Relationship Between Quality of Life of People with Dementia and Their Caregivers in Indonesia

2021 ◽  
pp. 1-10
Author(s):  
Martina Wiwie S. Nasrun ◽  
Profitasari Kusumaningrum ◽  
Petrin Redayani ◽  
Hasya Layalia Lahino ◽  
Fithriani Salma Mardhiyah ◽  
...  

Background: Caregivers, as one of the most important roles in caring for a person with dementia, have a challenging task. Therefore, maintaining the quality of life (QoL) of caregivers is an integral part of dementia care. Objective: To explore the relationship between the QoL of people with dementia and their caregivers in Indonesia. Methods: This is a cross-sectional study using binary correlations to analyze the relationship between people with dementia and caregivers’ QoL. Conducted in Cipto Mangunkusumo Hospital in Jakarta, the subjects were 42 people diagnosed with dementia according to the PPDGJ-III (adapted from the ICD 10) and 42 primary caregivers with at least 6 hours duration of caregiving per day. The QoL of people with dementia was measured by EuroQol-5D and VAS EQ-5D, while severity of dementia was measured by MMSE. Caregivers underwent an interview using WHO Quality of Life Instrument (WHOQOL-BREF) and NPI. Results: Most caregivers were women, aged 40–70 years old. The study found caregivers’ QoL environmental domain strongly correlated with people with dementia’s QoL (r = 0.839). Severity of dementia had a strong correlation with caregivers’ QoL physical domain (r = 0.946). Age, duration of caregiving per day, period of care provided by caregivers, and caregiver’s distress had a strong correlation with caregiver QoL for specific domains. Conclusion: There was a strong correlation between people with dementia’s QoL and caregiver QoL, so in managing dementia, clinicians should consider caregivers’ wellbeing as an essential part significantly affecting the quality of elderly care improvement.

2020 ◽  
Vol 32 (S1) ◽  
pp. 174-174
Author(s):  
Martina Wiwie Setiawan Nasrun ◽  
Petrin Redayani ◽  
Profitasari Kusumaningrum ◽  
Hasya Layalia Lahino

AbstractBackground:As a psychological being, quality of life is one of the most important part to human. Many things could affect one’s quality of life, in elderly, Dementia is one of them. In 2013 approximately there were 960.000 people with dementia (PWD) in Indonesia. Caregiver who take care of PWDs’ daily activity have an important role and maybe prone to stress, guilty feeling, anger and sad due to hardship of caregiving the PWD. Therefore caregivers’ quality of life is substantial as PWDs’ quality of life.Aims:This study objective was to know the relationship of quality of life people with dementia and their caregiver in Indonesia.Methods:A descriptive-analytic study was conducted in RSUPN Dr. Ciptomangunkusumo Hospital Jakarta. Eighty four subjects were participated (42 PWD and 42 caregivers). PWD subjects were interviewed using questionnaires EQ-5D and severity of dementia measured using MMSE. Meanwhile caregivers’ QOL was measured using WHOQOL-BREF. Data was analyzed using binary correlation between PWD and Caregivers’ quality of life.Results:There was no correlation of PWD physical health and caregivers’ quality of life. However there was strong correlation between quality of health PWD and caregivers’QOL notably in environmental domain (r = 0.839). And there were also a strong correlation between PWD severity of dementia and caregiver’s QOL inphysical domain (r = 0.946). Some of caregivers’ factor influencing quality of life were age (r = 0.805), duration of caregiving each day (r = 0.362) and experience of caregiving (r = 0.927)Conclusion:Study found that the quality of health PWD had a strong correlation with caregiver’s QOL specifically in environmental domain.Internal factors related to caregiversQOL were age, duration of caregiving each day and experience of caregiving. Future study should be focused on objective measurement of quantify health quality.These findings suggest that caregivers’ quality of life also an essential part in managing dementia.


2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Sarah Raes ◽  
Sophie Vandepitte ◽  
Delphine De Smedt ◽  
Herlinde Wynendaele ◽  
Yannai DeJonghe ◽  
...  

Abstract Background Knowledge about the relationship between the residents’ Quality of Life (QOL) and the nursing home price is currently lacking. Therefore, this study investigates the relationship between 11 dimensions of QOL and nursing homes price in Flemish nursing homes. Methods The data used in this cross-sectional study were collected by the Flemish government from years 2014 to 2017 and originates from 659 Flemish nursing homes. From 2014 to 2016, data on the QOL of 21,756 residents was assessed with the InterRAI instrument. This instrument contains 11 QOL dimensions. Multiple linear regression analyses were conducted to examine the research question. Results The multiple linear regressions indicated that a 10 euro increase in the daily nursing home price is associated with a significant decrease (P <  0.001) of 0.1 in 5 dimensions of QOL (access to services, comfort and environment, food and meals, respect, and safety and security). Hence, our results indicate that the association between price and QOL is very small. When conducting a subgroup analysis based on ownership type, the earlier found results remained only statistically significant for private nursing homes. Conclusion Our findings show that nursing home price is of limited importance with respect to resident QOL. Contrary to popular belief, our study demonstrates a limited negative effect of price on QOL. Further research that includes other indicators of QOL is needed to allow policymakers and nursing home managers to improve nursing home residents’ QOL.


