Validation of Indian Adaptation of Burn Outcomes Questionnaire—Hindi Version (I-BOQ-HV) for Pediatric Subgroup 5 to 18 Years

2020 ◽  
Author(s):  
Praveen Kumar Arumugam ◽  
Piyush K Thayal
Keyword(s):  
Quality Of Life ◽  
Economic Impact ◽  
Discriminant Validity ◽  
Indian Population ◽  
Intraclass Correlation ◽  
Life Assessment ◽  
Outcome Questionnaire ◽  
Test Retest Reliability ◽  
Indian Adaptation

Abstract The American Burn Association/Shriners Hospitals for Children Burn Outcomes Questionnaire (BOQ) is burn-specific quality of life assessment questionnaire for children. In this study, we modified the questionnaire to suit the Indian population and also translated it to Hindi. Three questions were modified according to its Indian context. One new question was added to the “Transfers and mobility” domain; a new domain “Economic impact” with two questions was added to study the economic impact on families. Twenty-five patients of age 5 to 18 years were included in the study. The Indian adaptation of Burn Outcome Questionnaire—Hindi Version 5 to 18 years (I-BOQ-HV 5–18 years) was found to be feasible in the Indian population. The internal consistency of the modified scale was good with all except one domain with Cronbach’s alpha greater than 0.7. Test–retest reliability was done with intraclass correlation which was good, with values of greater than 0.7 for all domains. Pearson’s correlation coefficient showed good discriminant validity between the domains. Factor analysis using principle component analysis with orthogonal rotation resulted in 10 of the 12 components with good factor loadings. The I-BOQ-HV 5 to 18 years has been shown to reliably predict quality of life of children with burns in India.

scholarly journals Evaluation of a Novel Quality of Life Scale for Schoolchildren with Nonstrabismic Binocular Vision Anomalies

2020 ◽  
Vol 2020 ◽  
pp. 1-7
Author(s):  
Jiali Hu ◽  
Guokun Wang ◽  
Zhe Zhou ◽  
Yan Sun ◽  
Qingling Zhang ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Binocular Vision ◽  
Discriminant Validity ◽  
Life Quality ◽  
Life Assessment ◽  
Average Score ◽  
Control Group ◽  
Quality Of Life Scale ◽  
Life Scale

Background. The professional Quality of Life Scale (QLS) can provide a valuable reference for the diagnosis of visual function anomalies. In the present study, we aimed to design a novel QLS to specially quantify the life quality of schoolchildren with nonstrabismic binocular vision anomalies (NSBVAs) in China. Methods. The novel QLS, named QOL-CVF20, was established based on classical vision-related scales and the administration of the questionnaire to 116 schoolchildren with NSBVAs and 100 healthy schoolchildren in China. The diagnostic reference value between QOL-CVF20 and VF-14 was evaluated on the questionnaires to 240 schoolchildren with NSBVAs and 238 healthy schoolchildren. Results. All the subjects could complete the QOL-CVF20 questionnaires independently. QOL-CVF20 had good structural validity, content validity, and discriminant validity, when it was applied in Chinese schoolchildren. The average score of the NSBVA group was significantly lower than that of the control group (49.0±6.9 vs. 69.7±6.7, respectively; P<0.01). Moreover, the average score of cured NSBVA schoolchildren after treatment (61.8±22.6) was significantly improved (P<0.01). Receiver operating characteristic curve analysis showed that QOL-CVF20 reflected strong separation between the NSBVA and healthy groups (AUC=0.901). Meanwhile, QOL-CVF20 could detect individuals with NSBVAs with specificity of 0.847 and sensitivity of 0.846. The critical value of 58.50 in QOL-CVF20 could be effectively applied for quality of life assessment in schoolchildren with NSBVAs. Conclusions. QOL-CVF20 could quantify the life quality of schoolchildren with NSBVAs and might be served as a valuable reference for early diagnosis and clinical evaluation of NSBVAs.

