scholarly journals Unpacking Data From Adult Day Centers in Order to Realize Their Untapped Potential in Dementia Care

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 84-84
Author(s):  
Tina Sadarangani ◽  
Lauren Parker
Keyword(s):  
Data Collection ◽  
The United States ◽  
Dementia Care ◽  
Community Dwelling ◽  
Emergency Department Visits ◽  
Additional Patient ◽  
Patient Centered ◽  
Adult Day Services ◽  
Adult Day Centers ◽  
Funding Opportunities

Abstract Adult day centers (ADCs) in the United States represent a vital, but commonly overlooked, resource for dementia care among community-dwelling older adults. However, the severity of dementia in ADC users, their medical complexity, the supports offered to them, and health outcomes associated with adult day services among persons living with dementia is poorly understood. This is in part due to a lack of standardized data collection in this industry. In this symposium, we present the most current research on these issues, as well as strategies to improve data collection across ADCs to strengthen care. The symposium begins with analysis of data from the state of California that identifies patterns of chronic conditions in ADC users with dementia that are associated with emergency department visits and hospitalizations. We then examine data from the Centers for Disease Control, comparing dementia specialized ADCs and their participants to non-specializing ADCs. We compare the extent to which states with ADC programs require collection of patient centered reported outcomes on persons with dementia. Finally, we explore an innovative collaboration between researchers and community partners to simplify data collection in these centers. Our findings suggest that persons with dementia in ADCs are an extremely complex population and that some ADCs are better suited than others to meet their extensive needs. Additional patient-centered data collection can be supported with widely available software, and has the potential to demonstrate the effectiveness of ADCs, aid in program development, and help leverage funding opportunities.

A Wireless System for Evaluating Postural Position

2009 ◽  
Vol 3 (4) ◽  
Author(s):  
Amy R. Sipp ◽  
Blair A. Rowley
Keyword(s):  
United States ◽  
Postural Sway ◽  
Medical Condition ◽  
Angular Position ◽  
Warning System ◽  
Fall Detection ◽  
The United States ◽  
Community Dwelling ◽  
Emergency Department Visits ◽  
Stair Climbing

Falls account for almost two million emergency department visits per year in the United States and are the leading cause of injury deaths among adults 65 years of age and older. Despite efforts to reduce fall risk factors, about one-third of community-dwelling older adults fall each year in the United States. New methods and devices are needed to prevent falls and to reduce morbidity and mortality related to falls. Presently, it is unknown if there is a measurable change in sway before a person falls as a result of age or medical condition. The purpose of this research is to develop a device that can be used to measure the prefall motion outside of a laboratory setting. To study human prefall motion, we developed a gyroscope-based sensor to test two concepts. The first was that a single-axis gyroscope could be used to directly measure angular position changes due to postural perturbations. The second was that a small widely used microprocessor could be used to distinguish normal from potentially problematic motion. This proof-of-concept prototype counted how many times perturbations occurred that were unlikely to be due to normal activities such as walking and stair climbing. With these basic concepts demonstrated, we sought to expand the device into a more versatile form using the same general approach. A wireless data acquisition system was developed. A fall was induced to allow the study of prefall motion on a healthy subject. The data collected showed a measureable change in postural motion. The developed device provides a viable approach to evaluating postural angular position that can be used outside of a laboratory facility. Further testing and development will involve additional subject testing and expansion of the device to function as an early fall detection or warning system. This research serves as a basis for further work in postural sway and interventions to prevent falls.

Family caregivers’ reports of hospitalizations and emergency department visits in community-dwelling individuals with dementia

Dementia ◽  
2016 ◽  
Vol 17 (5) ◽  
pp. 585-595 ◽  
Author(s):  
Megan Benner ◽  
Victoria Steiner ◽  
Linda L Pierce
Keyword(s):  
Emergency Department ◽  
Family Caregivers ◽  
Support Groups ◽  
Home Care Services ◽  
Healthcare Services ◽  
The United States ◽  
Community Dwelling ◽  
Emergency Department Visits ◽  
Care Recipient ◽  
Tract Infections

