalisation of social work in this country has been undertaken based on a review of literature. Part one of the article outlines a definition of social work, and different concepts and approaches to professionalisation. Part two of the article contextualises the different approaches to professionalisation within Aotearoa New Zealand, from early forms of welfare pre-colonisation up until the early 1990s.CONCLUSION: The literature and trends discussed serve to both document the history of professionalisation of social work in Aotearoa New Zealand and as background to an ongoing critical research project which aims to uncover interests at work and interrogate the legitimacy of those interests, while enabling the voices of key actors from the time to surface, be explored, and be recorded.

scholarly journals The social work regulation project in Aotearoa New Zealand

2017 ◽  
Vol 29 (1) ◽  
pp. 53-64 ◽  
Author(s):  
Sonya Hunt
Keyword(s):  
Social Work ◽  
New Zealand ◽  
Ongoing Research ◽  
Cultural Considerations ◽  
Aotearoa New Zealand ◽  
The Social ◽  
History Of ◽  
Market Driven ◽  
History Of Social Work ◽  
Critical Consideration

INTRODUCTION: In this second of two articles on the history of professionalisation of social work in Aotearoa New Zealand, consideration is given to the more recent coalescing of forces from the 1990s to the initial implementation of the Social Workers Registration Act (2003), which led to our country’s example of a social work regulation project.APPROACH: This critical consideration of social work regulation in Aotearoa New Zealand situates it within the international social work professionalisation context alongside the national context. Consideration is given to the place of leadership and buy-in from the profession, political sponsorship, cultural considerations, and another ministerial review. Overlaying this, an examination of concepts of public trust, respect, and confidence in professions such as social work, are linked to crises of trust in professions in general, and placed within the current neoliberal, market-driven environment in which this project is anchored.CONCLUSION: The literature serves to document the history of social work regulation in Aotearoa New Zealand and as background for an ongoing research project which aims to uncover interests at work and interrogate the legitimacy of those interests, while enabling the voices of key actors from the time to surface, be explored, and be recorded.

Profile of ethnicity, living arrangements and loneliness amongst older adults in Aotearoa New Zealand: A national cross-sectional study

2017 ◽  
Vol 37 (1) ◽  
pp. 68-73 ◽  
Author(s):  
Hamish A Jamieson ◽  
Helen M Gibson ◽  
Rebecca Abey-Nesbit ◽  
Annabel Ahuriri-Driscoll ◽  
Sally Keeling ◽  
...  
Keyword(s):  
Older Adults ◽  
New Zealand ◽  
Living Arrangements ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Aotearoa New Zealand

scholarly journals Relatives' experience of intensive care: the other side of hospitalization

2007 ◽  
Vol 15 (4) ◽  
pp. 598-604 ◽  
Author(s):  
Urizzi Fabiane ◽  
Adriana Katia Corrêa
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Family Member ◽  
Care Delivery ◽  
Family Members ◽  
Family Care ◽  
The Other ◽  
Daily Routine ◽  
Reference Framework ◽  
Critical Patients

This study aims at understanding the experience concerning family members of patients in the Intensive Care Unit (ICU), with the purpose of contributing to care humanization in this context. Considering the nature of the research object, this research was carried out to understand the phenomenon Being a family that experiences the hospitalization of a family member in ICU. Phenomenology was used as a methodological reference framework. Seventeen family members of adult patients in the Intensive Care Unit (ICU) at the Santa Casa in Londrina were interviewed from September to December 2004. Through analysis of these interviews, some theme categories emerged: difficult, painful, speechless experience; experiencing and recognizing somebody's life: approaching the patient's suffering; break-up of the family's daily routine; fear of having a family member die; ICU: a fearsome scene, but necessary; concern with family care. Some issues related to the family's attendance in the ICU were discussed, contributing to the establishment of humanized care delivery to critical patients and their families' uniqueness.

The More Things Change, the More They Stay the Same

2000 ◽  
Vol 9 (1) ◽  
pp. 45-52 ◽  
Author(s):  
Bev Gatenby ◽  
Maria Humphries
Keyword(s):  
New Zealand ◽  
Career Development ◽  
Research Project ◽  
Women Graduates ◽  
Ongoing Research ◽  
Aotearoa New Zealand ◽  
Everyday Talk ◽  
The Way

Recent feminist theorising suggests that we view gender as a “stylised repetition of acts” (Butler, 1990, p. 140) and challenges. In an ongoing research project, we have been following and participating in the career development of a group of women graduates for nine years. In this paper we look at the shifting discourses around the notion of career and women's aspirations and the way in which those discourses reconstitute gender in everyday talk. In particular we examine the ways in which the women create and enact meaning for terms such as “career”, “balance”, “success” and “flexibility”. We take a critical look at changing interpretations in the light of current opportunities for women in Aotearoa/ New Zealand.

scholarly journals Māori and autism: A scoping review

Autism ◽  
2021 ◽  
pp. 136236132110186
Author(s):  
Jessica Tupou ◽  
Sally Curtis ◽  
Dorothy Taare-Smith ◽  
Ali Glasgow ◽  
Hannah Waddington
Keyword(s):  
New Zealand ◽  
Indigenous People ◽  
Support Services ◽  
Future Research ◽  
Prevalence Rates ◽  
Culturally Appropriate ◽  
Cultural Groups ◽  
Aotearoa New Zealand ◽  
Provision Of Services ◽  
Autism Prevalence

