scholarly journals New Procedures in Pediatric Oncology and Hematology: Too Many Questions

Author(s):  
Polina G. Gabay ◽  
Sophia A. Dronova

The article presents a legal analysis of the procedure for providing medical care in pediatric oncology and hematology which regulates the provision of medical care to children with neoplasms and diseases of the blood and blood-forming organs and certain disorders involving the immune mechanism. The place of the pediatric oncology and hematology profile in the system of existing regulatory legal acts and the role assigned by the new procedure to the pediatric oncologist are determined. The requirements to the structure of medical organizations providing medical care in pediatric oncology and hematology profile, the procedure of oncological and hematological diseases diagnosis and management are considered. Attention is drawn to the lack of timescales of pediatric oncologist-hematologist consultation and taking biopsic material. The algorithm of medical organizations actions on entering data into information systems is analyzed.

2020 ◽  
Vol 11 ◽  
pp. 31-34
Author(s):  
Polina G. Gabay ◽  

Purpose. To study the indices of carelessness in the provision of medical care from a criminological standpoint. Methodology: it includes the following methods: historical and legal, comparative legal, analysis and forecasting. Conclusions. 1. Elements of everyday carelessness in health care can be distinguished only conditionally and only in the sphere of relations that are within the framework of personal relations between medical personnel and patients. 2. The structure of health crime includes three groups of crimes: professional crimes of health workers; malfeasance of employees of the studied area; crimes, the responsibility for which arises for these subjects along with other persons. Scientific and practical significance. The conclusions presented in the article are aimed at increasing the effectiveness of counteracting careless criminality in the healthcare sector in the provision of medical care.


2016 ◽  
Vol 164 (8) ◽  
pp. 542 ◽  
Author(s):  
James J. Chamberlain ◽  
Andrew S. Rhinehart ◽  
Charles F. Shaefer ◽  
Annie Neuman

2013 ◽  
Vol 97 (10) ◽  
pp. 673-684 ◽  
Author(s):  
Eric M. Delmelle ◽  
Cynthia H. Cassell ◽  
Coline Dony ◽  
Elizabeth Radcliff ◽  
Jean Paul Tanner ◽  
...  

2020 ◽  
Vol 9 (27) ◽  
pp. 357-366
Author(s):  
Oleksandr Shevchuk ◽  
Volodymyr Maryniv ◽  
Yuliia Mekh ◽  
Oleksandra Shovkoplias ◽  
Oksana Saichuk

The article focuses on the need to respect human rights in the provision of medical services in Ukraine. It is strictly unacceptable to restrict citizens of Ukraine in receiving free medical services, since such a right is provided for by Art. 49 of the Constitution of Ukraine. It is proposed to consider that a medical service includes all types of medical care and is a special activity in relation to human health. The concept and main signs of medical services are revealed, it is established that the state, local governments, legal entities and individuals, including the patient, can be the customer of medical services. Ukrainian legislation governing the provision of medical services does not meet international standards. The positive experience of the EU countries (France, Denmark, Slovakia) and the world (Australia, Canada) shows that access to medical services is provided within the framework of medical insurance, in most cases free of charge, and is controlled by authorized state organizations. The purpose of the article is to determine the content, signs of medical services, classification criteria for their subjects, disclose the features of their legal regulation, clarify the problems of legalization of medical services and improve legislation taking into account foreign experience. The research methodology is based on a systematic approach, which is determined by the specifics of the topic of the article, and is also associated with the use of general and special research methods. The comparative legal method and the method of legal analysis were used in the study of legislative rules governing the provision of medical services. Using the method of legal analysis, groups of subjects of medical legal relations in the field of medical services are determined and their powers are analyzed. The formal logical method was used to differentiate the criteria for distinguishing between the legal structures “medical care” and “medical service”. The results of the study contributed to the identification of certain legal problems that arise when citizens receive medical services and require immediate resolution. It is also advisable to introduce compulsory state health insurance.


