scholarly journals Compassion fatigue as bruises in the soul: A qualitative study on nurses

2021 ◽  
pp. 096973302110032
Author(s):  
Tove Gustafsson ◽  
Jessica Hemberg
Keyword(s):  
Content Analysis ◽  
Informed Consent ◽  
Compassion Fatigue ◽  
Ethics Committee ◽  
Private Person ◽  
The Gift ◽  
Ethical Approval ◽  
Life Itself ◽  
The University ◽  
Written Informed Consent

Background: Nurses who are constantly being exposed to patients’ suffering can lead to compassion fatigue. There is a gap in the latest research regarding nurses’ experiences of compassion fatigue. Little is known about how compassion fatigue affects the nurse as a person, and indications of how it affects the profession are scarce. Aim: The aim of this study was to explore compassion fatigue experienced by nurses and how it affects them as persons and professionals. Research design, participants, and research context: A qualitative explorative approach was used. The data consisted of texts from interviews with seven nurses in various nursing contexts. Content analysis was used. Ethical consideration: Ethical approval was sought and granted from an ethics committee at the university where the researchers were based, and written, informed consent was obtained from all the participants. Findings: Five themes were discovered: Compassion as an empathic gift and compassion fatigue as a result of compassion overload, Compassion fatigue as exhausting the nurse as a professional and private person, Compassion fatigue as a crisis with potentially valuable insights, Compassion fatigue can be handled by self-care and focus on self, and Compassion fatigue is affected by life itself and multifaceted factors. Discussion: Compassion stress and overload can lead to compassion fatigue. Compassion fatigue affects the nurse’s ability to compassion, and the caring is no longer experienced in the same way; the nurses experienced it as being deprived of the gift of compassion. Compassion fatigue implicates a crisis with potentially valuable insights. Conclusion: Compassion fatigue can be symbolized as bruises in the soul, hurtful, but with time it can fade away, although it leaves a sense of caution within the nurse, which can affect the suffering patient.

The patients have a story to tell: Informed consent for people who use illicit opiates

2020 ◽  
Vol 27 (3) ◽  
pp. 666-672
Author(s):  
Jane McCall ◽  
J Craig Phillips ◽  
Andrew Estafan ◽  
Vera Caine
Keyword(s):  
Cognitive Impairment ◽  
Informed Consent ◽  
Social Workers ◽  
Thematic Analysis ◽  
Descriptive Study ◽  
Ethical Considerations ◽  
Opiate Use ◽  
Ethical Approval ◽  
The University ◽  
Written Informed Consent

Background: There is a significant discourse in the literature that opines that people who use illicit opiates are unable to provide informed consent due to withdrawal symptoms and cognitive impairment as a result of opiate use. Aims: This paper discusses the issues related to informed consent for this population. Ethical considerations: Ethical approval was obtained from both the local REB and the university. Written informed consent was obtained from all participants. Method: This was a qualitative interpretive descriptive study. 22 participants were interviewed, including 18 nurses, 2 social workers and 2 clinic support workers. The findings were analyzed using thematic analysis, which is a way of systematically reducing the complexity of the information to arrive at generalized explanations. Results: The staff at the clinic were overwhelming clear in their judgment that people who use opiates can and should be able to participate in research and that their drug use is not a barrier to informed consent. Conclusions: It is important to involve people who use opiates in research. Protectionist concerns about this population may be overstated. Such concerns do not promote the interests of research participants. People who use heroin need to be able to tell their story.

scholarly journals Medical terminology circulation and interactional organisation in interpreter-mediated medical encounters

2021 ◽  
Vol 11 ◽  
Author(s):  
Sara Pittarello
Keyword(s):  
Informed Consent ◽  
Active Participation ◽  
Point Of View ◽  
Personal Interest ◽  
Medical Terminology ◽  
Institutional Talk ◽  
Italian Hospital ◽  
Ethical Approval ◽  
Medical Interpreters ◽  
Written Informed Consent