The most troublesome aspects of quality of life for people with advanced cancer in a supportive care trial

2006 ◽  
Vol 24 (18_suppl) ◽  
pp. 18527-18527
Author(s):  
A. K. Nowak
Keyword(s):  
Quality Of Life ◽  
Advanced Cancer ◽  
Intraclass Correlation ◽  
Well Being ◽  
Dry Mouth ◽  
Single Item ◽  
Retest Reliability ◽  
Data Form ◽  
Test Retest Reliability

18527 Background: ZEST is a placebo-controlled trial of sertraline for people with advanced cancer who feel depressed, anxious or tired but do not have a clear indication for antidepressants. We describe here the aspects of quality of life (QL) rated most troublesome at baseline by the first 150 subjects. Methods: Subjects completed a battery of QL questionnaires including the CES-D, HADS, FACT-G, FACT-Fatigue, and the Patient Disease and Treatment Assessment Form (Pt DATA Form). The Pt DATA Form assesses pertinent symptoms and concerns using 40 single items with a uniform response scale from 0 (no trouble at all) to 10 (worst I can imagine). Test-retest reliability was assessed with the intraclass correlation coefficient (ICC). Convergent validity was assessed by testing correlations between single items from the PT DATA Form and the corresponding, validated, multi-item scales. Results: The median age was 66 (IQR 59 to 73); median Karnofsky Perfomance Status was 80 (IQR 70 to 90); 63% were male; commonest primaries were colorectal (17%), lung (16%), prostate, (14%), breast (13%), and gynaecologic (10%). The aspects rated worst (mean score, proportion scoring >3) were: Fatigue (5.5, 90%), Problems with sex (4.1, 51%), Trouble sleeping (3.6, 49%), Drowsiness (3.5, 54%), Not feeling myself (3.5, 51%), Pain (3.4, 45%), Shortness of breath (3.4, 47%), Problems doing what I wanted (3.1, 45%), Anxiety (3.0, 40%), Depression (2.7, 36%), Dry mouth (2.7, 38%), Trouble concentrating (2.7, 30%), Irritability (2.6, 32%), Altered sense of taste (2.5, 34%), Difficulty walking (2.4, 32%), and Constipation (2.1, 24%). Mean scores were higher in men than women for Problems with sex (5.0 v 2.4, p < 0.001); and, in subjects aged 65 or younger for Hair loss (2.4 v 1.1, p = .01). There were no other significant differences by gender or age. Correlations supported the validity of the single item scales for depression, anxiety, fatigue; and for physical, emotional and overall well-being. The test-retest reliability of the Pt DATA Form was good (ICC >0.5 for 34 of 40 items). Conclusions: Pertinent aspects of QL were validly measured with single item scales. Insomnia, dry mouth, altered sense of taste and irritability were more troublesome than many other, better studied symptoms. No significant financial relationships to disclose.

scholarly journals Slovenian Cross-Cultural Adaptation and Validation of Health-Related Quality of Life Measures for Chronic Otitis Media (COMQ-12), Vertigo (DHI, NVI) and TINNITUS (THI)

2020 ◽  
Vol 59 (3) ◽  
pp. 120-127
Author(s):  
Domen Vozel ◽  
Nejc Steiner ◽  
Nina Božanić Urbančič ◽  
Dejan Mladenov ◽  
Saba Battelino
Keyword(s):  
Quality Of Life ◽  
Diagnostic Accuracy ◽  
Otitis Media ◽  
Discriminant Validity ◽  
Chronic Otitis Media ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Test Retest Reliability

