Feasibility of ActivABLES to promote home-based exercise and physical activity of community-dwelling stroke survivors with support from caregivers: A mixed methods study

BACKGROUND Technical applications can promote home-based exercise and physical activity of community-dwelling stroke survivors to improve function and decrease physical inactivity and sedentary behavior. Informal caregivers are often able and willing to assist with home-based exercise and physical activity but may lack knowledge and practical resources. ActivABLES is an international collaboration which was established to promote home-based exercise and physical activity among community-dwelling stroke survivors, with support from their caregivers. OBJECTIVE The aim of this study is to investigate the feasibility of ActivABLES in terms of acceptability, demand, implementation and practicality. METHODS We conducted a mixed methods study with 10 community-dwelling stroke survivors, including five women and five men, with the median age of 72 years, who used ActivABLES for four weeks with support from their caregivers (seven women and three men, median age 68 years). Data collection included quantitative functional standardized measures of the stroke survivors before and after the 4-week use. Additionally, qualitative data was collected through individual semi-structured interviews with the stroke survivors and their caregivers after the 4-week use. Quantitative and qualitative data were also collected during the 4-week use. Descriptive statistics were used to analyze quantitative data and Wilcoxon signed rank test was used to analyze changes between the measures before and after the 4-week use. Qualitative data were analyzed with direct content analysis to identify subcategories to define the data further in context with the predetermined categories. RESULTS Acceptability was identified in four subcategories: appreciation, functional improvements, self-initiated activities and expressed potential use for future stroke survivors. Functional improvements of the stroke survivors were confirmed by quantitative and qualitative data and some mentioned changes in physical activity and self-initiated activities. All participants described ActivABLES to be feasible and to have potential for future stroke survivors. Demand was identified in three subcategories: reported use, interest in further use and need for follow-up. Most of the stroke survivors did follow the recommendation of using ActivABLES, confirmed by quantitative and qualitative data and showed interest in further use. Implementation was identified in three subcatagories: importance of feedback, variety of exercises and progression of exercises. Visual feedback was thought to be important and encouraging for continuing. About half of the stroke survivors felt that there was a lack of variation in exercises and about half used the progression of exercises. Practicality was identified in two subcatagories: need for support and technical problems. All participants agreed there was little need for support while using ActivABLES and the stroke survivors only needed minor assistance. All particants experienced some technical problems. CONCLUSIONS The results from this study indicate that ActivABLES is feasible and can be a good asset for stroke survivors with slight or moderate disability to use in their homes.

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ActivABLES, a tangible interaction to promote home-based exercise and physical activity of community-dwelling stroke survivors: A development paper (Preprint)

10.2196/preprints.14573 ◽

2019 ◽

Author(s):

Steinunn Olafsdottir ◽

Helga Jónsdóttir ◽

Charlotte Magnusson ◽

Héctor Caltenco ◽

Mikko Kytö ◽

...

Keyword(s):

Physical Activity ◽

Feasibility Study ◽

Development Process ◽

Informal Caregivers ◽

Community Dwelling ◽

Stroke Survivors ◽

Home Based ◽

Balance Exercises ◽

Mrc Framework ◽

Human Centred Design

BACKGROUND Novel technical solutions are called for to promote home-based exercise and facilitate engagement in physical activity among community-dwelling stroke survivors supported by their caregivers in the home environment. Lack of knowledge and resources on what to do and how to accomplish this has been demonstrated. OBJECTIVE To describe in detail the development of a technical intervention, ActivABLES, to promote home-based exercise and physical activity engagement of community-dwelling stroke survivors with support from their informal caregivers. METHODS Technical development process of ActivABLES was guided by Human-Centred Design and participatory design/co-design as well as the Medical Research Council (MRC) framework for the development and evaluation of complex interventions. The main steps included: (a) Synthesis of the evidence supported the inclusion of balance exercises, mobility and walking exercises, exercises for the upper arm and means to decrease sedentary behavior; b) Initial user studies with qualitative data collection from individual interviews with stroke survivors and focus group interviews with informal caregivers and health professionals; c) Preliminary testing of eight prototypes with seven stroke survivors and their informal caregivers which included introduction and testing of the prototypes; d) Feasibility study of six prototypes with ten stroke survivors and their informal caregivers which included use of ActivABLES for four weeks. RESULTS After the preliminary testing of eight prototypes, four prototypes were not further developed whereas four prototypes were modified further. In addition, two new prototypes were developed, leaving six prototypes constructed for use in the feasibility study. These included: 1) ActivFOAM, a soft mat for balance exercises, 2) WalkingSTARR, an iPhone application to facilitate walking, 3) ActivBALL, a soft ball for hand exercises, 4) ActivSTICKS, two linked plastic sticks for upper arm exercises and trunk rotation and 5) the ActivLAMP and 6) the ActivTREE which both give visual feedback (lights) for progress of daily exercise and physical activities. ActivFOAM, ActivBALL and ActivSTICKS are all connected to a tablet where exercise instructions are given. All the exercise prototypes can be connected to ActivLAMP and ActivTREE to give feedback on how much exercise the user has done. Settings can be individualized and recommended daily time and/or repetition can easily be changed as the user further progresses to higher activity levels. CONCLUSIONS The development process of ActivABLES was guided by the human-centred design, with iterative testing of future users, and the MRC framework of complex intervention, with repeated process of development and testing. This process resulted in six prototypes which aim to promote home-based exercise and facilitate physical activity engagement of community-dwelling stroke survivors and were used in a feasibility study. Further research with a larger sample of stroke survivors and a more robust design is needed to substantiate these results.