Two medical encounters taking place in a Northern Italian hospital are analysed in this paper from a qualitative point of view, based on the author’s previous research. The aim is to reveal the strategies adopted by medical interpreters, in these two specific cases, to translate medical terminology and promote/exclude interlocutors’ active participation. This latter aspect is influenced by the way the interaction is socially and linguistically organised and, in particular, by how interlocutors’ utterances are translated. The prevalence of dyadic or triadic sequences and especially the shifts between such communication exchanges are pivotal in fostering or hindering interlocutors’ participation. Furthermore, medical interactions, as a form of institutional talk, enshrine specific expectations, which are mainly of a cognitive nature but may also be affective, as in the two encounters observed. By conveying such expectations and expressions of personal interest, interpreters have proved to contribute to the fair distribution of active participation among primary interlocutors. Hospital ethical approval and subjects’ written informed consent have been obtained.

scholarly journals Cross-sectional mixed-methods study protocol exploring the enablers and barriers for people with severe and enduring mental illness in Jamaica when accessing healthcare for chronic physical illness

BMJ Open ◽  
2020 ◽  
Vol 10 (8) ◽  
pp. e038245
Author(s):  
Patrice Whitehorne-Smith ◽  
Sharyn Burns ◽  
Ben Milbourn ◽  
Wendel Abel ◽  
Robyn Martin
Keyword(s):  
Mental Illness ◽  
Primary Care Physicians ◽  
Cross Sectional Study ◽  
Ethics Committee ◽  
Physical Illness ◽  
Caribbean Region ◽  
Cross Sectional ◽  
Chronic Physical Illness ◽  
Ethical Approval ◽  
The University

IntroductionExtant international research suggests that people with severe and enduring mental illness (PWSEMI) experience increased rates of chronic physical illness (CPI), reduced life expectancy and higher mortality than those in the general population. The high prevalence of CPI among PWSEMI is associated with a number of barriers that this population experiences when accessing physical healthcare. Although substantial research has been conducted in North America, Europe and Australia, there appears to be a paucity of research exploring CPI among PWSEMI in the Caribbean region, although this region has reported very high rates of non-communicable diseases within its populations. The current study will be situated in Jamaica and will explore the enablers and barriers to PWSEMI accessing healthcare for CPI.Methods and analysisA convergent mixed-method design will explore the enablers and barriers to accessing healthcare for CPI among PWSEMI. This cross-sectional study will collect data from PWSEMI, caregivers and family members, community health aides, primary care physicians, psychiatrists and health policymakers.Ethics and disseminationThe study findings will provide baseline data describing the prevalence of CPI among PWSEMI in Jamaica and will identify enablers for, and barriers to, PWSEMI accessing CPI care. Findings will be disseminated widely in Jamaica and internationally to key stakeholders through publications and conferences. Institutional ethical approval was granted from Jamaica’s Ministry of Health and Wellness Medico-legal Ethics Review Panel (# 2019/49), the Curtin University Human Research and Ethics Committee (HRE 2020–0022) and the University of the West Indies FMS Ethics Committee (ECP 101, 19/20).

scholarly journals Erratum

2018 ◽  
Vol 38 (3) ◽  
pp. 218-218
Keyword(s):  
Health Care ◽  
Primary Health Care ◽  
Ethics Committee ◽  
Self Assessment ◽  
Elderly Individuals ◽  
Primary Health ◽  
Ethical Approval ◽  
Primary Health Care Centers ◽  
Health Care Centers ◽  
Written Informed Consent

Pekçetin, S., Salar, S., İnal, Ö., & Kayıhan, H. (2018). Validity of the Turkish Occupational Self Assessment for Elderly Individuals. Occupation, Participation and Health, 38, 105-112. DOI: 10.1177/1539449217743457 On page 106 of the above-mentioned article, the institutional details were removed at two instances and left as “removed for blinding purposes.” The updated correct sentences are: Ethical approval was obtained from the Trakya University Scientific Research Ethics Committee prior to the study. Written informed consent was obtained from all the participants. This study was carried out at Primary Health Care Centers (PHCC) in Edirne, Turkey. PHCC physicians were informed about the study and requested to direct nondisabled individuals over 65 years of age to the researchers after their health services were completed.

scholarly journals Bruxism in children: Effectiveness of bite splints

2014 ◽  
Vol 2 (1) ◽  
pp. 22
Author(s):  
Marcelo Tomas de Oliveira ◽  
Talita Bressan ◽  
Saulo Pamato ◽  
Ana Carolina Niehues ◽  
Nara Farias Niehues ◽  
...  
Keyword(s):  
Informed Consent ◽  
Physical Examination ◽  
Pediatric Dentistry ◽  
Ethics Committee ◽  
Parental Informed Consent ◽  
Wear And Tear ◽  
Dental Appliance ◽  
Effective Use ◽  
The University

