The Experiences of Chinese Children 5- to 7-year-old during cancer Treatment Reflected Through Interviews and Drawings

2021 ◽  
pp. 104345422110419
Author(s):  
Lei Cheng ◽  
Xinlei Zhao ◽  
Youhong Ge ◽  
Yingwen Wang ◽  
Qiongfang Kang

Background: For children with cancer, the experience during treatment can be challenging. There is a limited number of studies on self-reported treatment experiences of younger Chinese children with cancer using qualitative methods. Objectives: This study aimed at exploring the experience of Chinese children aged 5 to 7 years during cancer treatment reflected through interviews and drawings. Methods: This study used a descriptive qualitative design with the technique of “draw-and-tell.” Participants were enrolled from the pediatric oncology inpatient department of one national children's medical center in China. They were asked to draw a picture of “your feelings in the hospital.” An inductive content analysis approach was used. Results: Twelve participants were enrolled (8 male, mean age 5.7 years). Four themes were established: (1) suffering from adverse treatment effects; (2) perceiving changed relationships; (3) being thankful for others; and (4) trying out coping strategies. Conclusion: Chinese children aged 5 to 7 years expressed multiple cancer treatment impacts. They appreciated others’ support and had their own way to cope with treatment demands. The authors also extended the dynamic nature of using the “draw-and-tell” methodology. Study findings highlight the importance of inviting and hearing the voice of young children during their cancer treatment, with particular consideration of the influence of disease, treatment, child development, family dynamics, and culture.

Blood ◽  
2018 ◽  
Vol 132 (Supplement 1) ◽  
pp. 3560-3560
Author(s):  
Haiying Huang ◽  
Zhimin Liang ◽  
Yongxian Huang ◽  
Hui Zhang

Abstract Objective: To evaluate the effects of multi-dimensional humanistic care on kids with hematological malignancies and their parents and facilitate the effective nursing experience and professional nursing in such clinical care. Methods: A total of 567 children with cancer and their parents were enrolled in this study. From January to December in 2017, multi-dimensional humanistic care was systematically implemented to provide care for all these patients and their family members. A warm and comfortable in-patient atmosphere was created with regular playing-games, health education meetings, and personal palliative care support were provided to all newly-diagnosed pediatric cancer patients and their parents who admitted to our department. In the meanwhile, case management were implemented by nurses. Children and parents in demand were referred to game therapists and social workers for visits, psychological counseling and emotional support. Financial assistance was also provided to care for those well-off families to support their systemic cancer treatment. Follow-up visits to hospitals were also offered. Results: The implementation of multi-dimensional humanistic care measures significantly reduced the anxiety level of hospitalized children with cancer and their parents, which in turn improve their treatment compliance. Next, more easier caregiving ability and compliance were also recorded. The results of satisfaction survey showed that the satisfaction to nursing care rose from 85.6% in 2016 to 96.9% in 2017 after the implementation of multi-dimensional humanistic care in our hospital. The nurses' service attitude, medication guidance, hospitalization guidance, timely bedside services, and nurses' operating technology satisfaction also increased by 10.86%, 12.17%, 8.3%, 12.80%, and 12.15% respectively. Conclusion: The multi-dimensional humanistic care effectively reduces the anxiety of kids with hematological malignancies and their parents, improves the caregiver's caring ability and compliance, and their satisfaction to nursing care. All these results point out the significance of systemic care services in the childhood cancer therapy, it is noteworthy to pour more attention and capacity to the clinics which may facilitate the cancer treatment. Figure. Figure. Disclosures No relevant conflicts of interest to declare.


2021 ◽  
Vol 39 (15_suppl) ◽  
pp. e24029-e24029
Author(s):  
Laura Vater ◽  
Anup Trikannad Ashwini Kumar ◽  
Neha Sehgal ◽  
Maria Khan ◽  
Kelsey Bullens ◽  
...  

