scholarly journals Caring for the carer: quality of life and burden of female caregivers

2019 ◽  
Vol 72 (3) ◽  
pp. 728-736
Author(s):  
Michelly Guedes de Oliveira Araújo ◽  
Michelinne Oliveira Machado Dutra ◽  
Carla Carolina Silva Leite Freitas ◽  
Tatiane Gomes Guedes ◽  
Francisco Stélio de Souza ◽  
...  

ABSTRACT Objective: To assess the quality of life and the burden of female caregivers. Method: Descriptive, cross-sectional, quantitative study carried out with 224 informal caregivers from March to July 2016. Three instruments were used: a characterization form for the caregiver, the WHOQOL-Bref questionnaire and the Zarit Burden Interview. The following tests were used: Cronbach’s Alpha, Kolmogorov-Smirnov, Kruskal-Wallis, Spearman and Mann-Whitney. Results: The mean age of caregivers was 51.8 years with a standard deviation of 13.7. They were predominantly married, had a low income and low level of education, were first-degree relatives, had been providing care for one to five years and presented some pathology. The associations of quality of life that presented statistical significance were: income, marital status, number of people living with the caregiver and time of care. Conclusion: The burden was negatively correlated with QOL, that is, the greater the burden, the more impaired will be the life of these caregivers.

2020 ◽  
Author(s):  
suha baloushah ◽  
samira barjasteh ◽  
aymen elsous ◽  
ali alderawi ◽  
soha abou eid ◽  
...  

Abstract Background: Infertility is an important health problem affecting the quality of life accompanied by significant emotional and psychological consequences. Infertile couples living with emotional disturbances face challenges with less success of infertility treatment. Purposes: This study aimed to investigate the quality of life of infertile couples who seek In-Vitro Fertilizations (IVFs) by gender in Gaza city, Palestinian. Methods and materials: A cross sectional study was conducted, from Feb 2018 to Nov 2018, among 383 infertile couples selected through convenient sampling. A valid and reliable Arabic version of the fertility quality of life questionnaire (FertiQoL) was used in data collection. One way ANOVA and independent t-test was applied to compare between males and females. P value less than 0.05% was considered statistical significance. Results: The mean age of males and females was 34.54±8.54 and 29.28±6.71 years respectively. More than half of them had university degree (64% and 60% respectively). The mean duration of infertility of couples was 5.66±3.54 years. The mean males' scores of FertiQoL and its subscales (emotion, mind/body, social, core, tolerability and treatment) were significantly higher than females' scores (p<0.05). Conclusion: The males' total scores of FertiQoL and its subscales were higher than females' scores. The mean total of FertiQoL increased with better education, however, decreased with increase of age, duration of marriage, duration of infertility and number of IVF attempts. Psychological assessment and Counseling are necessary for infertile women taking into considerations factors affecting their QoL.


2018 ◽  
Vol 5 (2) ◽  
pp. 56-63
Author(s):  
Abdul Wakhid ◽  
Estri Linda Wijayanti ◽  
Liyanovitasari Liyanovitasari

Background: Self efficacy can optimize the quality of life of clients who undergo the healing process due to chronic diseases. Individuals with higher self-efficacy move their personal and social resources proactively to maintain and improve the quality and length of their lives so that they experience a better quality of life. Objectives: the purpose of this study was to find the correlation between self efficacy and quality of life of patients with chronic kidney disease who undergo hemodialysis at RSUD Semarang Regency. Metode: This type of research was descriptive correlation with cross sectional approach. The samples in this study more 76 people with total sampling technique. The data collection tool for self efficacy was measured by General Self-Efficacy scale, for quality of life with WHOQoL-BREF. Statistical test used Kolmogorov-smirnov. Result: The result showed that self efficacy in patients with chronic kidney disease was mostly in moderate category (53,9%), quality of life in patients with chronic kidney disease was mostly in good category (68,4%). There was a correlation between self efficacy and quality of life of patients with chronic kidney disease who undergo hemodialysis at RSUD Semarang Regency, the result obtained p-value of 0.000 <α (0,05). Suggestion: Patients with chronic kidney disease can maintain good quality of life by helping to generate positive self-esteem and high self efficacy.


2021 ◽  
pp. 204589402199995
Author(s):  
Layse Nakazato Lima ◽  
Felipe Mendes ◽  
Ilma Paschoal ◽  
Daniela Oliveira ◽  
Marcos Mello Moreira ◽  
...  

