scholarly journals User-centered design of discharge warnings tool for colorectal surgery patients

2017 ◽  
Vol 24 (5) ◽  
pp. 975-980 ◽  
Author(s):  
Aanand D Naik ◽  
Molly J Horstman ◽  
Linda T Li ◽  
Michael K Paasche-Orlow ◽  
Bryan Campbell ◽  
...  

Abstract Objectives: Readmission following colorectal surgery, typically due to surgery-related complications, is common. Patient-centered discharge warnings may guide recognition of early complication signs after colorectal surgery. Materials and Methods: User-centered design of a discharge warnings tool consisted of iterative health literacy review and a heuristic evaluation with human factors and clinical experts as well as patient end users to establish content validity and usability. Results: Literacy evaluation of the prototype suggested >12th-grade reading level. Subsequent revisions reduced reading level to 8th grade or below. Contents were formatted during heuristic evaluation into 3 action-oriented zones (green, yellow, and red) with relevant warning lexicons. Usability testing demonstrated comprehension of this 3-level lexicon and recognition of appropriate patient actions to take for each level. Discussion: We developed a discharge warnings tool for colorectal surgery using staged user-centered design. The lexicon of surgical discharge warnings could structure communication among patients, caregivers, and clinicians to improve post-discharge care.

Repositor ◽  
2020 ◽  
Vol 2 (4) ◽  
pp. 503
Author(s):  
Yola Agustia Rahman ◽  
Evi Dwi Wahyuni ◽  
Dharma Surya Pradana

AbstrakSistem informasi Teknik Informatika UMM memuat kegiatan berhubungan dengan akademik. Berdasarkan hasil observasi menggunakan kuesioner yang disebarkan ke 30 responden kepada mahasiswa aktif Teknik Informatika UMM, dari pernyataan ke empat bahwa 23 orang menyatakan meragukan data yang terdapat dalam sistem bukan informasi terkini dan jarang diperbarui. Kemudian interaksi yang dilakukan seperti penyampaian informasi mengenai jadwal kuliah, jadwal sidang, event dan informasi lainnya disampaikan melalui grup Facebook. Dengan adanya permasalahan tersebut maka peneliti menggunakan .metode User Centered Design (UCD) dalam perancangan prototype akademik dengan. memanfaatkan pendapat pengguna, serta pola. dan tingkah laku pengguna dapat .menghasilkan user interface dan fungsionalitas. yang maksimal serta memiliki nilai usabili.ty. Selain itu digunakan metode Heuristic Evaluation untuk melakukan evaluasi desain dan menilai sistem. Untuk menemukan kekurangan lebih awal sebelum di implementasikan, mengurangi kesalahan kegunaan berikutnya yang memungkinkan adanya pengeluaran biaya lebih untuk perbaikan. Abstract . Information System of Informatic engineegring UMM contains activities related to academics. Based on the results of observations using a questionnaire distributed to 30 respondents to UMM Informatics Engineering active students, from the fourth statement that 23 people expressed doubts the data contained in the system is not up-to-date information and rarely updated. Then interactions are carried out such as submitting information about class schedules, session schedules, events and other information delivered through the Facebook group. With these problems, the researcher uses the User Centered Design (UCD) method in designing academic prototypes by utilizing the opinions of users, as well as the patterns and behavior of users can produce maximum user interface and functionality and have usability value. In addition, the Heuristic Evaluation method is used to evaluate the design and assess the system. To find deficiencies early before they are implemented, reduce subsequent usability errors that allow for more expenses for repairs.


2020 ◽  
Vol 129 (6) ◽  
pp. 591-598 ◽  
Author(s):  
Kunal Ramanand Shetty ◽  
Rita Yu Wang ◽  
Anisha Shetty ◽  
Jessica Levi ◽  
Nicole Leigh Aaronson

Objective: To determine the quality, content, and readability of patient education materials pertaining to otitis media across several popular online platforms focused on otolaryngology and pediatric primary care education. Methods: Online patient materials related to otitis media and directed toward parents were collected from the American Association for Family Practice (AAFP), ENT-Health section of the American Academy of Otolaryngology—Head and Neck Surgery, Healthychildren.org from the American Academy of Pediatrics, KidsHealth from Nemours, WebMD, and Wikipedia. Materials were analyzed for quality, content, and readability. The DISCERN instrument was used to score quality. A unique content score was generated based on the information provided on each website and on the medical and surgical management of otitis media. Readability scores were calculated using the Flesch-Kincaid Grade Level, Flesch Reading Ease Score, Gunning-Fog Index, Simple Measure of Gobbledygook, Coleman-Liau Index, and Automated Readability Index. Results: Overall, content was well-balanced. Information from AAFP and Healthychildren.org was focused more on medical management than other sources. The average DISCERN scores showed all sources to be of good quality with minimal shortcomings. The AAFP and KidsHealth websites had some readability scores around the 8th-grade reading level, the National Institute of Health’s upper limit recommended for public health information; however, most websites were above this recommended reading level. Conclusion: Patient education materials related to otitis media on academic and certain popular internet sites are good sources to obtain high-quality information on the topic. Patient educational background, prior knowledge and understanding of otitis media, and physician-patient partnership goals should be taken into account when referring patients to online materials.


