Bounded autonomy in deciding to seek medical help: Carer role, the sick role and the case of dementia

2012 ◽  
Vol 18 (2) ◽  
pp. 272-281 ◽  
Author(s):  
TAC Chrisp ◽  
S Tabberer ◽  
BD Thomas
Keyword(s):  
Health Care ◽  
Decision Making ◽  
Health Care Professionals ◽  
Sick Role ◽  
Social Psychological ◽  
Health Decision Making ◽  
Psychological Theories ◽  
Health Decision ◽  
The Individual

Social psychological theories of illness and health decision making place the individual with the symptoms at the centre. In the case of dementia it is often a relative who is first to contact health care professionals. The article illustrates how the autonomy of both the individual with symptoms and their carers is bounded by the actions of others. An over arching theme of ‘bounded autonomy in decision making’, and four subthemes emerged. Bounded autonomy is where a person’s actions are constrained or contested by another person. There are implications for interventions to bring forward the point at which diagnosis occurs.

scholarly journals Scientific method and research in health: orientation for professional practice

2019 ◽  
Vol 29 (1) ◽  
pp. 5-9
Author(s):  
Sandra Dircinha Teixeira de Araújo Moraes
Keyword(s):  
Decision Making ◽  
Professional Practice ◽  
Scientific Method ◽  
Scientific Information ◽  
Health Decision Making ◽  
Social Interests ◽  
Scientific Principles ◽  
Health Decision ◽  
The Individual

In the health area, research is designed to develop reliable data on problems and needs that are important to the individual/community, with a particular focus on guiding practitioners. Today, due to innumerable innovations in health, health decision-making needs to be based on scientific principles, which is a daily process that is integral to the rhythm of life, product and reason for social interests in confrontation based on learning, not summarized to mere reproduction. In this context, when considering that the quality of the research is directly linked to the presentation of the results, it is important to note the importance of the construction of research protocols that present the step-by-step techniques of organization and analysis of the data, understanding that the researcher, when in possession of collected data, must be sure that when they work respecting the chosen technique, they will indicate the evidences of the study, with possibilities to achieve a new knowledge with the minimum of bias that can happen. Thus, it is understood the importance of emphasizing the scientific method as a way for the development of scientific research in order to achieve the objectives set, increasing the rigor of the research to give visibility to information that enables the professional practices conscious and within of criteria that contribute to decision making on care based on validated scientific information.  

Human papillomavirus and health decision-making: Perceptions and accountability in college

2019 ◽  
Vol 79 (1) ◽  
pp. 46-57
Author(s):  
Verna DeLauer ◽  
Andrea McGill-O’Rourke ◽  
Carissa Gordon ◽  
Natalie Hamilton ◽  
Ryan Desruisseaux ◽  
...  
Keyword(s):  
Health Care ◽  
Decision Making ◽  
Young Adults ◽  
Human Papillomavirus ◽  
Hpv Vaccine ◽  
Preventive Health Care ◽  
Care Providers ◽  
Health Decision Making ◽  
Self Reliance ◽  
Health Decision

Objective: To identify knowledge and beliefs about the human papillomavirus (HPV) among students in a residential academic institution, including perceptions of safety of the HPV vaccine, perceptions of cancer correlation with HPV, and independence/interdependence in health decision-making. Design: A qualitative study was used. Setting: Participants were recruited from a small private US university. Methods: In-depth, semi-structured interviews. Results: Study findings highlight the need for improved communication about sex and general preventive health care between young adults, their parents and health providers, including the campus health services centre. Findings point to the importance of appropriate health care messaging at the time of the HPV vaccine (if given in adolescence) throughout college. While mothers played a crucial part in helping young adults make sense of health and health care decisions, self-reliance and self-protection were strong drivers of decision-making. Conclusion: As college students progress from dependent child to independent adult, they shift from reliance on others, especially mothers, for health guidance to an emerging self-reliance and self-protective stance. Central to this experience is navigating health decisions by using information from one’s childhood and integrating new knowledge as one emerges into adulthood. College health care providers and related disciplinary faculty have the opportunity to support students during this transition.

