scholarly journals International Projects of The National Society of Pediatric Hematologist and Oncologists

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 165s-165s
Author(s):  
G. Muftakhova ◽  
K. Kirgizov ◽  
G. Serik ◽  
S. Kogan ◽  
S. Varfolomeeva
Keyword(s):  
Pediatric Oncology ◽  
Pediatric Cancer ◽  
International Collaboration ◽  
Healthcare Professionals ◽  
Educational Outreach ◽  
Collaborative Group ◽  
National Society ◽  
Pediatric Hematology ◽  
International Projects ◽  
Oncology Care

Background and context: International cooperation is a key factor in the success of multicenter studies and educational projects, especially in LMICs. Aim: To describe projects of The National Society of Pediatric Hematologists and Oncologists (NSPHO) in the international collaboration. Strategy/Tactics: NSPHO international projects: optimization of care for children with cancer in Commonwealth of Independent States (CIS) and developing relationship with international organizations such as UICC, SIOP (Asian region). Unique feature is that these projects based on collaboration between healthcare professionals and governments with support of leading institutions. Program/Policy process: Program based on online and off-line meetings and courses. CIS project (in collaboration with WHO and St. Jude Children's Research Hospital) based on series of scientific and organizational meetings (online/off-line). Aim of this work is to organize a community of pediatric hematologists/oncologists of the region and prepare unique projects to improve the outcomes of treatment of pediatric cancer cases. Next meeting under the auspices if WHO will be held in Moscow in April 2018 (participants from 10 countries). The objectives of this meeting are to describe current situation of pediatric oncology care in the region, identify regional gaps in pediatric oncology care, and create collaborative project proposals to address identified gaps in care to improve pediatric cancer outcomes in the region. NSPHO working close with SIOP Asia: SIOP Asia Congress was organized in Moscow in 2016. Second project is developing of Directory of Asian Societies and Foundations in the field of pediatric hematology and oncology. Russian-Vietnamese collaborative group in pediatric hematology and oncology was formed in November 2017 in Vietnam. Second meeting of this group is planned for April 2018. Outcomes: More than 5 collaborative projects will be discussed such as CIS cancer registries, collaborative multicentre protocols, educational outreach projects, etc. As the deliverables the plan to publish a special report as well as a resolution to the Ministries of Health of CIS region. SIOP Asia Congress in Moscow was one of the most successful, attracted 1000 participants from 40 different countries attended. New relations were started. Directory of Asian Societies and Foundations in the field of pediatric hematology and oncology includes information on more than 40 organizations. Printed version will be presented at SIOP 2018 Congress in Kyoto. Several collaborative projects discussed in Russian-Vietnamese group. A “memorandum of understanding” was signed as a part of this meeting. It was decided to continue a series of scientific meetings as a part of collaboration. What was learned: Only active international collaboration supported by healthcare professionals and governments could lead to strong improvement of outcomes of pediatric cancer care in all countries worldwide.

scholarly journals Building of Collaboration Between National Research Center of Pediatric Hematology, Oncology and Immunology, Professional Society and Medical Institutions in the Russian Federation: Unique Experience

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 166s-166s
Author(s):  
S. Kogan ◽  
K. Kirgizov ◽  
G. Muftakhova ◽  
G. Serik ◽  
S. Varfolomeeva
Keyword(s):  
Russian Federation ◽  
Pediatric Cancer ◽  
National Society ◽  
Russian Regions ◽  
Multicenter Studies ◽  
Pediatric Hematology ◽  
Medical Institutions ◽  
Regional Medical ◽  
Oncological Diseases ◽  
The Russian Federation

