Models of and Beliefs About Disability

2021 ◽  
pp. 74-99
Author(s):  
Rhoda Olkin
Keyword(s):  
Daily Life ◽  
Belief Systems ◽  
Newly Diagnosed ◽  
Illness Beliefs ◽  
Models Of Disability

The four activities in this chapter focus on how disability is conceptualized. Students’ illness beliefs are explored in one activity, and they compare their beliefs with those of a peer. A second activity involves finding examples of the three models of disability (moral, medical, and social) in various media venues. Having found examples in daily life students then interview a peer about their beliefs and models of disability, and then reverse roles. The understanding of models in others’ belief systems are a necessary step before exploring one’s own model of disability, which students typically find more difficult. Lastly, students explore what it might be like to be newly diagnosed with a disability, as this is an experience they will encounter with clients.

scholarly journals Media Ethnography in Diasporic Communities

2020 ◽  
Vol 32 (2) ◽  
pp. 124
Author(s):  
Putut Widjanarko
Keyword(s):  
Social Interactions ◽  
Communication Technology ◽  
Daily Life ◽  
Belief Systems ◽  
Careful Consideration ◽  
Media Ethnography ◽  
Ethnographic Fieldwork ◽  
The Social ◽  
Media And Communication ◽  
Diasporic Communities

Media and communication technology plays a crucial role in diasporic communities by helping members to maintain complex connections with their places of origin, and at the same time to live their life in the diaspora. The social interactions, belief systems, identity struggles, and the daily life of diasporic communities are indeed reflected in their media consumption and production. A researcher can apply media ethnography to uncover some of the deeper meanings of diasporic experiences. However, a researcher should not take media ethnographic methods lightly since a variety of issues must be addressed to justify its use as a legitimate approach. This article examines various forms of media ethnographic fieldwork (multi-sited ethnography), issues related to researching one’s own community (native ethnography), and the debates surrounding duration of immersion in ethnography research within the context of diasporic communities. Careful consideration of such issues is also necessary to establish the “ethnographic authority” of the researcher.

P04.22 Tumor treating fields in high-grade glioma patients: A retrospective single-center study

2021 ◽  
Vol 23 (Supplement_2) ◽  
pp. ii23-ii23
Author(s):  
R Lucaciu ◽  
B Suchorska ◽  
M Wettig ◽  
S Jung ◽  
M Scholz
Keyword(s):  
Promoter Methylation ◽  
Daily Life ◽  
Methylation Status ◽  
Mgmt Promoter Methylation ◽  
Therapeutic Modality ◽  
High Grade ◽  
Newly Diagnosed ◽  
Non Invasive ◽  
Tumor Treating Fields ◽  
Mgmt Promoter

Abstract BACKGROUND Tumor-treating fields (TTFields) are a modern anti-mitotic, non-invasive therapy for the treatment of patients with recurrent and newly diagnosed glioblastoma multiforme (GBM). In Europe, Optune® recieved in 2015 the CE certification. TTFields are a low-intensity (1–3 V/cm) approved therapeutic modality using a non-invasive application of intermediate frequency (200 kHz) alternating electric fields through four transducer arrays directly applied to the skin. The EF-14 study has shown that the addition of TTFields to temozolomide chemotherapy in patients with newly diagnosed GBM significantly improved overall survival (OS) and progression-free survival (PFS) without additional adverse events, apart from mild to moderate skin irritations (Stupp et al., JAMA 2017). MATERIAL We retrospectively analyzed data from TTFields-treated patients (2015–2020) that were treated at our department. Patient characteristics such as MGMT promoter methylation status, age, and diagnosis, as well as treatment duration and TTFields therapy usage, were evaluated for this study. RESULTS 29 patients were treated with TTFields therapy between 2015 and 2020 at our hospital. Most patients received TTFields as primary treatment together with temozolomide maintenance therapy. In detail, 48% of patients were diagnosed with newly diagnosed GBM, 41% received TTFields therapy after tumor recurrence and 10% were diagnosed with other high-grade gliomas. In summary, patients could integrate TTFields therapy into their daily life and showed high adherence to the therapy.Particularly, one of our patients (with MGMT-promoter methylation positive) receives TTFields therapy now for almost 1229 days (approx. 41 months) and is still on therapy. Additionally, this patient shows a high usage rate of 86% indicating well integration of the therapy into daily life. CONCLUSION Taken together, our data provided the outcomes of using TTFields together with chemotherapy in the treatment of recurrent and newly diagnosed GBM in our department. Therapy with TTFields has been showing to provide significant clinical benefit for GBM patients.