Navigating the health care system: perceptions of patients with chronic pain

2009 ◽  
Vol 29 (4) ◽  
pp. 162-168
Author(s):  
AL Dewar ◽  
K Gregg ◽  
MI White ◽  
J Lander
Keyword(s):  
Health Care ◽  
Chronic Pain ◽  
Health Care System ◽  
Health Care Professionals ◽  
Primary Care Physicians ◽  
Treatment Compliance ◽  
Care Utilization ◽  
Semistructured Interviews ◽  
The Individual ◽  
Care System

A new framework is needed for patients with chronic pain and their primary care physicians that acknowledges the individual’s experiences and provides evidence-informed education and better linkages to community-based resources. This study describes the experience of 19 chronic-pain sufferers who seek relief via the health care system. Their experiences were recorded through in-depth semistructured interviews and analyzed through qualitative methods. The participants reported early optimism, then disillusionment, and finally acceptance of living with chronic pain. Both individuals with chronic pain and their health care professionals need evidence-informed resources and information on best practices to assist them to manage pain. Empathetic communication between health care professionals and individuals with chronic pain is crucial because insensitive communication negatively affects the individual, reduces treatment compliance and increases health care utilization.

The Globalization of Health Law: The Case of Permissibility of Placebo-based Research

2000 ◽  
Vol 26 (2-3) ◽  
pp. 175-186
Author(s):  
Timothy S. Jost
Keyword(s):  
Health Care ◽  
Medical Practice ◽  
Health Care Professionals ◽  
Global Markets ◽  
Health Law ◽  
Cross Border ◽  
Internet Pharmacies ◽  
The Individual ◽  
Global Communications ◽  
National Borders

If any trend can be confidently predicted for the next millennium (or, more modestly, for our lifetimes) it is the globalization of health law. We live in an age of global markets and global communications. While care of the individual patient has remained largely local, national borders are quite porous to health care professionals. The cross-border flow of patients is a significant factor in some regions, and the development of telemedicine and internet pharmacies is radically expanding the possibility of cross-border medical practice.

scholarly journals The NCCMT’s dynamic model for evidence-informed public health

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
E Clark ◽  
S Neil-Sztramko ◽  
M Dobbins
Keyword(s):  
Public Health ◽  
Decision Making ◽  
Research Evidence ◽  
Decision Makers ◽  
Local Data ◽  
Public Health Decision ◽  
Health Decision Making ◽  
Political Preferences ◽  
Health Decision ◽  
Structured Approach

Abstract Issue It is well accepted that public health decision makers should use the best available research evidence in their decision-making process. However, research evidence alone is insufficient to inform public health decision making. Description of the problem As new challenges to public health emerge, there can be a paucity of high quality research evidence to inform decisions on new topics. Public health decision makers must combine various sources of evidence with their public health expertise to make evidence-informed decisions. The National Collaborating Centre for Methods and Tools (NCCMT) has developed a model which combines research evidence with other critical sources of evidence that can help guide decision makers in evidence-informed decision making. Results The NCCMT's model for evidence-informed public health combines findings from research evidence with local data and context, community and political preferences and actions and evidence on available resources. The model has been widely used across Canada and worldwide, and has been integrated into many public health organizations' decision-making processes. The model is also used for teaching an evidence-informed public health approach in Masters of Public Health programs around the globe. The model provides a structured approach to integrating evidence from several critical sources into public health decision making. Use of the model helps ensure that important research, contextual and preference information is sought and incorporated. Lessons Next steps for the model include development of a tool to facilitate synthesis of evidence across all four domains. Although Indigenous knowledges are relevant for public health decision making and should be considered as part of a complete assessment the current model does not capture Indigenous knowledges. Key messages Decision making in public health requires integrating the best available evidence, including research findings, local data and context, community and political preferences and available resources. The NCCMT’s model for evidence-informed public health provides a structured approach to integrating evidence from several critical sources into public health decision making.

scholarly journals Reproductive Health Decision-Making in Perinatally HIV-Infected Adolescents and Young Adults

2012 ◽  
Vol 17 (5) ◽  
pp. 797-808 ◽  
Author(s):  
Cynthia Fair ◽  
Lori Wiener ◽  
Sima Zadeh ◽  
Jamie Albright ◽  
Claude Ann Mellins ◽  
...  
Keyword(s):  
Decision Making ◽  
Young Adults ◽  
Reproductive Health ◽  
Adolescents And Young Adults ◽  
Health Decision Making ◽  
Health Decision
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