scholarly journals Information, Involvement, Self-care and Support - The Needs of Caregivers of People with Stroke: A Grounded Theory Approach

Author(s):  
Elton Henry Lobo ◽  
Anne Froelich ◽  
Mohamed Abdelrazek ◽  
Lene Juel Rasmussen ◽  
John Grundy ◽  
...  

Background: Globally, stroke is a leading cause of death and disability, with most care undertaken by caregivers who are generally family and friends without prior experience of care. The lack of experience or unpreparedness results in feelings of uncertainty, burnout, anxiety, burden, etc. Hence, it is necessary to identify the needs of caregivers to support them in their caregiving journey better and improve the quality of care delivered. Methods: The study employed a grounded theory methodology that utilizes information gathered from literature reviews and social media to represent the needs and create a storyline visually. The storyline is further refined and evaluated using an online survey of 72 participants recruited through online stroke caregiving communities. Results: The study identified four core categories of needs, i.e., information, involvement, self-care and support that need to be delivered at appropriate times to ensure the caregivers feel prepared to assume their role of care and are supported throughout the care trajectory. Conclusions: There is a need to create a caregiver-centered approach in stroke recovery to ensure limited obstruction to care and reduced uncertainty in recovery. Moreover, through the inclusion of caregivers in the recovery process, it may be possible to reduce the burden of care to the caregiver and ensure the satisfaction of the healthcare system throughout recovery.

Author(s):  
Ilaria Durosini ◽  
Lucrezia Savioni ◽  
Stefano Triberti ◽  
Paolo Guiddi ◽  
Gabriella Pravettoni

Psychological interventions are proposed to cancer survivors to support their quality of life against the emotional trauma of cancer and the side effects of treatment. Psychological interventions often require patient engagement and commitment to activities that could be more or less demanding in terms of lifestyle change (e.g., psychotherapy, sports). Analyzing participant motivations (personal aims, expectations, needs) prior to participation is useful to predict their adherence to the intervention as well as final outcomes. Yet, participant motivations may evolve during the intervention because the intervention experience turns out to be meaningful and positively challenging. The present study aimed to obtain a preliminary understanding of the process of motivation change in female cancer survivors who participated in a sport-based intervention to promote quality of life by employing a grounded theory approach. Data analysis took place alongside data collection and according to the procedure of grounded theory (“open coding”, “axial coding”, and “selective coding”) in order to describe the process of motivation change during women’s participation in psychological intervention for quality of life. On 14 women interviewed, 13 reported changing their motivation to participate during the first months of involvement, mostly changing from individualistic to group-related motivations (i.e., from self-care to friendship with other participants and enriching group membership), and from physical to psychological growth (i.e., pursuing not only physical health but also self-fulfillment). The discussion explains the preliminary aspects of the motivation change process and highlights the importance to monitor motivation dynamics within psychological interventions.


2021 ◽  
pp. 238008442110144
Author(s):  
N.R. Paul ◽  
S.R. Baker ◽  
B.J. Gibson

Introduction: Patients’ decisions to undergo major surgery such as orthognathic treatment are not just about how the decision is made but what influences the decision. Objectives: The primary objective of the study was to identify the key processes involved in patients’ experience of decision making for orthognathic treatment. Methods: This study reports some of the findings of a larger grounded theory study. Data were collected through face-to-face interviews of patients who were seen for orthognathic treatment at a teaching hospital in the United Kingdom. Twenty-two participants were recruited (age range 18–66 y), of whom 12 (male = 2, female = 10) were 6 to 8 wk postsurgery, 6 (male = 2, female = 4) were in the decision-making stage, and 4 (male = 0, female = 4) were 1 to 2 y postsurgery. Additional data were also collected from online blogs and forums on jaw surgery. The data analysis stages of grounded theory methodology were undertaken, including open and selective coding. Results: The study identified the central role of dental care professionals (DCPs) in several underlying processes associated with decision making, including legitimating, mediating, scheduling, projecting, and supporting patients’ decisions. Six categories were related to key aspects of decision making. These were awareness about their underlying dentofacial problems and treatment options available, the information available about the treatment, the temporality of when surgery would be undertaken, the motivations and expectation of patients, social support, and fear of the surgery, hospitalization, and potentially disliking their new face. Conclusion: The decision-making process for orthognathic treatment is complex, multifactorial, and heavily influenced by the role of DCPs in patient care. Understanding the magnitude of this role will enable DCPs to more clearly participate in improving patients’ decision-making process. The findings of this study can inform future quantitative studies. Knowledge Transfer Statement: The results of this study can be used both for informing clinical practice around enabling decision making for orthognathic treatment and also for designing future research. The findings can better inform clinicians about the importance of their role in the patients’ decision-making process for orthognathic treatment and the means to improve the patient experience. It is suggested that further research could be conducted to measure some of the key constructs identified within our grounded theory and assess how these change during the treatment process.


