‘Personal data literacies’: A critical literacies approach to enhancing understandings of personal digital data

2018 ◽  
Vol 21 (2) ◽  
pp. 419-437 ◽  
Author(s):  
Luci Pangrazio ◽  
Neil Selwyn

The capacity to understand and control one’s personal data is now a crucial part of living in contemporary society. In this sense, traditional concerns over supporting the development of ‘digital literacy’ are now being usurped by concerns over citizens’ ‘data literacies’. In contrast to recent data safety and data science approaches, this article argues for a more critical form of ‘personal data literacies’ where digital data are understood as socially situated and context dependent. Drawing on the critical literacies tradition, the article outlines a range of salient socio-technical understandings of personal data generation and processing. Specifically, the article proposes a framework of ‘Personal Data Literacies’ that distinguishes five significant domains: (1) Data Identification, (2) Data Understandings, (3) Data Reflexivity, (4) Data Uses, and (5) Data Tactics. The article concludes by outlining the implications of this framework for future education and research around the area of individuals’ understandings of personal data.

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
J Doetsch ◽  
I Lopes ◽  
R Redinha ◽  
H Barros

Abstract The usage and exchange of “big data” is at the forefront of the data science agenda where Record Linkage plays a prominent role in biomedical research. In an era of ubiquitous data exchange and big data, Record Linkage is almost inevitable, but raises ethical and legal problems, namely personal data and privacy protection. Record Linkage refers to the general merging of data information to consolidate facts about an individual or an event that are not available in a separate record. This article provides an overview of ethical challenges and research opportunities in linking routine data on health and education with cohort data from very preterm (VPT) infants in Portugal. Portuguese, European and International law has been reviewed on data processing, protection and privacy. A three-stage analysis was carried out: i) interplay of threefold law-levelling for Record Linkage at different levels; ii) impact of data protection and privacy rights for data processing, iii) data linkage process' challenges and opportunities for research. A framework to discuss the process and its implications for data protection and privacy was created. The GDPR functions as utmost substantial legal basis for the protection of personal data in Record Linkage, and explicit written consent is considered the appropriate basis for the processing sensitive data. In Portugal, retrospective access to routine data is permitted if anonymised; for health data if it meets data processing requirements declared with an explicit consent; for education data if the data processing rules are complied. Routine health and education data can be linked to cohort data if rights of the data subject and requirements and duties of processors and controllers are respected. A strong ethical context through the application of the GDPR in all phases of research need to be established to achieve Record Linkage between cohort and routine collected records for health and education data of VPT infants in Portugal. Key messages GDPR is the most important legal framework for the protection of personal data, however, its uniform approach granting freedom to its Member states hampers Record Linkage processes among EU countries. The question remains whether the gap between data protection and privacy is adequately balanced at three legal levels to guarantee freedom for research and the improvement of health of data subjects.


Systems ◽  
2021 ◽  
Vol 9 (2) ◽  
pp. 33
Author(s):  
Olena Klymenko ◽  
Lise Lillebrygfjeld Halse ◽  
Bjørn Jæger

Sustainability accounting is an emerging research area receiving growing awareness. This study examines the role of digital technology in manufacturing companies’ sustainability accounting. To guide the research, we use a triple layered business model canvas, which supports the accounting of a manufacturer’s performance for the economic, environmental, and social aspects of sustainability. We present an explorative case study of four Norwegian manufacturing companies representing different industries. The findings from the study indicate that while accounting for economic values is well taken care of, companies do not perform comprehensive environmental and social accounting. Furthermore, we observed a shift from a focus on sustainability issues related to the internal manufacturing process to a focus on sustainability issues for the life cycle of the product. Even though the manufacturers are at the forefront with regard to automation and control of production, with extensive use of robots giving a large amount of data, these data are not utilized towards sustainability accounting, showing that sustainability and digitalization are seen as two separate phenomena. This study sheds light on how digital data available from applied Industry 4.0 technologies could enhance sustainability accounting with limited efforts, linking sustainability and digitalization. The results provide insights for manufacturers and researchers in moving towards more sustainable operations and products.


