scholarly journals Caregivers Lack of Disclosure Skills Delays Disclosure to Children with Perinatal HIV in Resource-Limited Communities: Multicenter Qualitative Data from South Africa and Botswana

2016 ◽  
Vol 2016 ◽  
pp. 1-7 ◽  
Author(s):  
Sphiwe Madiba

To promote the appropriate implementation of procedures for health disclosure to children, it is important to understand the reasons why caregivers delay the disclosure of healthcare information to children. This paper explored the views of caregivers on what makes disclosure to children with perinatal acquired HIV (PAH) difficult and what could make disclosure in these cases easier. Data were collected using focus group interviews with caregivers who were purposely selected from a multicenter study conducted in Botswana and South Africa. Forty-seven nondisclosed caregivers of children between 5 and 18 years who were receiving ART were interviewed. Caregivers felt that children should be told of their HIV-positive status despite the fact that none had disclosed this information to the children. The caregivers reported lack of disclosure skills but believed they were primarily responsible for disclosure to children and required support from healthcare workers (HCWs) during the disclosure process. They believed that counseling on how to approach disclosure and training on when and how to disclose will make the disclosure process easier. HCWs have a crucial role to play in promoting disclosure to perinatally infected children. The development of appropriate disclosure guidelines and training for HCWs will facilitate disclosure to children.

2020 ◽  
pp. 003022282095051
Author(s):  
Şenay Gül ◽  
Seyhan Demir Karabulut ◽  
Handan Eren ◽  
Mahinur Durmuş İskender ◽  
Zehra Göçmen Baykara ◽  
...  

The aim of this study is to explore nursing students’ experiences with death and terminal patients during clinical education. A secondary analysis of qualitative data that were collected through 11 focus group interviews with nursing students was performed. Data obtained from the interviews were analyzed using thematic analysis. There were a total of 9 themes across 3 contexts. Data were grouped under the following themes: feelings experienced when encountering death for the first time, reactions to the first encounter with death, factors affecting the reactions to death, involvement in terminal patient care, being informed about the physical process that terminal patients are going through, students’ approach toward terminal patients and their relatives, health professionals’ approach toward terminal/dying patients/their relatives, changes in the ideas about death, and changes in the ideas about terminal/dying patients. The study shows a lack of guidance on the part of teachers who also avoid patients and families who are considered terminally ill.


2014 ◽  
Vol 05 (01) ◽  
pp. 127-152 ◽  
Author(s):  
E. Sundvall ◽  
K.R. Gøeg ◽  
A.R. Højen

SummaryInconsistent use of SNOMED CT concepts may reduce comparability of information in health information systems. Terminology implementation should be approached by common strategies for navigating and selecting proper concepts. This study aims to explore ways of illustrating common pathways and ancestors of particular sets of concepts, to support consistent use of SNOMED CT and also assess potential applications for such visualizations.The open source prototype presented is an interactive web-based re-implementation of the terminology visualization tool TermViz that provides an overview of concepts and their hierarchical relations. It provides terminological features such as interactively rearranging graphs, fetching more concept nodes, highlighting least common parents and shared pathways in merged graphs etc.Four teams of three to four people used the prototype to complete a terminology mapping task and then, in focus group interviews, discussed the user experience and potential future tool usage. Potential purposes discussed included SNOMED CT search and training, consistent selection of concepts and content management.The evaluation indicated that the tool may be useful in many contexts especially if integrated with existing systems, and that the graph layout needs further tuning and development.Citation: Højen AR, Sundvall E, Gøeg KR. Methods and applications for visualization of SNOMED CT concept sets. Appl Clin Inf 2014; 5: 127–152http://dx.doi.org/10.4338/ACI-2013-09-RA-0071


2022 ◽  
pp. 003022282110583
Author(s):  
Mette Raunkiær

The study’s aim is to explore the experiences of people with advanced cancer and professionals participating in a program with focus on rehabilitation and palliative care. The study is based on two adjusted rehabilitation programs for 33 people with advanced cancer and 12 professionals. An observational study was conducted among the participants and two focus group interviews with 10 professionals. The analytic themes were “Lightness and happiness to gain control in everyday life,” “Community and closeness,” and “Training as a happiness and changing agent.” The activities had to support physical functions and everyday activities promoting body identity and well-being as well as emotions like closeness, lightness, and happiness in groups with like-minded people and at home with a partner and other family members. These activities and theory of emotions and body can expand the understanding of palliative care and rehabilitation as separated or integrated perspectives theoretical and in practice.


