scholarly journals Putting the “Self” in Self-Injury Research: Inclusion of People With Lived Experience in the Research Process

2019 ◽  
Vol 70 (11) ◽  
pp. 1058-1060 ◽  
Author(s):  
Stephen P. Lewis ◽  
Penelope Hasking
Keyword(s):  
Lived Experience ◽  
Research Process ◽  
The Self ◽  
Self Injury ◽  
Injury Research

Disequilibrium and Divinity Salience as Invariant Structures in The Halal Executives’ Experience of Eudaimonia

2019 ◽  
Vol 5 (1) ◽  
pp. 109
Author(s):  
Jalilah Ahmad ◽  
Rosmimah Mohd. Roslin ◽  
Mohd Ali Bahari Abdul Kadir
Keyword(s):  
Data Analysis ◽  
Lived Experience ◽  
Status Quo ◽  
The Self ◽  
Phenomenological Method ◽  
Sustainable Practices ◽  
Muslim Population ◽  
Living Well ◽  
Hard Skills ◽  
Invariant Structures

The global Halal industry is large and continues to grow as the global Muslim population increases in size and dispersion. There are 1.84 billion Muslims today spread over 200 countries and is expected to increase to 2.2 billion by 2030. The industry will be worth USD6.4 trillion by the end of 2018 with more non-traditional players and emergent markets. The stakes are high with pressures to generate novel and sustainable practices. This goes beyond systems and hard skills as it needs to cut into the self – the person of virtues in virtuous acts, not because they “have to” but because it is the purpose of humankind or his telos - to be “living well” and “acting well” or eudaimonia. This study seek to explore Halal executives’ lived experience of “eudaimonia.”. Using Giorgi’s descriptive psychological phenomenological method for data analysis, the study elicits two distinct invariant structures – ‘disequilibrium in status quo’ and ‘divinity salience’.

Valuing the voice of lived experience of eating disorders in the research process: Benefits and considerations

2021 ◽  
pp. 000486742199879
Author(s):  
Selma Musić ◽  
Rosiel Elwyn ◽  
Grace Fountas ◽  
Inge Gnatt ◽  
Zoe M Jenkins ◽  
...  
Keyword(s):  
Mental Health ◽  
Eating Disorders ◽  
Eating Disorder ◽  
Lived Experience ◽  
Health Research ◽  
Research Process ◽  
Mental Health Research ◽  
Direct Involvement ◽  
The Voice ◽  
Process Benefits

Although the inclusion of individuals with lived experience is encouraged within the research process, there remains inconsistent direct involvement in many mental health fields. Within the eating disorders field specifically, there is a very strong and increasing presence of lived experience advocacy. However, due to a number of potential challenges, research undertaken in consultation or in collaboration with individuals with lived experience of an eating disorder is scarce. This paper describes the significant benefits of the inclusion of individuals with lived experience in research. The specific challenges and barriers faced in eating disorders research are also outlined. It is concluded that in addition to existing guidelines on working with lived experience collaborators in mental health research, more specific procedures are required when working with those with eating disorders.

scholarly journals Collaboration with people with lived experience of prison: reflections on researching cancer care in custodial settings

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Renske Visser ◽  
Alyce-Ellen Barber ◽  
Anthony X ◽  
Sue Wheatcroft ◽  
Philip Mullen ◽  
...  
Keyword(s):  
Lived Experience ◽  
Cancer Care ◽  
Public Involvement ◽  
Research Process ◽  
Patient And Public Involvement ◽  
Third Party ◽  
Working Relationships ◽  
Care Needs ◽  
Academic Researchers ◽  
No Harm Principle

Abstract Background Patient and public involvement is increasingly considered important in health research. This paper reflects, from both academic and lived experience perspectives, on involving people with lived experience in a study exploring cancer care in prison and how by doing this it enriched the research process. Methods This paper is based on written and verbal reflections of the lived experience researchers and academic researchers involved in a study exploring the diagnosis and treatment of people with cancer in prison. The study comprised interviews with people with cancer in prison, prison healthcare staff, oncology specialists and custodial staff. Lived experience researchers were involved throughout the research process, including co-conducting interviews with patients and analysing interviews. Results This paper highlights the importance and value of including lived experience researchers across the research process. We reflect on how lived experience of prison shapes the experience of conducting interviews and analysing data gathered in prison. We reflect on the working relationships between academic and lived experience researchers. We demonstrate how prison research is challenging, but collaboration between lived experience and academic researchers can help to better prepare for the field, to ask more meaningful questions and to create rapport with participants. These types of collaborations can be powerful avenues for skill development for both academic and lived experience researchers, but they require an investment of time and a willingness for shared learning. Conclusions For academics and lived experience researchers to collaborate successfully and meaningfully care needs to be taken to develop open, honest and equal working relationships. Skills development for academic and lived experience researchers is important. A commitment to building and maintaining relationships is crucial. Having a third party as a mediator can facilitate and foster these relationships. Particularly with people with lived experience of prison it is essential to put the ‘do no harm’ principle into practice and to have support in place to minimise this.