AbstractPurposeTo provide physicians and patients with the tools needed to evaluate patients’ problems and health-related quality of life by cross-culturally adapting and validating the Chronic Otitis Media Questionnaire 12 (COMQ-12), the Dizziness Handicap Inventory (DHI), the Neuropsychological Vertigo Inventory (NVI) and the Tinnitus Handicap Inventory (THI).Materials and methodsCOMQ-12, DHI, NVI and THI were translated into the Slovenian language and completed by patients treated at our department for chronic otitis media, vertigo or tinnitus. The control group for each questionnaire consisted of healthy volunteers. Internal consistency, test-retest reliability, discriminant validity, diagnostic accuracy and cut-off value were determined for each questionnaire.ResultsTest-retest reliability was excellent for DHI (ICC A=0.946) and NVI (p=0.315, ICC A=0.975), good to excellent for COMQ-12 (p=0.680, ICC A=0.858) and satisfactory for THI (p=0.120). Discriminant validity was confirmed for each questionnaire (p>0.05) using the Mann-Whitney U test (COMQ-12, DHI, THI) or the Welch t-test (NVI). COMQ-12 had acceptable (α=0.796) and DHI (α=0.910), NVI (α=0.950) and THI (α=0.924) perfect internal consistency. COMQ-12 and DHI had excellent, NVI acceptable and THI perfect diagnostic accuracy (AUC=0.987, AUC=0.999, AUC=0.781 and AUC=1.000 respectively). Cut-off values determined by Youden’s index were 7, 7, 9 and 56 for COMQ-12, THI, DHI and NVI, respectively.ConclusionSlovenian COMQ-12, DHI, NVI and THI are a valid and accurate tool for the diagnosis and measurement of health-related quality of life in patients with chronic otitis media, vertigo and tinnitus. They could aid general practitioners, occupational health specialists, neurologists and otorhinolaryngologists.

Nepali Linguistic Validation of the Velopharyngeal Insufficiency Effects on Life Outcomes Instrument: VELO-Nepali

2020 ◽  
Vol 57 (8) ◽  
pp. 967-974 ◽  
Author(s):  
Michael M. Lindeborg ◽  
Pramila Shakya ◽  
Bhawani Pradhan ◽  
Shiba Kala Rai ◽  
Kabita Bhattarai Gurung ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Concurrent Validity ◽  
Discriminant Validity ◽  
Life Assessment ◽  
Velopharyngeal Insufficiency ◽  
Cognitive Interviews ◽  
Life Outcomes ◽  
Low Middle Income Countries

Objective: To translate and validate the velopharyngeal insufficiency (VPI) effects on life outcomes (VELO) instrument into Nepali, and test its internal consistency and validity. Design: Quality-of-life instrument translation and validation. Setting: Community served by Nepal’s craniofacial referral hospital. Participants: Twenty-three postpalatoplasty children with VPI, 19 family guardians of VPI cases, and 29 non-VPI controls. Interventions: The VELO instrument was translated to Nepali by 2 independent bilingual translators, reconciled, backward-translated, compared, and modified using patient cognitive interviews. All VPI children, guardians, and controls completed the VELO-Nepali. Main Outcome Measure(s): The VELO internal consistency was evaluated using Cronbach α coefficient. Concurrent validity and discriminant validity were assessed using 2-sample t test: assuming unequal variances. Results: The VELO was translated and optimized using cognitive interviews. The VELO-Nepali demonstrated excellent internal consistency, with Cronbach α coefficients of 0.93, 0.94, and 0.90 for VPI cases, guardians of VPI cases, and non-VPI controls, respectively. The VELO-Nepali exhibited strong discriminant validity between VPI cases ([Formula: see text] = 45.4, standard deviation [SD] = 22.1) and non-VPI controls ([Formula: see text] = 84.9, SD = 12.3), ( P < .001). The VELO-Nepali showed strong concurrent validity with similarities in VPI case scores ([Formula: see text] = 45.4, SD = 22.1), and guardian scores ([Formula: see text] = 52.9, s = 22.8; P = .473). Conclusion: The translated VELO-Nepali demonstrates strong internal consistency, discriminant validity, and concurrent validity, and can assess quality of life for Nepali VPI patients. This instrument represents the first VPI quality of life assessment validated in Nepali, and supports the feasibility of its implementation in other low- and low-middle-income countries.

scholarly journals Development of the World Health Organization WHOQOL-BREF Quality of Life Assessment