2019 ◽  
Author(s):  
Holly Witteman ◽  
Gratianne Vaisson ◽  
Thierry Provencher ◽  
Selma Chipenda Dansokho ◽  
Heather Colquhoun ◽  
...  

Background: Researchers developing health-related tools for patients and families employ a range of approaches to involve prospective users in design and development.Objective: To develop a validated measure of the human- or user-centeredness of design and development processes for patient-centered tools.Design: Cross-sectional data from a previous systematic review of the design and development processes of 348 tools.Methods: Using a conceptual framework of user-centered design, our team of patients, caregivers, health professionals, tool developers, and researchers analyzed how specific practices in tool design and development might be combined and used as a measure. We prioritized variables according to their importance within the conceptual framework and validated the resultant measure using principal component analysis with Varimax rotation, classical item analysis, and confirmatory factor analysis.Results: We retained 11 items in a 3-factor structure explaining 68% of the variance in the data. Cronbach’s alpha was .72. Confirmatory factor analysis supported our hypothesis of a latent construct of user-centeredness. Items were whether or not: (1) patient, family, caregiver or surrogate users were involved in steps to understand users or (2) develop a prototype, (3) asked their opinions, (4) observed using the tool, or (5) involved in steps intended to evaluate the tool, (6) the process had three or more iterative cycles, (7) changes between cycles were explicitly reported, (8) health professionals were asked their opinion, (9) consulted before a first prototype was developed or (10) between initial and final prototypes, and (11) a panel of other experts was involved.Conclusion: The measure UCD-11 may be used to quantitatively document the user- and human-centeredness of design and development processes of patient-centered tools. By building an evidence base about such processes, we can help ensure that tools are adapted to the people who will use them, rather than requiring people to adapt to tools.


10.2196/11473 ◽  
2018 ◽  
Vol 5 (4) ◽  
pp. e11473 ◽  
Author(s):  
Mahsa Honary ◽  
Naomi Ruth Fisher ◽  
Roisin McNaney ◽  
Fiona Lobban

BackgroundRelatives of people experiencing bipolar mood episodes or psychosis face a multitude of challenges (eg, social isolation, limited coping strategies, and issues with maintaining relationships). Despite this, there is limited informational and emotional support for people who find themselves in supporting or caring roles. Digital technologies provide us with an opportunity to offer accessible tools, which can be used flexibly to provide evidence-based information and support, allowing relatives to build their understanding of mental health problems and learn from others who have similar experiences. However, to design tools that are useful to relatives, we first need to understand their needs.ObjectiveThe aim of this study was to use a user-centered design approach to develop an accessible Web-based intervention, based on the Relatives Education And Coping Toolkit (REACT) booklet, to support the informational and emotional needs of relatives of people experiencing psychosis or bipolar disorder.MethodsWe engaged relatives of people with experiences of bipolar disorder or psychosis in workshops to identify their needs and design requirements for developing a Web-based version of a paper-based toolkit. We used a 2-phase qualitative approach to explore relatives’ views on content, design, and functionalities, which are considered to be engaging and useful in a Web-based intervention. In phase 1, we consulted 24 relatives in 2 workshops to better understand their existing support infrastructure, their barriers for accessing support, unmet needs, and relatives’ views on online support. On the basis of the results of these workshops, we developed a set of design considerations to be explored in a smaller workshop. Workshop 3 then involved working with 2 digitally literate relatives to design a usable and acceptable interface for our Web-based toolkit. Finally, in phase 2, we conducted a heuristic evaluation to assess the usability of the toolkit.ResultsOur findings indicated that relatives require technologies that (1) they can place their trust in, particularly when discussing a highly sensitive topic, (2) enable learning from the lived experiences of others while retaining confidentiality, and (3) they can work through at their own pace in a personalized manner.ConclusionsOur study highlights the need for providing a trustworthy, supportive tool where relatives can engage with people who have similar experiences to their own. Our heuristic evaluation showed promise in terms of perceived usability of the REACT Web-based intervention. Through this work, we emphasize the need to involve stakeholders with various characteristics, including users with limited computer literacy or experience in online support.


