scholarly journals Looking after yourself: Clinical understandings of chronic-care self-management strategies in rural and urban contexts of the United Kingdom and Australia

2014 ◽  
Vol 2 ◽  
pp. 205031211453263 ◽  
Author(s):  
Susan Mary Carr ◽  
Penny Paliadelis ◽  
Monique Lhussier ◽  
Natalie Forster ◽  
Simon Eaton ◽  
...  
Autism ◽  
2021 ◽  
pp. 136236132110072
Author(s):  
Elizabeth Halstead ◽  
Emma Sullivan ◽  
Zoe Zambelli ◽  
Jason G Ellis ◽  
Dagmara Dimitriou

Sleep problems are one of the most common complaints in autistic adults. This study aimed to report the perspectives of autistic adults in the United Kingdom on treatment of their sleep problems. A total of 288 autistic adults living in the United Kingdom completed an online survey including assessments of their sleep quality using the Pittsburgh Sleep Quality Index, reporting their experiences and preferences of sleep treatment with UK healthcare professionals and, their experiences of self-management of their sleep. Self-report data revealed 58% of participants had not attended a consultation with a healthcare professional regarding their sleep problem despite 90% meeting the criteria for poor sleep quality (based on the Pittsburgh Sleep Quality Index). Of the participants who attended a consultation for their sleep, 72% were prescribed medication and 60% were not satisfied with the outcome. Self-management of sleep problems was not effective for 80% of participants; 41% reported a preference for non-medication options such as education, advice and talking therapies for sleep treatment. This report highlights the need for a fundamental shift in the consideration of sleep problems in autistic adults given the high levels of co-morbidity. The development of successful management strategies in adulthood that importantly considering autistic adults’ preferences could reduce sleep problems and overall improve quality of life for autistic adults. Long term this could also reduce the need for prescribed medication in this population. Lay abstract Sleep problems are one of the most common complaints by autistic adults. This study aimed to report the perspectives of autistic adults on treatment of their sleep problems; 288 autistic adults living in the United Kingdom completed an online survey which assessed their sleep quality. We also gathered data on experiences and preferences of sleep treatment with UK healthcare professionals and their experiences of self-management of their sleep; 58% of autistic adults never had a visit with a healthcare professional regarding their sleep problem, despite 90% meeting the criteria for poor sleep quality. Some of those who attended a consultation for their sleep were prescribed medication (72%), but 60% were not satisfied with the outcome. The participants also reported that sleep self-management was not effective (80%); 41% reported a preference for non-medication including education, advice and talking therapies for sleep treatment. This report highlights the need for a fundamental shift in treatment of sleep problems in autistic adults. The current treatments are not resolving sleep issues; hence, it is imperative to develop management strategies that considers autistic adults’ preferences, reduces sleep problems and thus improves quality of life for autistic adults.


2015 ◽  
Vol 10 (1) ◽  
pp. 161-164 ◽  
Author(s):  
John Walsh ◽  
Allan Graeme Swan

ABSTRACTThe process for developing national emergency management strategies for both the United States and the United Kingdom has led to the formulation of differing approaches to meet similar desired outcomes. Historically, the pathways for each are the result of the enactment of legislation in response to a significant event or a series of events. The resulting laws attempt to revise practices and policies leading to more effective and efficient management in preparing, responding, and mitigating all types of natural, manmade, and technological hazards. Following the turn of the 21st century, each country has experienced significant advancements in emergency management including the formation and utilization of 2 distinct models: health care coalitions in the United States and resiliency forums in the United Kingdom. Both models have evolved from circumstances and governance unique to each country. Further in-depth study of both approaches will identify strengths, weaknesses, and existing gaps to meet continued and future challenges of our respective disaster health care systems. (Disaster Med Public Health Preparedness. 2016;10:161–164)


1990 ◽  
Vol 4 (1) ◽  
pp. 141-149 ◽  
Author(s):  
Jodie S. Holt ◽  
Homer M. Lebaron

Herbicide-resistant weed species have become widespread in recent years. Fifty-five weed species, including 40 dicots and 15 grasses, are known to have biotypes resistant to the triazine herbicides. One or more resistant species have arisen in 31 states of the United States, four provinces of Canada, 18 countries in Europe, and Israel, Japan, Australia, and New Zealand. Resistance to other classes of herbicides is more restricted in distribution and recent in detection but is becoming more widespread. Trifluralin resistance has spread in the southeastern United States and has been detected in Canada, while 11 species with biotypes resistant to paraquat have been reported around the world. Diclofop-methyl-resistant weed species are problems in cereal production in Australia and have been found in Oregon, South Africa, and the United Kingdom. Resistance to the substituted ureas also is present in the United Kingdom, West Germany, and Hungary. Within the last 2 yr, biotypes of at least four weed species resistant to the sulfonylurea herbicides have arisen following several annual applications of these herbicides in wheat. Some resistant biotypes have multiple resistance to different classes of herbicides, which greatly exacerbates the threat of resistance. Herbicide resistance has reached the level where more concerted efforts are needed in research, education, and development of effective management strategies to preserve herbicides as essential tools of agricultural technology.


