scholarly journals Subjective experience of meningitis survivors: a transversal qualitative study using interpretative phenomenological analysis

BMJ Open ◽  
2020 ◽  
Vol 10 (8) ◽  
pp. e037168
Author(s):  
Elisabetta Scanferla ◽  
Léonor Fasse ◽  
Philip Gorwood

Objectives(1) To capture the subjective experience of meningitis survivors during adolescence and adulthood and (2) To explore how they give meaning to this specific experience.DesignA qualitative study of in-depth interviews using interpretative phenomenological analysis.SettingsParticipants recruited through an association of persons affected by meningitis and their relatives.ParticipantsConvenience sample of nine participants (seven women and two men) between the ages of 18 to 48 years (mean=28.3, SD=11.4), who personally experienced meningitis.ResultsEight major themes and three main meaning-making processes in relation to the participants’ experiences of meningitis were identified: (1) the ability to rely on the testimony of others, (2) the impossibility of meaning-making and (3) the possibility of post-traumatic growth. We detailed here five major themes, which appear critical to answering the objective of the study.ConclusionsThis study provides a unique insight into the first-hand experience of surviving meningitis. Findings highlighted factors characterising the disease experience, the psychological adjustment of meningitis survivors and their meaning-making processes. These findings are important for both research and clinical practice, demonstrating the importance of direct involvement of meningitis survivors in identifying key aspects of care, which include the critical role of relatives, and the importance of investigating the need for training among healthcare providers on how to diagnose meningitis.

2021 ◽  
pp. 089202062110038
Author(s):  
Lucy Lindley

This study aimed to explore how educational leaders in England experience and promote their own well-being. To address this, five semi-structured interviews were carried out with educational leaders who expressed that they had personally experienced high levels of well-being. Using Interpretative Phenomenological Analysis (IPA), four themes were identified, which highlighted that well-being is a subjective experience (‘there’s no blueprint’); that high levels of well-being are commonly described as feeling balanced (‘maintain a balance’); that well-being is perceived as a personal responsibility (‘you’ve got to find ways to manage that’); and that participants were leading by example in relation to well-being (‘be a well-being supermodel’). Overall, this study emphasised that there is no one-size-fits-all approach to well-being, so educational leaders (and their colleagues) should be given space and personal autonomy to work out what works for them.


2021 ◽  
Vol 2 ◽  
pp. 47-59
Author(s):  
Sue Bradley

Tony Robbins is an American life coach and entrepreneur who claims his motivational workshop, Unleash the Power Within (UPW) can transform people’s lives. This article is based on an interpretative phenomenological analysis of eight participants who had attended different UPW seminars and explored their experiences of transformation. Eight themes were identified: (1) a change in their sense of self, (2) the development of new skills, (3) changes in lifestyle, (4) transformation/conversion, (5) changes in relationships, (6) permanency of change, (7) feelings of fear versus anticipation and (8) loss versus gain. The research concluded that participants had undergone transformation involving significant, valued and enduring changes centred on new meaning in their lives. Further research was suggested to examine both a wider and more in-depth approach, as personal development workshops offer a large and potentially rich field of transpersonal study focused on human meaning-making and change.


2018 ◽  
Vol 36 (2) ◽  
pp. 131-142 ◽  
Author(s):  
Marieke Van Schoors ◽  
Jan De Mol ◽  
Natacha Laeremans ◽  
Lesley L. Verhofstadt ◽  
Liesbet Goubert ◽  
...  

Background: Childhood cancer not only presents challenges to the life of the child with cancer but also to the siblings’ daily family life. The aim of the current study was to gain a better understanding of siblings’ experiences of living in a family where one child has been diagnosed with blood cancer. Method: Ten siblings of children with leukemia or non-Hodgkin lymphoma completed a semistructured interview about their everyday family life experiences postdiagnosis. The verbatim transcripts of the interviews served as the data for an interpretative phenomenological analysis. Results: The results showed that overall the siblings experienced a continuity in many aspects of their family life: they still experienced their family as an important source of support and information/communication, as warm and loving and as a safe harbor where family members aim to protect each other. However, at the same time, the participating siblings also expressed that some things felt unmistakably different postdiagnosis: They felt that their family as a whole had been ripped apart, with a greater focus on the diagnosed child and changing responsibilities for each family member. Conclusion: This study informs parents and clinicians about the daily family life experiences from the siblings’ perspective, a perspective that is often overlooked. A focus on challenges as well as continuities within family life, the wish for connection expressed by the siblings, and the uniqueness of every sibling’s experiences is what can be taken away from this study by psychosocial workers in the field.


Author(s):  
Helen Hernandez ◽  
◽  
Laurie Dringus ◽  

We reflect on our process of working with an adapted framework as an effective strategy for analyzing and interpreting the results of our qualitative study on the lived experiences of insulin pump trainers. Interpretative Phenomenological Analysis (IPA) was applied as the overarching research methodology and was encapsulated into a framework adapted from Bonello and Meehan (2019) and from Chong (2019). We describe this framework as the “embodiment of discovery” to posit the researcher’s tangible experience of discovering the meaning of data that also brought transparency to the researcher’s process for data analysis and interpretation. We present challenges the doctoral student researcher experienced working with the framework through three phases and various steps performed during the analysis. We recommend the framework may assist novice researchers as a tool for wayfinding and scoping the structure of data analysis and interpretation. We conclude that novice researchers should not fear finding their “embodiment of discovery” in adapting creative or alternate methods for qualitative analysis.


