scholarly journals Recruiting and Conducting Online Dyadic Semi-Structured Interviews With LGBTQ+ Couples Facing Advanced Cancer

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 587-587
Author(s):  
Kristin Cloyes ◽  
Lee Ellington ◽  
Brian Baucom ◽  
Katherine Supiano ◽  
Kathi Mooney ◽  
...  
Keyword(s):  
Older Adults ◽  
Health Equity ◽  
Advanced Cancer ◽  
Study Design ◽  
Structured Interview ◽  
Online Research ◽  
Direct Link ◽  
Structured Interviews ◽  
Coping With Cancer ◽  
Conducting Research

Abstract In this study, LGBTQ+ adult couples facing advanced cancer were recruited online. Eligible couples were sent a direct link to electronic consent and surveys in REDCap®. Participants were then invited to complete a 45-minute dyadic semi-structured interview regarding their experience of coping with cancer as a couple. This study faced difficulties in recruiting LGBTQ+ couples, and also faced the challenge of identifying and managing online responses from individuals misrepresenting themselves, and from automated accounts or “bots”. LGBTQ+ aging scholars must acknowledge how conducting research remotely with LGBTQ+ adults may necessitate changes in study design, such as changes to recruitment and more comprehensive eligibility screening designed to prevent and detect the collection of untrustworthy data. Ultimately, protecting the integrity of participant data in online research supports research accessibility and inclusion for LGBTQ+ older adults, and is the first step in conducting research that promotes health equity.

An In-Depth Analysis of Automatic Teller Machine Usage by Older Adults

1994 ◽  
Vol 38 (2) ◽  
pp. 142-146 ◽  
Author(s):  
Wendy A. Rogers ◽  
D. Kristen Gilbert
Keyword(s):  
Older Adults ◽  
Structured Interview ◽  
Structured Interviews ◽  
Telephone Interviews ◽  
Automatic Teller Machine ◽  
Depth Analysis ◽  
Usage Patterns ◽  
Automatic Teller Machines ◽  
Interviewing Technique ◽  
And Training

The present study investigated the usage of Automatic Teller Machines (ATMs) by older adults. We conducted 100 telephone interviews of older adults wherein we queried subjects about their frequency of ATM usage. From this pool of individuals we chose eight frequent users and eight intermediate users to participate in an in-depth structured interview. The phone and structured interviews provided detailed information about usage patterns and general ATM knowledge of older adults. The interviewing technique provided insight into the concerns of older adults and the problems they encounter when using ATM technology. The results of this study provide information relevant to design and training for ATMs. Although the data are derived from a sample of older adults, any improvements of design, safety, or training will be beneficial to the population of users as a whole.

Privacy Perceptions of an Aware Home with Visual Sensing Devices

2005 ◽  
Vol 49 (21) ◽  
pp. 1856-1858 ◽  
Author(s):  
Kelly E. Caine ◽  
Wendy A. Rogers ◽  
Arthur D. Fisk
Keyword(s):  
Mental Health ◽  
Older Adults ◽  
Structured Interview ◽  
Physical And Mental Health ◽  
Structured Interviews ◽  
Privacy Concerns ◽  
Visual Sensing ◽  
Sensing Systems ◽  
Home Based

Homes that can collaborate with their residents rather than simply provide shelter are becoming a reality. These homes such as Georgia Tech's “Aware Home” can potentially provide support to residents. Older adults in particular may benefit from the supports provided by these Aware Homes if they utilize the technologies they offer. The purpose of this study is to explore the privacy concerns that older adults may have about a home equipped with a visual sensing device. Using a structured interview approach we propose to investigate how variables such as the type of images the home captures and the physical and mental health of the residents of the home may affect privacy concerns. Findings from scenario-based structured interviews will be used to better understand the characteristics of these variables and how they relate to privacy concerns about visual sensing devices. Such data are critical for a model of home-based privacy concerns, for better design of home based visual sensing systems, and for providing information about sensing systems so that individuals may make informed choices concerning what devices to have in their homes.

scholarly journals Feasibility and Acceptability of the Technology-Based Fall Risk Assessments for Older Adults