Background and context: More than 4000 cases of pediatric cancer are registered in the Russian Federation annually. A well-functioning system of the centers and departments of pediatric, hematology and oncology required to obtain good treatment results. Features of the Russian Federation require close collaboration between Dmitry Rogachev Center, NSPHO and regional medical institutions. Aim: Development and implementation of the system of direct collaboration between Dmitry Rogachev Center, NSPHO and regional medical institutions for improvement of diagnostics, treatment and rehabilitation of children with hematologic and oncological diseases on the all territory of the Russian Federation. Strategy/Tactics: Dmitry Rogachev Center was set by the Ministry of Health of the Russian Federation as the National Center in charge of pediatric hematology and oncology. Thus, the collaborative initiatives between Dmitry Roigachev Center, NSPHO and regional medical institution were prioritized. Key points of the regional strategy are 24/7 telemedicine support for regional institutions, forming of database of centers and specialists based on NSPHO catalogue of institutions, usage of unique clinical guidelines and standards for all regions of Russia based on tandem agreements and continuous medical education and scientific work. Program/Policy process: To obtain above-mentioned goals, the following steps were made. Federal Center of Telecommunication for Children with hematologic and oncological diseases was founded. A special Web-based application was constructed for the forming of the database of the institutions (the base of this work is the 9 years experience of NSPHO in accumulating of data on centers and specialists on the Russian territory). More than 50 guidelines were prepared and approved for hematologic and oncological diseases treatment in children. Tandem agreements are signing now between Dmitry Rogachev Center, NSPHO and regional medical institutions. Different educational activities are available for specialists from all Russian regions (e.g., on-site seminars, online meetings, etc.). Outcomes: Regional network consists of 86 institutions in all Russian regions (about 3900 beds). During the test period of work of FCT in 2017 more than 5000 consultations were made. Estimated number for 2018 is 6000. All these institutions and specialists (1050) are included to the monthly updated database including the contact and other information. Approved guidelines updating periodically based on the results of multicenter studies. Nowadays more than 50 institutions signed the tandem agreements. These steps allowed to control all pediatric cancer cases in country. What was learned: Only scientific-based multicentre collaboration under the leadership of the National Center and strong national society with support of the government could lead to control of cancer cases and success in treatment. This experience could be used in other countries

Feasibility of using data collected through the St. Jude Pediatric Oncology Facility integrated local evaluation (PrOFILE) tool to determine previously defined levels of pediatric hematology-oncology care.

2021 ◽  
Vol 39 (15_suppl) ◽  
pp. e13530-e13530
Author(s):  
Aniekan Udoko ◽  
Pedro Mazotti-Roso ◽  
Enrico Suriano ◽  
Fernando Silva-Perez ◽  
Heather Forrest ◽  
...  
Keyword(s):  
Pediatric Oncology ◽  
Treatment Guidelines ◽  
Full Range ◽  
Intensity Modulated Radiotherapy ◽  
Lymph Node Biopsy ◽  
Pediatric Hematology ◽  
Resource Group ◽  
Oncology Care ◽  
Content Specificity ◽  
Using Data

e13530 Background: Pediatric hematology and oncology (PHO) facilities are not all equally equipped to diagnose and treat the full range of childhood cancers. Proposed facility tier models have been published to facilitate the context-based adaptation of PHO diagnostic and treatment guidelines. However, a tool to assist facilities in identifying their level of PHO care does not exist. We assessed the feasibility of using the St. Jude Pediatric Oncology Facility Integrated Local Evaluation (PrOFILE) tool to identify (1) facility levels as defined by the International Society of Pediatric Oncology (SIOP) and the Lancet Oncology Commission (LOC) for sustainable care for children with cancer, and (2) treatment strata in the Adapted Resource and Implementation Application (ARIA) Guide. Methods: This study employed a multi-step mapping approach. We mapped the 1,279 PrOFILE tool variables to the nine SIOP service lines, ten LOC domains, and ten ARIA resource groups. Mapping was performed by two teams and carried out in two different rounds. The first round aimed to define if an indicator was fully or partially covered by PrOFILE. Multiple PrOFILE variables could be assigned to each concept to meet its content specificity. Various cut-offs were applied when necessary to assign mutually exclusive responses to each tier. The second round consisted of expert validation for each indicator previously identified. Results: Most (97%) of SIOP’s indicators were partially or fully covered in the PrOFILE tool (Table). Radiation therapy tools and appointment scheduling and call back system could not be mapped. Of the LOC indicators, 89% were covered (Table). Pathology technical staff, chemotherapy complexity (low, moderate, and high), lymph node biopsy, organ preservation, liver transplantation, intensity-modulated radiotherapy, and research infrastructure could not be mapped. Finally, 77% of the indicators used by the ARIA Guide were covered (Table). The ophthalmology resource group could not be fully mapped. Conclusions: This exercise demonstrates the feasibility of using PrOFILE tool variables to identify facility PHO care levels as defined by SIOP and LOC. The tool also contains most of the variables necessary to apply the ARIA Guide to diagnose, treat, and manage childhood cancer. Future PrOFILE versions will address concepts that are not covered or are partially covered in its current version.[Table: see text]