2021 ◽  
Vol 12 (1) ◽  
Author(s):  
Francis T. Delaney ◽  
Tiarnán Ó. Doinn ◽  
James M. Broderick ◽  
Emma Stanley

Abstract Background Increasing numbers of patients and carers rely on online resources for healthcare information. Radiation safety can be misunderstood by patients and clinicians and lead to patient anxiety. We aimed to assess the readability of online patient educational materials (PEMs) related to radiation safety. Methods A total of 84 articles pertaining to radiation safety from 14 well-known online resources were identified. PEMs were then analysed using Readability Studio Professional Edition Version 2019. Readability was assessed using eight different instruments: the Flesch-Kincaid Reading Grade Level, Raygor Estimate, SMOG, Coleman–Liau, Fry, FORCAST, Gunning Fog, and Flesch Reading Ease Score formula. The mean reading grade level (RGL) of each article was compared to the 6th and 8th grade reading level using 1-sample t-tests. Results The cumulative mean RGL for all 84 articles was 13.3 (range = 8.6–17.4), and none were written at or below the 6th or 8th grade level. The cumulative mean RGL exceeded the 6th grade reading level by an average of 7.3 levels (95% CI, 6.8–7.8; p < 0.001) and the 8th grade level by an average of 5.3 grade levels (95% CI, 4.8–5.8; p < 0.001). The mean Flesch Reading Ease Score was 39/100 (‘difficult’). Conclusion Currently available online PEMs related to radiation safety are still written at higher than recommended reading levels. Radiation safety is a topic in which the specialist training of radiologists is crucial in providing guidance to patients. Addressing the readability of online PEMs can improve radiology-patient communication and support the shift to a patient-centred model of practice.


Stroke ◽  
2013 ◽  
Vol 44 (suppl_1) ◽  
Author(s):  
Cheryl Bushnell ◽  
Charlotte Myers ◽  
Brian Fidali ◽  
Elizabeth Sides ◽  
Sureerat Suwatcharangkoon ◽  
...  

Objective: There is a critical need for tailoring transition care for stroke survivors, especially those that address health literacy. The objective of this pilot program is to provide individualized coaching for stroke risk factors at discharge, and to assess the role of health literacy on readmissions. Methods: We enrolled patients discharged home with ischemic or hemorrhagic stroke, or TIA from 9/2011 to 7/2012. Transition coaching was performed one-on-one in the hospital using a take-home packet that included review of a check list of their risk factors, medication information, instructions for stroke awareness, action with new symptoms, and post-hospital follow-up care. Materials were in large font for a 7th to 8th grade reading level, with a one-page summary for ease of reading. Data collection forms were programmed for online data entry of baseline variables (education, prior hospitalizations, health literacy) using REDcap. All cause readmissions within 30 days or longer were obtained from medical records and hospital reports. Results: 90 patients with NIHSS information were enrolled. Mean age was 63.3 yrs (std 14.3), 53% female, 69% white, 30% Black, 68% ischemic stroke, 10% hemorrhagic stroke, 20% TIA, and median NIHSS 2.0 (range 0-27). 16% were not confident filling out medical forms by themselves, 15% needed help with doctor/pharmacy materials, and 5% were not happy with the way they read. 37% preferred to learn new things by reading brochures, 14% preferred someone going over materials with them, 13% watching videos, and 12% by having someone tell them. 41% preferred alternative learning methods outside the choices provided. 22 patients were readmitted, 9 of which were within 30 days of discharge. 33% of those readmitted were not very confident or not confident at all with filling out medical forms vs 11% of those not readmitted (p= 0.026). Although attenuated after adjustment for education, low confidence with medical forms was independently associated with readmission (OR 3.235; 95% CI: 0.819-12.785; p=0.094). Conclusions: Accounting for health literacy and patient preferences for learning should be a key component in transition programs to provide appropriately tailored coaching to reduce adverse outcomes, such as readmissions.


2019 ◽  
Author(s):  
Gratianne Vaisson ◽  
Thierry Provencher ◽  
Michele Dugas ◽  
Marie-Eve Trottier ◽  
Selma Chipenda Dansokho ◽  
...  

