Development and usability testing of two arts-based knowledge translation tools for parents about pediatric fever

Fever is defined as an elevated body temperature greater or equal to 38 degrees celsius when measured via the ear canal. It is a common bodily response in children and is typically a benign process that is self-limiting. However, fever can be an anxiety provoking event for some parents because their child can look unwell and become irritable as a result. Past attempts at translating medical knowledge about fever and its management strategies into parent-friendly formats exist; however, parent misperceptions about definition and management persist despite these educational tools. Our research team employs patient engagement techniques to develop resources for parents to enhance the uptake of complex medical knowledge. First, our research group conducts qualitative interviews and knowledge synthesis of the literature. Following analysis, salient themes are used to develop a script and skeleton for our videos and infographics, respectively. Employing this same process, this paper discusses the development and usability testing of two digital tools for fever. Prototypes for the video and infographic were tested by parents in urban and remote emergency department (ED) waiting rooms. A total of 58 surveys were completed by parents. Overall, parents rated both the fever video and infographic favourably, suggesting that patient engaged research methods and digital formats are mediums that can facilitate knowledge transfer.

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The development and usability testing of digital knowledge translation tools for parents of children with bronchiolitis

10.1101/2021.06.21.21259266 ◽

2021 ◽

Author(s):

Anne Le ◽

Lisa Hartling ◽

Shannon D Scott

Keyword(s):

Knowledge Translation ◽

Health Information ◽

Acute Infection ◽

Usability Testing ◽

Digital Tools ◽

Healthcare Decision ◽

Translation Tools ◽

Healthcare Decision Making ◽

Ed Visits ◽

Digital Knowledge

Bronchiolitis is an acute infection of the lower respiratory tract that predominantly affects children less than two years old. Although self-limiting, symptoms of bronchiolitis can be distressing for young children. Research has demonstrated that parents may not have the necessary information to be able to identify bronchiolitis symptoms, resulting in emergency department (ED) visits and hospitalizations. Parents have expressed that they feel unprepared, afraid, and that they lack information on their child's condition. Digital knowledge translation (KT) tools have the potential to convey complex health information to parents. We worked with parents of children with bronchiolitis to develop and evaluate three digital tools on bronchiolitis (whiteboard animation video, infographic, and e-Book). Following prototype completion, usability testing was conducted using iPads in two Alberta ED waiting rooms. Parents were randomized to one out of the three tools. Overall, the tools were highly rated, suggesting that arts-based digital tools are useful in delivering complex health information to parents to support their healthcare decision-making needs.

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Title: Web-based Knowledge Translation Tools for Parents about Childhood Heart Failure: An Environmental Scan (Preprint)

10.2196/preprints.34166 ◽

2021 ◽

Author(s):

Chentel Cunningham ◽

Hylein Sung ◽

James Benoit ◽

Jennifer Conway ◽

Shannon D Scott

Keyword(s):

Heart Failure ◽

Knowledge Translation ◽

Health Information ◽

Hospital Admissions ◽

Qualitative Interviews ◽

Structured Interview ◽

Web Based ◽

Key Informants ◽

Environmental Scan ◽

Translation Tools

BACKGROUND Childhood heart failure is a factor in many hospital admissions each year. It can impose a steep learning curve for parents who need to learn the key information to care for their child at home. In this study, we conducted an environmental scan to identify and assess web-based knowledge translation tools about childhood heart failure for parent audiences developed within North America. OBJECTIVE The aim of this study is to inventory tool publicly available to parents about childhood heart failure from popular web-based venues, and assess each how each tool communicates health information and explore how they were developed. METHODS Modelled after previously published environmental scan methods, our search strategy included searching two popular internet-based venues including: 1) two App stores (Google PlayTM and Apple AppTM) and 2) GoogleTM search. Common search terms were used and results were uploaded to Microsoft Excel for screening amongst two reviewers. Inclusion criteria included: 1) content primarily focused on educating parents about their child’s heart failure, 2) English language, and 3) tools originated within North American. Two reviewers screened the application (app) store and internet search results for relevant tools. Each tool was assessed using the Suitability Assessment of Materials (SAM), a validated tool that objectively assesses the literacy of health information for a particular audience. Key informants who were involved in the tool development were invited for a qualitative interview using semi structured interview guide to provide more adjunct data about the development process. Frequencies were reported to summarize App and Internet screening and SAM rating results. Key themes were identified in the semi-structured interview process. RESULTS No applications exist for parents relating to pediatric heart failure. Seventeen relevant internet tools were identified, and their suitability was assessed for the parent audience. The tools scored well in the layout and type but lower in the readability and graphics scores. Qualitative interviews with key informants revealed three key themes: 1) timely & introductory knowledge, 2) credible & trustworthy knowledge, and 3) challenges & evolution in knowledge. CONCLUSIONS This is the first environmental scan looking for parent tool relating to childhood heart failure. Findings from this study reveal that no tools scored in the superior range using the Suitability of Materials Assessment and that further work in the area of knowledge translation targeting parents needs to be done to provide effective education for this parent population. These findings will inform the development of a new resource on children’s heart failure. CLINICALTRIAL Not applicable

