scholarly journals Development of the pharmacogenomics and genomics literacy framework for pharmacists

2021 ◽  
Vol 15 (1) ◽  
Author(s):  
Azhar T. Rahma ◽  
Iffat Elbarazi ◽  
Bassam R. Ali ◽  
George P. Patrinos ◽  
Luai A. Ahmed ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Health Literacy ◽  
United Arab Emirates ◽  
Genomic Medicine ◽  
Healthcare Providers ◽  
Qualitative Approach ◽  
Literacy Skills ◽  
Sociocultural Factors ◽  
Unique Role ◽  
Literacy Framework

Abstract Background Pharmacists play a unique role in integrating genomic medicine and pharmacogenomics into the clinical practice and to translate pharmacogenomics from bench to bedside. However, the literature suggests that the knowledge gap in pharmacogenomics is a major challenge; therefore, developing pharmacists’ skills and literacy to achieve this anticipated role is highly important. We aim to conceptualize a personalized literacy framework for the adoption of genomic medicine and pharmacogenomics by pharmacists in the United Arab Emirates with possible regional and global relevance. Results A qualitative approach using focus groups was used to design and to guide the development of a pharmacogenomics literacy framework. The Health Literacy Skills framework was used as a guide to conceptualize the pharmacogenomics literacy for pharmacists. The framework included six major components with specific suggested factors to improve pharmacists’ pharmacogenomics literacy. Major components include individual inputs, demand, skills, knowledge, attitude and sociocultural factors. Conclusion This framework confirms a holistic bottom-up approach toward the implementation of pharmacogenomics. Personalized medicine entails personalized efforts and frameworks. Similar framework can be created for other healthcare providers, patients and stakeholders.

Caring for the Family Caregiver

2020 ◽  
pp. 200-214
Author(s):  
Elaine Wittenberg ◽  
Joy V. Goldsmith ◽  
Sandra L. Ragan ◽  
Terri Ann Parnell
Keyword(s):  
Health Literacy ◽  
Family Caregiver ◽  
Contextual Factors ◽  
Healthcare Providers ◽  
Self Care ◽  
Future Research ◽  
Disease Information ◽  
The Family ◽  
Caregiver Needs ◽  
Literacy Framework

There is little evidence for caregiver assessment and interventions based on unique social and contextual factors of caregiving. Current approaches to caring for the family caregiver involve a “one size fits all” approach where caregiver assessment may or may not occur, and there is no link between identification of caregiver needs and recommended resources. When caregiver assessment does occur, it does not involve unique caregiving characteristics that positively impact communication and health literacy. Caring for the Family Caregiver, a communication and health literacy framework, is introduced and consists of teaching healthcare providers to address caregiving types by finding disease information, assessing and integrating information, partnering with the caregiver, finding support, talking with the caregiver, and planning for caregiver self-care. Directions for future research are also summarized.

scholarly journals “I Sometimes Ask Patients to Consider Spiritual Care”: Health Literacy and Culture in Mental Health Nursing Practice

2019 ◽  
Vol 16 (19) ◽  
pp. 3589 ◽  
Author(s):  
Adwoa Owusuaa Koduah ◽  
Angela Y.M. Leung ◽  
Doris Y.L. Leung ◽  
Justina Y.W. Liu
Keyword(s):  
Mental Health ◽  
Health Literacy ◽  
Low Income ◽  
Cultural Practices ◽  
Psychiatric Hospitals ◽  
Literacy Skills ◽  
Screening Tools ◽  
Low Income Countries ◽  
Sociocultural Factors ◽  
Literacy Practice

While health literacy influences better outcomes of mental health patients, sociocultural factors shape the nature of the relationship. On this matter, little is known about how sociocultural factors affect health literacy practices of nurses, especially in low-income countries. This paper examines how local precepts, within culture and language, shape mental health nurses’ (MHNs) practice and understanding of patients’ health literacy level in Ghana. The study used a qualitative descriptive design involving 43 MHNs from two psychiatric hospitals. Conventional content analysis was used to analyze the data. Although the MHNs acknowledged the importance of health literacy associated with patients’ health outcomes, their practice was strongly attributed to patients’ substantial reliance on cultural practices and beliefs that led to misinterpretation and non- compliance to treatments. MHNs shared similar sociocultural ideas with patients and admitted that these directed their health literacy practice. Additionally, numerous health system barriers influenced the adoption of health literacy screening tools, as well as the MHNs’ low health literacy skills. These findings suggest MHNs’ direct attention to the broader social determinants of health to enhance the understanding of culture and its impact on health literacy practice.

scholarly journals Genomics and Pharmacogenomics Knowledge, Attitude and Practice of Pharmacists Working in United Arab Emirates: Findings from Focus Group Discussions—A Qualitative Study