Background: Multiple guidelines recommend involving patients and stakeholders in developing patient decision aids; however, best practices have yet to be identified. User-centered design is a well-established approach for engaging users in developing tools. We aimed to compile reports of patient decision aid development, using a user-centered design framework to synthesize evidence of existing practices and identify potential opportunities for improvement.Methods: We conducted searches in MEDLINE, EMBASE, PubMed, Web of Science, the Cochrane Library, the ACM library, IEEE Xplore and Google Scholar. We included articles describing (1) at least one development step of a patient decision aid, (2) at least one development step of user- or human-centered design of another patient-centered tool, and/or (3) evaluation of included decision aids and other patient-centered tools. Two analysts independently screened for inclusion, assessed study quality, and extracted data.Results: We included 623 articles describing 390 projects: 325 patient decision aid projects and 65 user-centered design projects. Fifty percent of patient decision aid projects reported involving users in at least one development step for understanding users, 35% in at least one development step for developing/refining the prototype and 84% in at least one development step for directly or indirectly observing prospective users’ interaction with the prototype. User-centered design projects reported 91%, 49% and 92%, respectively. Seventy-four percent of patient decision aid projects reported iterative development processes with median 3 development cycles (interquartile range 2-4); 92% of user-centered design projects reported iterativity, with median 3 development cycles (interquartile range 2-3). Sixty-six percent of patient decision aid projects and 89% of user-centered design projects reported preliminary evaluations such as usability testing or feasibility testing.Conclusions: We identified 3 key opportunities for improving the user-centeredness of patient decision aid development: involving users earlier to understand their needs, goals, strengths, limitations, context and intuitive processes; asking about and observing users’ interactions with developing versions of the decision aid; and reporting changes between iterative cycles. Additionally, developers of patient decision aids and other patient-centered tools may wish to more often involve patients, clinicians and other users in co-design of prototypes and in formal advisory or partnership roles.


2021 ◽  
Author(s):  
Tracie Risling ◽  
Krista Baerg ◽  
Susan Tupper ◽  
Lori Chartier

Digital health is a promising development in the pursuit of patient centered care. Technological developments, like patient portals, are providing new opportunities for patients to engage in their own healthcare journeys, increasing access to health data and practitioners in many cases. The primary objective of this research is the establishment of an in-patient portal for a new children’s hospital through a collaborative design process. This paper details experiences from the first phase of this multi-year project and in particular methodological solutions that have been developed in order to meet the challenges of engaging acute care patients, families, and practitioners in user-centered design within such a demanding context.


2018 ◽  
Author(s):  
Mahsa Honary ◽  
Naomi Ruth Fisher ◽  
Roisin McNaney ◽  
Fiona Lobban

BACKGROUND Relatives of people experiencing bipolar mood episodes or psychosis face a multitude of challenges (eg, social isolation, limited coping strategies, and issues with maintaining relationships). Despite this, there is limited informational and emotional support for people who find themselves in supporting or caring roles. Digital technologies provide us with an opportunity to offer accessible tools, which can be used flexibly to provide evidence-based information and support, allowing relatives to build their understanding of mental health problems and learn from others who have similar experiences. However, to design tools that are useful to relatives, we first need to understand their needs. OBJECTIVE The aim of this study was to use a user-centered design approach to develop an accessible Web-based intervention, based on the Relatives Education And Coping Toolkit (REACT) booklet, to support the informational and emotional needs of relatives of people experiencing psychosis or bipolar disorder. METHODS We engaged relatives of people with experiences of bipolar disorder or psychosis in workshops to identify their needs and design requirements for developing a Web-based version of a paper-based toolkit. We used a 2-phase qualitative approach to explore relatives’ views on content, design, and functionalities, which are considered to be engaging and useful in a Web-based intervention. In phase 1, we consulted 24 relatives in 2 workshops to better understand their existing support infrastructure, their barriers for accessing support, unmet needs, and relatives’ views on online support. On the basis of the results of these workshops, we developed a set of design considerations to be explored in a smaller workshop. Workshop 3 then involved working with 2 digitally literate relatives to design a usable and acceptable interface for our Web-based toolkit. Finally, in phase 2, we conducted a heuristic evaluation to assess the usability of the toolkit. RESULTS Our findings indicated that relatives require technologies that (1) they can place their trust in, particularly when discussing a highly sensitive topic, (2) enable learning from the lived experiences of others while retaining confidentiality, and (3) they can work through at their own pace in a personalized manner. CONCLUSIONS Our study highlights the need for providing a trustworthy, supportive tool where relatives can engage with people who have similar experiences to their own. Our heuristic evaluation showed promise in terms of perceived usability of the REACT Web-based intervention. Through this work, we emphasize the need to involve stakeholders with various characteristics, including users with limited computer literacy or experience in online support.


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