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Type 2 diabetes patients’ views on prevention of hypoglycaemia – a mixed methods study investigating self-management issues and self-identified causes of hypoglycaemia

BMC Family Practice ◽

10.1186/s12875-021-01466-0 ◽

2021 ◽

Vol 22 (1) ◽

Author(s):

Stijn Crutzen ◽

Tessa van den Born-Bondt ◽

Petra Denig ◽

Katja Taxis

Keyword(s):

Physical Activity ◽

Type 2 Diabetes ◽

Mixed Methods ◽

Food Intake ◽

Mixed Methods Study ◽

Self Management ◽

Hypoglycaemic Event ◽

Glucose Levels ◽

Management Issues

Abstract Background Hypoglycaemia is a common and potentially avoidable adverse event in people with type 2 diabetes (T2D). It can reduce quality of life, increase healthcare costs, and reduce treatment success. We investigated self-management issues associated with hypoglycaemia and self-identified causes of hypoglycaemia in these patients. Methods In this mixed methods study qualitative semi-structured interviews were performed, which informed a subsequent quantitative survey in T2D patients. All interviews were audio recorded, transcribed verbatim and coded independently by two coders using directed content analysis, guided by the Theoretical Domains Framework. Descriptive statistics were used to quantify the self-management issues and causes of hypoglycaemia collected in the survey for the respondents that had experienced at least one hypoglycaemic event in the past. Results Sixteen participants were interviewed, aged 59–84 years. Participants perceived difficulties in managing deviations from routine, and they sometimes lacked procedural knowledge to adjust medication, nutrition or physical activity to manage their glucose levels. Grief and loss of support due to the loss of a partner interfered with self-management and lead to hypoglycaemic events. Work ethic lead some participant to overexerting themselves, which in turn lead to hypoglycaemic events. The participants had difficulties preventing hypoglycaemic events, because they did not know the cause, suffered from impaired hypoglycaemia awareness and/or did not want to regularly measure their blood glucose. When they did recognise a cause, they identified issues with nutrition, physical activity, stress or medication. In total, 40% of respondents reported regular stress as an issue, 24% reported that they regularly overestimated their physical abilities, and 22% indicated they did not always know how to adjust their medication. Around 16% of patients could not always remember whether they took their medication, and 42% always took their medication at regular times. Among the 83 respondents with at least one hypoglycaemic event, common causes for hypoglycaemia mentioned were related to physical activity (67%), low food intake (52%), deviations from routine (35%) and emotional burden (28%). Accidental overuse of medication was reported by 10%. Conclusion People with T2D experience various issues with self-managing their glucose levels. This study underlines the importance of daily routine and being able to adjust medication in relation to more physical activity or less food intake as well as the ability to reduce and manage stress to prevent hypoglycaemic events.

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BaSAlt — A mixed-methods study protocol on setting-based physical activity promotion and counseling in nursing homes

Contemporary Clinical Trials Communications ◽

10.1016/j.conctc.2021.100828 ◽

2021 ◽

pp. 100828

Author(s):

A. Thiel ◽

G. Sudeck ◽

A. Niess ◽

G.W. Eschweiler ◽

D. Altmeier ◽

...