scholarly journals The development of pediatric oncology-hematology in the Russian Federation: the experience of collaboration between the National Society of Pediatric Hematologists and Oncologists and the National Medical Research Center

2019 ◽  
Vol 6 (3) ◽  
pp. 12-25 ◽  
Author(s):  
K. I. Kirgizov ◽  
S. A. Kogan ◽  
Ya. A. Erdomaeva ◽  
G. M. Muftakhova ◽  
T. G. Shlyakhtina ◽  
...  
Keyword(s):  
Medical Research ◽  
Russian Federation ◽  
Pediatric Oncology ◽  
Development Program ◽  
Research Center ◽  
Healthcare Sector ◽  
National Society ◽  
Pediatric Hematology ◽  
National Medical ◽  
The Russian Federation

The basis for constructing a vertically integrated management system in the healthcare sector in the Russian Federation is the model of functioning of national centers. One of the key components in achieving success is the interaction of the national center with a leading national society. The aim of the article is to present the experience of joint work of the National Society of Pediatric Hematologists and Oncologists (NSPHO) with the Dmitry Rogachev National Medical Research Center of Pediatric Hematology, Oncology and Immunology in the field of development of pediatric oncology-hematology in the Russian Federation. In order to accomplish the task of building a system for organizing medical care for children in pediatric oncology-hematology, a comprehensive development program was implemented, which included collecting data on the structure of the service through questionnaires in the regions, obtaining expert opinion and the subsequent creation of a service passport using data visualization. In addition, the experience of creating professional standards and the concept of a unified approach in the field of training in the specialties “Pediatric Oncology” and “Hematology” using the technology of continuing medical education are reflected. The result of the work was the formation of a single plan for the organization of the service of pediatric oncology-hematology, developed by the NSPHO in conjunction with the Dmitry Rogachev National Medical Research Center of Pediatric Hematology, Oncology and Immunology with the support of the National Medical House and under the leadership of the Ministry of Health of Russia.

scholarly journals National Childhood Cancer Plan Prepared by the National Center of Pediatric Hematology, Oncology and Immunology and the National Society of Pediatric Hematologists and Oncologists as a New Successful Strategy

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 166s-166s
Author(s):  
K. Kirgizov ◽  
G. Muftakhova ◽  
G. Serik ◽  
S. Kogan ◽  
S. Varfolomeeva ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Cancer Registry ◽  
Pediatric Cancer ◽  
Cancer Control ◽  
National Society ◽  
Close Collaboration ◽  
Children With Cancer ◽  
Multicenter Studies ◽  
Educational Activities ◽  
Pediatric Hematology