2020 ◽  
Vol 10 (3) ◽  
pp. 134 ◽  
Author(s):  
Azhar T. Rahma ◽  
Iffat Elbarazi ◽  
Bassam R. Ali ◽  
George P. Patrinos ◽  
Luai A. Ahmed ◽  
...  
Keyword(s):  
Focus Group ◽  
United Arab Emirates ◽  
Genomic Medicine ◽  
Healthcare Providers ◽  
Snowball Sampling ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Public And Private ◽  
Health Authorities ◽  
The Right

(1) Background: Genomics and pharmacogenomics are relatively new fields in medicine in the United Arab Emirates (UAE). Understanding the knowledge, attitudes and current practices among pharmacists is an important pillar to establish the roadmap for implementing genomic medicine and pharmacogenomics; (2) Methods: A qualitative method was used, with focus group discussions (FGDs) being conducted among pharmacists working in public and private hospitals in Abu Dhabi Emirate. Snowball sampling was used. Thematic inductive analysis was performed by two researchers independently. NVIVO software was used to establish the themes; (3) Results: Lack of knowledge of genomics and pharmacogenomics among pharmacists was one of the most prominent findings. Therefore, the role of pharmacist in making the right decisions was highlighted to be a barrier for pharmacogenomics implementation in the UAE. Pharmacists have a positive attitude toward pharmacogenomics, but they are preoccupied with concern of confidentiality. In addition, religion and culture shadowed their attitudes toward genetic testing; (4) Conclusions: It is highly recommended to introduce new courses and training workshops for healthcare providers to improve the opportunities for genomics and pharmacogenomics application in the UAE. Pharmacists agreed that the health authorities should take the lead for improving trust and confidence in the system for a better future in the era of genomics and pharmacogenomics.

Interactive Communication Tools for Health Education

2011 ◽  
pp. 827-837
Author(s):  
Machi Suka ◽  
Katsumi Yoshida
Keyword(s):  
Health Literacy ◽  
Health Education ◽  
Health Information ◽  
Healthcare Providers ◽  
Literacy Skills ◽  
The Internet ◽  
Communication Tool ◽  
Interactive Communication ◽  
Leading Mode ◽  
Provide Health Education

This chapter introduces an interactive communication tool, the ‘HRA System’. The recent rapid penetration of the Internet has made it a leading mode for gathering and sharing health information. People who access information on the Internet differ considerably in their ‘health literacy’, or the ability to understand and act on health information. The HRA System was developed in an effort to promote health education among people with inadequate health literacy. The system was designed in accordance with the clients’ health literacy skills, as well as the clients’ computer skills. A number of healthcare providers have registered with our research group to provide health education using the HRA System to the general public. The authors provide some ideas regarding how to apply interactive communication technology to health education successfully.

Multimorbidity and health literacy: A population-based survey among 28,627 Danish adults

2021 ◽  
pp. 140349482110459
Author(s):  
Sofie Emilie Pedersen ◽  
Anna Aaby ◽  
Karina Friis ◽  
Helle Terkildsen Maindal
Keyword(s):  
Health Literacy ◽  
Health Information ◽  
Multiple Logistic Regression Analysis ◽  
Healthcare Providers ◽  
Positive Association ◽  
Population Based ◽  
Literacy Skills ◽  
Physical Conditions ◽  
Healthcare Needs ◽  
Population Based Survey

Aim: Individuals with multimorbidity often have complex healthcare needs challenging their health literacy skills. This study aimed to investigate the association between the number of physical conditions and health literacy and to examine the difference in health literacy levels between individuals with multimorbidity based on physical conditions and individuals with additional mental disorders. Methods: Respondents aged 25 years or older from a Danish population-based survey were included ( N = 28,627). Multimorbidity was assessed based on 18 self-reported chronic conditions; health literacy was measured using two scales from the Health Literacy Questionnaire focusing on understanding health information and engaging with healthcare providers. Associations were examined using multiple logistic regression analysis. Results: We found a positive association between number of physical conditions and the odds of having difficulties in understanding health information and engaging with healthcare providers. For example, the adjusted odds ratio (OR) of having difficulties in understanding health information was 1.45 (95% confidence interval (CI): 1.09–1.94) for individuals with two physical conditions compared with individuals without multimorbidity. The associations formed a positive exposure–response pattern. Furthermore, respondents with both mental and physical conditions had more than twice the odds of having health literacy difficulties compared to respondents with only physical conditions (adjusted OR 2.53 (95% CI 2.02–3.18) and 2.28 (95% CI 1.92–2.72) for the scales, respectively). Conclusions: Our results suggest that responding to patients’ health literacy needs is crucial for individuals with multimorbidity – especially those with combined mental and physical conditions.

