scholarly journals Value of Personalized Dementia-Specific Quality of Life Scales: An Explorative Study in 3 European Countries

2021 ◽  
Vol 36 ◽  
pp. 153331752110337
Author(s):  
Iris Hendriks ◽  
Raquel Demetrio ◽  
Franka J. M. Meiland ◽  
Rabih Chattat ◽  
Dorota Szcześniak ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Care Practice ◽  
Support Programme ◽  
People With Dementia ◽  
Individual Character ◽  
Moderate Dementia ◽  
The Uk ◽  
Severity Of Dementia ◽  
The Relationship

Measuring Quality of Life (QOL) can be difficult due to its individual character. To explore the value of personalized QOL measurement for people with dementia, personalized versions of two dementia-specific QOL scales (Dementia quality of Life (DQoL) and Quaility of Life in Alzheimer's Disease (QoL-AD)) were constructed. This study investigated whether the personalized measures are more valid to detect variations in QOL than their standard versions for people with mild to moderate dementia, with sufficient internal consistency. Moreover, the relationship between the personalized QOL measures and severity of dementia was investigated. Finally, the study explored the differences between countries regarding the personalized overall QOL and differences in the importance of QOL domains. This explorative one-group design study used baseline data from the MEETINGDEM study into the implementation of the Meeting Centres Support Programme in Italy, Poland and the UK. The personalized versions of the DQoL and QoL-AD were reliable, but not more valid than their standard versions. No relationship between severity of dementia and personalized QOL was found. While no differences were found between countries for the overall QOL score, some QOL domains were valued differently: people with dementia from the UK rated self-esteem, mood, physical health, energy level and the ability to do chores around the house significantly less important than people from Italy and Poland. The personalized versions of the DQoL and QoL-AD may offer dementia care practice important insights into what domains contribute most to an individual’s QOL.

Relationship Between Quality of Life of People with Dementia and Their Caregivers in Indonesia

2021 ◽  
pp. 1-10
Author(s):  
Martina Wiwie S. Nasrun ◽  
Profitasari Kusumaningrum ◽  
Petrin Redayani ◽  
Hasya Layalia Lahino ◽  
Fithriani Salma Mardhiyah ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Strong Correlation ◽  
Elderly Care ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
People With Dementia ◽  
Care Improvement ◽  
Severity Of Dementia ◽  
The Relationship

Background: Caregivers, as one of the most important roles in caring for a person with dementia, have a challenging task. Therefore, maintaining the quality of life (QoL) of caregivers is an integral part of dementia care. Objective: To explore the relationship between the QoL of people with dementia and their caregivers in Indonesia. Methods: This is a cross-sectional study using binary correlations to analyze the relationship between people with dementia and caregivers’ QoL. Conducted in Cipto Mangunkusumo Hospital in Jakarta, the subjects were 42 people diagnosed with dementia according to the PPDGJ-III (adapted from the ICD 10) and 42 primary caregivers with at least 6 hours duration of caregiving per day. The QoL of people with dementia was measured by EuroQol-5D and VAS EQ-5D, while severity of dementia was measured by MMSE. Caregivers underwent an interview using WHO Quality of Life Instrument (WHOQOL-BREF) and NPI. Results: Most caregivers were women, aged 40–70 years old. The study found caregivers’ QoL environmental domain strongly correlated with people with dementia’s QoL (r = 0.839). Severity of dementia had a strong correlation with caregivers’ QoL physical domain (r = 0.946). Age, duration of caregiving per day, period of care provided by caregivers, and caregiver’s distress had a strong correlation with caregiver QoL for specific domains. Conclusion: There was a strong correlation between people with dementia’s QoL and caregiver QoL, so in managing dementia, clinicians should consider caregivers’ wellbeing as an essential part significantly affecting the quality of elderly care improvement.

scholarly journals 454 - Quality of Life: People with Dementia and Their Caregiver in Indonesia

2020 ◽  
Vol 32 (S1) ◽  
pp. 174-174
Author(s):  
Martina Wiwie Setiawan Nasrun ◽  
Petrin Redayani ◽  
Profitasari Kusumaningrum ◽  
Hasya Layalia Lahino
Keyword(s):  
Quality Of Life ◽  
Strong Correlation ◽  
Study Objective ◽  
People With Dementia ◽  
Binary Correlation ◽  
Guilty Feeling ◽  
Severity Of Dementia ◽  
Relationship Of ◽  
The Relationship