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 1013-1013
Author(s):  
Ladda Thiamwong ◽  
Oscar Garcia ◽  
Renoa Choudhury ◽  
Joon-Hyuk Park ◽  
Jeffrey Stout ◽  
...  
Keyword(s):  
Older Adults ◽  
Technology Acceptance ◽  
Fall Risk ◽  
Online Survey ◽  
Structured Interview ◽  
Activity Monitoring ◽  
Community Dwelling ◽  
Risk Assessments ◽  
Balance Performance ◽  
Structured Interviews

Abstract Promising technologies, which are simple, portable, quick, non-invasive, and inexpensive, may open new horizons on fall risk assessments and provide important information for older adults. We used a mixed-methods approach to examine the feasibility and acceptability of technology-based fall risk assessments, including the BTrackS Balance System, Bioelectrical Impedance Analysis, and activity monitoring devices among older adults. Data were collected via a Qualtrics survey and interviews. The acceptability was measured by the Senior Technology Acceptance (STA) and semi-structured interviews with 15 participants. The STA consists of four domains with 14 items, and the semi-structured interview includes three main questions related to experiences about balance performance tests, body composition, and activity monitoring. One hundred twenty-four community-dwelling older adults completed the online survey, and 15 older adults participated in the interviews. The majority of participants were female, and 72% had no history of falls. Race and ethnicity were 17% Hispanic, 7% African Americans, and 3% Asian Americans. About 7% had COVID-19 positive, 31% reported fear of COVID, and 14.5% were afraid of losing their life to COVID. The word-of-mouth strategy and key person approach were used and had an incredible impact on the recruitment process. None of the participants had ever had their fall risk and fear of falling assessed before agreeing to participate in this study. The technology-based fall risk assessments were feasible and acceptable. About 78% of participants liked the idea of using technology to assess falls risk, and 79% agreed that using technology would enhance their effectiveness in daily activities.

scholarly journals Impact of COVID-19 public health restrictions on older people in Uganda: ‘Hunger is really one of those problems brought by this COVID’

2020 ◽  
pp. 1-15
Author(s):  
Clarissa Giebel ◽  
Bwire Ivan ◽  
Philomena Burger ◽  
Isaac Ddumba
Keyword(s):  
Public Health ◽  
Older Adults ◽  
Health Care ◽  
Healthcare Services ◽  
Structured Interview ◽  
Health Care Utilisation ◽  
Structured Interviews ◽  
Security Guards ◽  
Care Utilisation ◽  
The Impact

Abstract Objectives: To explore the impact of COVID-19 related public health restrictions on the lives of older adults living in Uganda. Design: Qualitative semi-structured interview study Setting: Participants’ homes Participants: Older adults living in Uganda (aged 60+) Measurements: Older adults in Uganda were interviewed over the phone and asked about their lives before and since COVID-19, and how public health restrictions have affected their lives. Semi-structured interviews were audio-recorded, transcribed and translated into English. Transcripts were thematically analysed and themes generated in discussion. Results: 30 older adults participated in the study. Five themes were identified: (1) Economic impacts; (2) Lack of access to basic necessities; (3) Impact on health care utilisation; (4) Social impacts; and (5) Violent reinforcement of public health restrictions. COVID-public health restrictions had severe impacts on their lives, with many people having not enough food to eat due to lack of income, and being unable to pay their grandchildren’s school fees. Steep rises in public transport fares and an overall avoidance of transport also resulted in a lack of access to healthcare services and difficulty in getting food. Restrictions were violently reinforced by security guards. Conclusions: Public health restrictions have a severe impact not only on older adults, but the whole family in Uganda. Governmental strategies to contain the virus need to provide more support to enable people to get basic necessities and live as normal a life as possible.

scholarly journals Qualitative Research With LGBTQ Older Adults and Older Adults Living With HIV/AIDS During COVID-19

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 586-587
Author(s):  
Sara Bybee ◽  
Austin Oswald
Keyword(s):  
Older Adults ◽  
Qualitative Research ◽  
Social Science Research ◽  
Science Research ◽  
Structured Interviews ◽  
Research Participants ◽  
Challenges And Opportunities ◽  
Conducting Research ◽  
Living With Hiv ◽  
Hiv Aids