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Enhancing organizational health literacy in a rural Missouri clinic: a qualitative case study

International Journal of Health Care Quality Assurance ◽

10.1108/ijhcqa-05-2018-0131 ◽

2019 ◽

Vol 32 (5) ◽

pp. 788-804 ◽

Cited By ~ 2

Author(s):

Ricardo Wray ◽

Nancy Weaver ◽

Prajakta Adsul ◽

Kanak Gautam ◽

Keri Jupka ◽

...

Keyword(s):

Organizational Change ◽

Health Literacy ◽

Literacy Practices ◽

Health Care Organization ◽

Qualitative Interviews ◽

Management Strategies ◽

Organizational Health ◽

Health Clinic ◽

Care Organization ◽

Content Type

Purpose The purpose of this paper is to evaluate a collaborative effort between a health care organization and academic institution to strengthen organizational health literacy. Design/methodology/approach The intervention took place at a rural, federally qualified health clinic in Missouri between May 2009 and April 2011. Qualitative interviews of key informants were conducted before (n=35) and after (n=23) the intervention to examine program implementation and success in effecting organizational change. Findings Intervention activities helped establish a comprehensive understanding of health literacy. The project achieved moderate, fundamental and sustainable organizational change. The program successfully integrated health literacy practices into clinic systems and garnered leadership and organizational commitment, helped the workforce improve interpersonal communication and embedded practices making health education materials more accessible. Originality/value The study points to programmatic, conceptual and methodological challenges that must be addressed for organizations to improve health literacy practices, and suggests change management strategies to advance organizational health literacy.

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‘Every Time They Ride, I Pray:’ Parents’ Management of Daughters’ Horseback Riding Risks

Sociology of Sport Journal ◽

10.1123/ssj.2016-0111 ◽

2017 ◽

Vol 34 (3) ◽

pp. 259-269 ◽

Cited By ~ 3

Author(s):

Laura Sanchez

Keyword(s):

Risk Taking ◽

Cultural Context ◽

Qualitative Interviews ◽

Management Strategies ◽

Horseback Riding ◽

Automobile Accidents ◽

Perceptions Of Risk ◽

Equestrian Sports ◽

Risk Management Strategies ◽

Risky Play

This study uses qualitative interviews with 29 parents of horseback riding daughters aged 10–23 years old to explore parents’ perceptions of risk and their risk management strategies, as their daughters engage in horse sports and recreation. First, parents are keenly aware of risks in equestrian sports and liken them to risks from automobile accidents and other high-risk sports. Second, parents manage these risks by working diligently to enhance safety and manage their own emotions. Third, they willingly assume these risks as a part of their fundamental commitment to honor their daughters’ desires, natural skills, and dreams as equestrian athletes. I situate these findings within the theoretical literature on risky play within a cultural context of condemnation of parents’ permissiveness about risk-taking.

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Teacher's Readiness to Work under the Conditions of Educational Space Digitalization

International Journal of Higher Education ◽

10.5430/ijhe.v8n7p79 ◽

2019 ◽

Vol 8 (7) ◽

pp. 79

Author(s):

Rina Samatovna Kamahina ◽

Tatiana Vladimirovna Yakovenko ◽

Evgenia Vladimirovna Daibova

Keyword(s):

Social Communication ◽

Rapid Development ◽

Digital Transformation ◽

Learning Technologies ◽

Educational Process ◽

Digital Tools ◽

Educational Tools ◽

Advantages And Disadvantages ◽

Monitoring Study ◽

Educational Applications

The information environment of the Internet, turns into the powerful educational tool. This article explores the issues of digital transformation of an educational space. These are the results of the monitoring study on the problems of the teacher's readiness to effectively use digital tools for the organization of the educational process: electronic forms of textbooks, educational applications, online services and educational platforms. The advantages and disadvantages of digital transformation are further explored. The binary learning effect of digital educational tools is acknowledged, as the Educational nature is not only the content of the resource, but also the process of working with it, which contributes to the development of not only the student, but also the professional skills of the teacher. The rapid development of digital technologies and methods of network integration, allow for the implementation of advanced learning technologies that take into account the processes of human self-organization and social communication in the conditions of a digital transformation.