1998 ◽  
Vol 28 (3) ◽  
pp. 551-558 ◽  
Author(s):  
THE WHOQOL GROUP
Keyword(s):  
Quality Of Life ◽  
Discriminant Validity ◽  
Epidemiological Studies ◽  
Life Assessment ◽  
World Health ◽  
Quality Of Life Assessment ◽  
Brief Assessment ◽  
Health Organization ◽  
Domain Scores

Background. The paper reports on the development of the WHOQOL-BREF, an abbreviated version of the WHOQOL-100 quality of life assessment.Method. The WHOQOL-BREF was derived from data collected using the WHOQOL-100. It produces scores for four domains related to quality of life: physical health, psychological, social relationships and environment. It also includes one facet on overall quality of life and general health.Results. Domain scores produced by the WHOQOL-BREF correlate highly (0·89 or above) with WHOQOL-100 domain scores (calculated on a four domain structure). WHOQOL-BREF domain scores demonstrated good discriminant validity, content validity, internal consistency and test–retest reliability.Conclusion. These data suggest that the WHOQOL-BREF provides a valid and reliable alternative to the assessment of domain profiles using the WHOQOL-100. It is envisaged that the WHOQOL-BREF will be most useful in studies that require a brief assessment of quality of life, for example, in large epidemiological studies and clinical trials where quality of life is of interest. In addition, the WHOQOL-BREF may be of use to health professionals in the assessment and evaluation of treatment efficacy.

Reliability and validity of the Head and Neck Cancer Inventory (HNCI) in Japanese patients

2015 ◽  
Vol 13 (5) ◽  
pp. 1373-1380 ◽  
Author(s):  
Aya Yamashita ◽  
Kanako Ichikura ◽  
Taro Sugimoto ◽  
Seiji Kishimoto ◽  
Kojiro Shimozuma ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Head And Neck Cancer ◽  
Head And Neck ◽  
Neck Cancer ◽  
Intraclass Correlation ◽  
Reliability And Validity ◽  
Japanese Patients ◽  
Retest Reliability ◽  
Test Retest Reliability

AbstractObjective:This project evaluated the psychometric properties of a translated version of the Head and Neck Cancer Inventory (HNCI) for use with Japanese patients. The HNCI is a measure for assessing the quality of life (QoL) of head and neck cancer patients and survivors. The present study was aimed at investigating the reliability and validity of this translated instrument.Method:Some 165 patients with head and neck cancer (HNC) were enrolled at the Tokyo Medical and Dental University Hospital. The instrument's internal consistency and test–retest reliability were evaluated. Criterion-related validity was assessed by correlations between the HNCI and the Functional Assessment of Cancer Therapy–Head and Neck (FACT–H&N) scales.Results:Some 29 of the 30 items in the original version were selected to comprise the Japanese version of the HNCI (Japanese HNCI). Investigation of criterion-related validity using the FACT–H&N demonstrated significant correlations (Spearman's ρ = 0.47–0.63). The value of Cronbach's α for each subscale ranged from 0.84 to 0.87. Test–retest reliability showed an intraclass correlation coefficient (ICC) of 0.62–0.79.Significance of Results:The reliability and validity of the Japanese HNCI were evaluated. Although its classification is different from the original U.S. version, the Japanese HNCI is a self-administered questionnaire that can assess quality of life (QoL) in patients with head and neck cancer.

scholarly journals The Persian version of infant-toddler meaningful auditory integration scale

2019 ◽  
Author(s):  
Saeideh Mehrkian ◽  
Reza Geravand ◽  
Saeid Hassanzadeh ◽  
Enayatollah Bakhshi
Keyword(s):  
Content Validity ◽  
Intraclass Correlation ◽  
Life Assessment ◽  
Validity And Reliability ◽  
Persian Version ◽  
Auditory Integration ◽  
Test Retest Reliability ◽  
Auditory Skills

