scholarly journals iPSYcare: the development of a linked electronic medical records database to study and optimize psychiatric care in Antwerp

2021 ◽  
Vol 14 (1) ◽  
Author(s):  
Eva Rens ◽  
Joris Michielsen ◽  
Geert Dom ◽  
Roy Remmen ◽  
Kris Van den Broeck

Abstract Objective The study of care trajectories of psychiatric patients across hospitals was previously not possible in Belgium as each hospital stores its data autonomously, and government-related registrations do not contain a unique identifier or are incomplete. A new longitudinal database called iPSYcare (Improved Psychiatric Care and Research) was therefore constructed in 2021, and links the electronic medical records of patients in psychiatric units of eight hospitals in the Antwerp Province, Belgium. The database provides a wide range of information on patients, care trajectories and delivered care in the region. In a first phase, the database will only contain information about adult patients who were admitted to a hospital or treated by an outreach team and who gave explicit consent. In the future, the database may be expanded to other regions and additional data on outpatient care may be added. Results IPSYcare is a close collaboration between the University of Antwerp and hospitals in the province of Antwerp. This paper describes the development of the database, how privacy and ethical issues will be handled, and how the governance of the database will be organized.

2011 ◽  
pp. 1795-1804
Author(s):  
Jingquan Li ◽  
Michael J. Shaw

The continued growth of healthcare information systems (HCIS) promises to improve quality of care, lower costs, and streamline the entire healthcare system. But the resulting dependence on electronic medical records (EMRs) has also kindled patient concern about who has access to sensitive medical records. Healthcare organizations are obliged to protect patient records under HIPAA. The purpose of this study is to develop a formal privacy policy to protect the privacy and security of EMRs. This article describes the impact of EMRs and HIPAA on patient privacy in healthcare. It proposes access control and audit log policies to safeguard patient privacy. To illustrate the best practices in the healthcare industry, this article presents the case of the University of Texas M. D. Anderson Cancer Center. The case demonstrates that it is critical for a healthcare organization to have a privacy policy.


1980 ◽  
Vol 137 (2) ◽  
pp. 163-169 ◽  
Author(s):  
R. Chynoweth ◽  
R. A. Cannon

SummaryIn 1977, the University of Adelaide extended the psychiatric training of medical undergraduates to their 6th year. The four weeks course in psychiatry, for groups of no more than sixteen students at one time, was spent at an acute receiving unit of a psychiatric hospital and combined with a series of visits to a wide range of psychiatric subspecialties in the community. A systematic evaluation of the course showed that it was well received by students and by the preceptors who supervised students in the various hospitals and psychiatric units.


2021 ◽  
Vol 50 (Supplement_1) ◽  
Author(s):  
Carla Bernardo ◽  
David Gonzalez-Chica ◽  
Jackie Roseleur ◽  
Luke Grzeskowiak ◽  
Nigel Stocks