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Covering Your Face on Facebook

Journal of Media Psychology Theories Methods and Applications ◽

10.1027/1864-1105/a000076 ◽

2012 ◽

Vol 24 (4) ◽

pp. 166-180 ◽

Cited By ~ 19

Author(s):

Michele M. Strano ◽

Jill Wattai Queen

Keyword(s):

Impression Management ◽

Social Networking Sites ◽

Identity Management ◽

Potential Model ◽

Qualitative Interviews ◽

Management Strategies ◽

Future Research ◽

Online Identity ◽

Self Presentation ◽

Survey Results

This study examines the ways in which identity is managed on social networking sites through image suppression practices – namely, untagging and requesting deletion on Facebook. Goffman’s theory of impression management is used, focusing on his understudied ideas about how individuals respond to what others communicate about them, by controlling for information that is discrepant with their desired self-presentation. Data are reported from an exploratory set of qualitative interviews and an online quantitative survey. Results showed that many Facebook users engaged in suppression strategies, albeit infrequently. In addition, users were statistically more likely to not post a potentially damaging image than they were to untag it, and were more likely to untag it than to request that another user delete it. The authors suggest that one possibility is that users avoid more overt identity management strategies because they carry the risk of making users look duplicitous. A potential model is suggested that future research might test to develop a fuller understanding of online identity management.

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The Real Experience and Management Strategies Analysis of Chinese Nurses Aiding COVID-19 epidemic: A Qualitative Study

Disaster Medicine and Public Health Preparedness ◽

10.1017/dmp.2020.477 ◽

2020 ◽

pp. 1-12

Author(s):

Linbo Li ◽

Yongchao Hou ◽

Fengying Kang ◽

Suping Li ◽

Juan Zhao

Keyword(s):

Work Experience ◽

Qualitative Interviews ◽

Management Strategies ◽

The Novel ◽

Structured Interviews ◽

Rescue Work ◽

Health Events ◽

Novel Coronavirus ◽

And Control ◽

Double Impact

Abstract Emergent public health events, such as COVID-19, have been the focus of attention of researchers at home and abroad. In China, nurses are an important group to the prevention and control of the COVID-19 pneumonia epidemic. Using semi-structured interviews, qualitative interviews were conducted with 23 nurses who supported the novel coronavirus pneumonia epidemic, and the data was collated and analyzed using Colaizzi analysis. The work experience of Chinese nurses can be summarized into 4 major themes. They had different emotional experiences during aiding period; Aiding work had a double impact on the nurses; There were certain difficulties in aiding work; There were significant age differences in aiding work experience. It is necessary to strengthen the psychological construction of nurses. All hospitals must coordinate and manage various safety tasks, and ensure the precise, scientific, and streamlined deployment of rescue work. Humanized management, shift adjustment, performance allocation weight, and organizational care are also the top priorities of human resource management.

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“I Can Breathe Again!” Patients' Self-Management Strategies for Episodic Breathlessness in Advanced Disease, Derived From Qualitative Interviews

Journal of Pain and Symptom Management ◽

10.1016/j.jpainsymman.2016.02.016 ◽

2016 ◽

Vol 52 (2) ◽

pp. 228-234 ◽

Cited By ~ 19

Author(s):

Steffen T. Simon ◽

Vera Weingärtner ◽

Irene J. Higginson ◽

Hamid Benalia ◽

Marjolein Gysels ◽

...

Keyword(s):

Advanced Disease ◽

Qualitative Interviews ◽

Management Strategies ◽

Self Management

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Using digital tools in the recruitment and retention in randomised controlled trials: Survey of UK Clinical Trial Units and a qualitative study

10.21203/rs.2.12497/v1 ◽

2019 ◽

Author(s):

Amanda Jane Blatch-Jones ◽

Jacqueline Nuttall ◽

Abby Bull ◽

Louise Worswick ◽

Mark Mullee ◽

...

