scholarly journals IMPACT OF ANXIETY AND TERROR OF DEATH ON QUALITY OF LIFE IN PATIENTS ON CHRONIC HEMODIALYSIS

2020 ◽  
Vol 1 ◽  
pp. 97-102
Author(s):  
Olha Shevchuk-Kravchenko ◽  
Oksana Penderetska ◽  
Ivan Garazdiuk ◽  
Oleksandr Garazdiuk ◽  
Viktor Bachynskiy
Keyword(s):  
Quality Of Life ◽  
Support Groups ◽  
Medical Staff ◽  
Healthcare Providers ◽  
Chronic Hemodialysis ◽  
Psychological Status ◽  
Psychological State ◽  
The Impact ◽  
Personal Questionnaire

The aim of the study was to identify the terror of death and anxiety level in patients with end-stage renal disease receiving renal replacement therapy using chronic hemodialysis (HD) and to evaluate the impact of patients' psychological status on medical staff, selection of basic methods of psychotherapeutic care for patients in this category. We involved 37 patients, aged 33-72 years (mean, 45.6 ± 3.8 years). The duration of chronic HD ranged from 8 months to 10 years, with an average of 4.6 years. All the patients had a stable nutritional status, HD regimen and drug therapy for at least 3 months. To diagnose the psychological state of patients we used: the scale of self-assessment of the level of situational and personal anxiety (Spielberger-Hanin’s Scale), personal questionnaire for changes at the onset of HD therapy, elements of a clinical interview, image apperception test (simplified version of Thematic apperception test., Bechterev’s Institute Personal Questionnaire for Diagnosis of Type of Illness (LOBI), Locus of control and personal changes after initiation of HD therapy. We found that the: adaptation of the patient to HD therapy is complicated due to the high degree of anxiety and maladaptive terror of death, which reduce the patient’s quality of life. The HD procedure increases the level of situational anxiety and requires psycho-correction. HD therapy requires activation of the patient's psychological protection mechanisms, since the dominant protective mechanisms of the psyche in this type of substitution treatment are displacement and negation. The inflexible and rigid use of the latter provokes maladaptive reactions when interacting with healthcare providers, a non-constructive approach to lifestyle choices, work-rest regime, and diet. Patients with a maladaptive mode of adjustment to HD therapy require psychotherapy assistance. There is a need to monitor the psychological status of not only patients, but also medical staff, which due to the specificity of the contingent increases the level of contingent own terror of death. Doctors of HD units require participation in mutual support groups.

Breast cancer-related lymphedema and quality of life: A qualitative analysis over years of survivorship

2019 ◽  
pp. 174239531987279
Author(s):  
Allison B Anbari ◽  
Ausanee Wanchai ◽  
Jane M Armer
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Healthcare Providers ◽  
Breast Cancer Diagnosis ◽  
Data Saturation ◽  
Breast Cancer Related Lymphedema ◽  
Reported Data ◽  
The Impact

Objectives The study purpose was to examine perspectives of women with newly diagnosed breast cancer-related lymphedema (BCRL) regarding their quality of life over seven years. Method Data were collected over seven years using the Lymphedema and Breast Cancer Questionnaire (LBCQ). Participants with BCRL answered open-ended questions corresponding to changes in mood and lifestyle from post-op through annual interviews and surveys. Self-reported data from 97 participants with BCRL were analyzed using in vivo coding and template-style content analysis to elicit the impact of BCRL on quality of life domains. Results Data saturation was achieved as participants neared 30 to 36 months post- breast cancer diagnosis. Three major themes were identified related to BCRL’s impact on: physical function; daily living and social function; and psychological function. Discussion Findings suggest that BCRL impacts quality of life not only soon after diagnosis, but also throughout survivorship years. Healthcare providers should develop programs to enhance quality of life for survivors with BCRL.

scholarly journals Symptoms and quality of life from patients undergoing hemodialysis in Switzerland

2017 ◽  
Vol 6 (2) ◽  
pp. 63 ◽  
Author(s):  
Philippe Delmas ◽  
Christine Cohen ◽  
Marie-Chantal Loiselle ◽  
Matteo Antonini ◽  
Jerome Pasquier ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cultural Context ◽  
Psychological Symptoms ◽  
Chronic Hemodialysis ◽  
Psychological State ◽  
Symptom Index ◽  
Cross Sectional ◽  
Convenience Sample ◽  
Falling Asleep