Author(s):  
Refilwe Malatji ◽  
Sphiwe Madiba

The disrespect and abuse (D&A) of women during childbirth is common and a great concern in midwifery-led obstetric units (MOUs) in South Africa. This paper used the seven chapters of the Respectful Maternity Care Charter as a framework to explore women’s experiences of care during childbirth and examine the occurrence of D&A during childbirth in MOUs. Five focus group interviews were conducted with postnatal women aged 18 to 45 years selected purposively from MOUs in Tshwane District in South Africa. The discussions were audio-recorded, transcribed, and analyzed using a thematic approach and NVivo11 computer software. D&A of women was common during labor and childbirth. Verbal abuse in the form of shouting, labeling, judging, and rude remarks was the common form of D&A. Some of the women were abandoned and neglected, which resulted in their giving birth without assistance. Furthermore, the midwives violated their rights and denied them care such as pain relief medication, birth companions during childbirth, and access to ambulance services. Midwives are at the center of the provision of maternity care in MOUs in South Africa. Therefore, there is a need to strengthen interventions to adopt and implement policies that promotes respectful, nonabusive care during childbirth in MOUs.


2016 ◽  
Vol 6 (2) ◽  
pp. 115
Author(s):  
Premkumar Balaraman ◽  
Priya Kamalakannan

Purpose: The main objective of the paper is on assessing the global aerospace industry as well as Indian scenario, and attempts to assess the skill gaps and training needs of Indian aerospace industry.  Design/methodology/approach: The study is qualitative in nature, and employs wide array of qualitative tools which includes desktop study, focus group interviews and secondary sources of information. Around 10 focus groups were used in the study, with each focus group having a minimum of 6 members of experts in the aerospace and allied industries. The study evolved into a 2 staged one, with the first study elucidating the growing importance and potential of aerospace industry, justifying the significance to take forward the second part of the study. And the second study specifically focuses on skill gaps and training needs.Findings and Originality/value: The Study yields varied results on existing generic expectations of aerospace industry, specific needs of aerospace industry, identification of aerospace job categories unique to aerospace industry, key issues of training in Indian scenario and recommendations. The paper in summary reflects the current scenario of aerospace industry potentials for India and its likely impact on skills gap and training needs.Practical implications: Skills gap is a significant gap between an organization’s current capabilities and the skills it needs to achieve its goals. As a number of Global forecasts project, India as an emerging aviation market, the skill gaps in this sector is predicted to be huge and necessitates the study on assessing the skill gaps and its allied training needs.Originality/value: The Study is highly original and first one of its kind in reflecting the current situation of the skills gap and training needs in Indian Aerospace industry. The focus group interviews were conducted with the experts at various levels in the industyr without any bias yielding valid and realtime data for the research.


2004 ◽  
Vol 65 (4) ◽  
pp. 154-160 ◽  
Author(s):  
Mark A. Spidel ◽  
Marie-Claude Paquette ◽  
J. Dru Marshall ◽  
Rhonda C. Bell ◽  
Linda J. McCargar

Healthy eating and active living have become key concepts in health promotion, and, increasingly, the two messages are being combined. Dietitians are in an ideal position to promote physical activity as an adjunct to nutrition counselling. Focus group interviews were used to identify dietitians’ perceptions and needs related to incorporating active living messages into their practices. Six focus groups, involving 42 participants (40 registered dietitians and two dietetic interns), were conducted in cities throughout Alberta. Issues explored during the interviews included the dietitian's role in promoting active living, barriers to promoting physical activity, opportunities for collaboration between dietitians and exercise professionals, and dietitians’ perceived needs for integrating active living messages into their practices effectively. Findings indicate strong support for incorporating active living messages into nutrition counselling. However, lack of knowledge was identified as a barrier to dietitians’ proactive role, and concerns were raised about public and professional perceptions if dietitians counselled on this issue. Participants felt that they required additional knowledge and training in physical activity in order to promote it effectively. Development and implementation of programs designed to meet these needs would help dietitians integrate active living messages into their practices.