Correlates of disclosure of non-suicidal self-injury amongst Australian university students

2022 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Sylvanna Mirichlis ◽  
Penelope Hasking ◽  
Stephen P. Lewis ◽  
Mark E. Boyes
Keyword(s):  
University Students ◽  
Lived Experience ◽  
Health Care Professionals ◽  
Help Seeking ◽  
Design Methodology ◽  
Online Surveys ◽  
Self Advocacy ◽  
Content Type ◽  
Self Injury ◽  
Perceived Impact

Purpose Non-suicidal self-injury (NSSI) is associated with psychological disorders and suicidal thoughts and behaviours; disclosure of NSSI can serve as a catalyst for help-seeking and self-advocacy amongst people who have self-injured. This study aims to identify the socio-demographic, NSSI-related, socio-cognitive and socio-emotional correlates of NSSI disclosure. Given elevated rates of NSSI amongst university students, this study aimed to investigate these factors amongst this population. Design/methodology/approach Australian university students (n = 573) completed online surveys; 80.2% had previously disclosed self-injury. Findings NSSI disclosure was associated with having a mental illness diagnosis, intrapersonal NSSI functions, specifically marking distress and anti-dissociation, having physical scars from NSSI, greater perceived impact of NSSI, less expectation that NSSI would result in communication and greater social support from friends and significant others. Originality/value Expanding on previous works in the area, this study incorporated cognitions about NSSI. The ways in which individuals think about the noticeability and impact of their NSSI, and the potential to gain support, are associated with the decision to disclose self-injury. Addressing the way individuals with lived experience consolidate these considerations could facilitate their agency in whether to disclose their NSSI and highlight considerations for health-care professionals working with clients who have lived experience of NSSI.

Knowledge translation activity of a domestic violence research network: a scoping survey

2021 ◽  
Author(s):  
Jacqui Cameron ◽  
Cathy Humphreys ◽  
Kelsey Hegarty
Keyword(s):  
Domestic Violence ◽  
Knowledge Translation ◽  
Lived Experience ◽  
Online Survey ◽  
Research Process ◽  
Research Network ◽  
Translation Strategies ◽  
Inadequate Knowledge ◽  
Knowledge Translation Strategies ◽  
Research Findings

Introduction: Research networks undertake work collaboratively on complex areas of research. Few studies examine how these networks develop their knowledge translation activity. Focusing on a domestic violence research network (DVRN), the aim of this study was to answer the question: What is the shared understanding of knowledge translation and activity in a domestic violence research network?Methods: A sample of DVRN members undertook an anonymous online survey about their knowledge translation activity.Results: Completed by 49 of a potential 65 DVRN members (75% completion rate), findings suggested members use multiple knowledge translation definitions, and that different stages of the research process engage people with lived-experience and policymakers undertaking lower levels of engagement than practitioners. Innovative engagement mechanisms to communicate research findings were limited, and knowledge translation barriers included budget, time, capacity, limitation of models, organisational emphasis and support. Finally, there was inadequate knowledge translation evaluation.Conclusion: Overcoming knowledge translation barriers is essential to ensure meaningful collaboration particularly with survivors who are often the missing voice of knowledge translation. Future studies could determine what impact, if any, increasing engagement of survivors and policymakers during all stages of the research process has on knowledge translation.<br />Key messages<br /><ul><li>This study has identified the need for meaningful collaboration with survivors and policymakers during all stages of the research process.</li><br /><li>Innovative engagement mechanisms are essential to engage end-users.</li><br /><li>A focus on evaluation of knowledge translation strategies is warranted.</li></ul>

scholarly journals Developing a Sustainable and Inclusive Northern Knowledge Ecosystem in Canada

2021 ◽  
Vol 13 (16) ◽  
pp. 9213
Author(s):  
Gary N. Wilson
Keyword(s):  
Lived Experience ◽  
Indigenous Peoples ◽  
Research Process ◽  
Self Determination ◽  
Academic Institutions ◽  
Research Methodologies ◽  
The North ◽  
Educational Capacity ◽  
Academic Researchers ◽  
The Future

A knowledge ecosystem is a collection of individuals and organizations who are involved in the creation, management and dissemination of knowledge, both in the form of research and lived experience and teaching. As is the case with ecosystems more generally, they thrive on variation and diversity, not only in the types of individuals and organizations involved but also in the roles that they play. For many decades, the northern knowledge ecosystem in Canada was dominated and controlled by Western scholarly approaches and researchers based in academic institutions outside the North. More recently, this research landscape has started to change, largely in response to the efforts of Indigenous peoples and northerners to realize greater self-determination and self-government. Not only have these changes led to the development of research and educational capacity in the North, but they have also changed the way that academic researchers engage in the research process. The keys to maintaining the future sustainability and health of the northern knowledge ecosystem will be encouraging diversity and balance in the research methodologies and approaches used to generate knowledge about the North and ensuring that the needs and priorities of northern and Indigenous peoples are recognized and addressed in the research process.