Background: Dialysis patients experience multiple symptoms impairing their quality of life. A relationship seems to exist between the cultural context and the burden of symptoms. In this study, the prevalence and severity of 30 symptoms and their relationship with quality of life among hemodialysis patients in Switzerland is explored.Methods: A cross-sectional correlation design was used with a convenience sample of 119 patients from five dialysis units. Presence and severity of symptoms were assessed with the Dialysis Symptom Index and quality of life with the WHOQOL-Bref questionnaire. Multivariate linear regressions were used to examine the relationship between the prevalence and severity of symptoms, respectively, and quality of life. T-tests and Fisher’s tests were used for the international comparisons.Results: On average, patients reported 10 symptoms and often rated these as “somewhat bothersome”. The most frequent were: lack of energy, dry skin, trouble falling asleep, trouble staying asleep, and muscle cramps. Average symptoms prevalence and severity levels were both observed to decrease patients’ quality of life, items related to physical health and psychological state having the greatest impact. Prevalence and severity of psychological symptoms and prevalence of sex-related symptoms seem to be influenced by patients’ cultural context.Conclusions: These results demonstrate that patients on chronic hemodialysis present several symptoms that affect their quality of life. Healthcare professionals should develop strategies to identify more properly these symptoms, especially sex-related and psychological symptoms.

Women Living with Fibromyalgia: “Do No Harm”

2008 ◽  
Vol 12 (4) ◽  
pp. 21-25 ◽  
Author(s):  
Nancey E.M. France, ◽  
Kathleen Farrell, ◽  
Barbara Kearney, ◽  
Sharon Myatt,
Keyword(s):  
Quality Of Life ◽  
Focus Groups ◽  
Support Groups ◽  
Policy Making ◽  
Healthcare Providers ◽  
Healthcare Services ◽  
Clinical Nurse ◽  
Clinical Nurse Specialists ◽  
Do No Harm

The phenomenon of interest of this study was the woman’s perspective on what it was like to live with fibromyalgia (FMS). Aphenomenological study was conducted utilizing participant interviews, focus groups, and observations of FMS support groups. The participants portrayed the unending struggle of living with FMS with progressive disability further complicated by lack of trust and not feeling safe with the healthcare provider and system. Clinical Nurse Specialists (CNS) are crucial in educating healthcare providers on FMS, individualizing care to slow disability and promote quality of life, and influencing policy-making bodies to improve healthcare services.

Sexual Dysfunction in Patients with Neuropsychiatric Disorders: Challenges and Opportunities

CNS Spectrums ◽  
2006 ◽  
Vol 11 (S9) ◽  
pp. 4-4
Author(s):  
Barry Gidal ◽  
John J. Barry
Keyword(s):  
Quality Of Life ◽  
Sexual Dysfunction ◽  
Adverse Effects ◽  
Sexual Function ◽  
Healthcare Providers ◽  
Well Being ◽  
Sexual Disorders ◽  
Functional Impairments ◽  
The Impact

Quality-of-life issues in healthcare have come to be of paramount importance for a population that increasingly expects healthcare not only to treat major illnesses but also to optimize normal levels of physical and psychosocial functioning and overall well-being. Healthcare providers have also increasingly appreciated the impact that adverse effects of treatment can have on quality of life, as well as on compliance with and the effectiveness of treatment.Many functional impairments and adverse treatment effects take the form of clinical complaints that patients and caregivers typically report to their healthcare providers without prompting. Other adverse effects are not so obviously clinical or treatment-related, and patients may not be inclined or may even be reluctant to bring them up when talking with the provider. Impairment of sexual function is a problem of this kind.Sexual dysfunction appears to be common and frequently underrecognized in certain patient populations. For example, it has been estimated that 25% to 63% of women and 10% to 52% of men with epilepsy have some form of sexual dysfunction, yet in clinical reviews of sexual disorders, epilepsy is not listed as one of the medical conditions commonly associated with impaired sexual function.

scholarly journals Coping with Wolf-Hirschhorn Syndrome: quality of life and psychosocial features of family carers

2020 ◽  
Author(s):  
Sarah Berrocoso ◽  
Imanol Amayra ◽  
Esther Lázaro ◽  
Oscar Martínez ◽  
Juan Francisco López-Paz ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Support Groups ◽  
Coping Styles ◽  
Negative Relationship ◽  
Well Being ◽  
Postnatal Growth ◽  
Support Network ◽  
The Impact

Abstract Background : Wolf-Hirschhorn Syndrome (WHS) is a rare, congenital disease characterized by a distinctive facial phenotype, seizures, intellectual disability and developmental delay, and pre and postnatal growth requiring lifelong care. The psychosocial status of the family caregivers of children diagnosed with WHS is unknown. This study aims to characterize the sociodemographic and psychosocial profile of WHS caregivers and analyze how these variables impact their quality of life (QoL) and well-being. Results: The sociodemographic and clinical profile of 22 Spanish caregivers of children with WHS and the characteristics of those affected have been described. Significant relationships were found between sociodemographic and psychosocial characteristics among caregivers. The impact on the parents' QoL and negative relationship with the symptomatology were assessed. The use of engagement strategies such as problem focused coping was associated with improved psychological QoL and social support. Conclusions: WHS caregivers share similarities in their profile and needs with caregivers of children with other rare diseases. Pychosocial support groups involving parents caring for children with the same disease could improve caregivers’ well-being and QoL by strengthening their social support network and using positive coping styles. Keywords: Wolf-Hirschhorn syndrome; 4p deletion; caregivers; quality of life; coping; depression; social support; spirituality.