Abstract Focus and outcomes for participants Modern technologies offer innovative ways of monitoring health outcomes. Electronic medical records (EMRs) stored in primary care databases provide comprehensive data on infectious and chronic conditions such as diagnosis, medications prescribed, vaccinations, laboratory results, and clinical assessments. Moreover, they allow the possibility of creating a retrospective cohort that can be tracked over time. This rich source of data can be used to generate results that support health policymakers to improve access, reduce health costs, and increase the quality of care. The symposium will discuss the use and future of routinely-collected EMR databases in monitoring health outcomes, using as an example studies based on the MedicineInsight program, a large general practice Australian database including more than 3.5 million patients. This symposium welcomes epidemiologists, researchers and health policymakers who are interested in primary care settings, big data analysis, and artificial intelligence. Rationale for the symposium, including for its inclusion in the Congress EMRs are becoming an important tool for monitoring health outcomes in different high-income countries and settings. However, most countries lack a national primary care database collating EMRs for research purposes. Monitoring of population health conditions is usually performed through surveys, surveillance systems, or census that tend to be expensive or performed over longer time intervals. In contrast, EMR databases are a useful and low-cost method to monitor health outcomes and have shown consistent results compared to other data sources. Although these databases only include individuals attending primary health settings, they tend to resemble the sociodemographic distribution from census data, as in countries such as Australia up to 90% of the population visit these services annually. Results from primary care-based EMRs can be used to inform practices and improve health policies. Analysis from EMRs can be used to identify, for example, those with undiagnosed medical conditions or patients who have not received recommended screenings or immunisations, therefore assessing the impact of government programmes. At a practice-level, healthcare staff can have better access to comprehensive patient histories, improving monitoring of people with certain conditions, such as chronic cardiac, respiratory, metabolic, neurological, or immunological diseases. This information provides feedback to primary care providers about the quality of their care and might help them develop targeted strategies for the most-needed areas or groups. Another benefit of EMRs is the possibility of using statistical modelling and machine learning to improve prediction of health outcomes and medical management, supporting general practitioners with decision making on the best management approach. In Australia, the MedicineInsight program is a large general practice database that since 2011 has been routinely collecting information from over 650 general practices varying in size, billing methods, and type of services offered, and from all Australian states and regions. In the last few years, diverse researchers have used MedicineInsight to investigate infectious and chronic diseases, immunization coverage, prescribed medications, medical management, and temporal trends in primary care. Despite being initially created for monitoring how medicines and medical tests are used, MedicineInsight has overcome some of the legal, ethical, social and resource-related barriers associated with the use of EMRs for research purposes through the involvement of a data governance committee responsible for the ethical, privacy and security aspects of any research using this data, and through applying data quality criteria to their data extraction. This symposium will discuss advances in the use of primary care databases for monitoring health outcomes using as an example the research activities performed based on the Australian MedicineInsight program. These discussions will also cover challenges in the use of this database and possible methodological innovations, such as statistical modelling or machine learning, that could be used to improve monitoring of the epidemiology and management of health conditions. Presentation program The use of large general practice databases for monitoring health outcomes in Australia: infectious and chronic conditions (Professor Nigel Stocks) How routinely collected electronic health records from MedicineInsight can help inform policy, research and health systems to improve health outcomes (Ms Rachel Hayhurst) Influenza-like illness in Australia: how can we improve surveillance systems in Australia using electronic medical records? (Dr Carla Bernardo) Long term use of opioids in Australian general practice (Dr David Gonzalez) Using routinely collected electronic health records to evaluate Quality Use of Medicines for women’s reproductive health (Dr Luke Grzeskowiak) The use of electronic medical records and machine learning to identify hypertensive patients and factors associated with controlled hypertension (Ms Jackie Roseleur) Names of presenters Professor Nigel Stocks, The University of Adelaide Ms Rachel Hayhurst, NPS MedicineWise Dr Carla Bernardo, The University of Adelaide Dr David Gonzalez-Chica, The University of Adelaide Dr Luke Grzeskowiak, The University of Adelaide Ms Jackie Roseleur, The University of Adelaide


2020 ◽  
Vol 10 (1) ◽  
pp. 13 ◽  
Author(s):  
Colin M. E. Halverson ◽  
Sarah H. Jones ◽  
Laurie Novak ◽  
Christopher Simpson ◽  
Digna R. Velez Edwards ◽  
...  

Increasingly, patients without clinical indications are undergoing genomic tests. The purpose of this study was to assess their appreciation and comprehension of their test results and their clinicians’ reactions. We conducted 675 surveys with participants from the Vanderbilt Electronic Medical Records and Genomics (eMERGE) cohort. We interviewed 36 participants: 19 had received positive results, and 17 were self-identified racial minorities. Eleven clinicians who had patients who had participated in eMERGE were interviewed. A further 21 of these clinicians completed surveys. Participants spontaneously admitted to understanding little or none of the information returned to them from the eMERGE study. However, they simultaneously said that they generally found testing to be “helpful,” even when it did not inform their health care. Primary care physicians expressed discomfort in being asked to interpret the results for their patients and described it as an undue burden. Providing genetic testing to otherwise healthy patients raises a number of ethical issues that warrant serious consideration. Although our participants were enthusiastic about enrolling and receiving their results, they express a limited understanding of what the results mean for their health care. This fact, coupled the clinicians’ concern, urges greater caution when educating and enrolling participants in clinically non-indicated testing.