e24029 Background: Continued cigarette smoking among patients with cancer leads to numerous adverse health outcomes, even among patients with non-tobacco-related cancers such as breast, colon, and prostate cancer. Continued smoking is associated with poorer response to cancer treatment, increased risk for treatment-related toxicities, and shorter overall survival. While some patients with a smoking-related cancer make efforts to quit smoking at the time of diagnosis, patients with other forms of cancer might not understand the negative effects of continued smoking. In this study, we assessed patient knowledge of the harms of continued smoking, previous cessation attempts, and cessation support. Methods: We surveyed 102 adults with breast, colon, and prostate cancer at three locations: an NCI-designated cancer center, an urban safety-net medical center, and a rural cancer center. Patients were asked about current smoking behaviors, beliefs about the harms of continued smoking, quit attempts and resources used, and cessation support. We also surveyed seven oncologists to assess beliefs about harms of continued smoking, cessation support provided to patients, training and confidence in cessation counseling, and barriers to providing cessation support. Results: Most patients (82%) agreed or strongly agreed that continued smoking may shorten life expectancy, and 70% agreed or strongly agreed that continued smoking increased the risk of getting a different type of cancer. Only 41% of patients agreed or strongly agreed that continued smoking may cause more side effects from cancer treatment, and only 40% agreed or strongly agreed that ongoing smoking may affect treatment response. The majority of patients (86%) had tried to quit smoking for good, with an average 4.1 quit attempts per patient. Patients reported that physicians advised them to quit the majority of the time (92%), prescribed medication 33% of the time, and followed up on cessation attempts 43% of the time. Overall, oncologists had higher knowledge of the harms of continued smoking on treatment outcomes and survival. Those in practice for 20 years or more had higher confidence in cessation counseling than those in practice less than 4 years. Oncologists described lack of time and lack of confidence in cessation counseling as barriers to providing more cessation support. Conclusions: Among 102 patients with breast, colon, and prostate cancer who currently smoke, there was incomplete knowledge of the harms of continued smoking. Oncologists believe that tobacco cessation is important and frequently advise patients to quit, however they less frequently prescribe medication or follow up on cessation efforts. Interventions are needed to educate patients with cancer about the harms of continued smoking and to provide further cessation support.


2017 ◽  
Vol 3 (2_suppl) ◽  
pp. 33s-33s ◽  
Author(s):  
Anthony T. Saxton ◽  
Manisha Bhattacharya ◽  
Nestory Masalu ◽  
Henry E. Rice ◽  
Kristin Schroeder

Abstract 52 Background: Despite the high burden of pediatric cancer in low- and middle-income countries, the number of facilities at which children can obtain treatment remains distressingly low. Understanding the costs and economic value of pediatric cancer treatment may assist policy makers to maximize the value of investments in health with informed resource allocation decisions. We examined the direct and indirect costs, cost-effectiveness, and societal economic benefit of diagnosing and treating children with cancer in Tanzania at the Bugando Medical Center, one of only two hospitals in the country with a pediatric oncology unit. Methods: A retrospective chart review of hospital admissions and clinic visits from January 2010 to August 2014 was performed. Costs were recorded for all items that were billed to the patient for laboratory studies, medications, imaging, pathology, surgeries, and hospital stay. Travel costs were estimated for each patient on the basis of a self-reported home address. All costs were converted from Tanzanian shillings to 2016 US dollars. Health outcomes were measured as disability-adjusted life-year (DALY) averted. We calculated the cost-effectiveness ratio of treatment versus performing no intervention as well as the societal economic benefit using a human capital approach and considering the per capita gross national product in Tanzania. Results: We identified costs for a subset of 127 patients, 64% of which were male (n = 81). Mean age at first clinical presentation was 6.9 years. Mean cost for treatment was $218 ± $145, with an average of 10.4 ± 8.9 DALYs averted per patient. Total cost-effectiveness ratio was $21/DALY, and the mean societal economic benefit was $27,118 ± $23,412. Conclusion: Our findings show that pediatric cancer treatment in Tanzania is cost-effective and offers substantial economic value. AUTHORS' DISCLOSURES OF POTENTIAL CONFLICTS OF INTEREST No COIs from the authors.


2006 ◽  
Vol 135 (2_suppl) ◽  
pp. P227-P228
Author(s):  
Samuel A. Spear ◽  
Douglas M Sorensen

2020 ◽  
Vol 45 (5) ◽  
pp. 550-560
Author(s):  
Hyun Kim ◽  
Eric S Zhou ◽  
Lydia Chevalier ◽  
Phyllis Lun ◽  
Ryan D Davidson ◽  
...  

Abstract Background Poor sleep is common for children during cancer treatment, but there is limited understanding of the nature of children’s sleep throughout the treatment trajectory. The current exploratory study used an explanatory sequential mixed method approach to examine quantitative associations among sleep problems in children with cancer, parental behavior, and children’s sleep hygiene, with follow-up qualitative characterizations of children’s sleep across cancer treatment stages. Procedure Eighty parents of children with cancer (aged 2–10 years; in active treatment, maintenance treatment, or off treatment) completed an online survey querying the child’s sleep quality (Sleep Disturbance Scale for Children—Disorders of Initiating and Maintaining Sleep subscale) and behaviors (Child Sleep Hygiene Scale) and sleep-related parenting behaviors (Parental Sleep Strategies). A subsample (n = 17 parents) participated in qualitative interviews to better characterize the processes of children’s sleep and parents’ sleep-related behaviors. Results Children’s sleep quality, sleep hygiene, or parental sleep strategies were not significantly different by cancer treatment groups. Greater sleep disturbance in children was associated with their parents’ tendency to accommodate the child’s bedtime requests. Qualitatively, cancer treatment-related anxiety in both children and parents influence the onset of these disruptive sleep behaviors. Conclusion Parents’ sleep-related behaviors affect children’s sleep during cancer treatment. Parents’ accommodation may start during active treatment to alleviate cancer-related challenges, and these behaviors may continue into maintenance therapy and off treatment to reinforce sleep disturbance. Behavioral interventions targeting unhelpful parental behaviors may improve sleep in children with cancer during and after cancer treatment.