Background and context: More than 4000 cases of pediatric cancer registered in Russia annually. Overall survival for pediatric cancer is about 80% and improved from 10% during last 25 years. Dmitry Rogachev National Medical Research Center of Pediatric Hematology, Oncology and Immunology (Center) and the National Society of Pediatric Hematologists and Oncologists (NSPHO) played a major role in this movement. Aim: Build new childhood cancer control plan based on close collaboration of 86 centers and departments of pediatric oncology. Strategy/Tactics: Plan is based on close collaboration between leading Center and NSPHO (representative of all centers) and supported by the government and the Ministry of Health. Plan developed as the result of analysis of strengths, weaknesses, threats and possible opportunities. Strengths: unique standards (guidelines and protocols) for pediatric cancer for all country with the financial governmental support, strong society (NSPHO), availability of modern technologies and rapid improvement of rehabilitation for children with cancer. Weaknesses: absence of national pediatric cancer registry, lack of high quality oncology nursing, comparable low publication activity. Opportunities: building of the national pediatric cancer registry, increasing of number of multicenter studies, implementation of the new technologies (cellular and gene therapy) and active educational activities based on international collaboration. Program/Policy process: Dmitry Rogachev Center in charge of pediatric hematology, oncology and immunology for Russia and NSPHO is key society. Strategy: scientific analysis and continuous improving of standards (guidelines and protocols) based on multicenter studies; building the morphologically-based national pediatric hematology/oncology registry; continuous development of professional standards for education and quality control; capacity building; scientific and educational activities (national meetings, schools for healthcare professionals, regional educational programs, Russian CME accreditation, outreach programs). Outcomes: Sixty guidelines were prepared, this work is continuing. Morphologic study for more than 13,000 children was made in Dmitry Rogachev Center (all suspicious cases controlled). New standards prepared and discussed. National telemedicine network formed (consulting, case registration, database updates, etc.). More than 5000 cases were consulted through this system in 2017. CME educational seminars (on/off-line) organized. About 12 regions of Russia visited annually with preparation of the report with proposals for improvement of regional service for children with cancer. What was learned: Success is based on close collaboration between Center, Society and Government (all aspects of pediatric cancer control from diagnostics to education covered). This experience could be implemented in the countries with post-Soviet model of healthcare.

scholarly journals Continuous Medical Education in Pediatric Oncology As Successful Approach for Improvement of Early Diagnostics and Treatment

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 165s-165s
Author(s):  
G. Serik ◽  
K. Kirgizov ◽  
G. Muftakhova ◽  
S. Kogan ◽  
S. Varfolomeeva
Keyword(s):  
Medical Education ◽  
Pediatric Oncology ◽  
Continuous Medical Education ◽  
National Society ◽  
Early Diagnostics ◽  
Ministry Of Health ◽  
High Effectiveness ◽  
Pediatric Hematology ◽  
National Medical ◽  
The Government

Background and context: Continuous medical education (CME) is very important in improvement of knowledge in all field of pediatrics. CME in pediatric oncology could be aimed both for oncologists and pediatricians. Aim: We aimed to organize CME system in the field of pediatric oncology for oncologists and pediatricians. Strategy/Tactics: Continuous education for improvement of knowledge for all pediatric oncologists and pediatricians based on Russian CME system. This system was organized by the Ministry of Health and National Medical Chamber and based on continuous work of professional medical societies. Each society could propose their educational activities and receive accreditation (participants receiving educational credits). Specialist required receiving education in pediatric oncology participating this system, obtaining credits and getting new knowledge. Program/Policy process: The National Society of Pediatric Hematologists and Oncologists (NSPHO) organized a system of educational seminars in pediatric oncology with CME status and approved credits in different regions of the Russian Federation. NSPHO organizing one seminar per month, 12 seminars per year. Each seminar has three major components: organization (meetings with governments of regions), education (lectures and discussions) and workshops. These seminars are free of charge for all regions and organized with the help of resources of NSPHO. A special report with recommendations for improvement of pediatric cancer care prepared after each seminar and transferred to the Government and Ministry of Health. NSPHO organized also online CME courses with accreditation. To estimate the effectiveness of seminars we are doing surveys and estimation of quality of cancer treatment. Outcomes: All 86 centers and departments of pediatric hematology/oncology in Russia participating this system. All members of NSPHO (about 1200 participants) are studied within the single educational program including governmental certification and Russian CME educational meetings/seminars as well as online CME seminars. CME education in pediatric hematology/oncology and immunology for pediatricians allowed studying more than 1000 specialists during 2017. Estimation by surveys and quality control showed high effectiveness of seminars in early diagnostics and treatment. What was learned: CME platform for online and off-line education in Russia developing rapidly. Nowadays we involved all Russian regions to this work. Results showed high effectiveness of this approach.