Abstract In this symposium, researchers will discuss conceptual and practical challenges to conducting qualitative research with older LGBTQ+ adults and older adults living with HIV/AIDS during the COVID-19 pandemic. Researchers who conduct studies with LGBTQ+ populations and with older adults living with HIV/AIDS already face challenges in recruiting and retaining large enough sample sizes. Social distancing guidelines during the pandemic prohibited many researchers from conducting in-person studies. Conducting health and social science research entirely online may have its challenges when working with these older adult populations, but it may also present new opportunities for reaching hidden or hard-to-reach groups. Presenters draw on their recent experiences conducting semi-structured interviews, online surveys, and qualitative analyses of public records to illuminate the complex considerations of conducting research remotely with LGBTQ+ older adults and older adults living with HIV/AIDS. Presenters also discuss how conducting remote research with these populations may require methodological changes in study design in order to collect the most meaningful and reliable data from research participants. Ultimately, COVID-19 has required researchers to alter or change their methods of conducting research. As the internet becomes more heavily relied upon for conducting research, it is imperative that scholars in LGBTQ+ aging and HIV/AIDS consider the potential challenges and opportunities that online research presents for their studies, and for research participants who are living with HIV/AIDS or who identify as LGBTQ+.

scholarly journals A Qualitative Study Exploring Smoking Cessation Experiences of People around London South Bank University Who have Stopped Smoking

2020 ◽  
pp. 10-19
Author(s):  
Charles Eyo Edet ◽  
Russell Caplan
Keyword(s):  
Smoking Cessation ◽  
Qualitative Study ◽  
Study Design ◽  
Lived Experiences ◽  
Phenomenological Study ◽  
Self Regulation ◽  
Structured Interview ◽  
Preliminary Review ◽  
Structured Interviews ◽  
Health And Social Care

Aim: To explore, understand and interpret the lived experiences of the smoking cessation process and the meaning participants attach to their experiences of the cessation process. A qualitative exploratory study of the lived experiences of people who have stopped smoking can generate useful information that specifies the supportive factors that can be taken into consideration when planning smoking cessation interventions. Study Design: A qualitative study design using an interpretive phenomenological approach was adopted in this study to explore the smoking cessation experiences of the participants. Place and Duration of Study: School of Health and Social Care, London South Bank University, London, UK. Methodology: An exploratory phenomenological study was conducted with seven participants. A qualitative semi-structured interview guide was developed by the researcher after a preliminary review of significant literatures and in line with other standardised schedules. All face-to-face semi-structured interviews with participants were audio recorded and transcribed verbatim. All interview transcripts were analyzed using the interpretive phenomenological analysis (IPA) method. Results: Based on IPA method, ten themes emerged and these were put together into two groups. The first group of themes are the participant’s experiences of the smoking cessation process. All the participants narrated experiences of symptoms due to Nicotine withdrawal. Also, experiences of their social environment, relapse as well as loneliness and boredom, emerged as themes. The second group of themes explored how participants made sense of their smoking cessation experiences. All the participants expressed how they made sense of their feelings, understood their situation and coped with their cessation experiences which they termed a difficult process. Also, confidence, self-regulation, motivation, feelings of fear and the importance of time, emerged as themes. Conclusion and Recommendation: According to participants, the smoking cessation process is a difficult process due to the many challenges and barriers associated with it. Therefore, the importance of self-confidence, motivation and social support cannot be overemphasized for a successful cessation. However, further research is recommended with respect to gender and the smoking cessation process.

Patient-centered prescribing of medications for comorbid illness in older adults with advanced cancer: A qualitative study.