Author(s):  
Veronika A. Fadeeva ◽  

Introduction. The addition of the section “Information on the cost of medical services rendered” to “Public Services”, the state information system, allowed the citizens of the Russian Federation to receive relevant information promptly. This possibility soon exacerbated the problem of unreliability of information about the medical services provided to the insured persons under compulsory medical insurance. The article defends a position based on the legal analysis of the legislation of the Russian Federation in the sphere of compulsory medical insurance. According to this position, the problem can be overcome by appropriate changes in the regulatory documents governing the control powers of the territorial funds of compulsory medical insurance, health insurance organizations. Theoretical analysis. The right to reliable information is enshrined in a number of regulatory legal acts of the Russian Federation, the analysis of which allows us to investigate the problem of unreliability of information in the system of compulsory medical insurance (“medical prescriptions”). Empirical analysis. Identification of unreliability of information about the provided medical services can be carried out both by the insured persons under compulsory medical insurance and through the control of the competent authorities. In this regard, the article analyzes the control powers of the territorial funds of compulsory medical insurance, medical insurance organizations. Results. The result of the author’s analysis of the problem of unreliability of information in the system of compulsory medical insurance (“medical attributions”) is a proposal to improve the procedure for organizing and monitoring the volume, timing, quality and conditions of providing medical care for compulsory medical insurance.


Author(s):  
Sergey M. Zubarev ◽  
◽  
Alexander V. Travin ◽  
Aleksey I. Frolov ◽  
◽  
...  

The article provides a legal analysis of the conditions of civil liability for damage caused by the adoption and implementation of state management decisions taken during the operation of digital state information systems. An approach to assessing the guilt of the state in taking a harmful management decision in the context of digitalization, consisting in the analysis of the actions of the entire state appa-ratus as a whole, rather than a single individual body that failed, for example, to resist com-puter attacks, is proposed. The features of tort liability of the state for breach of confidentiality of digitally represented data and for harm caused by inaccurate (irrelevant) information of information systems have been considered. The principle of public reliability has been suggested as a general rule for state information systems. The opinion has been expressed that it is necessary to define unambiguously which information systems are characterized as publicly trustworthy. The paper touches on the problem of tort liability in case of breach of electronic identifi-cation and authentication rules. The author has argued that both the certification centres which violated the procedures of qualified electronic signature keys issue and public law entities when authorities and officials caused damage can be considered as a tortfeasor if there are reasons to do so. An analysis was made of judicial practice of appealing against actions and decisions of public authorities taken on the basis of applications signed with fictitious qualified electronic signatures. A special attention was paid to the tort liability associated with the activity of agents involved in the processes of adoption and implementation of state management decisions using information systems (MFC, certification centres etc.). Business entities contributing to the processes of information systems maintenance and engaged by the state bodies are suggested to be called "information systems agents". The peculiarities of civil responsibility of the state for damage caused by a management decision promoted by an information system agent were considered. It was suggested to con-sider the state as a proper subject of tort liability, the guilt of which in this case was specific and consisted in failure to take measures for control over the corresponding agent. The legal analysis of the grounds of vicarious liability of public-law entities for damage caused by information system agents was carried out. The opinion about independent liability of information system agent is argued if the harm is not in causal connection with actions (inactions) of public legal entity or if there is no guilt of public legal entity. On the basis of the practice of the European Court of Human Rights it is proposed de lege ferenda to fix the responsibility of the state for the torts committed by the persons entrusted by the state to perform public functions.


2020 ◽  
Vol 4 (1) ◽  
pp. 123-132
Author(s):  
Oleg N. Bibik

The subject of research is information systems that allow you to integrate scientific knowledge, including in the field of law enforcement. The purpose of the article is to confirm or disprove hypothesis about the possibility of creating a unified system of scientific information as well as to determine the elements of such a system. The methodology of the study is a formal legal analysis of the normative legal acts and practice of functioning of scientific information systems. The main results and scope of their application. Science has accumulated a huge amount of information that needs to be systematized. The research infrastructure does not allow you to quickly find the necessary information. The consequence of this is the problem of multiple independent scientific discoveries, plagiarism. There is also no standard for scientific research, which is why works written using the scholastic method are often found mainly in the humanitarian sphere. There are various search platforms that combine databases of publications in scientific journals and patents. These platforms simplify the search for information, but very poorly systematize it. These systems are also aimed at ranking publications, journals, and researchers. There are electronic encyclopedias that systematize knowledge. However, these projects also have serious drawbacks, mainly related to their focus on the non-scientists: 1. Insufficient expert level in the presentation and evaluation of the material. 2. There is no status of a scientific publication, which makes it impossible to publish scientific works using this platform. 3. There is no task to integrate scientific knowledge. Conclusions. It is proposed to create a unified system of scientific information that will facilitate the search for the necessary data, make it possible to quickly get acquainted with advanced scientific developments, and increase the level of research, including through the introduction of the appropriate standard. This system can integrate the func-tions of an electronic scientific journal, an electronic library, an electronic textbook, as well as a search platform that provides the implementation of scientometric functions. The proposed system will be regularly and promptly updated as new scientific papers be-come available. Information in the system will be evaluated by experts for its ranking and use, including for related research. The system is primarily a source of publishing scien-tific information. The system will allow an objective approach to the selection of applica-tions for financial support for research, including grants, ensuring transparency of this procedure.