scholarly journals COVID-19 in pediatric cancer: where are the brain tumors?

2021 ◽  
Author(s):  
Rebecca Ronsley ◽  
Eric Bouffet
Keyword(s):  
Brain Tumors ◽  
Pediatric Oncology ◽  
Pediatric Cancer ◽  
Inpatient Care ◽  
Risk Of Infection ◽  
Oncology Patients ◽  
Pediatric Cancers ◽  
Oncology Care ◽  
The Brain ◽  
Insight Into

Treatment of pediatric oncology patients generally results in significant immunosuppression and when the COVID-19 pandemic arose, there was concern among pediatric oncologists about the implications of this virus. We reviewed the literature and describe all pediatric oncology patients with COVID-19 reported worldwide. Within this review, it is striking that CNS tumors are reported at low numbers (27/466 pediatric oncology patients with COVID-19). This may be related to decreased inpatient care when compared to other pediatric cancers. Additional work is needed to understand the risk of infection in this population and gain insight into the effect on delivery of oncology care.

scholarly journals Pediatric Cancer Registry in Turkey (Turkish Pediatric Oncology Group & Turkish Pediatric Hematology Association)

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 67s-67s
Author(s):  
M.T. Kutluk ◽  
M.A. Yeşilipek
Keyword(s):  
Cancer Registry ◽  
Pediatric Oncology ◽  
Pediatric Cancer ◽  
Cancer Care ◽  
Survival Rates ◽  
Oncology Group ◽  
Term Survival ◽  
Pediatric Hematology ◽  
Wide Range ◽  
Pediatric Oncology Group

Background: Each year more than 200,000 new cancer cases are expected in children & adolescents aged 0-14 years at global level. Although the long term survival rates have been improved to 85% in high income countries, it is still lower than this LMICs with a wide range around the world. Pediatric registries are critical for planning for pediatric cancer care. This study summarizes the update of pediatric cancer registry in Turkey. Aim: To analyze the pediatric cancer distribution through Turkish Pediatric Cancer Registry for the years of 2009-2017. Method: Turkish Pediatric Oncology Group and Turkish Pediatric Hematology Association established a Web based cancer registry in Turkey in 2002. The registry information for 2002-2008 was presented earlier. This study, now, is presents the distribution of pediatric cancers for the years of 2009-2017. International Childhood Classification System was used in classification. Basic demographic findings, ICD-O-3 morphology & topography codes were recorded for each cases. This is an update of the Turkish Pediatric Cancer Registry. Results: During the 9 years from 2009 to 2017, 14,769 pediatric cancer cases were recorded. For all cases, median age was 6.7 years (0-17 M/F 8318/6443, 3 hermaphrodite 5 unknown). Age distribution was 0-4 yrs, 40.8%; 5-9 yrs, 24.5%; 10-14 yrs, 23.3%; 15-19 yrs, 11.4%. The distribution of tumor types were [number of cases, percentage of total, median age years, M/F]: leukemia (4114, 27.9%, 5.5, 2366/1748); lymphoma and other RES tumors (2823, 19.1%, 9.6, 1904/914, 1 hermaphrodite 4 unknown); CNS [brain & spinal] (1950, 13.2%, 7.1, 1072/828); sympathetic system (1166, 7.9%, 2.4, 609/557); retinoblastoma (351, 2.4%, 1.4, 197/154); renal (736, 5.0%, 3.3, 345/391); liver (242, 1.6%, 1.8, 132/110); malignant bone (965, 6.5%, 12.6, 527/438); soft tissue sarcomas (991, 6.7%, 7.4, 580/411); germ cell (911, 6.2%, 8.2, 331/577, 2 hermaphrodite, 1 unknown); carcinoma and other malignant epithelial (436, 3.0%, 13.6, 212/224); other/nonspecific malignant (84, 0.6%, 7.1, 43/41) tumors. Five year survival rate was found as 67.8%. Conclusion: Registry provides the essential information for planning the pediatric cancer care. This registry became a critical source for health care professionals in Turkey since beginning. Survival rates for children increased to 67.8% based on this study. This is compatible with the survival rates from other upper middle income countries. This data also allows the comparison of the national data with the national and international studies. Investment on the pediatric cancer registry is one of the first steps of investments on pediatric cancer care.