Pulmonary arterial hypertension (PAH) impairs exercise tolerance and daily physical activity (PA). Aside from the hemodynamic limitations, physical, cognitive and emotional factors may play a relevant and as yet unexplored role. We investigated whether there is an association between the PA level and psychological disorders, health-related quality of life, and daily activities. We also searched for an association of the PA level with clinical factors and functional capacity. This was an analytical, cross-sectional, observational study conducted in a Brazilian University Hospital. Twenty stable PAH subjects wore an accelerometer for a week and completed an activity diary. They answered the quality of life questionnaire (SF-36), as well as the anxiety and depression scale (HADS), and the Manchester Respiratory Activities of Daily Living questionnaire (MRADL). Transthoracic echocardiography, the 6-Minute walk test (6MWT), the 1-minute sit-to-stand test (STST), and spirometry were performed. For statistical analysis we used Chi-square tests or Fisher's test as appropriate and the Mann-Whitney test to compare numerical values between two groups. The relationship between the parameters was assessed using the Spearman correlation test. The mean age was 44.3 years, 80% were women, 80% had idiopathic PAH, and 20% had connective tissue disease . The mean daily step count was 4,280 ± 2,351, and the mean activity time was 41.6 ± 19.3 minutes. The distance covered (6MWT) was 451.5 m, and the number of movements (1-STST) was 23.8. Thirty percent scored positive for anxiety, and 15% for depression (HADS). There was a significant correlation between accelerometer data and walking distance (6MWT), number of movements (1-STST), level of daily physical activity (MRADL), and depression symptoms. Our findings support the hypothesis that other aspects beyond physical and hemodynamic ones might impact the daily physical activity of patients with PAH.


BMJ Open ◽  
2018 ◽  
Vol 8 (11) ◽  
pp. e020913 ◽  
Author(s):  
Andrés Cabrera-León ◽  
Miguel Ángel Cantero-Braojos ◽  
Llenalia Garcia-Fernandez ◽  
Juan Antonio Guerra de Hoyos

ObjectivesTo estimate the prevalence of disabling chronic pain (DCP) in Spanish adults, to analyse its characteristics, to determine its multimorbidity and to identify its associated factors.Settings2011 Andalusian Health Survey, a cross-sectional population survey based on face-to-face home interviews.Participants6507 people aged 16 years or older and living in Andalusia, Spain.OutcomesThe response variable was disabling chronic pain. Multivariate multinomial logistic regression models were used to analyse the association of factors with disabling chronic pain. The sample design was considered throughout the statistical analysis.ResultsThe prevalence of disabling chronic pain in the Spanish adult population was 11.36% (95% CI 11.23 to 11.49), while that of non-disabling chronic pain was 5.67% (95% CI 5.57 to 5.77). Disabling chronic pain was associated with high multimorbidity (especially in women (51%) and in the elderly (70%) with three or more additional chronic diseases), as well as with disadvantaged social status (such as female gender (OR=2.12), advanced age (OR10-year increase=1.28), unemployment (OR=1.33), manual work (OR=1.26), low income (OR=1.14) and reduced emotional social support (OR=1.04)). Other influential factors were tobacco consumption (OR=1.42), sleeping ≤7 hours (OR=1.2)], environmental or work conditions (OR=1.16) and quality of life (ORmental=1.21, ORphysical=2.37).ConclusionsThe population with disabling chronic pain was associated with multimorbidity, vulnerable social status and an impaired quality of life. In contrast, the population with non-disabling chronic pain showed almost no differences when compared with the population without chronic pain. The association between DCP and mental disorders highlights the need for psychosocial services in the management of chronic pain.


2018 ◽  
Vol 68 ◽  
pp. 01009
Author(s):  
Virna Widora Saputri ◽  
Rico Januar Sitorus ◽  
H. M. Zulkarnain