Keyword(s):

Randomised Controlled Trials ◽

Qualitative Interviews ◽

Human Interaction ◽

Digital Tools ◽

Controlled Trials ◽

Digital Tool ◽

Recruitment And Retention ◽

Research Participants ◽

Stakeholder Groups ◽

Randomised Controlled

Abstract Background Recruitment and retention of participants in Randomised Controlled Trials (RCTs) is a key determinant of success, but is challenging. Trialists and UK Clinical Research Collaboration (UKCRC) Clinical Trials Units (CTUs) are increasingly exploring the use of digital tools to identify, recruit and retain participants. The aim of this UK National Institute for Health Research (NIHR) study was to identify what digital tools are currently used by CTUs and understand the performance characteristics required to be judged useful. Methods A scoping of searches (and a survey with NIHR funding staff), a survey with all 52 UKCRC CTUs and 16 qualitative interviews were conducted with five stakeholder groups including trialists within CTUs, funders and research participants. A purposive sampling approach was used to conduct the qualitative interviews during March-June 2018. Qualitative data were analysed using a content analysis and inductive approach. Results Responses from 24 CTUs (46%) identified that database-screening tools were the most widely used digital tool for recruitment, with the most frequent reported success criteria being saving General Practitioner time and reaching more patients. Fewer retention tools were used, with Short Message Service (SMS) or email reminders to participants being the most reported. The qualitative interviews revealed five themes across all groups: ‘security and transparency’, ‘inclusivity and engagement’, ‘human interaction’, ‘obstacles and risks’ and ‘potential benefits’. There was a high level of stakeholder acceptance of the use of digital tools to support trials, despite the lack of evidence to support them over more traditional techniques. Certain differences and similarities between stakeholder groups demonstrated the complexity and challenges of using digital tools for recruiting and retaining research participants. Conclusions Our studies identified a range of digital tools in use in recruitment and retention of RCTs, despite the lack of high quality evidence to support their use. Understanding the type of digital tools in use to support recruitment and retention will help to inform funders and the wider research community about their value and relevance for future RCTs. Consideration of further focused digital tool reviews and primary research will help to reduce gaps in the evidence base.

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Stress and Pain Before, During and After the First Wave of the COVID-19 Pandemic: An Exploratory Longitudinal Mixed Methods Study

Frontiers in Pain Research ◽

10.3389/fpain.2021.725893 ◽

2021 ◽

Vol 2 ◽

Author(s):

M. Gabrielle Pagé ◽

Lise Dassieu ◽

Élise Develay ◽

Mathieu Roy ◽

Étienne Vachon-Presseau ◽

...

Keyword(s):

Mixed Methods ◽

Physiological Stress ◽

Pain Catastrophizing ◽

Qualitative Interviews ◽

Management Strategies ◽

Subjective Feeling ◽

Time Points ◽

Pain Scores ◽

Pain Status ◽

Physiological Stress Response

Aims: This study explores the association between subjective feeling of stress and pain experience in the context of the COVID-19 pandemic with a focus on characteristics known to trigger a physiological stress response [sense of low control, threat to ego, unpredictability and novelty (STUN)].Methods: This exploratory longitudinal convergent mixed methods design consisted of online questionnaires over three time points (before, during and after the 1st wave of the COVID-19 pandemic) (N = 49) and qualitative interviews (N = 27) during the 1st wave of the pandemic on distinct samples of individuals living with chronic pain (CP). Both types of data sources were mixed upon integration using joint display.Results: Mean pain intensity scores remained stable across time points, while pain unpleasantness and pain interference scores significantly improved. Global impression of change scores measured during the first wave of the pandemic do not entirely concord with pain scores evolution. Two thirds of participants reported a global deterioration of their pain condition at the beginning of the pandemic. Stress and pain catastrophizing before the pandemic were associated with pain scores throughout the pandemic; while most specific measures of stress due to the novel, uncontrollable, unpredictable and threatening nature of the pandemic were not. Qualitative data demonstrated that the deterioration reported in pain status reflected additional dimensions, including spatial expansion of the painful area, reduced access to treatments and challenges in adapting pain management strategies.Conclusions: Helping individuals to negotiate stressful aspects of the pandemic might help offset the negative impacts of stress on pain status in this context or other important life events.

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