2021 ◽  
Vol 108 (Supplement_8) ◽  
Author(s):  
Olivia Smith ◽  
Srinivas Chintapatla ◽  
Praminthra Chitsabesan

Abstract Aim determine themes reported as important to Quality of Life (QoL) in Complex Abdominal Wall Hernia (CAWH) patients Material and Methods 15 purposively sampled CAWH patients were interviewed using topic guides (8 men and 7 women aged between 36 to 85 years [median = 65 years] covering all VHWG grades). All verbatim transcripts were coded and analysed using NVIVO12 software and Interpretative Phenomenological Analysis (IPA) until thematic saturation. Results 3 overarching groupings and 5 superordinate themes were identified. Each superordinate theme is associated with several subordinate themes: Conclusions This is the first phenomenological qualitative study in CAWH patients. The themes presented are interrelated and should shape our understanding of QoL in CAWH. Current QoL tools do not incorporate all aspects identified by this study. Further research is needed in order to generate a standardised CAWH QoL instrument which incorporates bio-psycho-emotional-social processes important to patients as identified by patients.


2017 ◽  
Vol 22 (3) ◽  
pp. 418-427
Author(s):  
Anna Einarsson

How is performing with responsive technology in a mixed work experienced by performers, and how may the notion of embodied cognition further our understanding of this interaction? These questions are addressed here analysing accounts from singers performing the author’s mixed work Metamorphoses (2015). Combining semi-structured interviews and inspiration from Interpretative Phenomenological Analysis, questions concerning the ‘self’ when listening, singing, moving and relating to fellow musicians, as well as the relationship towards the computer, are explored. The results include a notion of the computer as neither separated nor detached but both, and highlight the importance of the situation, including not only the here and now but also social and cultural dimensions. The discussion emphasises the role of sensorimotor interaction and bodily experience in human meaning-making.


2016 ◽  
Vol 18 (4) ◽  
pp. 470-477 ◽  
Author(s):  
Cynthia S Deale ◽  
Alleah Crawford

With the increase in intermediaries in the online marketplace for lodging accommodations, such as Airbnb, Vacation Rental by Owner, Home Away, and Flip Key, opportunities for consumers to book lodging accommodations and for home owners to rent out their own homes, condominiums, and bedrooms are growing. While some research has investigated travelers’ motivations for using these services, little work has addressed the motivations and behaviors of owners. This qualitative study used interpretative phenomenological analysis to analyze data collected from interviews with current owners. Themes that emerged from the analysis, pertaining to the description of the providers, included identity, motivations, and drawbacks; while those related to the daily operations of the facility included advantages, features, and logistics. Ultimately, the study found that providers of alternative lodging are focused on respect between hosts and guests, developing meaningful relationships, and acquiring all the necessary resources to operate.


2019 ◽  
Vol 7 (4) ◽  
pp. 615-620
Author(s):  
Emily A Vargas ◽  
Ramaswami Mahalingam

Background: Incivility is one of the most prevalent forms of interpersonal mistreatment. Although studies have examined the full range of experiences of incivility against nurses and other hospital personnel, very few studies examined the forms of incivility that patients face in a hospital. Objective: To empirically investigate the range of uncivil experiences targeted against patients. Our study furthers our understanding of the phenomenology of incivility from the patients’ perspective. Method: We used interpretative phenomenological analysis to analyze participant’s (n = 173) experiences of incivility in a hospital. Results: We identified 6 major themes of incivility, namely Insensitivity, Identity Stigma, Gaslighting, Infantilization, Poor Communication, and Ignored. Conclusion: The findings highlight that instances of incivility are present in almost all aspects of the patient experience and take on unique forms, given the patient’s role in the hospital. Implications for health consequences are discussed.


Affilia ◽  
2020 ◽  
Vol 35 (4) ◽  
pp. 485-502
Author(s):  
Ines Testoni ◽  
Jenni Bregoli ◽  
Sara Pompele ◽  
Andrea Maccarini

The grieving process after perinatal loss has unique properties. This qualitative study examines one aspect of the grieving process: continuing bonds experienced by the mothers. We offer an interpretative phenomenological analysis of interviews with 15 Italian mothers. Three main relevant themes emerged: “continuing bonds between externalized and internalized presence,” “a difficult guilt to manage,” and “relationships are crucial support systems.” The first one illustrates the ongoing connections to the deceased on the part of mothers and siblings, the second one explores a fixation on finding the cause of the death and related feelings of guilt, while the third one describes the mothers’ process of elaboration of the event, especially with the support of the husband and the community. The findings highlight unique qualities of continuing bonds after perinatal loss and factors that might influence mother’s griefwork, while also suggesting that psychodrama and art therapy could be useful in the management of this kind of loss.


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