AbstractBackground:As a psychological being, quality of life is one of the most important part to human. Many things could affect one’s quality of life, in elderly, Dementia is one of them. In 2013 approximately there were 960.000 people with dementia (PWD) in Indonesia. Caregiver who take care of PWDs’ daily activity have an important role and maybe prone to stress, guilty feeling, anger and sad due to hardship of caregiving the PWD. Therefore caregivers’ quality of life is substantial as PWDs’ quality of life.Aims:This study objective was to know the relationship of quality of life people with dementia and their caregiver in Indonesia.Methods:A descriptive-analytic study was conducted in RSUPN Dr. Ciptomangunkusumo Hospital Jakarta. Eighty four subjects were participated (42 PWD and 42 caregivers). PWD subjects were interviewed using questionnaires EQ-5D and severity of dementia measured using MMSE. Meanwhile caregivers’ QOL was measured using WHOQOL-BREF. Data was analyzed using binary correlation between PWD and Caregivers’ quality of life.Results:There was no correlation of PWD physical health and caregivers’ quality of life. However there was strong correlation between quality of health PWD and caregivers’QOL notably in environmental domain (r = 0.839). And there were also a strong correlation between PWD severity of dementia and caregiver’s QOL inphysical domain (r = 0.946). Some of caregivers’ factor influencing quality of life were age (r = 0.805), duration of caregiving each day (r = 0.362) and experience of caregiving (r = 0.927)Conclusion:Study found that the quality of health PWD had a strong correlation with caregiver’s QOL specifically in environmental domain.Internal factors related to caregiversQOL were age, duration of caregiving each day and experience of caregiving. Future study should be focused on objective measurement of quantify health quality.These findings suggest that caregivers’ quality of life also an essential part in managing dementia.

scholarly journals The Meeting Centre Support Programme: International Evaluation of a Dyadic Intervention in Dementia

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 758-758
Author(s):  
Dorota Szcześniak ◽  
Katarzyna Lion ◽  
Franka Meiland ◽  
Dawn Brooker ◽  
Elisabetta Farina ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Psychosocial Intervention ◽  
Cultural Barriers ◽  
User Evaluation ◽  
Great Satisfaction ◽  
Everyday Activities ◽  
Support Programme ◽  
People With Dementia

Abstract In Europe, 10 million people are living with dementia. Most of them reside in their own home, cared for by their loved ones. As a consequence, there is a great need to provide both, people with dementia and their carers, tailored support. The Dutch Meeting Centres Support Programme (MCSP), adaptively implemented in three European countries within the JPND-MEETINGDEM project, is an excellent example of an effective dyadic psychosocial intervention, which seems to have no cultural barriers. The mixed-methods analysis showed that participant-dyads reported great satisfaction with MCSP. People with dementia experienced improvement of their quality of life, motivation and ability to participate in everyday activities, as well as improvement in their relationship with family members. Carers felt less burdened and highly appreciated the emotional and social support they received. Repeated user evaluation shows that this dyadic support effectively helps people with dementia and their families better deal with dementia.

scholarly journals An evaluation of community-based cognitive stimulation therapy: a pilot study with an Irish population of people with dementia

2016 ◽  
Vol 34 (3) ◽  
pp. 157-167 ◽  
Author(s):  
M. E. Kelly ◽  
S. Finan ◽  
M. Lawless ◽  
N. Scully ◽  
J. Fitzpatrick ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cognitive Function ◽  
Well Being ◽  
Cognitive Stimulation ◽  
Post Intervention ◽  
Community Based ◽  
People With Dementia ◽  
Moderate Dementia ◽  
Subjective Cognitive Function

ObjectivesResearch shows that cognitive stimulation therapy (CST) improves cognitive function, quality of life, and well-being of people with mild–moderate dementia. Despite consistent evidence and recommendations, CST is not routinely available in Ireland post-diagnosis. The aim of the current research was to develop and evaluate community-based CST for people with mild–moderate dementia, run by the Alzheimer Society of Ireland across four pilot sites in Ireland.MethodsParticipants with mild–moderate dementia attended once weekly CST sessions for 14 weeks. Baseline and post-intervention assessments were completed by CST participants, carers, and CST facilitators. Primary outcomes of interest for CST participants included quality of life (Quality of Life in Alzheimer Disease Scale), cognitive function (Montreal Cognitive Assessment), and subjective cognitive function (Memory Awareness Rating Scale-Functioning Subscale). Secondary outcomes included well-being, cognitive ability, satisfaction with cognitive performance, and engagement and confidence of CST participants; well-being of carers; and job satisfaction of facilitators. Post-intervention interviews supplemented quantitative analyses.ResultsIn total, 20 CST participants, 17 carers, and six CST facilitators completed evaluation assessments. Results showed that CST improved participants’ satisfaction with cognitive performance (p=0.002), level of engagement (p=0.046), level of confidence (p=0.026). Improvements on subjective cognitive function just fell short of significance (p=0.055). Qualitative analysis of interview data identified consistent themes of cognitive and overall benefits of CST; and provided support for quantitative data.ConclusionsCommunity-based CST positively impacted the lives of people with dementia and their families. This study supports prior recommendations that CST should be made routinely available to people with mild–moderate dementia, particularly in light of the lack of post-diagnostic interventions currently offered in Ireland.

scholarly journals Quality of life of people with dementia in residential care homes