2019 ◽  
Vol 31 (4) ◽  
pp. 213-218 ◽  
Author(s):  
Nooshin Masoudian ◽  
Mohammad Sarmadi ◽  
Rasool Najafi ◽  
Fereshteh Najafi ◽  
Shirin Maleki

The purpose of this study was to investigate the relationship between Burden of Care and Quality of Life in informal home caregivers of stroke patients in Iran. Also we were trying to explore the factors that affect the burden of care. In this cross-sectional study, we have selected 62 informal home caregivers of the patients admitted to “the stroke outpatient unit of the neurology clinic” of the central hospital in Semnan province, Iran, to take part in the investigation. We interviewed them using the Caregiver Burden Inventory and SF-36 Questionnaire for assessing their quality of life. There was a negative and significant correlation between different aspects of quality of life and burden of care. In the bivariate regression model, being married and having lower levels of education (minimum years of schooling) were associated with higher levels of the burden. Our study shows that increasing burden of care in informal home caregivers reduces the quality of life in all domains. Thus, the results of this study indicate that an increase in the burden of caregiving on caregivers lowers their quality of life in all aspects; especially, caregivers who provide care to their spouses encountered more burden. Therefore, these caregivers must be in the center of interest while planning to reduce the burden of care.


2019 ◽  
Vol 28 (2) ◽  
pp. 242
Author(s):  
Samira Jafari ◽  
Fatemeh Shojaei ◽  
Maryam Puryaghoob ◽  
Malihe Babahaji ◽  
SomayyeGhavipanje Rezaei

2020 ◽  
Vol 30 (4) ◽  
pp. 217-223
Author(s):  
Ismail Toygar ◽  
Öznur Usta Yeşilbalkan ◽  
Merve Kürkütlü ◽  
Tuğba Akgün

Introduction: Improving the Quality of Life (QoL) is considered one of the main objectives in the care of cancer patients. Achieving this objective, it is essential to determine the factors affecting QoL in cancer patients. The studies in the literature have determined the effects of various factors on QoL but social support from family has remained to be studied.  Objective: The present study aimed to determine the relationship between perceived social support from family and QoL in cancer patients. Materials and Methods: This cross-sectional study was conducted in an oncology unit of a university hospital in İzmir City, Turkey, from March to October 2019. A convenience sample of 276 cancer patients participated in the study. A patient identification form, the Perceived Social Support from family scale (PSS-Family), and the Quality of Life index-cancer version (QLI-C) were used for data collection. The scores of PSS-Family and QLI-C range from 0 to 20 and from 66 to 396, respectively. Regression analysis was used to estimate the effect of perceived social support from family on QoL. Results: Of the participants, 65.2% were female. The Mean±SD age of the study sample was 47.5±14.4 years. Also, the Mean±SD scores of PSS-Family and QLI-C were 16.43±3.01 and 307.77±27.48, respectively. Regression analysis revealed that perceived social support from family was associated with a relative increase in QoL index (B=3.44, P=0.001, R2=0.141). Conclusion: Perceived social support from family is positively associated with QoL in cancer patients. Nurses should consider this relationship when they plan to improve the QoL of cancer patients.


2016 ◽  
Vol 64 (2) ◽  
pp. 181
Author(s):  
Arsenio Hidalgo Troya ◽  
Amanda Pantoja Córdoba ◽  
Pamela Sañudo Vélez ◽  
Anderson Rocha-Buelvas

<p>Introduction. Coping, regarded as the set of responses to stressful situations, executed to handle and neutralize them, is part of the psychological resources of human beings and it is a personal trait evidenced as intervening in terms of perceived quality of life. Objective. To determine the relationship between coping strategies and quality of life in cancer patients at different stages of their cancer condition at an oncology unit in the province of Nariño, Colombia. Materials and Methods. Cross-sectional study in a sample of 120 cancer patients attending in COEMSSANAR IPS, located in Pasto, Nariño. Results. It was observed that the most adopted type of coping was “positive attitude”, followed by “positive guidance”, while the least adopted ones were “anxious care” and “hopeless”. As for quality of life, it is evidenced that is favorable for this population. The relationship between coping and quality of life is different for each stage of cancer. Patients with better coping are those with higher quality of life. Conclusion. A greater effort of the State and the institutions providing health services for the adoption of coping strategies in patients affected by cancer at all stages would significantly improve the quality of life of these people.</p>


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