The purpose of this study was to determine the factors that affect the quality of life of CRF patients in Hemodialysis Unit at Pringsewu District General Hospital. This study was conducted from February to May 2018 with cross sectional study design. The sampling technique using total sampling technique. Measurement of quality of life using KDQOL-SFTM version 1.3. The results found that quality of life scores were quite low in some domains and subscales. The mean of total score was 55.70 ± 21.30 with mean of Physical Health Composite (PHC) = 38.85 ± 9.26 and mean of Mental Health Composite (MHC) = 36.13 ± 7.08. Regarding the targeted area of ESRD, the scale of renal disease burden and occupational status scale resulted in the lowest score. The sleep quality scale score was 56.18 ± 20.72. Only 61 patients responded to questions of sexual activity with a score of 55.53 ± 27.44 on the scale of sexual function. In the 36-item health survey, the mean total score was 45.90 ± 21.95. The lowest score represented the limitations of roles caused by physical and emotional health problems. The result of statistical test showed that the variables significantly related to the quality of life of CRF patients were age, income, duration of hemodialysis and family support. Thus, family support was the variable that had the greatest impact on determining the quality of life of CRF patients. The CRF patients who lacked family support were 4.6 times more likely to lead poorer life compared to CRF patients who received good family support after being controlled by age, income, duration of hemodialysis, gender, working status, and diabetes mellitus variables.


2020 ◽  
Vol In Press (In Press) ◽  
Author(s):  
Mahnaz Zarshenas ◽  
Mozhgan Sorkhenezhad ◽  
Marzieh Akbarzadeh

Background: Uterine leiomyomas are considered as a major source of complications and the most common cause of hysterectomy. Objectives: The aim of this study was to compare the quality of life in women with and without uterine leiomyoma referred to gynecology clinics of Shiraz University of Medical Sciences in 2018. Methods: In this cross-sectional study, a total of 126 patients who referred to the clinics of Shiraz University of Medical Sciences were selected and divided into equal groups according to uterine leiomyoma, 1 - 7 cm uterine leiomyoma group and non-uterine leiomyoma group by convenience sampling. The World Health Organization Quality of Life and Healthy Lifestyle questionnaires were used for data collection. Independent t-test was used to analyze the data. Results: The mean quality of life of women with uterine leiomyoma was 47.20 ± 12.41 and women without uterine leiomyoma had a significant difference (51.11 ± 11.23, t = 3.93, P = 0.041). The mean lifestyle of women with uterine leiomyoma was 114.18 ± 25.48 and women without uterine leiomyoma had 149.11 ± 23.81 (t = 4.01, P = 0.029). Conclusions: The mean score of quality of life and lifestyle were significantly different in women with and without uterine leiomyoma. Therefore, it is necessary to improve the quality of life of women by improving their lifestyle and providing psychological counseling.


2018 ◽  
Vol 14 (12) ◽  
pp. 308
Author(s):  
Yaser Adnan Abo Jeesh ◽  
Magda El-hadi Ahmad Yousif ◽  
Moauya Al-Balal Al-Haboub

Background: Thalassemia is the most common autosomal abnormality in Syria. Its complications have an important effect on education; time off school; sport; difference from friends/ siblings; social interactions; and stigmatization. Knowledge of factors associated with quality of life in thalassemia patients is necessary for forming appropriate clinical programs, social support, and improving treatment outcomes. Purpose: The study was to assess the effects of Patients' and Care-givers' Knowledge, Attitude, & Practice (KAP) with Quality of Life among Thalassemia Major Patients' in Syria. Methods: Cross-sectional descriptive analytical design was conducted at the national thalassemia center in Damascus. WHOQOL-BREF and a questionnaire developed by the researcher were used to measure the participants’ knowledge, attitudes and practices of thalassemia. Results: Total of 238 thalassemia patients participated in the study. A statistical significance was found regarding improvement of skill and knowledge scores among caregivers and thalassemia patients before and after receiving the teaching guide from 12.52±1.77 to 14.07±1.01, t=11.447, p=0.000 and from 34.12±4.50 to 37.43±4.61, t=-8.58, p= .000 respectively. Stigmatization was significantly noticed among families caring for thalassemic patients. There were a significant differences in the mean score regarding nutritional status before and after teaching guide paired t test= 12.11, p= 0.000. A statistical significance was found in females regarding social domain p=0.04. However, mean scores for overall quality of life were better in females rather than males, but these mean scores were statistically insignificant p>0.05. A statistical significant difference in ferritin levels and patient’s age was found. Results also revealed that no statistical significant differences was observed between overall quality of life of the four domains in relation to the two treatment groups (subcutaneous vs oral) and age groups. Conclusion: Thalassemia is a socio-economic problem. The most efficient way to reduce risks of having affected patients is by increasing the knowledge through training of parents regarding the disease. Our findings highlighted that there was lack in patients’ knowledge and skills regarding the disease, but a remarkable improvement in both knowledge and performance was found after patients received the teaching guide, which lead to an increase in overall patient's quality of life.