2006 ◽  
Vol 188 (5) ◽  
pp. 460-464 ◽  
Author(s):  
J. Hoe ◽  
G. Hancock ◽  
G. Livingston ◽  
M. Orrell
Keyword(s):  
Quality Of Life ◽  
Residential Care ◽  
Behaviour Problems ◽  
Strongly Correlated ◽  
Residential Homes ◽  
Effective Measure ◽  
Factors Associated ◽  
People With Dementia ◽  
The Uk

BackgroundMany people with dementia live in residential homes, but little is known about their quality of life.AimsTo compare the views of residents with dementia with the views of staff as to their quality of life, and to look at factors associated with these ratings.MethodThe Quality of Life in Alzheimer's Disease (QoL-AD) scale was used to rate residents' and staff's perceptions of the quality of life of 238 residents of 24 residential homes in the UK.ResultsThere were 119 QoL-AD scales completed by both residents and staff. For the residents, high QoL-AD scores strongly correlated with lower scores for depression (ρ=–0.53, P < 0.0001) and anxiety (ρ= –0.50, P < 0.001). In contrast, better quality of life as rated by staff correlated most strongly with increased dependency (ρ=–0.53, P < 0.001) and behaviour problems (ρ=–0.40, P < 0.001).ConclusionsThe QoL-AD could be used as an effective measure of the quality of life of people with dementia in residential homes. Whereas mood was the main predictor of residents' own assessment of their quality of life, staff ratings were strongly linked with dependency. Staff should be aware that mood rather than level of dependency has agreater impacton residents' quality of life.

Musical Playlists for Addressing Depression in People With Dementia

2019 ◽  
pp. 122-137
Author(s):  
Sandra Garrido
Keyword(s):  
Quality Of Life ◽  
Risk Factor ◽  
Cognitive Decline ◽  
Depression And Anxiety ◽  
Early Symptom ◽  
People With Dementia ◽  
Negative Thoughts ◽  
The Relationship ◽  
Negative Memories

Depression is common in most forms of dementia. The relationship appears to be bi-directional, with depression being both a prodromal (or early) symptom and a risk factor for developing dementia. Depression and anxiety can also contribute to accelerated cognitive decline and reduced quality of life in people with dementia. This chapter will outline the relationship between depression and dementia and consider the use of personalized musical playlists to address depression in people with dementia. Although listening to music is a powerful means for improving mood among certain groups, people with depression and people with dementia appear to be vulnerable to music triggering negative thoughts or negative memories. Both the benefits and the risks to be considered in playlist selection will be discussed.

scholarly journals Quality of Life and Well-being of Carers of People With Dementia: Are There Differences Between Working and Nonworking Carers? Results From the IDEAL Program

2020 ◽  
pp. 073346482091786
Author(s):  
Rachel Clarke ◽  
Nicolas Farina ◽  
Henglien Lisa Chen ◽  
Jennifer M. Rusted ◽  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Well Being ◽  
Relative Contribution ◽  
People With Dementia ◽  
Caregiver Experiences ◽  
Working Status ◽  
Supported Work ◽  
Severity Of Dementia

The aim of this study was to identify the differences in quality of life (QoL) and well-being between working and nonworking dementia carers and the relative contribution of psychological characteristics, caregiving experience, and social support. Multiple regressions modeled the contribution of working status, caregiver experiences, and psychological and social resources to carer QoL (EQ-5D) and well-being (WHO-5). After controlling for age, gender, carer–dyad relationship, and severity of dementia, working status contributed significant variance to EQ-5D (2%) but not to WHO-5 scores. Independent of working status, higher self-esteem and reduced stress contributed to variance in both models. Self-efficacy, social support, and positive perceptions of caregiving additionally contributed to higher WHO-5 scores. Working status associated with higher EQ-5D QoL; this may reflect the sustained sense of independence associated with supported work opportunities for carers. Outside of working status, the findings support the importance of psychological and social factors as targets to improved mental health for dementia carers.

scholarly journals LIVING ALONE WITH DEMENTIA: FINDINGS FROM THE IDEAL COHORT

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S40-S40
Author(s):  
Linda Clare ◽  
Linda Clare ◽  
Anthony Martyr ◽  
Catherine Quinn ◽  
Christina Victor ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Satisfaction With Life ◽  
Living Alone ◽  
Cross Sectional ◽  
Functional Difficulties ◽  
The Past ◽  
Moderate Dementia ◽  
The Uk ◽  
The Ideal

Abstract We aimed to better understand the profile of people living alone with mild-to-moderate dementia in the UK and to identify any systematic differences between those living alone and those living with others. We analysed cross-sectional data from 1541 people with mild-to-moderate dementia participating in the IDEAL cohort at the first wave of assessment. There were 285 participants (18.5%) living alone and 1256 (81.5%) living with others, usually a spouse/partner. Among those living alone, 145 (50.9%) had no care partner participating in the study, and 56 (19%) had received no help from a relative or friend in the past week. People living alone were older on average than those living with others, reported fewer functional difficulties, had slightly smaller social networks, engaged in fewer cultural activities, and experienced slightly more loneliness. People living alone had lower satisfaction with life scores, but quality of life scores did not differ between the groups.

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