2017 ◽  
Vol 35 (15_suppl) ◽  
pp. e22020-e22020 ◽  
Author(s):  
Nurdan Tacyildiz ◽  
Sonay incesoy Ozdemir ◽  
Emel Cabi Unal ◽  
Handan Dincaslan ◽  
Gulsan Yavuz

e22020 Background: The population of childhood cancer survivors has grown with 80 % cure rates. Our aim was to establish the barriers of longterm followup (LTFU) in Turkey. Methods: An e-mail questionnaire survey has been sent to 33 pediatric oncology centers (POC). Questionnaire compossed of 3 sections: 1- Description of the center; yearly new patients number, follow-up period, etc. 2- Methods for follow-up of late effects Content of provided information to the families related cancer treatment & side effects & healthy life style, missing parts of LTFU 3- Transition problems of survivors to adult survivorship programs. Educational problems of Hematology/Oncology Fellows (HOF) Suggestions for improvement of LTFU. Results: 21 of 33 centers (63%) responded the questionnaire. Experience as POC: 2-50 years (median: 23). New patients / each year: 8 - 300 (median: 68). Most of the centers accepting patients up to 18 years, only 4 center providing lifelong LTFU. No Available Risk Adapted LTFU guideline at 21 center. LTFU provided by pediatric oncologist at the pediatric oncology outpatient clinic with transition problems to adult clinic. All centers were following Cardiotoxicity, Secondary cancer,and Kidney toxicity with no problem Barriers of Turkish POC for LTFU of Pediatric Cancer Survivors were: Lack of enough care providers 66%, lack of time 57%, transportation problems 57 % ,lack of providing knowledge to patients 38 %. Although 80 % of the centers have fellows for HOF, not enough edication on survivorship 66%, due to lack of survivorship clinic ( 80%), busy working schedules. Conclusions: Questionnaire survey was able to reach 2/3 the pediatric oncology centers that were located in 8 cities and following most of the pediatric oncology patients in Turkey Mostly POCs do not provide enough LTFU. All centers agree on national guidelines for LTFU. [Table: see text]


2020 ◽  
Vol 38 (15_suppl) ◽  
pp. e19002-e19002
Author(s):  
Saten Hovhannisyan ◽  
Ruzanna Papyan ◽  
Lilit Sargsyan ◽  
Samvel Danielyan ◽  
Lala Vagharshakyan ◽  
...  

e19002 Background: In Armenia the incidence of pediatric cancer accounts for around 80-100 cases per year. This qualitative study was conducted in 2018 to evaluate the needs and challenges in a provision of pediatric cancer care in Armenia. Comparative qualitative study was conducted in 2020 to evaluate the progress in the field. Methods: Qualitative research methods were incorporated to evaluate the achievements, needs and challenges in a provision of childhood cancer care in Armenia. Semi-structured in-depth interviews were conducted with selected study participants including pediatric oncologist/hematologists, pediatric surgeons, who also treat cancer patients, and radiation oncologists. Purposive sampling technique and qualitative conventional content analysis methods were used. Results: Data collected in January 2020 has shown significant improvements in the field of pediatric oncology in Armenia. In the 2018 study, some of the major issues included lack of centralized pediatric cancer care, pediatric cancer registry, palliative care center, possibility of providing high-dose methotrexate, limited nursing training, multidisciplinary team approaches and use of central catheters. Within two years, majority of these problems were solved or are in the process. In 2019 all 3 pediatric oncology and hematology units were merged and the Pediatric Cancer and Blood Disorders of Armenia was created; with the support from charitable foundations all children with cancer receive free medical and psychosocial coverage; a 25 year data has been collected from all the possible sites, the first pediatric cancer palliative care is under construction, 4 multidisciplinary cancer teams were created, pediatric oncology and hematology fellowship was created at the Yerevan State Medical University to prepare for the first time "pediatric oncologist-hematologist" as a one profession. The existing major problems include very limited provision of pediatric cancer medications by the government, as well as lack of the official registration of the number of essential drugs included in the WHO list. Conclusions: Twinning programs, multidisciplinary team discussions with international experts, improvement in availability of several resources, professional development of the staff are major tools for the progress of pediatric oncology in Armenia. Poor provision and official registration of anti-neoplastic medications by the government still remain a major obstacle.


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