Individuals with dementia in the United States have higher rates of hospitalizations and emergency department visits compared to those without. This descriptive study examined the frequency of hospitalizations and emergency department visits among community-dwelling individuals with dementia, reasons for hospitalizations and emergency department visits, and caregivers’ actions to prevent these events. Family caregivers ( n = 63) from education/support groups offered through Alzheimer’s Association chapters in western Ohio completed a survey. Twenty-two percent of caregivers reported that their care recipient stayed overnight in the hospital and 30% reported that their care recipient visited the emergency department at least once in the past three months. The most frequent reasons for hospitalization and emergency department visits, such as urinary tract infections and fall-related injuries, were potentially avoidable. Caregivers reported giving medications, seeking healthcare services, and obtaining home care services, as the most frequently used preventive actions. Family caregivers of individuals with dementia should be provided substantive education about preventable hospitalizations and emergency department visits.

scholarly journals Evidence for the Need to Standardize Data Collection on Patient Outcomes Across Adult Day Centers in the United States

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 618-618
Author(s):  
Tina Sadarangani ◽  
William Zagorski ◽  
Lydia Missaelides
Keyword(s):  
United States ◽  
Data Collection ◽  
Large Scale ◽  
The United States ◽  
Current Data ◽  
Assessment Tools ◽  
Nutritional Risk ◽  
Pool Data ◽  
Adult Day Centers ◽  
The Impact

Abstract Researchers’ ability to measure the impact of adult day centers (ADCs) on participants’ health has been hampered by a lack of large-scale data. We examined categories of data ADCs across the United States are collecting related to patients’ health and health outcomes with the idea of developing a future national cohort of centers. We distributed an electronic survey to ADCs in 50-states on current data collection efforts. Forty states were represented (N=250). Only 32% of ADCs collect patient level data for research and analysis. Vital signs, nutritional risk, falls, and activities of daily living data were most commonly collected. However, validated assessment tools were used in less than 50% of cases. Researchers’ ability to pool data on clinical outcomes among ADC users is limited by lack of data collection and use of uniform outcome measures across ADCs. Standardizing data collection is critical to strengthening ADC programs and demonstrating their effectiveness.

scholarly journals Using Existing Software Systems to Collect Outcome Data in Adult Day Services

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 84-85
Author(s):  
Keith Anderson ◽  
Lisa Peters-Beumer ◽  
Laurie Duff
Keyword(s):  
Data Collection ◽  
Cost Effective ◽  
Outcome Data ◽  
Software Systems ◽  
Adult Day Services ◽  
Workflow Integration ◽  
Outcome Data Collection ◽  
Day Services ◽  
The Individual ◽  
Funding Opportunities

Abstract Recently, there has been a resounding call for standardized outcome data collection in adult day services (ADS). Outcome data have the potential to demonstrate the effectiveness of ADS, aid in program development, and help leverage funding opportunities. Unfortunately, many ADS centers do not collect outcome data for several reasons, including the cost of data collection software and systems. In this presentation, we present one effort to utilize an existing multiuse ‘off the shelf’ software solution to collect ADS outcome data for a network of ADS providers. The researchers collaborated with software developers and ADS providers to adapt the software to incorporate outcome measures and reporting functionality on both the individual and program levels. Adaptation and adoption required attention to HIPAA compliance, workflow integration, measurement fidelity, and data management processes. Despite these challenges, adapting existing software systems may be a cost-effective way to enable expanded outcome data collection in ADS.

scholarly journals Services That Matter for Aging in Place: Research on the Impact and Promise of Adult Day Centers

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 617-618
Author(s):  
Tina Sadarangani ◽  
Holly Dabelko-Schoeny
Keyword(s):  
Behavioral Therapy ◽  
Well Being ◽  
The United States ◽  
Term Care ◽  
Adult Day Services ◽  
Adult Day Centers ◽  
Complex Population ◽  
Day Services ◽  
The Impact ◽  
Health And Well Being

Abstract Adult day service centers (ADCs) in the United States are increasingly recognized as an important source of community-based long-term care for older adults. However, awareness, widespread utilization, reimbursements, and access to ADCs have been limited by a lack of evidence on ADCs’ impact. In this interdisciplinary symposium, we explore current research taking place in the realm of adult day services to understand the reach and impact of ADCs. We begin by examining the most current center-level and user-level data from the National Center for Health Statistics, and demonstrate how these data can be used to inform research and policy. We subsequently evaluate survey data from the National Adult Day Services Association that captures clinical data being collected in ADCs (N=250) surrounding users’ clinical outcomes. We then explore the effectiveness of four interventions on ADC users’ health and functional status: board games, cognitive behavioral therapy, aromatherapy and dance. Finally, we examine the association between adult day services use by African American persons with dementia and depressive symptoms in their caregivers. Our findings suggest that ADCs serve a complex population with high rates of poverty and chronic conditions, but ADCs can have a meaningful impact on users’ health and well-being by leveraging innovative programming. We conclude by discussing how standardization of data collection efforts could enable researchers and policymakers to evaluate ADCs’ impact and target funding towards services that maximizes users’ health and well-being.