Background and Aim: The current study aim­ed to investigate the validity and reliability of the Persian version of the Infant-Toddler Mean­ingful Auditory Integration Scale (IT-MAIS) questionnaire. Because cochlear implantation is done today at younger ages, the use of a suitable questionnaire is necessary to evaluate auditory skills and follow up the rehabilitation progress. Methods: IT-MAIS was translated according to the International Quality of Life Assessment (IQOLA) translation protocol. The content vali­dity was performed using Lawshe method with the participation of 10 expert professionals. The questionnaire was completed for 34 parents of cochlear-implanted children before initial prog­ramming of the device, two weeks after the reh­abilitation program, and finally three months later. The intraclass correlation coefficient was calculated for test-retest reliability for each IT-MAIS subscale. The internal consistency reli­ability was analyzed using the Cronbach α coe­fficient. Results: The content validity ratio for all items was above 0.79, and the content validity index Background and Aim: The current study aim­ed to investigate the validity and reliability of the Persian version of the Infant-Toddler Mean­ingful Auditory Integration Scale (IT-MAIS) questionnaire. Because cochlear implantation is done today at younger ages, the use of a suitable questionnaire is necessary to evaluate auditory skills and follow up the rehabilitation progress. Methods: IT-MAIS was translated according to the International Quality of Life Assessment (IQOLA) translation protocol. The content vali­dity was performed using Lawshe method with the participation of 10 expert professionals. The questionnaire was completed for 34 parents of cochlear-implanted children before initial prog­ramming of the device, two weeks after the reh­abilitation program, and finally three months later. The intraclass correlation coefficient was calculated for test-retest reliability for each IT-MAIS subscale. The internal consistency reli­ability was analyzed using the Cronbach α coe­fficient. Results: The content validity ratio for all items was above 0.79, and the content validity index was obtained to be higher than 0.96. The Cronbach α for the entire questionnaire was 0.74, and for different sections of it was obtai­ned as 0.63‒0.67. A significant difference was observed between the total score of the ques­tionnaire before and after the rehabilitation pro­gram and its sub-items (p < 0.001). Conclusion: The Persian version of the ques­tionnaire of IT-MAIS is a valid instrument in terms of translation quality as well as reliability and validity for assessing cochlear implant user children who are younger than three years.

scholarly journals Measurement of Quality of Life in Patients with Mycosis Fungoides/Sézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument (Preprint)

2018 ◽  
Author(s):  
Stacey McCaffrey ◽  
Ryan A Black ◽  
Mitchell Nagao ◽  
Marjan Sepassi ◽  
Gaurav Sharma ◽  
...  
Keyword(s):  
Quality Of Life ◽  
T Cell ◽  
Mycosis Fungoides ◽  
Discriminant Validity ◽  
Rating Scale ◽  
Empirical Evaluation ◽  
Patient Centered ◽  
Convergent And Discriminant Validity ◽  
Test Retest Reliability

BACKGROUND Although the quality of life (QoL) plays an important role in treatment decision making and clinical management of mycosis fungoides (MF) or Sézary syndrome (SS) subtypes of cutaneous T-cell lymphomas (MF/SS-CTCLs), an MF- or SS-specific measure of QoL does not exist. OBJECTIVE The objective of this research was to develop and validate the first QoL instrument for MF/SS-CTCL using a patient-centered approach. METHODS A conceptual framework for the MF/SS-CTCL QoL was developed through a literature review and interviews with key opinion leaders. Concept elicitation with patients was utilized to refine the conceptual model and generate preliminary items. The items were then revised based on qualitative and quantitative feedback obtained through cognitive debriefing surveys and interviews with patients. Next, participants (N=126) completed the preliminary MF/SS-CTCL QoL and a comparator measure of health-related QoL (Skindex-29) through the PatientsLikeMe Open Research Exchange. The MF/SS-CTCL QoL was completed again 5 days later by 66 participants for the purposes of evaluating test-retest reliability. The MF/SS-CTCL QoL was finalized based on results from an empirical evaluation, which included both classical and modern test theory approaches. Specifically, this included evaluation of (1) the optimal item response theory measurement model; (2) item fit; (3) unidimensionality; (4) rating scale performance; (5) reliability; (6) test information (precision); (7) person-to-item map; (8) convergent and discriminant validity; and (9) presence of bias via differential item function. RESULTS Results from the comprehensive psychometric evaluation utilizing a Rasch-Grouped Rating Scale model yielded a final 12-item instrument. The rating scale functioned as expected, and the instrument exhibited adequate person reliability (.87), good to excellent test-retest reliability (r=.89, P<.001), high levels of measurement precision, and good person-to-item targeting. The correlation between the MF/SS-CTCL QoL and the Skindex-29 (r=.852, P<.001) was significantly greater than the correlation between the MF/SS-CTCL QoL and syndrome stage (r=.260, P<.001), providing support for convergent and discriminant validity. Items did not show significant bias based on gender, age, or race. Rasch scores were converted to scaled scores with qualitative descriptive categories for ease of interpretation. CONCLUSIONS Empirical evaluation demonstrated strong evidence of excellent psychometric properties. Utilizing a patient-centered measure development approach ensures that this QoL instrument captures the information that is most meaningful and clinically relevant to patients.