Purpose: The aim of this study was to evaluate the effectiveness of bite splints in the treatment of children with bruxism, reduction or elimination of symptoms and effective use of the dental appliance by patients. Methods: The sample consisted of 30 children with bruxism, aged 7 to 10 years, attending the Pediatric Dentistry Clinic of the University of Southern Santa Catarina. After approval by the ethics committee and parental informed consent agreement, children underwent anamnesis, physical examination, and alginate molding for fabrication of acrylic bite splints. The children were reassessed after 15 days and after 4, 8 and 12 months of splinting use through new clinical examination and questionnaires. Results: The use rate of bite splints shows that there was a positive correlation (rP=0.9961) between the decrease in use and time elapsed. The parafunctional habit of bruxism was no longer observed in 76.7% of the sample. It was observed that both symptoms evaluated, headache and muscular discomfort, showed a behavior that, if present at the beginning of treatment, declined during follow-up. No splint wear and tear was observed. Conclusion: There was a significant reduction in parafunctional activity, headache and muscular discomfort with the use of bite splints. The higher the persistence of patients, the higher the use rate of bite splints.

scholarly journals TO OBSERVE THE EFFECT OF ORAL GABAPENTIN, THEOPHYLLINE AND CAFFEINE ON SBP, DBP, MAP AND HR.

2019 ◽  
Vol 3 (12) ◽  
Author(s):  
Kunwar Singh Thakur ◽  
Rahul Meda
Keyword(s):  
Informed Consent ◽  
Caesarean Section ◽  
Spinal Anesthesia ◽  
Ethics Committee ◽  
Lower Segment ◽  
Medical College ◽  
Lower Segment Caesarean Section ◽  
Haemodynamic Parameters ◽  
Institutional Ethics ◽  
Written Informed Consent

After obtaining approval from institutional ethics committee, and written informed consent, the present study entitled "To Observe the Effect of Oral Gabapentin, Theophylline and Caffeine on SBP, DBP, MAP and HR"  was conducted on 120 patients of ASA grade I &II scheduled for elective and emergency lower segment caesarean section under spinal anesthesia in the Department of Anesthesiology, J.A. Group of Hospitals & G.R. Medical College, Gwalior (M.P.)  after getting written informed consent from the patients. No significant effects on haemodynamic parameters were observed with all the study drugs. Recurrence of PDPH was significantly high with caffeine treatment. No serious untoward effects or complications of study drugs were observed in the study. Keywords: Oral Gabapentin, Theophylline, Caffeine, SBP, DBP, MAP & HR.

Letter to the Editor

PEDIATRICS ◽  
1977 ◽  
Vol 60 (5) ◽  
pp. 768-768
Author(s):  
R. J. H.
Keyword(s):  
Informed Consent ◽  
Ethics Committee ◽  
Letter To The Editor ◽  
Original Manuscript ◽  
The University

Both reviewers of the original manuscript and I were equally concerned with the deception used in the study referred to by Dr. Solnit, and I communicated this concern to the authors. In a revised manuscript they pointed out the safeguards taken, including informed consent of the parents, approval of the University Ethics Committee, the reassurances given to the children at the end of the experiment, and their observations that the children responded to the reassurances very promptly.

scholarly journals Seven Snags of Research Ethics on the Qualitative Research Voyage

2019 ◽  
Vol 12 (6) ◽  
pp. 1
Author(s):  
MacDonald Kanyangale
Keyword(s):  
Qualitative Research ◽  
Informed Consent ◽  
Research Ethics ◽  
Research Process ◽  
Qualitative Inquiry ◽  
Ethical Guidelines ◽  
Ethical Approval ◽  
Conceptual Paper ◽  
Research Students ◽  
The University