Electronics ◽  
2021 ◽  
Vol 10 (10) ◽  
pp. 1208
Author(s):  
Francisco Alonso ◽  
Mireia Faus ◽  
Cristina Esteban ◽  
Sergio A. Useche

Technological devices are becoming more and more integrated in the management and control of traffic in big cities. The population perceives the benefits provided by these systems, and, therefore, citizens usually have a favorable opinion of them. However, emerging countries, which have fewer available infrastructures, could present a certain lack of trust. The objective of this work is to detect the level of knowledge and predisposition towards the use of new technologies in the transportation field of the Dominican Republic. For this study, the National Survey on Mobility was administered to a sample of Dominican citizens, proportional to the ONE census and to sex, age and province. The knowledge of ITS topics, as well as the use of mobile applications for mobility, are scarce; however, there was a significant increase that can be observed in only one year. Moreover, technology is, in general, positively assessed for what concerns the improvement of the traffic field, even though there is a lack of predisposition to provide one’s personal data, which is necessary for these devices. The process of technological development in the country must be backed up by laws that protect the citizens’ privacy. Thus, technologies that can improve road safety, mobility and sustainability can be implemented in the country.


2020 ◽  
Vol 11 (2) ◽  
pp. 161-170
Author(s):  
Rochman Hadi Mustofa

AbstractBig Data has become a significant concern of the world, along with the era of digital transformation. However, there are still many young people, especially in developing countries, who are not yet aware of the security of their big data, especially personal data. Misuse of information from big data often results in violations of privacy, security, and cybercrime. This study aims to determine how aware of the younger generation of security and privacy of their big data. Data were collected qualitatively by interviews and focus group discussions (FGD) from. Respondents were undergraduate students who used social media and financial technology applications such as online shopping, digital payments, digital wallet and hotel/transportation booking applications. The results showed that students were not aware enough and understood the security or privacy of their digital data, and some respondents even gave personal data to potentially scam sites. Most students are not careful in providing big data information because they are not aware of the risks behind it, socialization is needed in the future as a step to prevent potential data theft.


Author(s):  
María-Cristina Martínez-Bravo ◽  
Charo Sádaba-Chalezquer ◽  
Javier Serrano-Puche

The following research has as its starting point the previous existence of different approaches to the study of digital literacy, which reflect a specialisation by area of study as well as connections and complementarity between them. The paper analyses research from the last 50 years through 11 key terms associated with the study of this subject. The article seeks to understand the contribution of each term for an integrated conceptualisation of digital literacy. From the data science approach, the methodology used is based on a systematized review of the literature and a network analysis using Gephi. The study analyses 16,753 articles from WoS and 5,809 from Scopus, between the period of 1968 to 2017. The results present the input to each key term studied as a map of keywords and a conceptual framework in different levels of analysis; in these, we show digital literacy as a central term that connects and integrates the others, and we define it as a process that integrates all the perspectives. The conclusions emphasise the comprehensive sense of digital literacy and its social condition, as well as the transversality to human life. This research aims to understand the relationships that exist between the different areas and contribute to the debate from a meta-theoretical level, validating meta-research for this interdisciplinary purpose.


2019 ◽  
Vol 31 (5) ◽  
pp. 1509-1514
Author(s):  
Biljana Karovska-Andonovska ◽  
Zoran Jovanovski

The reforms in the communications monitoring system as part of the wider reform of the security services in the Republic of Macedonia, resulted with creation of a package of several laws whose adoption was supposed to provide the legislative basis for a system that would really work in accordance with the goals for which it was established. The communications monitoring system should provide a balanced protection of the right to security, on the one hand, and the right to privacy, on the other. Only on that way a priori primacy of the right to security over the right to privacy will it be disabled. Hence, the reforms in communications monitoring system are a precondition for the effective protection, primarily for the right to privacy and the secrecy of communications, but also for the right to personal data protection, the inviolability of the home as well as for the right to presumption of innocence. It is a complex and delicate matter where opening of a real debate through which the present deficiencies will be perceived in order to create an appropriate legal solutions was very important. However, the new Law on Interception of Communications as the most important in this area, retained a certain part of the provisions that were debatable in the previous legal solutions. The provisions regarding the model for interception of communications, which stipulates the establishment of a separate agency that mediates between the operators and the authorized bodies for interception of communications, were questionable as well. Also, new measures for monitoring communications in the interest of security and defense, as well as the provisions which regulate the disposition and delivery of metadata for security and defense, are also debatable. On the other side, the reform laws made an evident progress in a positive sense through the provisions for oversight and control over the interception of communications. With these changes, certain debatable elements have been overcome, especially those that have hindered it so far, and in some cases completely paralyzed the oversight and control over the monitoring of communications. In this paper we analyzed the debatable elements in the reform package of laws on interception of communications as well as some positive aspects contained in the provisions of the reform laws.