2020 ◽  
Author(s):  
Javeria Saleem ◽  
Muhammad Ishaq ◽  
Rubeena Zakar ◽  
Imran Hussain Khan Suddahazai ◽  
Florian Fischer

Abstract Background: This study aims to explore the experiences, beliefs, feelings and challenges faced by Pakistani migrant doctors working in the United Kingdom in times of the COVID-19 pandemic. This qualitative approach was chosen to document their lived experiences and to develop a post-COVID-19 response to help them recover from their shared and individual traumas.Methods: An empirical phenomenological approach was used to collate data on experiences made during the COVID-19 pandemic. Purposive and snowball sampling was used to target participants, which were doctors of Pakistani origin involved in the direct care and management of COVID-19 patients in different NHS hospitals of the United Kingdom. Semi-structured, in-depth telephonic interviews were conducted with study participants in May 2020. Data collection was done parallel with data analysis by using standard qualitative methods.Results: We recruited ten frontline physicians. Four theme categories emerged from the data analysis: 1) Working across borders and cultures, 2) Role of beliefs for coping stress and fear, 3) Passion and profession, and 4) Scaffolding the Pakistani health system. Overall, the results show that the participants received no professional support, in terms of counselling and psychological rehabilitation. Instead, they had to use self-management strategies to cope with the situation. Conclusion: The intensive work exhausted participants physically and emotionally. They were holding a lot of grief and hurt inside; but still healthcare professionals showed the spirit of professional dedication to overcome difficulties. Although currently coping with their emotional problems, comprehensive professional support should be made available to them in order to cater for the wellbeing of frontline physicians.


2016 ◽  
Vol 48 (2) ◽  
pp. 119-132 ◽  
Author(s):  
Tom Christensen ◽  
Martin Lodge

Societal security poses fundamental challenges for the doctrines of accountability and transparency in government. At least some of the national security state’s effectiveness requires a degree of non-transparency, raising questions about legitimacy. This article explores in cross-national and cross-sectoral perspective, how organizations seek to manage their reputation by accounting for their activities. This article contributes in three main ways. First, it highlights how distinct tasks facilitate and constrain certain reputation management strategies. Second, it suggests that these reputational considerations shape the way in which organizations can give account. Third, it considers three domains associated with societal security, namely intelligence, flood defense, and food safety, in five European countries with different state traditions—the United Kingdom, Germany, Denmark, Sweden, and Norway. By using a “web census,” this article investigates cross-sectoral and cross-national variation in the way organizations seek to account for their activities and manage their reputation. This article finds variation across tasks to be more dominant than national variation.


2000 ◽  
Vol 79 (3) ◽  
pp. 206-209 ◽  
Author(s):  
V.V. Raut ◽  
M.W. Yung

Although peritonsillar abscess (quinsy) and peritonsillitis are common ENT emergencies, management strategies in the United Kingdom still vary among otolaryngologists. In order to obtain data on the success of the various strategies, we conducted two surveys—one concerned itself with patient outcomes, while the other sought information on physician preferences. The survey of 571 practicing ENT surgeons revealed that 83% advise interval tonsillectomy only for patients who have a history of tonsillitis; they prefer to take a wait-and-see approach for a single attack of quinsy. Conversely, 15% advise a routine interval tonsillectomy following even a single isolated attack of quinsy/peritonsillitis. Only 6.8% still perform a quinsy tonsillectomy in selected cases. Survey responses from 192 adults and 15 children who had been hospitalized for the treatment of quinsy/peritonsillitis revealed that the vast majority of patients who did not undergo an interval tonsillectomy were still asymptomatic 2 to 8 years later. These results indicate that a wait-and-see policy is indeed suitable for most patients who present with an isolated attack of quinsy/peritonsillitis without a history of tonsillitis. We recommend that tonsillectomy be performed as a definitive treatment for quinsy/peritonsillitis in patients who have a history of tonsillitis. Such a history is a reliable indicator of recurrent quinsy or tonsillitis following an attack of quinsy/peritonsillitis in both children and adults. Quinsy tonsillectomy should be reserved for those few patients who do not respond to conservative measures.


2019 ◽  
Author(s):  
Handrean Soran ◽  
Michael Stevenson ◽  
Brant Hubbard ◽  
Richard Jones ◽  
Basil Issa

Abstract Background: Familial chylomicronemia syndrome (FCS) is a rare genetic disorder associated with a deficiency in lipoprotein lipase activity, which is characterized by severe hypertriglyceridemia, recurrent abdominal pain and episodes of acute pancreatitis. Investigation of Findings and Observations Captured in Burden of Illness Survey in FCS Patients (IN-FOCUS) assessed the impact of FCS on patient quality of life (QoL) and quantified the burden of illness attributable to FCS for 166 patients in 10 countries. Given the lack of data to support value-based treatment of FCS in the United Kingdom (UK), a prespecified sub analysis of respondents from the UK was performed to evaluate country-specific experiences for patients with FCS and any associated outcomes. Methods: A web-based survey captured information on diagnostic experience, symptoms, comorbidities, disease management, and impact on multiple life dimensions from adults living with FCS. Results: Twenty respondents from the UK completed the survey. Three-quarters indicated that FCS limits their life and significant time and energy is required to manage their FCS. Respondents reported moderate physical symptoms 1–3 times every 2 weeks, all respondents reported worrying about their FCS getting worse with age and 85% worrying about the long-term impact of FCS on their health. Only 3 respondents (15%) reported working full-time,53% of respondents reported that their diminished employment was largely or entirely due to FCS. Furthermore, 90% of respondents reported restricting their dietary fat consumption to an extreme degree and 75% reported using fasting to help manage the symptoms of FCS, suggesting a level of overcompensation. Only one of five women reported a pregnancy. The UK data was largely consistent with the overall study, except for an increased prevalence of worry and differences in disease management. Conclusions: FCS is associated with an ongoing physical and emotional burden that negatively impacts QoL for patients in the UK. Attempts to self-manage FCS may increase the burden of disease. Results from the UK sub analysis are consistent with the overall cohort of IN-FOCUS in suggesting that increased disease awareness and improved management strategies for FCS are required.


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