Keyword(s):

Physical Activity ◽

Mixed Methods ◽

Nursing Homes ◽

Study Protocol ◽

Physical Activity Promotion ◽

Mixed Methods Study ◽

Activity Promotion

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Personal and social factors that influence physical activity levels in community-dwelling stroke survivors: A systematic review of qualitative literature

Clinical Rehabilitation ◽

10.1177/0269215521993690 ◽

2021 ◽

pp. 026921552199369

Author(s):

Karl R Espernberger ◽

Natalie A Fini ◽

Casey L Peiris

Keyword(s):

Physical Activity ◽

Social Factors ◽

Self Efficacy ◽

Data Extraction ◽

Community Dwelling ◽

Stroke Survivors ◽

Activity Levels ◽

Post Stroke ◽

Physical Activity Levels ◽

Mobile Community

Objectives: To determine the personal and social factors perceived to influence physical activity levels in stroke survivors. Data sources: Four electronic databases (MEDLINE, CINAHL, PubMed and Embase) were searched from inception to November 2020, including reference and citation list searches. Study selection: The initial search yielded 1499 papers, with 14 included in the review. Included articles were peer-reviewed, qualitative studies, reporting on the perceived factors influencing physical activity levels of independently mobile community-dwelling adults, greater than 3 months post stroke. Data extraction: Data extracted included location, study aim, design, participant and recruitment information and how data were collected and analysed. Data synthesis: Thematic analysis was undertaken to identify meanings and patterns, generate codes and develop themes. Five main themes were identified: (i) Social networks are important influencers of physical activity; (ii) Participation in meaningful activities rather than ‘exercise’ is important; (iii) Self-efficacy promotes physical activity and physical activity enhances self-efficacy; (iv) Pre-stroke identity related to physical activity influences post-stroke physical activity; and (v) Formal programmes are important for those with low self-efficacy or a sedentary pre-stroke identity. Conclusions: Physical activity levels in stroke survivors are influenced by social activities and support, pre-stroke identity, self-efficacy levels and completion of activities that are meaningful to stroke survivors.

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Perseverance with technology-facilitated home-based upper limb practice after stroke: a systematic mixed studies review

Journal of NeuroEngineering and Rehabilitation ◽

10.1186/s12984-021-00819-1 ◽

2021 ◽

Vol 18 (1) ◽

Author(s):

Bridee A. Neibling ◽

Sarah M. Jackson ◽

Kathryn S. Hayward ◽

Ruth N. Barker

Keyword(s):

Mixed Methods ◽

Upper Limb ◽

Stroke Survivors ◽

Full Potential ◽

Design Strategies ◽

Home Based ◽

Mixed Studies Review ◽

Assess Quality ◽

Surrogate Measures ◽

Systematic Mixed Studies Review

Abstract Background Technology is being increasingly investigated as an option to allow stroke survivors to exploit their full potential for recovery by facilitating home-based upper limb practice. This review seeks to explore the factors that influence perseverance with technology-facilitated home-based upper limb practice after stroke. Methods A systematic mixed studies review with sequential exploratory synthesis was undertaken. Studies investigating adult stroke survivors with upper limb disability undertaking technology-facilitated home-based upper limb practice administered ≥ 3 times/week over a period of ≥ 4 weeks were included. Qualitative outcomes were stroke survivors’ and family members’ perceptions of their experience utilising technology to facilitate home-based upper limb practice. Quantitative outcomes were adherence and dropouts, as surrogate measures of perseverance. The Mixed Methods Appraisal Tool was used to assess quality of included studies. Results Forty-two studies were included. Six studies were qualitative and of high quality; 28 studies were quantitative and eight were mixed methods studies, all moderate to low quality. A conceptual framework of perseverance with three stages was formed: (1) getting in the game; (2) sticking with it, and; (3) continuing or moving on. Conditions perceived to influence perseverance, and factors mediating these conditions were identified at each stage. Adherence with prescribed dose ranged from 13 to 140%. Participants were found to be less likely to adhere when prescribed sessions were more frequent (6–7 days/week) or of longer duration (≥ 12 weeks). Conclusion From the mixed methods findings, we propose a framework for perseverance with technology-facilitated home-based upper limb practice. The framework offers opportunities for clinicians and researchers to design strategies targeting factors that influence perseverance with practice, in both the clinical prescription of practice and technology design. To confirm the clinical utility of this framework, further research is required to explore perseverance and the factors influencing perseverance. Registration: PROSPERO CRD42017072799—https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=72799

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