2018 ◽  
Vol 9 (2) ◽  
pp. 93-98
Author(s):  
Anggita Bunga Anggraini

Latar belakang: Salah satu penilaian keberhasilan Program Terapi Rumatan Metadon (PTRM) yang merupakanprogram rehabilitasi terhadap pengguna narkoba -- khususnya pengguna narkotika suntik -- adalah kualitashidup klien. Oleh karena itu perlu diidentifikasi beberapa faktor yang dominan mempengaruhinya. Metode: Penelitian dilakukan dengan desain potong lintang yang dilakukan di Puskesmas Kedung Badakdan Bogor Timur di Kota Bogor. Pengumpulan data dilakukan dengan wawancara dan pengisian kuesionerWHOQOL-BREF pada April-Juni 2018. Analisis dilakukan dengan menggunakan regresi linier multivariabel. Hasil: Responden dalam penelitian ini berjumlah 62 orang. Hasil penelitian menunjukkan rerata skor kualitashidup klien PTRM di Kota Bogor pada domain fisik sebesar 57,6; domain psikologis sebesar 57,5; domain sosialsebesar 63,6; dan domain lingkungan 63,9. Dibandingkan rerata skor populasi sehat di Indonesia, domain fisikdan psikologis lebih rendah daripada populasi tersebut, sedangkan domain psikologis tidak berbeda denganpopulasi tersebut. Adapun skor domain lingkungan lebih tinggi dibandingkan populasi sehat Indonesia. Faktoryang dominan dalam menentukan kualitas hidup pada domain fisik dan lingkungan adalah tingkat pendidikan,sedangkan domain psikologis adalah dosis metadon. Faktor yang dominan dalam menentukan kualitas hidupdomain sosial adalah adanya seseorang yang dapat diajak bicara. Kesimpulan: Semakin tinggi tingkat pendidikan klien, maka kualitas hidup klien pada seluruh domain akansemakin baik. Klien PTRM dengan tingkat pendidikan yang lebih rendah harus dipantau untuk meningkatkankualitas hidupnya. Penanganan klien dengan pendekatan individual dan dukungan sosial dari keluarga danteman diperlukan untuk meningkatkan motivasi serta kepatuhan klien dalam menjalani terapi metadon. (HealthScience Journal of Indonesia 2018;9(2):93-9) Kata kunci: Kualitas hidup, metadon Abstract Background: One of the objective in Methadone Maintenance Therapy (MMT) which is a rehabilitationprogram for injecting drug users is quality of life. The purpose of this study was to determine quality oflife among MMT patients. Methods: The cross sectional study was conducted in Kedung Badak Primary Health Care and BogorTimur in Bogor. Data were collected from interview and filling out WHOQOL-BREF questionnaire fromApril-June 2018. Analysis was performed using multiple linier regression. Results: Total subjects in this study was 62 subjects. The results showed mean scores for physical domainwas 57.6; psychological domain was 57.5; social domain was 63.6; and environmental domain was 63.9.Compared with Indonesian, MMT patient scores were higher in environmental domain and lower inphysical and psychological domain while social domain had no different with it. The dominant factor indetermining physical and environmental domain was level of education, while the psychological domainwas methadone dose, and the existence of someones to talk to was dominant factor for social domain. Conclusion: The higher level of education, will produce better quality of life in all domains. MMTpatients with lower level education must be monitored to improve their quality of life. It is suggested totreat patients based on individual approaches and support from family and friends is needed to motivateclients and adherence to the therapy. (Health Science Journal of Indonesia 2018;9(2):93-9) Keywords: Methadone, quality of life


2018 ◽  
Vol 9 (3) ◽  
Author(s):  
Arethuza De Melo Brito Carvalho ◽  
Juliana Araújo Cardoso ◽  
Francisca Aline Amaral Da Silva ◽  
Jefferson Abraão Caetano Lira ◽  
Samuel Moura Carvalho