scholarly journals Facing the Journey Together: Using Digital Media to Support Dementia Care Among Asian Americans

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 542-542
Author(s):  
Angelica Yeh ◽  
Marie Mayen-Cho
Keyword(s):  
Los Angeles ◽  
Digital Media ◽  
The United States ◽  
Dementia Care ◽  
Pacific Islanders ◽  
Japanese American ◽  
Culturally Appropriate ◽  
Care Partners ◽  
Care Information ◽  
Depth Interviews

Abstract Asians and Pacific Islanders (APIs) in the United States have limited access to dementia care information that is linguistically and culturally appropriate. Alzheimer’s Los Angeles created “Faces of Caregiving”, a video project available with English/Japanese subtitles, documenting in-depth interviews with 7 Japanese/Japanese-American familial care partners of individuals living with dementia. It touched on the personal yet universal aspects of each journey embedded in a particular family context. The 5 video profiles were subsequently shown at 3 community sites to attendees comprised of mostly older-adult APIs. Among 85 attendee responses, approximately 90% stated they were more likely to seek out information on and support for Alzheimer’s disease, felt more open to talking about the disease, and were more likely to advocate and raise awareness for the disease. This program could be replicated for other API communities, allowing individuals to learn more effectively from a peer-to-peer experience in a culturally familiar setting. Part of a symposium sponsored by the Aging Among Asians Interest Group.

scholarly journals Emergency Department Visits From 2014 to 2018 for Head Injuries in Youth Non-Tackle Football Compared With Other Sports

2021 ◽  
Vol 9 (1) ◽  
pp. 232596712097540
Author(s):  
Jessica M. Zendler ◽  
Ron Jadischke ◽  
Jared Frantz ◽  
Steve Hall ◽  
Grant C. Goulet
Keyword(s):  
United States ◽  
Emergency Department ◽  
Head Injury ◽  
Head Injuries ◽  
The United States ◽  
Emergency Department Visits ◽  
Head Region ◽  
Cerebral Contusion ◽  
Common Diagnosis ◽  
Tackle Football

Background: Non-tackle football (ie, flag, touch, 7v7) is purported to be a lower-risk alternative to tackle football, particularly in terms of head injuries. However, data on head injuries in non-tackle football are sparse, particularly among youth participants. Purpose: To describe the epidemiology of  emergency department visits for head injuries due to non-tackle football among youth players in the United States and compare the data with basketball, soccer, and tackle football. Study Design: Descriptive epidemiology study. Methods: Injury data from 2014 to 2018 were obtained from the National Electronic Injury Surveillance System database. Injury reports coded for patients aged 6 to 18 years and associated with basketball, football, or soccer were extracted. Data were filtered to include only injuries to the head region, specifically, the head, ear, eyeball, mouth, or face. Football injuries were manually assigned to “non-tackle” or “tackle” based on the injury narratives. Sports & Fitness Industry Association data were used to estimate annual sport participation and calculate annual injury rates per 100,000 participant-years. Results: A total of 26,770 incident reports from 2014 to 2018 were analyzed. For head region injuries in non-tackle football, the head was the most commonly injured body part, followed by the face; the most common diagnosis was a laceration, followed by concussion and internal injury (defined as an unspecified head injury or internal head injury [eg, subdural hematoma or cerebral contusion]). The most common contacting object was another player. The projected national rate of head region injuries was lowest for non-tackle football across the 4 sports. In particular, the projected rate of injuries to the head for non-tackle football (78.0 per 100,000 participant-years) was less than one-fourth the rates for basketball (323.5 per 100,000 participant-years) and soccer (318.2 per 100,000 participant-years) and less than one-tenth the rate for tackle football (1478.6 per 100,000 participant-years). Conclusion: Among youth in the United States aged 6 to 18 years who were treated in the emergency department for injuries related to playing non-tackle football, the most common diagnosis for injuries to the head region was a laceration, followed by a concussion. Head region injuries associated with non-tackle football occurred at a notably lower rate than basketball, soccer, or tackle football.

scholarly journals Ascertaining Consciousness in Identity Formation: Best Medical Practices in Dementia Care

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 567-567
Author(s):  
Angel Duncan
Keyword(s):  
Identity Formation ◽  
The United States ◽  
Dementia Care ◽  
Medical Practices ◽  
Arts And Sciences ◽  
The Arts ◽  
Testing Case ◽  
Clinical Research Trials ◽  
Common Misconceptions