scholarly journals The Quality of Life Impact Refractive Correction (QIRC) questionnaire: validation of the Malay-translated version of the QIRC using Rasch analysis

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Md Mustafa Md-Muziman-Syah ◽  
Nur Solehah Muzir ◽  
Haliza Abdul Mutalib ◽  
Noorhazayti Ab. Halim
Keyword(s):  
Quality Of Life ◽  
Rasch Analysis ◽  
Intraclass Correlation ◽  
Functional Scale ◽  
Retest Reliability ◽  
Culturally Adapted ◽  
Life Impact ◽  
Refractive Correction ◽  
Test Retest Reliability

Abstract Background The Quality of Life Impact Refractive Correction (QIRC) questionnaire is a Rasch-validated instrument to assess the quality of life of ametropes with refractive correction. The original QIRC was validated in the United Kingdom. This study aimed to validate the Malay version of the QIRC among refractive correction wearers in Malaysia using Rasch analysis. Methods The original 20-item QIRC was forward-backward translated into Malay in preparation for the Pilot Malay QIRC. The pilot version was pre-tested on 105 spectacle/contact lens-corrected myopes, and the results were reviewed and cross-culturally adapted to produce the Final Malay QIRC. The final version was self-administered to a new sample of 304 participants. A Rasch analysis was conducted to evaluate the items and response categories of the Pilot and the Final Malay QIRC. Test-retest reliability was also analysed on the Final Malay QIRC. Results Based on the pre-test findings, Rasch analysis revealed a multidimensional scale (functional scale [Items 1 to 13] and emotional scale [Items 14 to 20], which were separated in subsequent analysis), unordered response categories for the functional scale (Category 3 was collapsed into Category 2), one misfit item (Item 3 was removed) and six items required modification (Items 4, 6 to 9, and 12 were reworded and cross-culturally adapted). In the Final Malay QIRC, both the functional and emotional scales had ordered response categories, good person reliability (functional, 0.80; emotional, 0.81) and separation index (functional, 2.01; emotional, 2.06), well-targeted items (targeting precision: functional, 0.28 logits; emotional, 0.08 logits), and satisfactory fit statistics (infit and outfit mean square were less than 1.50 for all items). A noticeable differential item functioning (DIF) between genders was found in Item 18 (DIF contrast, 0.40 logits; p = 0.04). Test-retest reliability analysis demonstrated a high intraclass correlation coefficient (0.94) and Cronbach’s alpha (0.97) with a coefficient of repeatability of ±8.14 units. Conclusions The Malay-translated version of the QIRC has good psychometric characteristics for assessing the quality of life of refractive correction wearers in Malaysia. This translated and cross-culturally adapted Malay QIRC is a valid and reliable instrument that can be used in routine clinical practice.

Sign in / Sign up

Export Citation Format

Share Document