scholarly journals The Self-Help Book in the Therapeutic Ontosphere: A Postmodern Paradox

2014 ◽  
Vol 6 (4) ◽  
pp. 755-771
Author(s):  
Jean Collingsworth
Keyword(s):  
Lived Experience ◽  
Social Space ◽  
The Self ◽  
Value Systems ◽  
Advice Giving ◽  
Self Help ◽  
Generic Term ◽  
Self Actualization ◽  
Stable Core ◽  
Critical Theorist

he self-help book is a prominent cultural and commercial phenomenon in the therapeutic ontosphere which permeates contemporary life. The generic term ’ontosphere’ is here co-opted from IT to describe a notional social space in which influential conceptualisations and shared assumptions about personal values and entitlements operate without interrogation in the demotic apprehension of ’’. It thus complements the established critical terms ’discourse’ and ’episteme’. In the therapeutic ontosphere the normal vicissitudes of life are increasingly interpreted as personal catastrophes. As new issues of concern are defined, it is assumed that an individual will need help to deal with them and live successfully. Advice-giving has become big business and the self-help book is now an important post-modern commodity. However a paradox emerges when the content and ideology of this apparently postmodern artifact is examined. In its topical eclecticism the genre is indeed unaligned with those traditional ’grand narratives’ and collective value systems which the postmodern critical project has sought to discredit. It endorses relativism, celebrates reflexivity and valorizes many kinds of ’personal truth’. Moreover readers are encouraged towards self-renovation through a process of ’bricolage’ which involves selecting advice from a diverse ethical menu along-side which many ’little narratives’ of localized lived experience are presented as supportive exemplars. However in asserting the pragmatic power of individual instrumentality in an episteme which has seen the critical decentering of the human subject, the self-help book perpetuates the liberal-humanist notion of an essential personal identity whose stable core is axiomatic in traditional ethical advice. And the heroic journey of self-actualization is surely the grandest of grand narratives: the monomyth. Thus the telic self-help book presents the critical theorist with something of a paradox.

Face to Face: the Growth of the Self in Thomas Merton

2020 ◽  
pp. 179-192
Author(s):  
Susanne Caroline Rose Jennings
Keyword(s):  
Lived Experience ◽  
Zen Buddhism ◽  
Early Years ◽  
The Self ◽  
Prolific Author ◽  
Authentic Self ◽  
Face To Face ◽  
The Bible ◽  
Individuation Process ◽  
Thomas Merton

The late Trappist monk and prolific author, Thomas Merton was intensely concerned with the self – or to be more precise, with a desire to break free from the tyranny of the self he took to be his identity. His early years in France and England were marked by a sense of loss and dislocation. After leaving Cambridge for Columbia, his subsequent life in America and decision to be baptised a Catholic at the age of 23 eventually led to his taking vows as a Cistercian monk. Given the name Frater Louis, the ‘world’ with all its temptations and unresolved issues had been left safely behind along with his old identity. Or so he thought. In fact, Merton’s years as a Trappist would lead to a best-selling autobiography written under obedience to his abbot with many more books to follow. Compared at the time of its publication to St Augustine’s Confessions, it would lead to his international renown as Thomas Merton. He voiced his disquiet over what he called ‘this shadow, this double, this writer who […] followed me into the cloister … I cannot lose him.’ In time, Merton came to the realisation through lived experience and his voracious reading of the Bible, St Augustine, the mystics, the individuation process propounded by Jung, Zen Buddhism and others that the ‘self’ he was trying to escape was, in fact, largely a ‘false’ self driven by the ego. This paper traces Merton’s journey from the that self to the authentic self which is found in God, in transcendence. Obsession with ‘the self’ as understood in the 21st century makes a study of Merton’s path to selfhood that much more vital. The advent of the ‘Selfie’, the self-promotion that social media affords and the examples of narcissistic individuals in positions of power gives the lie to lives where self-consciousness is confused with self-realisation. Nothing, as Merton discovered, could be further from the truth.    

The Articulating-Self Inside Out

2020 ◽  
pp. 73-86
Author(s):  
Somayeh Noori Shirazi
Keyword(s):  
Cultural Identity ◽  
Gender Identity ◽  
Lived Experience ◽  
Middle Eastern ◽  
The Self ◽  
Iranian Woman ◽  
Inside Out ◽  
The Way

This chapter maps the different ways with which an Iranian woman artist, Katayoun Karami, critically responds to the stereotypes about the depiction of cultural identity in the artworks of female artists with a Middle Eastern background. The key point of Karami's response is the way she applies her self–portrait to articulate the self and her subjectivity, which is analysed in this chapter by examining one of her works named the Other Side. In this installation, the artist demonstrates the construction of gender identity in today's Iran through her personal perception of veiling. Working within the frameworks of feminist and Orientalist discourses, this chapter aims to explore how Karami's lived experience as a continual activity of becoming has been formed through the experience of veiling, and what strategies are deployed by her to interrogate the presumptions about the image of the veiled body in Western and Iranian contexts.

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