Health Literacy

2020 ◽  
pp. 32-53
Author(s):  
Elaine Wittenberg ◽  
Joy V. Goldsmith ◽  
Sandra L. Ragan ◽  
Terri Ann Parnell
Keyword(s):  
Health Literacy ◽  
Healthcare Providers ◽  
Healthcare Systems ◽  
Literacy Skills ◽  
Healthcare Organizations ◽  
Caregiver Health ◽  
Care Recipients ◽  
Centered Care ◽  
Family Centered ◽  
Collaborative Efforts

Caregivers require the skills needed to support complex medical conditions and utilize opportunities to access, understand, and share reliable health information with care recipients to advocate for successful disease management and decisions. This chapter addresses the unique characteristics of caregiver health literacy and the burden of navigating increasingly complex healthcare systems. The connection and consequence between health literacy and social determinants of health upon caregiving, the implications of caregiver health literacy skills, and the influence of culturally and linguistically appropriate standards on enhanced caregiver health literacy, clear communication, and family-centered care are discussed. Health literacy involves not only caregivers’ and patients’ cognitive and functional skills, but also the collaborative efforts among patients, caregivers, healthcare organizations, healthcare providers, and communities. This collaborative view of health literacy underscores the synergy among healthcare recipients, formal and informal healthcare providers, and resources from healthcare systems to reduce health literacy barriers, ease communication burden, and lessen inequities in health.

scholarly journals Celebrating the health literacy skills of parents: A photovoice study

2018 ◽  
Vol 25 (10-11) ◽  
pp. 1522-1531
Author(s):  
Emee Vida Estacio ◽  
Lavinia Nathan ◽  
Joanne Protheroe
Keyword(s):  
Health Literacy ◽  
Healthcare Providers ◽  
Well Being ◽  
Vital Role ◽  
Literacy Skills ◽  
Health Messages ◽  
Sources Of Information ◽  
Healthy Behaviors ◽  
Conflicting Messages ◽  
Health And Well Being

Parents play a vital role in promoting children’s health. The parental health literacy skills are important since the decisions they make can have an impact on other family members’ health and well-being. Using an assets-based approach, this project aimed to explore the skills parents use to communicate health messages with their children and how they manage their family’s health. Six adult parents of children aged 0–16 years old took part in this photovoice study. The thematic analysis suggests that tapping into the creativity of parents through the gamification of health messages and encouraging children’s independence are effective ways to promote healthy behaviors. Trusting their instincts and developing good relationships with healthcare providers were also seen as important. However, there is still a need to improve confidence and skills, particularly on how to critically appraise information, especially in this digital age where sources of information are vast and conflicting messages could arise.

Health Literacy in Clinical Practice

ASHA Leader ◽  
2009 ◽  
Vol 14 (1) ◽  
pp. 28-29
Author(s):  
Amy Hasselkus
Keyword(s):  
Clinical Practice ◽  
Health Literacy

scholarly journals Health literacy level in a various nephrology population from Québec: predialysis clinic, in-centre hemodialysis and home dialysis; a transversal monocentric observational study

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Annabel Boyer ◽  
Yannick Begin ◽  
Julie Dupont ◽  
Mathieu Rousseau-Gagnon ◽  
Nicolas Fernandez ◽  
...  
Keyword(s):  
Health Literacy ◽  
Observational Study ◽  
Health Information ◽  
Healthcare Providers ◽  
Significant Proportion ◽  
Good Health ◽  
Sufficient Information ◽  
Home Dialysis ◽  
Limited Health Literacy ◽  
Limited Health

Abstract Background Health literacy refers to the ability of individuals to gain access to, use, and understand health information and services in order to maintain a good health. It is especially important in nephrology due to the complexity of chronic kidney disease (CKD). The present study sought to define health literacy levels in patients followed in predialysis clinic, in-center dialysis (ICHD), peritoneal dialysis (PD) and home hemodialysis (HHD). Methods This transversal monocentric observational study analysed 363 patients between October 2016 and April 2017. The Brief Health Literacy Screen (BHLS) and the Health Literacy Questionnaire (HLQ) were used to measure health literacy. Multivariate linear regressions were used to compare the mean scores on the BHLS and HLQ, across the four groups. Results Patients on PD had a significantly higher BHLS’score than patients on ICHD (p = 0.04). HLQ’s scores differed across the groups: patients on HHD (p = 0.01) and PD (p = 0.002) were more likely to feel understood by their healthcare providers. Compared to ICHD, patients on HHD were more likely to have sufficient information to manage their health (p = 0.02), and patients in the predialysis clinic were more likely to report high abilities for health information appraisal (p < 0.001). Conclusion In a monocentric study, there is a significant proportion of CKD patients, especially in predialysis clinic and in-centre hemodialysis, with limited health literacy. Patients on home dialysis (HHD and PD) had a higher level of health literacy compared to the other groups.

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