2021 ◽  
pp. ASN.2020091371
Author(s):  
Atlas Khan ◽  
Ning Shang ◽  
Lynn Petukhova ◽  
Jun Zhang ◽  
Yufeng Shen ◽  
...  

BackgroundGenetic variants in complement genes have been associated with a wide range of human disease states, but well-powered genetic association studies of complement activation have not been performed in large multiethnic cohorts.MethodsWe performed medical records–based genome-wide and phenome-wide association studies for plasma C3 and C4 levels among participants of the Electronic Medical Records and Genomics (eMERGE) network.ResultsIn a GWAS for C3 levels in 3949 individuals, we detected two genome-wide significant loci: chr.1q31.3 (CFH locus; rs3753396-A; β=0.20; 95% CI, 0.14 to 0.25; P=1.52x10-11) and chr.19p13.3 (C3 locus; rs11569470-G; β=0.19; 95% CI, 0.13 to 0.24; P=1.29x10-8). These two loci explained approximately 2% of variance in C3 levels. GWAS for C4 levels involved 3998 individuals and revealed a genome-wide significant locus at chr.6p21.32 (C4 locus; rs3135353-C; β=0.40; 95% CI, 0.34 to 0.45; P=4.58x10-35). This locus explained approximately 13% of variance in C4 levels. The multiallelic copy number variant analysis defined two structural genomic C4 variants with large effect on blood C4 levels: C4-BS (β=−0.36; 95% CI, −0.42 to −0.30; P=2.98x10-22) and C4-AL-BS (β=0.25; 95% CI, 0.21 to 0.29; P=8.11x10-23). Overall, C4 levels were strongly correlated with copy numbers of C4A and C4B genes. In comprehensive phenome-wide association studies involving 102,138 eMERGE participants, we cataloged a full spectrum of autoimmune, cardiometabolic, and kidney diseases genetically related to systemic complement activation.ConclusionsWe discovered genetic determinants of plasma C3 and C4 levels using eMERGE genomic data linked to electronic medical records. Genetic variants regulating C3 and C4 levels have large effects and multiple clinical correlations across the spectrum of complement-related diseases in humans.


2018 ◽  
Vol 17 (1) ◽  
pp. 47-51
Author(s):  
Marzieh Kargar Jahromi ◽  
Afifeh Rahmanian Koshkaki ◽  
Farzad Poorgholami ◽  
Malihe Talebizadeh

Objectives: In order to deal with professional ethical issues successfully, nurses and other providers of clinical care need to rely on professional values that are meant to guide their professional decision-making, actions and behaviors .These values form the basis of nursing. Accordingly, the present study aims to investigate nurses’ perception of professional values in the hospitals affiliated with Jahrom University of Medical Sciences.Method: In this descriptiveanalytical study, 100 nurses employed at the university hospitals of Jahrom were selected through simple convenience sampling. To examine the subjects’ perception of professional values, the researchers used a two-part questionnaire: part one consisted of questions about the personal and social characteristics of the subjects; part two was the Nurses Professional Values Scale-Revised. The latter consists of 26 items based on American Nurses Association Code of Ethics for Nurses and addresses the following areas: caring (9 items), activism (5 items), trust (5 items), professionalism (4 items) and justice (3 items).Answers are scored based on a 5-point Likert scale: the answer choices “Not important” and “Very important” are assigned 1 point and 5 points respectively. The score range is between 26 and 130—higher scores indicate the respondent’s greater familiarity with professional values.Findings: The participants of the study consisted of 99 nurses who were selected from the various parts of the university hospitals of Jahrom. The participants’ mean scores for caring, activism, trust, professionalism, justice and total perception of professional values were found to be 32.15,15.47, 17.37, 13.32,10.66 and 88.98 respectively. The results of the study showed that there was not a significant relationship between the age, gender and marital status of nurses on one hand and their professional values scores on the other (P=0.7).Conclusion: There is need for effective programs to enhance nurses’ awareness of certain of their professional duties and improve their professional performance in a wide range of professional areas alongside their duties as care-givers.Bangladesh Journal of Medical Science Vol.17(1) 2018 p.47-51