Turkish National Pediatric Cancer Registry 2002-2008 (Turkish Pediatric Oncology Group and Turkish Pediatric Hematology Society).

2013 ◽  
Vol 31 (15_suppl) ◽  
pp. 10067-10067 ◽  
Author(s):  
M. Tezer Kutluk ◽  
Akif Yesilipek ◽  
Keyword(s):  
Childhood Cancer ◽  
Cancer Registry ◽  
Pediatric Oncology ◽  
Pediatric Cancer ◽  
Germ Cell Tumors ◽  
Developed Countries ◽  
Renal Tumors ◽  
Cancer Data ◽  
Pediatric Hematology ◽  
Cure Rates

10067 Background: In childhood cancers cure rates increased up to 80% in the developed countries. On the other hand cure rates goes down 10-20% percent in countries with low resource settings. Reliable pediatric cancer data is essential for all countries. We established a nationwide pediatric cancer registry. Methods: Turkish Pediatric Oncology & Pediatric Hematology Society established a web-based database for the registry of all pediatric cancers. 11898 cases were registered between 2002-2008 from 65 centers. Various demographic data & survival endpoints were recorded & analyzed. Diseases were grouped according to the International Classification of Childhood Cancer. Results: In all 11898 cases, median age was 6 years (M/F= 6786/5112=1.32). Distribution in age groups were: 0-4 years, 42.5%; 5-9 years, 27.2%; 10-14 years, 23.4%; 15-19 years, 6.8%; >19 years, 0.1%. Only 3.8% of cases were diagnosed with clinical+radiological, the rest with histopathological data Distribution of cases in disease groups were [median age in yrs, M/F]: Leukemias (n=3777) 31.7% [5.5, 2137/1640=.31]; Lymphomas (n=2040) 17.1% [8.3, 1405/635=2.21]; CNS tumors (n=1588) 13.3% [6.9, 913/675=1.3 ]; Sympathetic tumors (n=889) 7.5% [2.1, 453/436=1.03]; Retinoblastoma (n=371) 3.1% [2, 181/190=0.95]; Renal tumors (n=655) 5.5% [3, 333/322=1.03]; Hepatic (n=166) 1.4% [1.8, 101/65=1.5]; Bone tumors (n=717) 6% [12.2, 407/310=1.3]; Soft tissue tumors (n=773) 6.5% [6.5, 442/331=1.3]; Germ cell tumors (n=531) 4.5% [5, 210/321=0.6 ]; Carcinomas and other malignant epithelial tumors (n=323) 2.7% [12, 164/159=1.03]; Others/unspecified malignant tumors (n=68) 0.6% [4.5, 40/28=1.4]. Five-year overall survival in all cases was 65%. Conclusions: This registry provides a critical information about the distribution of childhood cancer since this is the only nationwide pediatric cancer registry in Turkey. With the recent trends in non-communicable diseases at global level, registry data will be very helpful for national cancer control plans, which will also be used to compare at national and international level. This will also be a good example for many other countries with similar resources to do such projects.