scholarly journals Newly diagnosed heart failure: Change in quality of life, mood, and illness beliefs in the first 6 months after diagnosis

2011 ◽  
Vol 17 (3) ◽  
pp. 447-462 ◽  
Author(s):  
K. Mulligan ◽  
P. A. Mehta ◽  
T. Fteropoulli ◽  
S. W. Dubrey ◽  
H. F. McIntyre ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Heart Failure ◽  
Newly Diagnosed ◽  
Illness Beliefs

scholarly journals A Study on the Xiuxing of Contemporary Horchin Mongolian Shamanism

Religions ◽  
2019 ◽  
Vol 10 (2) ◽  
pp. 112
Author(s):  
Yumin Lun ◽  
Xiaomei Dong
Keyword(s):  
Local Community ◽  
Daily Life ◽  
Belief Systems ◽  
Evaluation Criteria ◽  
Religious Life ◽  
Religious Practices ◽  
Knowledge And Skills ◽  
Ordinary Person ◽  
Contemporary Chinese ◽  
And Training

Research has been carried out on the procedures for recruiting and training shamans among the Horchin (mainly in Tongliao City, China). This well-known problem is crucial to the development of Horchin shamanism. If a potential shaman wants to complete the transition from an ordinary person to a shaman, they need to repeat religious practices, progress spiritually, learn, and deal well with the role between their daily life and religious life. This process of Xiuxing is full of hardship. However, the issues surrounding the requirements, influencing factors, and evaluation criteria has received little attention. We have been conducting fieldwork in the Horchin area since 2013, have continuously tracked and interviewed more than 100 shamans and prospective shamans, and have obtained much fieldwork data. Through the collation, induction, and comparative study of these materials, we found that Horchin shamans are required to study the knowledge and skills of shamanism, respect their teacher, obey their principles, fulfill the duties and obligations of a shaman, and devote their lives to serving the local community. We also found that Horchin shamans are struggling to adapt their religious practices to the belief systems of the contemporary Chinese world. We also found that it is believed that, in the region, a successful shamanic career presupposes not only knowledge of rituals but also compassionate and principled behavior with respect to the clients and the community.

scholarly journals The Application of ThyPRO Questionnaire in Patients With Graves’ Disease Treated With Antithyroid Medications

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. A833-A834
Author(s):  
Chiaw Ling Chng ◽  
Shui Boon Soh ◽  
Priscilla Pei Sze Chiam ◽  
Stephanie Man Chung Fook-Chong ◽  
Wei Lin Tay ◽  
...  
Keyword(s):  
Treatment Effects ◽  
Daily Life ◽  
Antithyroid Drug ◽  
Clinical Information ◽  
Graves Disease ◽  
Clinical Parameters ◽  
Newly Diagnosed ◽  
Time Points ◽  
Study Results ◽  
Health Related