2014 ◽  
Vol 32 (31_suppl) ◽  
pp. 122-122 ◽  
Author(s):  
Jennifer Tjia ◽  
Julia Gallagher ◽  
Paul Han ◽  
Sarah L Cutrona ◽  
Kathleen Mazor
Keyword(s):  
Older Adults ◽  
Qualitative Study ◽  
New England ◽  
Advanced Cancer ◽  
Medication Management ◽  
Comorbid Illness ◽  
Structured Interviews ◽  
Advanced Cancer Patients ◽  
Nurses And Physicians ◽  
Emerging Themes

122 Background: Polypharmacy is common, burdensome, and potentially harmful in older adults with advanced cancer. According to the IOM, prescribing and coordination of chronic disease medication for these patients is suboptimal. We conducted a qualitative study with patients, caregivers, nurses, and physicians to better understand these issues. Methods: We used semi-structured interviews to explore participants’ views on medication management, care coordination, and communication for advanced cancer patients enrolled in 3 hospice agencies in New England. Eligible hospice patients were aged ≥ 65 yrs, had a diagnosis of cancer, and prescribed ≥5 medications. Family caregivers participated at the patient’s discretion. We also interviewed nurses and physicians to obtain an interdisciplinary perspective on medication coordination and communication. We used content analysis to identify emerging themes. Eighteen (18) patients (mean age 80 yrs [SD 10], 42% female) and 8 caregivers (mean age 63 yrs [SD 16.6], 88% female) were included, along with 10 nurses and 7 physicians from hospice, outpatient oncology and primary care settings. Results: Emerging themes revealed that patients and families were receptive to comprehensive medication reviews upon transition to hospice that assess the ongoing use of longstanding medications for comorbid illness. Effective framing for discussions included a focus on reducing harmful and non-essential medications; a less effective approach emphasized time to benefit (i.e. whether a medication is indicated for active symptom management vs prevention). Hospice nurses reported physician reluctance to discontinue medications, lack of physician confidence in their medication assessments, and lack of prescribing guidelines as barriers to optimizing prescribing. Conclusions: Patients enrolled in hospice for cancer and their families are willing to reassess the ongoing use of chronic medications for comorbid illness; information about medication harms and their impact on quality of life is considered particularly useful. Barriers to optimal prescribing include physician reluctance to discontinue medications and mistrust between providers.

Topik-Topik Komunikasi Dakwah Dalam Mesej Akidah Kepada Masyarakat Orang Asli di Selangor

Sains Insani ◽  
2018 ◽  
Vol 3 (2) ◽  
pp. 15-21
Author(s):  
Zulkefli Aini ◽  
Abdul Ghafar Don ◽  
Ahmad Irdha Mokhtar ◽  
Nur Uswah Ahmad Fauzi
Keyword(s):  
Qualitative Study ◽  
Study Design ◽  
Verbal Feedback ◽  
Structured Interviews ◽  
Orang Asli ◽  
Case Study Design ◽  
Beliefs And Practice ◽  
Islamic Faith ◽  
Selection Of