Surveillance of Hospital-Acquired Central Line–Associated Bloodstream Infections in Pediatric Hematology-Oncology Patients Lessons Learned, Challenges Ahead

2013 ◽  
Vol 34 (3) ◽  
pp. 315-320 ◽  
Author(s):  
Aditya H. Gaur ◽  
David G. Bundy ◽  
Cuilan Gao ◽  
Eric J. Werner ◽  
Amy L. Billett ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Pediatric Oncology ◽  
Pediatric Cancer ◽  
Bloodstream Infections ◽  
Central Line ◽  
Lessons Learned ◽  
Viridans Streptococci ◽  
Pediatric Hematology ◽  
Pediatric Cancer Patients ◽  
Hospital Acquired

Across 36 US pediatric oncology centers, 576 central line-associated bloodstream infections (CLABSIs) were reported over a 21-month period. Most infections occurred in those with leukemia and/or profound neutropenia. The contribution of viridans streptococci infections was striking. Study findings depict the contemporary epidemiology of CLABSIs in hospitalized pediatric cancer patients.

scholarly journals Development and Evaluation of Video-Based Educational Materials for Nutritional Management of Cancer in Children Among Healthcare Professionals and Caregivers

2021 ◽  
Author(s):  
Nurul Huda Razalli ◽  
Hamidah Alias ◽  
Mohd Hafizuddin Mohammad ◽  
Nur Ruzaireena Rahim ◽  
Nur Qharena Alwani Zulkipli
Keyword(s):  
Side Effects ◽  
Cancer Treatment ◽  
Cancer Patients ◽  
Pediatric Oncology ◽  
Pediatric Cancer ◽  
Healthcare Professionals ◽  
Nutritional Management ◽  
Educational Materials ◽  
Nutrition Management ◽  
Pediatric Cancer Patients

Abstract Background A good audio-visual educational material for caregivers on nutrition management of pediatric oncology patients can improve treatment effectiveness, recovery rate, and nutritional status of patients. This study aimed to develop and evaluate a series of video-based educational materials for nutritional management of pediatric oncology patients among healthcare professionals and caregivers.Methods The development of the video series began with subtopic selection and content refinement based on a printed booklet project previously published by the groups of five experts in dietetics and oncology medicine and five caregivers of pediatric cancer patients. 10 healthcare professionals (medical doctors and dietitians with over 5 years of working experience) and 15 caregivers then evaluated the video series for acceptability and relevance using the Malay version of the Patient Education Materials Assessment Tools for Audio-Visual materials (PEMAT-AV). Sets of understandability and actionability statements were given a score of 0 (disagree) or 1 (agree), and the overall percentage was calculated.ResultFour main topics were selected from the booklet and adopted into 5 video series ranging from 3 to 8 minutes in length developed in the Malay language entitled (i) Introduction to Cancer and the Treatment, (ii) The Side Effects of Cancer Treatment and Management (Part 1), (iii) The Side Effects of Cancer Treatment and Management (Part 2), (iv) Nutrition Management in Children with Cancer, and (v) You Ask, We Answer. The average understandability and actionability scores rated by the healthcare professionals were 98.6%% and 98.7%respectively. Whereas the caregivers’ average score for understandability was 99.5% and 99.6% for actionability.ConclusionsThe findings revealed that a high-quality video series was successfully developed and rated as highly understandable and actionable by both healthcare professionals and caregivers. This reflects positive acceptance and relevance of the nutritional management educational videos by both groups who manage and care for pediatric cancer patients. Trial RegistrationCentre for Research and Instrumentation Management, Research Ethics Committee of The National University of Malaysia; Ref. No. UKM/PPI/111/8/JEP-2021-266

Sign in / Sign up

Export Citation Format

Share Document