1983 ◽  
Vol 7 (11) ◽  
pp. 201-202
Author(s):  
Keith J. B. Rix ◽  
Betty McNally ◽  
Margaret Johnson

When Wilson et al (1978) described ‘The new Aberdeen Medical Record,’ they stated: ‘The bulk and disarray of many hospital medical records make it impossible to review and retrieve information easily, hamper the proper care of patients and cause much time to be wasted … when papers accumulate chaotically in the folders much time is wasted in clumsy attempts to retrieve information; important facts about patients and their problems and drug treatment are obscured.’ The same problems apply to the records of psychiatric patients, and this paper describes the adaptation of the Aberdeen Medical Record for use in psychiatric units and hospitals.


Author(s):  
Willem Hendrik Gravett

The inescapable reality is that most law school graduates are headed for professional life. This means that law schools have some accountability for the competence of their graduates, and thus an educational responsibility to offer their students instruction in the basic skills of legal representation. The most obvious and direct gain from the university law school offering more training in the generally neglected applied legal skills of trial advocacy, interviewing, counselling, drafting and negotiation, is the benefit to students in helping them bridge the gap between traditional basic legal education and practice. Although I strongly believe that the LLB curriculum should also include courses in legal writing, negotiation, client counselling, and witness interviewing, I emphasise adding a clinical course in trial advocacy to the LLB curriculum for a number of specific reasons. Trial advocacy consists of a set of skills that transcends the walls of the courtroom. It is difficult to conceive of a practising lawyer who does not, in some way and at some time, utilise the skills of advocacy - fact analysis, legal integration and persuasive speech. Even the technical "forensic skills" of trial advocacy, such as courtroom etiquette and demeanour, learning how to phrase a question to elicit a favourable response, and making an effective oral presentation, transfer readily to a wide range of applications within both the legal and business worlds. In addition to learning how to prepare and present a trial from the opening speech through to the closing argument, in a trial advocacy course students would also learn to apply procedural, substantive and ethical rules of law to prove or defend a cause of action. Moreover, if university law schools fail to contribute to establishing a substantial body of competent trial lawyers, our failure will ultimately take its toll on our system of justice. The quality of courtroom advocacy directly affects the rights of litigants, the costs of litigation, the proper functioning of the justice system, and, ultimately, the quality of justice. Also, traditional law school teaching in legal ethics is necessarily abstract and a-contextual. It can be effective at providing instruction in the law of lawyering, but it is seldom as productive when it comes to examining more subtle questions. The university trial advocacy course is the ideal forum in which to raise ambiguous and textured ethical issues. Ethics problems cannot be avoided or rationalised, because the student trial lawyer must always make a personal decision. In the ethics classroom, it is all too easy to say what lawyers should do. In the simulated courtroom, students have to show what they have chosen to do. I argue that a university trial advocacy course should not be antithetical to the university mission. Thus, students should be given the opportunity to learn not only "how" to conduct a trial, but also "why" their newly acquired skills should be used in a certain way, and "what" effect the use of that skill could have. Through properly constructed case files, assignments and class discussions, students should be able to reflect on issues that go beyond the mere mastery of forensic skills. A university course in trial advocacy must be infused with instruction in evidence, legal ethics, procedure, litigation planning, the encouragement of critical thinking about the litigation and trial process, and the lawyer's role in the adversary system. I also suggest, in concrete terms and by way of example, the outlines of both the theoretical and practical components of a university trial advocacy course that would result in a highly practical course of solid academic content.