One of the factors that can affect a person's behavior is a communication message. In the context of the da`wah, preachers who involved actively in da`wah communication with the Orang Asli should be able to ensure that the message conveyed can be understood by the target group. In addition, the selection of the correct messages of da`wah based on the foremost priority simplify the process of sharing information between the preachers and the Orang Asli. Accordingly, this article aims to identify specific topics of Islamic faith (akidah) submitted by the Orang Asli in the process of da`wah communication and to identify verbal feedback given by the preachers to the Orang Asli of the topics. This qualitative study using case study design and data was collected through semi-structured interviews. Interviews involving nine preachers were active in da`wah activity to the Orang Asli community in Selangor. Data were analyzed thematically according to the specified objectives. The study found that the topics frequently raised by the Orang Asli is concerned about belief in Allah, belief in Malaikat, and belief in Qada' and Qadar. The topics may be found within the framework of worldview in their beliefs and practice of ancient traditions. Therefore, the preachers gave verbal feedback on these topics is based on a clear and precise sample corresponding to the level of their thinking. The emphasis on these topics is very important to strengthen and purify the faith of the community.Keywords: Communication; Message; Preacher; Indigenous community Abstrak: Elemen mesej dalam komunikasi merupakan salah satu faktor yang dapat memberi kesan terhadap perubahan tingkah laku seseorang. Dalam konteks dakwah, pendakwah yang terlibat dalam proses komunikasi dakwah dengan Orang Asli seharusnya berkebolehan memastikan kandungan mesej yang disampaikan boleh difahami oleh sasaran dakwahnya. Di samping itu, pemilihan mesej dakwah yang betul mengikut keutamaan memudahkan proses perkongsian maklumat antara pendakwah dengan Orang Asli. Sehubungan dengan itu, artikel ini bertujuan untuk mengenalpasti topik-topik tertentu dalam mesej akidah yang dikemukakan oleh masyarakat Orang Asli kepada pendakwah dan mengenalpasti maklum balas lisan yang diberikan oleh pendakwah kepada Orang Asli terhadap topik tersebut. Kajian kualitatif ini menggunakan reka bentuk kajian kes dengan pengumpulan data melalui temu bual separa struktur. Temu bual melibatkan sembilan orang pendakwah yang aktif dalam aktiviti dakwah masyarakat Orang Asli di Selangor. Data kajian dianalisis secara tematik mengikut objektif yang ditentukan. Kajian ini mendapati bahawa topik-topik yang sering dikemukan oleh Orang Asli kepada pendakwah dalam penyampaian mesej akidah ialah berkenaan tentang keimanan kepada Allah SWT, keimanan kepada malaikat, dan keimanan kepada qada’ dan qadar. Topik-topik berkenaan didapati berada dalam kerangka worldview kepercayaan dan amalan tradisi mereka. Sehubungan dengan itu, pendakwah memberikan maklum balas lisan terhadap topik-topik tersebut adalah berdasarkan keterangan yang jelas dan contoh yang tepat bersesuaian dengan tahap pemikiran mereka. Penekanan terhadap topik-topik tersebut merupakan perkara yang penting dalam rangka mengukuhkan dan memurnikan akidah masyarakat Orang Asli.Kata kunci: Komunikasi; Mesej; Pendakwah; Komuniti Orang Asli

Significados de Morte: o Discurso do Sujeito Coletivo da Enfermagem / Meaning of Death: the collective subject speech of the nursing staff

1970 ◽  
Vol 6 (1) ◽  
pp. 52-58
Author(s):  
Fellipe Afonso de Azevedo ◽  
Noé D’jalma Araújo ◽  
Néliton Célio de Novais ◽  
José Vítor da Silva ◽  
Renato Augusto Passos
Keyword(s):  
Nursing Staff ◽  
Hospital Setting ◽  
Field Research ◽  
Structured Interview ◽  
Minas Gerais ◽  
Structured Interviews ◽  
Cross Sectional ◽  
Emergency Units ◽  
Methodological Guidelines

RESUMOObjetivo: o presente trabalho teve como objetivo identificar os significados de morte emergentes das equipes de enfermagem que atuam nas unidades de Pronto Socorro e Unidade de Terapia Intensiva (UTI) em uma entidade de médio porte situada no Sul de Minas Gerais. Materiais e métodos: estudo de abordagem qualitativa, do tipo descritivo, de campo e transversal. A amostra estudada foi composta de oito enfermeiros, 22 técnicos e quatro auxiliares de enfermagem, totalizando 34 profissionais, sendo utilizado o instrumento de caracterização pessoal e profissional da equipe de enfermagem e o roteiro de entrevista semiestruturada. A amostragem foi proposital. A coleta de dados foi realizada através de entrevista semiestruturada, gravada e transcrita. As diretrizes metodológicas do Discurso do Sujeito Coletivo foram utilizadas para a seleção das ideias centrais e expressões-chave correspondentes, a partir das quais foram extraídos os discursos dos sujeitos, no cenário da instituição hospitalar. Resultados e Discussão: ao analisar o tema “significados de morte”, obtiveram-se as seguintes ideias centrais: “passagem”, “diversos significados”, “fim da vida” e “fim e começo de outra vida”. Conclusão: As concepções acerca do tema morte para os profissionais participantes deste trabalho reforça a necessidade de estudos sobre o tema durante a formação acadêmica. Certos de que irão vivenciar este tipo de situação no dia-a-dia profissional, é preciso prepará-los psicologicamente para isso.Palavras-chave: Morte, Equipe de enfermagem, Assistência ao paciente.ABSTRACTObjective: This study aimed to identify the meanings of emerging death of the nursing staff working in the Emergency Units and Intensive Care Unit (ICU) in a medium-sized entity located in southern Minas Gerais. Materials and methods: A cross-sectional qualitative field research. The sample was composed of 8 nurses, 22 technicians and 4 nursing assistants, totaling 34 professionals. It was used a tool of personal and professional characterization of the nursing team and a semi-structured interview. Sampling was intentional. Data collection was conducted through semi-structured interviews, that were recorded and transcribed. The methodological guidelines of the Collective Subject Speech were used for the selection of the central ideas and corresponding key expressions, from which the speeches of the subjects were taken, in the hospital setting. Results and discussion: to examine the topic "death meanings" yielded the following core ideas: "pass", "different meanings", "end of life" and "end and beginning of another life." Conclusion: The conceptions about the death theme for the professional participants of this study reinforces the need for studies on the subject during their academic training. It is certain that they will experience this type of situation on their daily professional routine, therefore there is a need to prepare them psychologically for this.Keywords: Death, Nursing staff, Patient care.

