scholarly journals Health information behavior of speakers of endangered languages

2020 ◽  
Vol 52 (4) ◽  
pp. 1042-1049
Author(s):  
Mary Burke

With the advent of increased attention towards language endangerment comes the need for a better understanding of how speakers of endangered languages interact with information, specifically health information resources. This paper builds on health information behavior literature and participatory research models with indigenous communities to develop strategies for future work with indigenous communities of speakers of endangered languages, proposing a participatory methodology for future work with these communities related to health, using ethnographic interviews and focus groups. Lack of infrastructure, multilingualism, and distrust of outsiders are found to be major barriers between this population and health information resources. Approaching health information behavior research with an interdisciplinary and participatory model incorporating ethnographic and linguistic field methods into traditional information behavior methodologies can mitigate the challenges these barriers present. Understanding the health information behavior of speakers of endangered languages will aid in future efforts to make health information resources accessible to wider audiences and to document indigenous knowledge. Currently, fieldwork with speakers of endangered languages is confined to linguistic and anthropological investigation. Through the proposed methodology, community members can work alongside linguists and information professionals to create culturally appropriate health information resources in their native language.

2001 ◽  
Vol 17 (6) ◽  
pp. 336-341 ◽  
Author(s):  
Martha Dewey Bergren

The privacy and security provisions of the Health Insurance Portability and Accountability Act (HIPAA) are changing the standards for how identifiable health information is handled. This article explains HIPAA and how it interacts with the Family Educational Right to Privacy Act. The advent of HIPAA and the attention given to privacy and security of identifiable health information provides the opportunity for school nurses, school districts, and administrators to revisit and update how they handle student health information. Resources to assist in establishing policies, procedures, and practices that protect student and family health information are identified.


Author(s):  
Cassie E. McDonald ◽  
Louisa J. Remedios ◽  
Kate L. Cameron ◽  
Catherine M. Said ◽  
Catherine L. Granger

Aim: The study aim was to (1) investigate the barriers and enablers experienced by consumers to accessing and engaging with health tools in hospital waiting areas and (2) evaluate consumers’ ideas for designing a health literacy responsive waiting area. Background: Health information, resources, and supports (“health tools”) in waiting areas should be responsive to the health literacy needs of consumers. However, consumers’ experiences of using health tools and their ideas for improving them are not known. Methods: Multicenter study was set in hospital waiting areas of outpatient rehabilitation services. Semistructured in-person interviews were conducted with 33 adult consumers attending appointments for various health conditions. Seven stages of the Framework Method were used to analyze data. Results: Six themes were identified which explained barriers and enablers from the perspective of consumers. The barriers were accessibility issues; personal factors—physical condition, emotional state, and preferences; and poorly presented and outdated resources. The enablers were design suits consumer needs and preferences; usable in available time or portable; and compatible environment for engaging and sharing. Consumers shared design ideas which fit within four typologies. Conclusions: A range of barriers and enablers exist which have an impact on consumers’ ability to engage with available health information, resources, and supports in hospital outpatient waiting areas. Practical insights from the perspective of consumers can be applied to future health service design. Consumer’s design ideas suggest that partnerships with consumers should be formed to design health literacy responsive waiting areas.


Author(s):  
Susan Murray

In response to a growing demand from the public for health information resources, North American public libraries have provided varying levels of consumer health information (CHI) services since the 1970s. Due to the availability of funding in the US, many American public libraries have provided CHI services, although the majority of these have been as partnerships with health sciences libraries or via the “Go Local” programs. In Canada, where no specific funding has been available for CHI services, few public libraries have set up CHI services; health information has generally been provided by augmenting health collections or “virtually,” i.e., by providing links to recommended electronic resources via the library’s Web site.


2018 ◽  
Vol 7 (4) ◽  
pp. 45-68
Author(s):  
Samuel Akande Bello

The central objective of this study was to determine the level of awareness and use of Electronic Health Information Resources (EHIRs) among the Academic Physicians of College of Medicine, University of Ibadan (COMUI), Nigeria. Others were to find out the frequency of use, the purposes and barriers against the use. Two hypotheses formulated and tested. This is a total enumeration research with 265 COMUI Academic Physicians, Nigeria. Questionnaire, designed with nominal and dichotomous questions was used. Data collected was analyzed with SPSS version 20.0. Descriptive statistics was used. Test of Pearson Moment Correlation (PMC) with Independent Sample t – test at 5% p – value used. The Academic Physicians mean age was 37.75. The results obtained indicated variations: 96.0% aware and used HINARI, 94.0% aware and used PubMed/Medline, NCBI was 64.9%. Hypothesis Test between awareness and use of EHIRs signified coefficient of proportionality (r = 218, p < 05).


PLoS ONE ◽  
2019 ◽  
Vol 14 (6) ◽  
pp. e0218342 ◽  
Author(s):  
Noha Abdel-Wahab ◽  
Devesh Rai ◽  
Harish Siddhanamatha ◽  
Abhinav Dodeja ◽  
Maria E. Suarez-Almazor ◽  
...  

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