2019 ◽  
Vol 24 (4) ◽  
pp. 267-273
Author(s):  
Ajayeb S. Abu Daabes ◽  
Faten F. Kharbat

Purpose The purpose of this paper is to describe and assess Arabic videos related to cancer treatment to gain insights about the nature of health information as it is shared on YouTube. Accordingly, future strategies for different bodies are suggested to promote effective communication. Design/methodology/approach The approach is to select a representative sample of YouTube videos for certain search terms related to cancer treatment in the Arabic language. In order to identify the search terms, Google Trends is utilized. To retrieve the most relevant videos, a simple python tool is developed using YouTube API V3. For this study, the first 150 relevant videos are quantitatively and qualitatively analyzed. Objective data and subjective data are collected for each video and analyzed. Objective data include video title, URL, length, view count, like count, dislike count, comment count and the associated tags. For content analysis, coding themes are defined for the subjective data as follows: video format, video authorship and video content. Video content includes three categories: types of treatments, targeted part and evidence-based indicators. Findings The study included 150 videos, from which 30 videos were not content related; therefore, 120 videos remain in the analysis. Using rounding values, it can be observed that the average video lasted 10 min, had 184,966 views, was commented on 263 times, was liked by 2,295 users and disliked by 148 users. Non-professional individuals (46 percent) posted less than half of the videos, whereas public institutions posted only 18 percent of videos. More than half of videos (56 percent) promoted using herbal, botanical, and other natural products for cancer treatment. The majority of YouTube video formats were videos (52 percent), followed by audio with captions (30 percent). News and stories were the dominant videos, with (16 percent), and other types of videos were mostly testimonials and private centers promotions. Only 6 and 9 percent of videos targeted the genetic and immune systems, respectively. Out of the 120 analyzed videos, 86 percent did not mention any risk factor for the recommended treatment, and 73 percent did not offer the details of their usage direction. Research limitations/implications Researchers need to understand the information that is currently available on social media platforms related to the high-risk diseases in order to design initiatives, tools, and actions to allow an easy effective transfer of knowledge. Practical implications Recounting in-depth knowledge of YouTube cancer treatment contents will allow policy makers, YouTube management, medical organizations, and government agencies to understand the viewers’ behavior of YouTube and their needs to provide accurate and trustworthy information to adopt evidence-based resources. Social implications Creating the suitable content, in terms of health promotion strategies, associated with the appropriate format and understandable language that people need will be one of the major responsibilities of YouTube management, government and professional bodies. The well-designed health messages will enhance users’ engagement and attention to health issues from trusted sources. Originality/value There is very less information about Arabic messages in social media, YouTube in particular, specifically regarding cancer treatment. Thus, this study is one of the first studies to explore how Arabic messages are presented on YouTube. The aim of the assessment is to extract the current status and suggest future strategies for different bodies to have effective communication toward the Arabic communities.


Author(s):  
Ndayisenga jeanine ◽  
Atwiine Barnabas ◽  
Francis Oriokot ◽  
Atwiine Daniel ◽  
Stella Kyoyagara ◽  
...  

Background: Acute malnutrition is a frequent comorbidity in children with cancer and is associated with poor cancer treatment outcomes.This study describes the prevalence of acute malnutrition and its predictors at time of cancer diagnosis at Mbarara Regional Referral Hospital (MRRH). Methods: This was a retrospective chart review of children <15 years of age at diagnosis of cancer seen at the Children’s Cancer Unit of MRRH between May 2017 and May 2019. Using a data extraction tool, information regarding demographics, anthropometry at admission and cancer diagnosis was extracted from the children’s medical records. Descriptive statistics and logistic regression analysis were used to determine the prevalence and patterns of acute malnutrition among children at diagnosis of cancer and the factors associated with acute malnutrition, respectively. The study was approved by the Mbarara University of Science and Technology Research and Ethics Committee. Results: One hundred and thirty-three children were included in the study with a mean age of 6.6 years (SD 3.9).54.9% of the children were male. Overall, 46 (34.6%) of subjects had acute malnutrition at time of cancer diagnosis. Of these, 25 (54.3%) had moderate acute malnutrition and 21/46 (45.7%) had severe acute malnutrition.The factors independently associated with acute malnutrition after multivariate logistical regression analysis were age >5 years (p<0.0001) and reduced appetite (p=0.002). Conclusion: Acute malnutrition is common among children with cancer at diagnosis, especially in older children and those reporting poor appetite. Nutrition assessment and care should be incorporated into routine childhood cancer care to improve cancer treatment outcomes.


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