Individualized cancer follow-up supported by electronic Patient-Reported Outcomes: Development and evaluation (Preprint)

2020 ◽  
Author(s):  
Sissel Ravn ◽  
Henriette Vind Thaysen ◽  
Lene Seibaek ◽  
Victor Jilbert Verwaal ◽  
Lene Hjerrild Iversen
Keyword(s):  
Ct Scan ◽  
Advanced Cancer ◽  
Patient Reported Outcomes ◽  
Cost Benefit Analysis ◽  
Cost Benefit ◽  
Structured Interviews ◽  
European Organization ◽  
Individualized Care ◽  
Patient Reported

BACKGROUND Cancer survivors experience unmet needs during follow-up. Besides recurrence, a follow-up includes detection of late side effects, rehabilitation, palliation and individualized care. OBJECTIVE We aimed to describe the development and evaluate the feasibility of an intervention providing individualized cancer follow-up supported by electronic patient-reported outcomes (e-PRO). METHODS The study was carried out as an interventional study at a Surgical and a Gynecological Department offering complex cancer surgery and follow-up for advanced cancer. The e-PRO screened for a priori defined clinical important symptoms and needs providing individualized follow-up. We included following questionnaires in the e-PRO; the general European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30 and the EORTC validated for colorectal and ovarian cancer patients. To support individualization, we included three prioritized issues of the patient’s preference in each e-PRO. The response-algorithm was aggregated based on the severity of the patient’s response. To ensure the sensitivity of the e-PRO, we performed semi-structured interviews with five patients. All clinicians (surgeons and gynecologists) performing the consultations reviewed the e-PRO. The evaluation was divided in two, 1)The feasibility was assessed by a)Patients’ response rate of the e-PRO, b)Number of follow-up visits documenting the use of e-PRO and c)Patients’ prioritized issues prior to the consultation(‘yes’ / ‘no’), and after the follow-up 2)Patients assessment of a)The need and purpose of the follow-up visit and b)the support provided during the follow-up visit. RESULTS In total, 187 patients were included in the study, of which 73%(n=136/187) patients responded to the e-PRO and were subjected to an individualized follow-up. The e-PRO was documented as applied in 79% of the follow-up visits. In total, 23% of the prioritized issues did not include a response. Stratified by time since surgery, significantly more patients did not fill out a prioritized issue had a follow-up >6 months since surgery. In total, 72 % follow-up visits were evaluated to be necessary in order to discuss the outcome of the CT scan, symptoms, and/or prioritized issues. Contrary, 19% of the follow-up visits were evaluated to be necessary only to discuss the result of the CT scan. A range from 19.3–56.3% of patients assessed the follow-up visit to provide support with respect to physical (42% of patients), mental (56%), sexual (19%) or dietary (27%) issues. Further, a range from 34–60% of the patients reported that they did not need support regarding physical (43% of patients), mental (34%), sexual (63%) or dietary (57%) issues. CONCLUSIONS An individualized follow-up based on e-PRO is feasible, and support most patients surgically treated for advanced cancer. However, results indicate that follow-up based on e-PRO may not be beneficial for all patients and circumstances. A thorough cost-benefit analysis may be warranted before implementation in routine clinic.

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