Abstract This session identifies common misconceptions about identity for persons living with Alzheimer’s disease and related dementias (ADRD). Going beyond diagnostic brain imaging and neurocognitive testing, case studies and research in creativity from around the United States highlights consciousness of persons living with ADRD. Reviewing and discussing artworks is aimed to set dialogue in the question of where memory deposits emerge when engaged in creativity. Through art therapy techniques, this type of self-expression may provide new avenues in treatment for dementia care. Exploring the arts from those with Mild Cognitive Impairment to late stage Alzheimer’s and other forms of dementia, such as frontotemporal dementia, consciousness seems to remain intact despite neural death. This session aims to discourage poor spending allocations and establishing meaningful care. From clinical research trials to creativity of self-expression, the importance of why the arts and sciences matter are demonstrated as effective modalities that enhance quality of life.

scholarly journals A Qualitative Study on Making Rural Communities More Dementia-Friendly

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 281-281
Author(s):  
Melissa OConnor ◽  
Megan Pedersen ◽  
Rachel Grace
Keyword(s):  
Rural Communities ◽  
The United States ◽  
Community Dwelling ◽  
Community Leaders ◽  
Survey Question ◽  
Telephone Surveys ◽  
Know How ◽  
Intergenerational Programs ◽  
The World ◽  
Personal Connections

Abstract Recent studies on attitudes toward dementia in the United States, such as the World Alzheimer Report 2019, have found that fear and stigma are still widespread among the general public. This may be particularly true in rural communities. In the current study, community-dwelling adults in small Midwestern communities responded to the open-ended survey question, “What do you think could be done to make your community more welcoming for people with Alzheimer’s disease and other forms of dementia?” Participants (N=242) ranged in age from 18-88 (M=40, SD=21). The sample was 68% female, and 61% lived in communities of 50,000-150,000 people, while 39% lived in smaller towns. Most participants (61.2%) did not personally know someone with dementia. Data were collected via paper and telephone surveys. Responses to the open-ended question were analyzed using open, axial, and selective coding. The following themes emerged: greater exposure to individuals with dementia; educational workshops about dementia; more intergenerational programs; greater accessibility of respite care and other services; more fundraising efforts; and community leaders talking about dementia. Responses included, “Have more intergenerational programs that bring together Alzheimer’s patients and children in a positive environment.” “When I was in school, we visited an Alzheimer’s unit. That was a great experience.” “I know what it is, but I don’t know anything else. I wish I was more informed. I don’t know how to help.” These findings indicate that residents of rural communities are motivated to help individuals with dementia, but need more guidance, education, and personal connections/exposure.

scholarly journals Bringing Older Adults to the Table: Opportunities for Consumer Engagement in Planning and Policy Making

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 102-102
Author(s):  
Alice Prendergast ◽  
Kristi Fuller
Keyword(s):  
Data Collection ◽  
Community Engagement ◽  
Community Involvement ◽  
Social Connectedness ◽  
Planning Process ◽  
The United States ◽  
Lessons Learned ◽  
Service Planning ◽  
Community Members ◽  
Design Data

Abstract Efforts to include community voice in health policy and service planning are gaining recognition and support in the United States. Findings suggest community involvement can contribute to a better understanding of systems and factors that impact health, and, subsequently, more effective and sustainable policy and program design. Additionally, engagement can increase community buy-in, and community members can gain a greater awareness of services; increased confidence navigating systems; feelings of social connectedness; and capacity to advocate around issues through participation. Despite these findings, the extent to which community members are engaged in planning and decision-making varies considerably. Researchers from Georgia State University conducted a review of state plans on aging using the Person-Centered Outcomes Research Initiative (PCORI) Engagement Principles and the Health Research & Educational Trust’s Community and Patient Engagement Spectrum as frameworks to assess evidence of community engagement. The frameworks recognize engagement throughout the planning process, including design, data collection and interpretation, and dissemination. The review revealed that few planning processes described significant engagement, but rather met the minimal requirements established by federal policy. Federal guidance on community-informed planning practices is sparse, as are resources to support states in adopting these processes. To address this gap, the research team drew on the frameworks and other promising practices to design two community engagement projects, both in partnership with Georgia’s Division of Aging Services. Methods for participant engagement, data collection, interpretation and application of results, and lessons learned through both projects will be discussed, as well as potential implications.

Sign in / Sign up

Export Citation Format

Share Document