scholarly journals The influence of chronic wound leg on the quality of life of patients // Uticaj hronične rane noge na kvalitet života bolesnika

2017 ◽  
Vol 4 (1) ◽  
pp. 13
Author(s):  
Tatjana Ivanković Zrnić ◽  
Dragana Bojinović Rodić ◽  
Jelena Nikolić Pucar ◽  
Mirjana Vučurević Ozren
Keyword(s):  
Quality Of Life ◽  
Chronic Wounds ◽  
Chronic Wound ◽  
Financial Burden ◽  
Psychological Impact ◽  
Complete Healing ◽  
Psychological State ◽  
Validated Questionnaire ◽  
The Impact

A chronic wound can greatly impair the quality of life of patients. Early we can consider chronic if there is no complete healing after six weeks of treatment. Over time, several different instruments have been developed to monitor the impact of a chronic wound on the quality of life of patients. The original required a lot of time to complete, remained incomplete, and there was a need to develop a standardized, short, multi-dimensional questionnaire. This led to the formation of a “Wound-QoL” questionnaire used in assessing the quality of life of patients with a chronic wound.In our institution, a pilot study was conducted on the impact of chronic wounds on the quality of life of patients, using a validated questionnaire. The study included 32 patients whose wounds were transplanted to the Institute. The questionnaires were completed at the beginning of the wound treatment at the institution.In physical terms, a chronic wound has a central impact on our respondents, but its psychological impact is most pronounced. On everyday activities, the influence of the wound is assessed in men as small, and an equal number of women consider it to have a small and big effect. Respondents believe that treating chronic wounds does not carry a large financial burden. It is necessary to assess the quality of life of patients with chronic wound before and after treatment and possible healing of the wound in order to see the impact of chronic wounds on the positive psychological state of the wound and the motivation to heal.

scholarly journals Impact of an Interprofessional Education Quality of Life Forum on Students’ Perceptions and Commitment to Addressing Local Health Disparities and the Social Determinants of Health

2020 ◽  
Author(s):  
Jamie Bayliss ◽  
Erin Hofmeyer ◽  
BC Charles-Liscombe ◽  
Kristin Clephane ◽  
Sandra Matthias ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Interprofessional Education ◽  
Healthcare Providers ◽  
Health Science ◽  
Qualitative Assessment ◽  
Future Research ◽  
Local Health ◽  
Longitudinal Assessment ◽  
The Impact

Purpose: Healthcare providers and educational programs share a challenge where limited resources make interprofessional education (IPE) and collaboration difficult. The purpose of this research was to investigate the impact of IPE, specifically The Greater Cincinnati Quality of Life Forum within the School of Health Science at Mount St. Joseph University, on students’ perceptions of communication skills, collaboration, and values of interprofessional practice as they relate to emergent topics within the community and healthcare. Methods: Consenting participants completed an electronic survey with five reflection questions. Qualitative assessment included analysis of text for emergent themes. Results: Four themes evolved impacting future practice: consciousness, roles and responsibilities, professional values and ethics, and skepticism of the IPE activity benefit. Analysis of data also revealed three learner-readiness categories: desire to know, desire to act, and questioning value and validity. Conclusion & Recommendations: This IPE activity aimed to integrate holistic patient care approaches within a supportive interprofessional team. Educators ought to consider alignment of IPE activities to the learner audience for better integration of the process. Future research should also include longitudinal assessment of students’ development through IPE activities.

scholarly journals Impact of nickel oral hyposensitization on quality of life in systemic nickel allergy syndrome

2020 ◽  
Vol 34 ◽  
pp. 205873842093462
Author(s):  
Angela Rizzi ◽  
Alessia Di Rienzo ◽  
Alessandro Buonomo ◽  
Arianna Aruanno ◽  
Valentina Carusi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Minnesota Multiphasic Personality Inventory ◽  
Short Form ◽  
Well Being ◽  
Post Treatment ◽  
Psychological Status ◽  
Psychological State ◽  
Management Approach ◽  
Nickel Allergy