2021 ◽  
pp. 109634802110115
Author(s):  
Seonjeong (Ally) Lee ◽  
Ning-Kuang Chuang

The physical environment plays an essential role in customers’ hotel stay experiences. Hotels offer a differentiated atmosphere that creates favorable customers’ evaluations. Based on the significant role of environmental cues, this study investigates the effects of an expanded servicescape on customers’ evaluations, including customer satisfaction, quality of life, and customer loyalty, in the context of the hotel industry. To test the proposed research framework, this study collects data from previous hotel customers and conducts a self-administered, online survey. Findings identified ambience, interactions with employees, authenticity, and fascination positively influenced customers’ satisfaction, which further influenced customer loyalty. Only ambience and fascination positively influenced quality of life, which in turn influenced customer loyalty. Results contributed to the application of expanded servicescape in the hotel context. Results also suggested practical implications of the holistic approach of servicescape in the hotel industry.


2000 ◽  
Vol 81 (7) ◽  
pp. 881-887 ◽  
Author(s):  
Evie Tsouna-Hadjis ◽  
Kostas N. Vemmos ◽  
Nikolaos Zakopoulos ◽  
Stamatis Stamatelopoulos

Information ◽  
2020 ◽  
Vol 11 (5) ◽  
pp. 244
Author(s):  
Olga Sobolewska ◽  
Agnieszka Bitkowska

The main aim of the article was to estimate select aspects of knowledge management quality evaluations in contemporary enterprises from theoretical and practical perspectives. Measuring knowledge management is the biggest challenge for both theoreticians and practitioners. The survey was addressed to organizations conducting business activity in Poland. The research was carried out in 2019 in the form of an online survey. For international organizations, the survey was intended for representatives of these companies’ local branches. It has been shown that the factors that most strongly affect the quality of knowledge are directly related to infrastructure and information technology systems (IT systems). The article contributes to managerial practice by pointing out the importance of evaluating knowledge management quality from the process perspective. The article’s originality lies in the contribution to the literature of evaluating knowledge management quality by empirically analyzing it in contemporary enterprises. The results of research in the field involving assessing the quality of knowledge management have shown the need to focus not only on information technology tools (IT tools) related to infrastructure, but also on the processes approach, taking into account the priority role of the employees.


2019 ◽  
Vol 13 (4) ◽  
pp. 588-611 ◽  
Author(s):  
Upasna A. Agarwal ◽  
Arpana Rai

Purpose This paper aims to explore the phenomenon of workplace bullying – its nature, antecedents, direct and indirect effects – from victim’s perspective. Design/methodology/approach The study adopted grounded theory approach and centered on the participants experiences and interpretations of bullying. A total of 23 self-reported victims formed the sample of our study. Data from interviews were analyzed using the coding procedure of grounded theory methodology. To enhance validity of results, in addition to interviews, creative drawings were used for triangulation. Findings The study reveals some similarities and culturally relevant variation in the sources and outcomes of bullying. The role of culture on bullying is visible. The study also adds to the limited literature on underlying and intervening factors in bullying–outcome relationship. Research limitations/implications The study examined bullying from the victim’s perspective. Perpetrator and bystander’s perspectives would have added interesting insights into the findings. Practical implications Effective identification of, prevention of and intervention in workplace bullying are imperative for individuals and organizations. Rich descriptions from victims on enablers of bullying and how these events have affected their everyday experiences may also boost practitioners’ and policymakers’ willingness to rectify the potential issues leading to bullying in organizations. Originality/value The present study contributes to the workplace bullying research in general and Indian context in particular by examining contextually relevant antecedents, consequences as well as underlying and intervening factors.


2021 ◽  
Vol 104 (1) ◽  
pp. 130-135
Author(s):  
Hossein Ebrahimi ◽  
Ali Abbasi ◽  
Hossein Bagheri ◽  
Mohammad Hasan Basirinezhad ◽  
Sara Shakeri ◽  
...  

2019 ◽  
Vol 32 (2) ◽  
pp. 120-126 ◽  
Author(s):  
Margie E. Burns

Assuming the role of caregiver for a life partner after critical illness can be both a rewarding and challenging experience for spouses. Using a grounded theory approach, Ågård, Egerod, Tønnesen, and Lomborg developed a theoretical model describing the experience from spouse to caregiver and back. To further develop this theoretical model, a literature review was completed and nursing interventions were identified and included in the model. Testing of this theoretical model is recommended to determine its empirical adequacy.


2017 ◽  
Vol 32 (2) ◽  
pp. 202-232 ◽  
Author(s):  
Joshua M. Bentley

Many scholars have studied the role of organizational apologies in crisis communication, but they have defined and operationalized apologies inconsistently. This study uses a grounded theory approach to explore what constitutes an effective organizational apology from the perspective of organizational stakeholders. One hundred participants were asked to imagine being the victims of a data breach at an online retailer and to write the kind of apology they would like to receive from the organization. One hundred more participants were asked to write suggestion lists for how the organization could make its apology effective. These data were analyzed using a constant comparative method. Fifteen apology elements were identified and organized along two dimensions: (a) whether the element involved primarily words or behavior and (b) whether the element focused on fixing the problem or rebuilding relationships. Based on the data, these elements must be combined to make an apology effective with stakeholders.


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