Abstract Background: The ThyPRO-39 questionnaire assesses health-related QoL (HRQoL) in patients with benign thyroid disease and has been validated for use in the local setting. The aim of the study is to investigate disease specific health-related quality of life using ThyPRO-39 in patients with newly diagnosed Graves’ disease treated with antithyroid medications over one year. Methods: Patients with newly diagnosed Graves’ disease were recruited in the outpatient setting. The ThyPRO-39 questionnaire was administered at baseline, 6 and 12 months of antithyroid medication treatment. Relevant demographic and clinical information was collected at the three time points of the study. Results of clinical parameters and various ThyPRO scales were compared between baseline, 6 months and 12 months of treatment. Results: There were 32 patients with newly diagnosed Graves’ disease recruited between April 2018 and May 2019. All except 2 patients completed all 3 time points of the study. Two patients missed their 6 months questionnaire. There were 24 females (75%) and 8 males (25%) in the study. Analysis of the clinical parameters showed significant changes in weight from baseline (59.7 + 17.7kg) to 6 months (59.4 + 9.9kg) to 12 months (63.4 + 17.4Kg), all p<0.001, TSH receptor antibody level from baseline (17.3 + 12.9IU/L) to 12 months (7.1 + 10.8IU/L), NR <1.76IU/L, p<0.001, fT4 levels from baseline (49.9 + 18.1pmol/L) to 6 months (14.3 + 6.9pmol/L) and from baseline to 12 months (11.8 + 2.3pmol/L), NR 8.8-14.4pmol/L, all p<0.001 and TSH levels from baseline (0.011 + 0.009mU/L) to 6 months (1.38 + 1.74mU/L, p=0.001) and from baseline to 12 months (1.80 + 1.72mU/L, p<0.001), NR 0.65-3.70mU/L. After 6 months of treatment, 7 out of 13 ThyPRO scales improved and 9 out of 13 ThyPRO scales improved after 12 months of treatment. Large treatment effects were observed on 2 ThyPRO scales (Hyperthyroid symptoms and Anxiety) while moderate effects were seen in 5 ThyPRO scales (Tiredness, Cognitive complaints, Depressivity, Impaired daily Life and overall QoL) from baseline to 6 months. Large treatment effects were observed on 2 ThyPRO scales (Hyperthyroid symptoms and Anxiety) while moderate effects were seen in 5 ThyPRO scales (Tiredness, Depressivity, Emotional susceptibility, Impaired daily Life and overall QoL) from baseline to 12 months. Small treatment effects were observed in 2 ThyPRO scales (Goiter symptoms and Tiredness) from 6 to 12 months. Conclusion: There are significant improvements in many aspects HRQL during the first 6 months of antithyroid drug treatment, with hyperthyroid symptoms and anxiety showing the most improvements throughout the 12 month treatment period. Our results complement clinical monitoring of patients with Graves’ disease and provide realistic outcome measures of disease impact and treatment outcomes from the patient’s perspective.

Introduction

2017 ◽  
Author(s):  
Mu-chou Poo ◽  
H. A. Drake
Keyword(s):  
Daily Life ◽  
Belief Systems ◽  
Historical Background ◽  
Material Life ◽  
Cross Pollination ◽  
New Religion

This chapter first provides a historical background for the development of Christianity in Rome and Buddhism in China. It illustrates in both China and Rome, the story of a new religion cannot be told in simple terms of “conquest” or even “success.” Both Buddhism and Christianity faced resistance from elites and commoners alike; to gain acceptance, both engaged in processes of accommodation and adaptation that changed the new faith as much as they changed the old culture. Chapters in the volume are grouped into three parts: Part 1, “Initial Encounters and Causes of Resistance,” considers the obstacles each new religion encountered; Part 2, “Interaction, Influence, and Accommodation,” pursues this theme of adaptation and cross-pollination; Part 3, “Synthesis and Assimilation,” looks at a further stage in this process whereby these new belief systems both altered and were altered by the material life of the old society, including art, architecture, and daily life.

Counseling Adolescents With Hearing Loss Using a Narrative Therapy Approach

2009 ◽  
Vol 19 (2) ◽  
pp. 72-78
Author(s):  
Rebecca L. Nelson Crowell ◽  
Julie Hanenburg ◽  
Amy Gilbertson
Keyword(s):  
Hearing Loss ◽  
Process Evaluation ◽  
Narrative Therapy ◽  
Daily Life ◽  
Hearing Aid ◽  
Self Esteem ◽  
Therapy Approach ◽  
Self Worth ◽  
Counseling Adolescents

Abstract Audiologists have a responsibility to counsel patients with auditory concerns on methods to manage the inherent challenges associated with hearing loss at every point in the process: evaluation, hearing aid fitting, and follow-up visits. Adolescents with hearing loss struggle with the typical developmental challenges along with communicative challenges that can erode one's self-esteem and self-worth. The feeling of “not being connected” to peers can result in feelings of isolation and depression. This article advocates the use of a Narrative Therapy approach to counseling adolescents with hearing loss. Adolescents with hearing loss often have problem-saturated narratives regarding various components of their daily life, friendships, amplification, academics, etc. Audiologists can work with adolescents with hearing loss to deconstruct the problem-saturated narratives and rebuild the narratives into a more empowering message. As the adolescent retells their positive narrative, they are likely to experience increased self-esteem and self-worth.

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