Cultural groups may vary considerably in their understandings of autism spectrum disorder and approaches to supporting autistic individuals. However, approaches to researching, identifying and managing autism are largely dominated by Western perspectives. This review provides an overview of the literature related to autism and Māori, the indigenous people of Aotearoa/New Zealand. A search of the peer-reviewed and grey literature identified 273 potentially relevant publications, and 13 of these met inclusion criteria. The included publications addressed questions related to Māori understandings of autism, Māori prevalence rates and diagnostic and support services for Māori. Findings suggest broad differences in Māori and Western understandings of autism and slightly higher autism prevalence rates for Māori than for non-Māori New Zealanders. The need for diagnostic and support services that are both effective and culturally appropriate for Māori was also highlighted. These findings are discussed in relation to implications for future research and the provision of services for autistic Māori. Lay abstract Most current approaches to identifying, researching and managing autism are based on Western views and understandings. However, different cultural groups may understand and approach autism differently. We searched a wide range of websites, academic journals and other sources for published information related to autism and Māori, the indigenous people of Aotearoa/New Zealand. Our search identified 13 publications that addressed questions related to Māori understandings of autism, Māori prevalence rates and diagnostic and support services for Māori. Overall, we found broad differences in Māori and Western understandings of autism and slightly higher autism prevalence rates for Māori than for non-Māori New Zealanders. Findings also highlighted a need for diagnostic and support services that are both effective and culturally appropriate for Māori. We discuss what these findings might mean for future research and the provision of services for Māori with autism.

scholarly journals "We Need a System that's not Designed to Fail Māori": Experiences of Racism Related to Kideny Transplantation in Aotearoa New Zealand

2021 ◽  
Author(s):  
Rachael Claire Walker ◽  
Sally Abel ◽  
Suetonia Palmer ◽  
Curtis Walker ◽  
Nayda Heays ◽  
...  
Keyword(s):  
Kidney Transplantation ◽  
New Zealand ◽  
Kidney Disease ◽  
Health System ◽  
Racial Profiling ◽  
Family Members ◽  
Structured Interviews ◽  
Quality Healthcare ◽  
Aotearoa New Zealand ◽  
Perceptions Of Racism

Abstract BackgroundReported experiences of racism in Aotearoa New Zealand are consistently associated with negative measures of health, self-rated health, life satisfaction, and reduced access to high quality healthcare with subsequent poor health outcomes. In this paper we report on perceptions and experiences of prejudice and racism by Indigenous Māori with kidney disease, their family members and donors who took part in a wider study about experiences of kidney transplantation.MethodsWe conducted semi-structured interviews with 40 Māori. Participants included those with kidney disease who had considered, were being worked up for, or who had already received a kidney transplant as well as family members and potential or previous donors. We examined the data for experiences of racism using a theoretical framework for racism on three levels: institutionalised racism, personally mediated racism, and internalised racism.ResultsWe identified subthemes at each level of racism: institutional (excluded and devalued by health system; disease stigmatisation; discriminatory body weight criteria, lack of power), personally-mediated (experiencing racial profiling; explicit racism) and internalized racism (shame and unworthiness to receive a transplant).ConclusionsThe wide-reaching experiences and perceptions of racism described by participants with kidney disease and their families in this research point to an unfair health system and suggests that racism may be contributing to kidney transplantation inequity in Aotearoa New Zealand. Addressing racism at all levels is imperative if we are to address inequitable outcomes for Māori requiring kidney transplantation.

scholarly journals Future living arrangements of Singaporeans with age-related dementia

2012 ◽  
Vol 24 (10) ◽  
pp. 1592-1599 ◽  
Author(s):  
James P. Thompson ◽  
Crystal M. Riley ◽  
Robert L. Eberlein ◽  
David B. Matchar
Keyword(s):  
System Dynamics ◽  
Family Size ◽  
Living Arrangements ◽  
Family Members ◽  
Severe Dementia ◽  
Dementia Prevalence ◽  
Age Related ◽  
The Impact ◽  
Number Of Individuals ◽  
At Home

ABSTRACTBackground: With rapid aging, Singapore faces an increasing proportion of the population with age-related dementia. We used system dynamics methodology to estimate the number and proportion of people with mild, moderate, and severe dementia in future years and to examine the impact of changing family composition on their likely living arrangements.Methods: A system dynamics model was constructed to estimate resident population, drawing birth and mortality rates from census data. We simulate future mild, moderate, and severe dementia prevalence matched with estimates of total dementia prevalence for the Asian region that includes Singapore. Then, integrating a submodel in which family size trends were projected based on fertility rates with tendencies for dependent elderly adults with dementia to live with family members, we estimate likely living arrangements of the future population of individuals with dementia.Results: Though lower than other previous estimates, our simulation results indicate an increase in the number and proportion of people in Singapore with severe dementia. This and the concurrent decrease in family size point to an increasing number of individuals with dementia unlikely to live at home.Conclusions: The momenta of demographic and illness trends portend a higher number of individuals with dementia less likely to be cared for at home by family members. Traditions of care for frail elderly found in the diverse cultures of Singapore will be increasingly difficult to sustain, and care options that accommodate these demographic shifts are urgently needed.

Sign in / Sign up

Export Citation Format

Share Document