Responsible researchers with ethically sound research skills are fundamental to success in an ever-changing business and social world. Embedding ethics into research by students seems to be intuitively easy given tight, standardized ethical guidelines and rigorous ethical approval process in the university. In reality, there are Masters and PhD research students who feel ill-prepared when they encounter ethical ambiguities and complexities in the field which are unique, beyond what they had foreseen at the outset of a qualitative inquiry or were prescribed, advised and forewarned by a research ethics committee (REC). The aim of this conceptual paper is to discuss seven pitfalls of research ethics in a qualitative research voyage in order to educate and sensitize current and prospective research students. The seven pitfalls are: (1) complexity and ambiguity of informed consent; (2) embedding informed consent as a process rather than an event; (3) navigating the moral conundrum of unintentional disclosure; (4) dealing with deductive disclosure; (5) dialectic between participant`s desire for recognition and greater confidentiality; (6) researcher role conflict and (7) difficulty of embedding researcher reflexivity. The paper concludes that only research students who are ethically literate and actively reflexive in the entire research process are more likely to know whenever they encounter ethical pitfalls, deal with them properly; and ultimately entrench relevant skills to conduct ethically sound research. Highlighted are implications for research educators to develop research competence of current and future researchers. Responsible researchers with ethically sound research skills are fundamental to success in an ever-changing business and social world. Embedding ethics into research by students seems to be intuitively easy given tight, standardized ethical guidelines and rigorous ethical approval process in the university. In reality, there are Masters and PhD research students who feel ill-prepared when they encounter ethical ambiguities and complexities in the field which are unique, beyond what they had foreseen at the outset of a qualitative inquiry or were prescribed, advised and forewarned by a research ethics committee (REC). The aim of this conceptual paper is to discuss seven pitfalls of research ethics in a qualitative research voyage in order to educate and sensitize current and prospective research students. The seven pitfalls are: (1) complexity and ambiguity of informed consent; (2) embedding informed consent as a process rather than an event; (3) navigating the moral conundrum of unintentional disclosure; (4) dealing with deductive disclosure; (5) dialectic between participant`s desire for recognition and greater confidentiality; (6) researcher role conflict and (7) difficulty of embedding researcher reflexivity. The paper concludes that only research students who are ethically literate and actively reflexive in the entire research process are more likely to know whenever they encounter ethical pitfalls, deal with them properly; and ultimately entrench relevant skills to conduct ethically sound research. Highlighted are implications for research educators to develop research competence of current and future researchers.

scholarly journals On mediating agents’ moves and how they might affect patient-centredness in mediated medical consultations

2021 ◽  
Vol 11 ◽  
Author(s):  
Demi K. Krystallidou
Keyword(s):  
Informed Consent ◽  
Translation Studies ◽  
Urban Hospital ◽  
Verbal Cues ◽  
Medical Encounter ◽  
Video Recordings ◽  
Medical Consultations ◽  
Ethical Approval ◽  
Written Informed Consent ◽  
Patient Centredness

The present study aims to shed some light on indicators that might potentially challenge patient-centredness (as practised by self-professed patient-centred doctors) within a mediated medical encounter, and to contribute to the fields of linguistics, translation studies and medical communication. Selected instances of transcribed video recordings are analysed within the framework of Goffman’s footing and participation roles, while transcribed audio recorded interviews with participants in the triad are taken into consideration as well. Both verbal and non-verbal cues (i.e., gaze) are taken into account. The data is drawn from a corpus of video-recorded mediated consultations in a urban hospital in Belgium. Hospital ethical approval and subjects’ written informed consent have been obtained

scholarly journals Errata

2017 ◽  
Vol 1 (5) ◽  
pp. 352-353
Keyword(s):  
Informed Consent ◽  
Silicone Oil ◽  
Neuronal Ceroid Lipofuscinosis ◽  
Case Series ◽  
Intravitreal Bevacizumab ◽  
Healthy Children ◽  
Retrospective Case ◽  
Posterior Scleritis ◽  
Ethical Approval ◽  
Written Informed Consent