2018 ◽  
Vol 74 (3) ◽  
Author(s):  
Marlize Rabe

After completing or dropping out of school, many young people leave their family households and in some cases they move from rural or semi-rural areas to urban centres. Faith-based organisations (FBOs) in major cities in South Africa sometimes act as a safety net for marginalised youth, especially as government departments are overburdened and not addressing all the needs of youth at the margins. This qualitative research is based on an analysis of individual and focus group interviews undertaken with young people living in the central areas of Pretoria. It is shown how families and FBOs engage as separate, although at times not unrelated, entities in the lives of youth at the margins. In certain cases, the FBO became an institution of last resort and only in rare cases is a certain synergy achieved between FBOs and families.


1997 ◽  
Vol 45 (10) ◽  
pp. 1563-1570 ◽  
Author(s):  
Carolyn Coggan ◽  
Pam Patterson ◽  
Jacqui Fill

2005 ◽  
Vol 33 (3) ◽  
pp. 387-401 ◽  
Author(s):  
J. A. Dickinson

This paper combines two sources of qualitative data, focus group interviews and ethnographic research, to discuss gender as a factor in changes to work and identity in a rural Ukrainian village. Analyzing data from focus groups I conducted in the winter and fall of 1997 at my dissertation field site in Transcarpathia, I argue that in this community gender differences are as important as generational differences in shaping participants' evaluation of work opportunities before, during and in particular after the Soviet period. The important relationship between gender and work opportunities in this village stems both from traditional divisions of labor and the loss of professional jobs, such as teaching and administrative positions, available to women during the Soviet period.


2021 ◽  
Vol 14 (2) ◽  
pp. 93-106
Author(s):  
Marius Derick Simons ◽  
Kadek Adi Wibawa

[English]: In South Africa, National Senior Certificate (NSC) mathematics examination is a capping external examination taken at the culmination of twelve years of schooling. The purpose of this study was to investigate and analyze the responses of examinees in the examinations in the concept of trigonometry. While the study mainly used an ethnomethodological approach, a documentary analytical approach was also adopted. Documentary analysis was necessitated by the private nature of the NSC examination, as we only had access to the written work of the examinees. The major findings were: (1) that the strategies and tactics used by examinees are highly driven by the context of the high-stakes examination; (2) that examinees’ ways of working exhibit the general structure of the practice that is commonly found in mathematical discourse practices. Further studies are required to deepen the understanding of the thinking processes of examinees by conducting focus group interviews, where the examinees are afforded opportunities to explain their workings in school-based assessments. [Bahasa]: Di Afrika Selatan, ujian matematika National Senior Certificate (NSC) adalah ujian tambahan yang diambil pada akhir dari dua belas tahun sekolah. Penelitian ini bertujuan untuk melakukan investigasi dan analisis tanggapan siswa peserta ujian matematika NSC terkait konsep trigonometri. Selain pendekatan etnometodologi yang secara umum dipakai dalam penelitian ini, pendekatan analitis dokumenter yang juga diadopsi terkait karakteristik ujian NSC, dalam hal inipeneliti hanya memiliki akses pada jawaban tertulis peserta ujian. Temuan utama penelitian adalah: (1) bahwa strategi dan taktik yang digunakan oleh peserta ujian sangat didorong oleh konteks ujian berisiko tinggi; (2) bahwa cara kerja peserta ujian menunjukkan struktur umum praktik yang biasa ditemukan dalam praktis diskursus matematika. Penelitian lebih lanjut diperlukan untuk memperdalam pemahaman tentang proses berpikir peserta ujian dengan melakukan wawancara kelompok terfokus, dimana peserta ujian diberikan kesempatan untuk menjelaskan cara kerja mereka dalam penilaian berbasis sekolah.


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