2021 ◽  
Vol 12 (1) ◽  
pp. 5-27
Author(s):  
Amber Joy Fensham-Smith

Abstract Home-schooling, or ‘elective home education’ (EHE) as it is more commonly known in the UK, invites contestation and controversies. Drawing on a UK-wide study of 242 families this paper explores a collection of EHE pedagogic practices within the socially situated contexts of doing everyday life. Through an application of Bernsteinian ideas, the findings surface some of the ways in which invisible pedagogies afforded children greater autonomy over the sequence and pace over their learning. It also considers how community development has helped some parents to harness the forms of capital which extend and remake new structures to strengthen the transmission of their social values. Contrary to the messages of EHE advocates, it shows that approaches inspired by unschooling are not devoid of power and control altogether. In considering the experiences of children and young people, the findings highlight the relative challenges and opportunities of transitioning from invisible pedagogies to formal qualifications in a context where access to public examinations can be difficult to achieve. Considering the tensions that these pedagogies reveal in the socialisation towards individualism, the author suggests solutions for questioning, challenging and bridging divides.


2021 ◽  
Vol 8 (2) ◽  
pp. 205395172110407
Author(s):  
Katie Shilton ◽  
Emanuel Moss ◽  
Sarah A. Gilbert ◽  
Matthew J. Bietz ◽  
Casey Fiesler ◽  
...  

Frequent public uproar over forms of data science that rely on information about people demonstrates the challenges of defining and demonstrating trustworthy digital data research practices. This paper reviews problems of trustworthiness in what we term pervasive data research: scholarship that relies on the rich information generated about people through digital interaction. We highlight the entwined problems of participant unawareness of such research and the relationship of pervasive data research to corporate datafication and surveillance. We suggest a way forward by drawing from the history of a different methodological approach in which researchers have struggled with trustworthy practice: ethnography. To grapple with the colonial legacy of their methods, ethnographers have developed analytic lenses and researcher practices that foreground relations of awareness and power. These lenses are inspiring but also challenging for pervasive data research, given the flattening of contexts inherent in digital data collection. We propose ways that pervasive data researchers can incorporate reflection on awareness and power within their research to support the development of trustworthy data science.


2021 ◽  
Vol 24 (4) ◽  
pp. 92-100
Author(s):  
Alessandra Di Cesare Merlone ◽  
Roberta Martinelli ◽  
Ornella Molteni ◽  
Angelo Selicorni

<b>Background -</b> To prevent and control the procedural pain includes an adequate analgesia and the reduction of the anxiety/distress related to the procedure itself. A useful tool that combines the analgesic and sedative effects is nitrous oxide combined in different percentages with oxygen. <br> <b>Objective -</b> The goal of this study is to evaluate the efficiency of the nitrous oxide in the management of procedural pain and distress in a paediatric environment, also considering the possibility that a pre-made solution of nitrous oxide and oxygen 50/50 could be given independently of the inmate by a properly trained nurse. <br> <b>Methods -</b> An observational study at the Paediatric First Aid Department in Sant’Anna Hospital (Como, Italy) was performed by creating a special procedure that was applied to children older than 1 year old that needed to undergo low to mild painful procedures between July 6th 2017 and December 31st 2019. The blend was dosed by a demand valve. For each procedure a form was filled in with personal data, side effects, parameters and an evaluation of the pre-procedure and post-procedure pain. All the staff then took a satisfaction questionnaire.<br> <b>Results -</b> The study corroborates that preblended nitrous oxide 50/50 is safe and efficient, and also guarantees analgesic and anxiolytic effects for a vast case of mildly painful procedures. The little use of other drugs and the absence of opioids in the treatment is likely the main reason for the absence of major side effects. <br> <b>Conclusions -</b> The collected data suggest that a 50/50 blend of nitrous oxide and oxygen is still used considering its efficiency and manageability in the procedural sedation and also confirm that using the same concentrations and avoiding combination with opioids is safe and available to properly formed nurses.


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