An Ethical Approval Statement and/or Statement of Informed Consent should have been included for the articles listed below. Their corresponding statements are presented following the article information: Emerson GG, Kim JE, Packo KH, Flynn HW Jr. Guidelines for intraoperative time-out before corneal scraping and before fluid–air exchange. J Vitreoretin Dis. 2017;1(1):79-80. (Original DOI: 10.1177/2474126416680932) Ethical Approval: Ethical approval was not sought for the present study because no identifiable images or information were used and because this was a special correspondence. Statement of Informed Consent: Informed consent was not sought for the present study because no identifiable images were used. Ryder SJ, Tutiven JL, Gayer S, Miller D, Flynn HW Jr, Townsend JH. Retinal detachment repair in a patient with active Zika virus infection. J Vitreoretin Dis. 2017;1(1):81-83. (Original DOI: 10.1177/2474126416685495) Statement of Informed Consent: Informed consent was not sought for this case report because no identifiable images were used. Dubey N, Minija CK, Shanmugam MP. Intravitreal dexamethasone implant in a case of recurrent posterior scleritis. J Vitreoretin Dis. 2017;1(1):84-87. (Original DOI: 10.1177/2474126416681324) Statement of Informed Consent: Written informed consent was obtained from the patient to perform the procedure and have photographs taken. Kim H, Wang A, Mititelu M. Case series of anti-vascular endothelial growth factor and photodynamic therapy in the treatment of circumscribed choroidal hemangiomas. J Vitreoretin Dis. 2017;1(2):133-137. (Original DOI: 10.1177/2474126416687424) Statement of Informed Consent: Informed consent was not sought for the present study because no identifiable images were used. Cunningham WJ, Michael E, Welch S, Crosby N, Host B, Polkinghorne P. The Auckland Endophthalmitis Study: the incidence and management of endophthalmitis following intravitreal bevacizumab. J Vitreoretin Dis. 2017;1(3):175-180. (Original DOI: 10.1177/2474126417690987) Ethical Approval: Ethical approval for this study was waived by the Health and Disabilities Ethics Committees of New Zealand because the details of our study were such that ethics approval was not required. Statement of Informed Consent: Not applicable. Lee AC, Opremcak EM, Hunt C, et al. Severe corneal complications associated with corneal lubricant used during surgery. J Vitreoretin Dis. 2017;1(3):187-190. (Original DOI: 10.1177/2474126417698880) Ethical Approval: Ethical approval was not sought for the present study because it was a retrospective report and no identifiable data were included in the study. Statement of Informed Consent: Informed consent was not sought for the present study images because no identifiable images were used. Chen Y, Shah V, Jeroudi AM, Blinder KJ, Shah GK. Surgical detachment of the anterior hyaloid membrane from the posterior lens capsule: two techniques. J Vitreoretin Dis. 2017;1(3):214-217. (Original DOI: 10.1177/2474126417698873) Statement of Informed Consent: Informed consent was not sought for the present study because no identifiable images or data were used. Yau GL, Chin EK, Parke DW III, Bennett SR, Almeida DRP. West Nile virus chorioretinitis with foveal involvement: evolution of lesions on optical coherence tomography. J Vitreoretin Dis. 2017;1(3):218-221. (Original DOI: 10.1177/2474126417697593) Statement of Informed Consent: Informed consent was not sought for the present study because no identifiable images were used. Rahman R, Khan K, Stephenson J, Amjad M. Nonposturing surgery for persistent macular hole using heavy silicone oil (Oxane HD) endotamponade. J Vitreoretin Dis. 2017;1(4):246-250. (Original DOI: 10.1177/2474126417712645) Ethical Approval: Ethical approval was not sought for the present study because of the following reasons: The basis for this decision was made on the fact that there would be no change to the standard of care for patients studied and we were evaluating our service for failed macular holes treatment offered to patients. Statement of Informed Consent: Informed consent was not sought for the present study because it was not required as no identifiable images were used. Sundy M, Malihi M, Chang EY, et al. Retinal artery occlusions in healthy children. J Vitreoretin Dis. 2017;1(4):257-260. (Original DOI: 10.1177/2474126417710138) Statement of Informed Consent: Informed consent was not obtained for this multicenter retrospective case series because no identifiable images were used. Oellers P, Eliott D. Good visual outcome following vitrectomy for epiretinal membrane with foveal tissue herniation. J Vitreoretin Dis. 2017;1(4):278-280. (Original DOI: 10.1177/2474126417709382) Statement of Informed Consent: Informed consent was not sought for the present study because no identifiable images were used. Kovach JL. Persistent placoid maculopathy treatment response imaged with OCT angiography. J Vitreoretin Dis. 2017;1(4):281-283. (Original DOI: 10.1177/2474126417712646) Statement of Informed Consent: Informed consent was not sought for the present study because no identifiable images were used. Reyes-Capó D, Ventura CV, Tekin M, Lam BL, Berrocal AM. ABCA4 mutation in a patient with juvenile neuronal ceroid lipofuscinosis. J Vitreoretin Dis. 2017;1(4):284-286. (Original DOI: 10.1177/2474126417714136) Statement of Informed Consent: Written informed consent was obtained from the subject for the use of photographs for professional publication.

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