Objetivo: avaliar a qualidade de vida no trabalho da equipe de enfermagem do centro cirúrgico. Metodologia: estudo descritivo, de corte transversal e com abordagem quantitativa, desenvolvido com 70 profissionais de enfermagem do centro cirúrgico em um hospital de referência em Teresina (PI), com a aplicação dos questionários sociodemográfico e Quality Working Life Questionnaire-bref. A análise foi realizada com o SPSS versão 21.0, utilizando a correlação de Pearson e os testes alfa de Cronbach, Kolmogorov-Smirnov, Qui-quadrado e regressão linear múltipla, com intervalo de confiança de 95%. Resultados: a maioria dos participantes (62,9%) tiveram menor impacto na qualidade de vida no trabalho, entretanto a renda familiar e a formação acadêmica foram bastante significativas. Conclusão: apesar do trabalho no centro cirúrgico apresentar baixo impacto na qualidade de vida, o domínio psicológico demonstrou impacto considerável, destacando que a preocupação com a saúde do trabalhador e a valorização da equipe de enfermagem ainda precisam avançar.Descritores: Qualidade de vida; Enfermagem de centro cirúrgico; Saúde do trabalhador.QUALITY OF LIFE IN THE WORK OF THE SURGI CAL CENTER NURSING TEAMObjective: to evaluate the quality of life in the work of the nursing staff of the surgical center. Methodology: a descriptive, cross-sectional study with a quantitative approach developed with 70 nursing professionals from a surgical center at a reference hospital in Teresina (PI), with the application of the sociodemographic and Quality Working Life Questionnairebref questionnaires. The analysis was performed with the SPSS version 21.0, using the Pearson correlation and the Cronbach, Kolmogorov-Smirnov, Chi-square and multiple linear regression alpha tests with a 95% confidence interval. Results: the majority of the participants (62.9%) had a lower impact on the quality of life at work, however the family income and academic training were quite significant. Conclusion: Although the work in the surgical center has a low impact on the quality of life, the psychological domain has shown considerable impact, emphasizing that the concern with the health of the worker and the appreciation of the nursing team still need to move forward.Descriptors: Quality of life; Operating Room Nursing; Occupational Health.CALIDAD DE VIDA EN ENFERMERÍA DEL CENTRO DE TRABA JO DE EQUIPO QUIRÚRGICOObjetivo: Evaluar la calidad de vida del personal de enfermería que trabaja en la sala de operaciones. Metodología: enfoque descriptivo, transversal y cuantitativo desarrollado con 70 enfermeras en el quirófano de un hospital de referencia en Teresina (PI), con la aplicación de un cuestionario sociodemográfico y Calidad de Vida Cuestionario de Trabajo-BREF. El análisis se realizó con el programa SPSS versión 21.0 mediante la prueba de correlación de Pearson y alfa de Cronbach, prueba de Kolmogorov-Smirnov, regresión lineal chi-cuadrado y múltiple con un intervalo de confianza del 95%. Resultados: La mayoría de los participantes (62,9%) tenían un menor impacto en la calidad de la vida laboral, aunque el ingreso familiar y la formación académica eran bastante significativa. Conclusión: Aunque el trabajo en la sala de operaciones tiene un bajo impacto en la calidad de vida, el dominio psicológico mostró un impacto considerable, teniendo en cuenta que la preocupación por la salud de los trabajadores y la apreciación del equipo de enfermería todavía tienen que seguir adelante.Descriptores: Calidad de vida; Enfermería de quirófano; Salud laboral.


2021 ◽  
Vol 15 (3) ◽  
Author(s):  
Supriya Patil ◽  
Yamini Patil ◽  
Sanjay Kumar Patil

Diabetes is a chronic metabolic disorder that disturbs the quality of life (QOL) of patients. Therefore, evaluation of diabetes- related QOL could be a key outcome measure for its management. This study assessed the QOL in type 2 diabetes mellitus (T2DM) patients using the World Health Organization (WHO) quality of life (QOL)˗BREF questionnaire and disease-specific appraisal of diabetes scale (ADS). In this cross-sectional study, 520 T2DM patients were included. Patients’ demographic data, clinical information was collected through interviews, and the WHOQOL-BREF instrument and ADS were used for the QOL of patients. Statistical analysis was performed by using R software (Version 3.6.0). The mean ADS scores were lower in controlled diabetic subjects (18.50±3.08) and higher in uncontrolled diabetic subjects (19.29±2.73) (P<0.05). For WHOQOL-BREF, the mean scores for all the domains (overall general health, physical, psychological, social, and environmental) were significantly higher in controlled diabetic subjects (P<0.001). In addition, the age, duration of diabetes, associated comorbidities, treatment, and HbA1c level of patients showed a highly significant correlation with WHOQOL-BREF (P<0.001). Diabetic patients had poor-to-average QOL. Therefore, public health measures and education of diabetic patients are essential to create more awareness for improving the QOL of T2DM.


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