2017 ◽  
Vol 4 (4) ◽  
pp. 248-254 ◽  
Author(s):  
Andrea Wasilewski ◽  
Jennifer Serventi ◽  
Lily Kamalyan ◽  
Thomas Wychowski ◽  
Nimish Mohile

Abstract Background The utilization of inpatient medical services by patients with glioblastoma (GBM) is not well studied. We sought to describe causes, frequency, and outcomes of acute care visits in GBM. Methods We conducted a retrospective study of 158 GBM patients at the University of Rochester over 5 years. Electronic medical records were reviewed to identify all local and outside acute care visits. Acute care visits were defined as any encounter resulting in an emergency department visit or inpatient admission. Results Seventy-one percent (112/158) of GBM patients had 235 acute care visits corresponding to 163 hospitalizations (69%) and 72 emergency department visits (31%). Sixty-three percent of patients had multiple visits. Admission diagnoses were seizure (33%), neurosurgical procedure (15%), infection (12%), focal neurologic symptoms (9%), and venous thromboembolism (VTE, 9%). Forty-six patients had 1 or more visits for seizures. Median time to first acute care visit was 65.6 days and 22% of patients had an acute care visit within 30 days of diagnosis. Median length of stay was 5 days. Thirty-five percent of admitted patients were discharged home; 62% required a higher level of care than prior to admission (23% were discharged home with services, 17% to a nursing facility, 16% to hospice, 6% to acute rehab) and 3% died. Thirty-eight percent of patients had ACV within 30 days of death. Median survival was 14 months for patients who had acute care visits and 22.2 months for patients who did not. Conclusion The majority of GBM patients utilize acute care, most commonly for seizures. The high number of emergency department visits, short length of stay, and many patients discharged home suggest that some acute care visits may be avoidable.


Author(s):  
Nadine Marie Moacdieh ◽  
Travis Ganje ◽  
Nadine Sarter

Electronic medical records (EMRs) are now used by more than 95% of US hospitals (American Hospital Association (AHA) Annual Survey Information Technology Supplement, 2013). EMR systems typically provide a wide range of functionalities, including computerized physician order entry and the storage and presentation of patient medical data. The expectation has always been that these EMR functions would contribute to increased efficiency and safety of operations in hospital environments (Blumenthal & Glaser, 2007). However, display clutter in EMRs can lead to negative performance effects that can compromise the efficiency and safety of medical environments (e.g., Moacdieh & Sarter, 2015; Murphy, Reis, Sittig, & Singh 2012). However, it is not clear to what extent physicians view clutter as an impediment to their work, and, if so, whether it is solely the amount of visual data that leads to their perception of “clutter”. To this end, the aims of this study were to determine 1) whether physicians believe the nature and amount of EMR visual data affect their use of EMRs, 2) whether physicians think improvements are needed, and 3) to what extent it is the amount of data that leads to clutter versus some other qualitative aspect of the data. An anonymous survey was conducted among emergency medicine residents at the University of Michigan Department of Emergency Medicine. The response rate was around 60%, with 31 residents responding (age range 21-40 years). Residents had to respond to 18 questions. The first five questions asked for demographic information and participants responded using a dropdown menu. The next eight questions asked participants for their opinions about their satisfaction with their current EMR and the effects of visual data load on their work; participants responded using a 5-point Likert scale (strongly disagree or not at all (1) to strongly agree or extremely important (5)). The next three questions were free text and allowed residents to suggest design improvements to their current EMRs. Finally, the last two questions asked residents to rate, on a 100-point scale, the amount of clutter and the amount of information on sample screenshots from their current EMRs. This data was then correlated with each of the clutter image processing algorithms of Rosenholtz, Li, & Nakano (2007): feature congestion, subband entropy, and edge density. In general, results showed that physicians place a lot of importance on the design of visual information. Of the residents who responded, 52% indicated that visual data representation was “extremely important” for safety and the same percentage also said it was “extremely important” for efficiency. Also, 41% of residents agreed or strongly agreed that problems with visual data presentation have led to medical errors in their experience. In the free text space, physicians described many improvements that could be made to their EMR displays, particularly the reduction of excess irrelevant data. In addition, the correlation coefficients between the algorithm values and the ratings of amount of information were lower than the coefficients for ratings of clutter. This suggests that it is not just the quantity of information that factors into physicians’ perception of clutter; other factors, such as color variation and organization, play a role as well. In conclusion, this study showed that there is more to EMR clutter than merely excess data, and physicians appear to be aware of the dangers of clutter in their EMR displays.


Sign in / Sign up

Export Citation Format

Share Document