Nickel (Ni) oral hyposensitization treatment (NiOHT) is an effective management approach for Ni allergy. No health-related quality of life (HRQoL) data exist for the pre- and post-treatment with NiOHT in systemic nickel allergy syndrome (SNAS). The aims of this study were (a) to explore HRQoL in SNAS patients, (b) to assess changes of HRQoL after 1 year of NiOHT; (c) to evaluate psychological status of patients. SNAS patients completed the Short-Form 36-Item Health Survey and Psychological General Well-Being Index before and 1 week after the end of NiOHT. Moreover, psychological state was assessed with the Minnesota Multiphasic Personality Inventory (MMPI-2). A total of 52 patients self-reported pre- and post-treatment questionnaires. HRQoL was poor at baseline. After 1 year of NiOHT, all outcome measure scores improved by about 20% with respect to baseline data ( P < 0.01 for all indices, except depressed mood). Finally, 33 patients performed the MMPI-2. High rates for hypochondriasis and depression were noted. Furthermore, most of the patients had high scores for anxiety, depression, and health concerns. This is the first study showing that NiOHT improves HRQoL of SNAS patients, which can be considered a “personalized medicine” approach.

scholarly journals Evaluation of the impact of the COVID-19 lockdown on the quality of life of patients monitored for cancer who practice an adapted physical activity: rugby for health

2021 ◽  
Author(s):  
Stéphanie Motton ◽  
Kelig Vergriete ◽  
Luc Nguyen VanPhi ◽  
Eric Lambaudie ◽  
Audrey Berthoumieu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Psychological Distress ◽  
High Energy ◽  
Psychological Status ◽  
Adapted Physical Activity ◽  
Cancer Treatments ◽  
Health Crisis ◽  
The Impact

Abstract Purpose The benefits of regular physical exercise on the tolerability of cancer treatments, quality of life and survival rates post-diagnosis have been demonstrated but all supervised physical activities have been interrupted due to the global health crisis and the need for lockdown to halt the spread of SARS-CoV-2. To reintroduce activities post-lockdown, we wanted to assess the impact of the COVID-19 lockdown on the quality of life and the psychological status of patients who practice an adapted physical activity such as rugby for health. Methods The evaluation was conducted in two phases: an initial self-questionnaire comprised of 42 questions sent to all participants to assess the impact of lockdown and a second assessment phase in the presence of the participants. We assessed anthropometric data, functional fitness parameters, quality of life and the psychosocial status of the subjects. The data were compared to pre-lockdown data as part of a standardised follow-up procedure for patients enrolled in the programme. Results 105/120 (87.5%) individuals responded to the rapid post-lockdown survey analysis. In 20% of the cases, the patients reported anxiety, pain, a decline in fitness and a significant impact on the tolerability of cancer treatments. Twenty-seven patients agreed to participate in the individual analysis. Following lockdown, there was a significant decrease in the intensity of physical activity (p = 8.223e–05). No post-lockdown changes were noted in the assessments that focus on the quality of life and the level of psychological distress. Conversely, there was a significant correlation between the total of high energy expended during lockdown and the quality of life (p = 0.03; rho = 0.2248) and the level of psychological distress post-lockdown (p = 0.05; rho = − 0.3772). Conclusion Lockdown and reduced physical activity, particularly leisure activities, did not impact the overall health of the patients. However, there was a significant correlation with the level of physical activity since the higher the level of physical activity, the better the quality of life and the lower the level of psychological distress.

scholarly journals Factors Associated with Quality of Life in Huntington’s Disease

2020 ◽  
Vol 18 (2) ◽  
Author(s):  
Najwa Hanim Md Rosli
Keyword(s):  
Quality Of Life ◽  
Huntington's Disease ◽  
Huntington’S Disease ◽  
Rating Scale ◽  
Neurodegenerative Disorder ◽  
Psychological Status ◽  
Psychological State ◽  
Factors Associated ◽  
Motor Disturbances

Introduction: Huntington's disease (HD) is an inherited progressive neurodegenerative disorder which affects motor function, cognition and the psychological state of HD patients. Its triad of unique symptoms compared to other neurodegenerative disorders might give rise to a higher level of burden for their carers. The aim of this study was to explore factors associated with the quality of life in patients with HD. Materials and Method: Eighty-one HD patients and their carers participated in this study. Cognitive impairment was assessed with the Neuropsychiatry Unit Cognitive Assessment Tool (NUCOG), motor disturbances was scored using the Unified Huntington's Disease Rating Scale (UHDRS) motor scale, psychological status of both patient and carer were assessed using the Depression Anxiety Stress scale (DASS21), behavior of the patient was assessed using Revised Cambridge Behavioural Inventory (CBI-r) and patient's quality of life was assessed with WHOQOL-BREF questionnaire. Results: Patients' psychological conditions, motor disturbances and behavior of the patient are correlated with low QOL in HD patient. Conclusion: Other than regular motor symptoms, psychological and behaviour of HD assessment should be assessed regularly to ensure the patients having good quality of life.

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