scholarly journals NETWORK AND SOCIAL SUPPORT IN CHILDREN WITH CHRONIC DISEASES: UNDERSTANDING THE CHILD'S PERCEPTION

2017 ◽  
Vol 26 (1) ◽  
Author(s):  
Maria Elizabete de Amorim Silva ◽  
Flávia Moura de Moura ◽  
Tarciane Marinho Albuquerque ◽  
Altamira Pereira da Silva Reichert ◽  
Neusa Collet
Keyword(s):  
Social Support ◽  
Qualitative Research ◽  
Social Network ◽  
Chronic Disease ◽  
Chronic Illness ◽  
Chronic Diseases ◽  
Thematic Analysis ◽  
Health Professionals ◽  
Public Hospital ◽  
Different Types

ABSTRACT Objective to identify the network and social support in the perception of children with chronic disease. Method qualitative research conducted with eight children with chronic disease, between November 2012 and June 2013 in a public hospital in Paraiba, Brazil. An adaptation of the drawing-story process with theme was used. The data were interpreted by thematic analysis. Results in some moments of life, the child receives different types of support that are offered by strengthened links that make up their social network. But this network has not always proven to be strengthened and able to provide the necessary support to adequately cope with the disease. Conclusion health professionals need to direct their focus on the child, listening to them and their singularities and helping to identify links in their social network which can provide them with the support they need to cope with chronic illness.

scholarly journals Knowledge produced on the health of low-income older women: an integrative review

2017 ◽  
Vol 70 (4) ◽  
pp. 875-884 ◽  
Author(s):  
Renata Evangelista Tavares ◽  
Maria Cristina Pinto de Jesus ◽  
Samara Macedo Cordeiro ◽  
Daniel Rodrigues Machado ◽  
Vanessa Augusta Braga ◽  
...  
Keyword(s):  
Social Support ◽  
Social Network ◽  
Older Women ◽  
Social Determinants ◽  
Low Income ◽  
Health Professionals ◽  
Web Of Science ◽  
Integrative Review ◽  
Exclusion Criteria

ABSTRACT Objective: to identify the knowledge produced on the health of low-income older women. Method: an integrative review was conducted in February 2016 on the SCOPUS, CINAHL, MEDLINE, LILACS, EMBASE, WEB OF SCIENCE databases, and in the SciELO journals directory. After the application of inclusion and exclusion criteria, 24 articles were selected. Results: the knowledge produced comprises two main themes: "health in face of economic adversities" and "reciprocity in social support between low-income older women and their social network". Final considerations: health professionals, especially nurses, should be attentive to aspects related to social determinants and the health of low-income older women, highlighting the fact that they are not always the recipients of care.

scholarly journals A "Not able to live anymore": Reaction of the grieving process of the elderly dealing with chronic disease

2018 ◽  
Vol 1 (1) ◽  
pp. 24-34
Author(s):  
Bahtiar Bahtiar ◽  
Sahar Sahar ◽  
Junaiti Junaiti ◽  
Wiarsih Wiarsih ◽  
Wiwin Wiwin
Keyword(s):  
Chronic Disease ◽  
Chronic Illness ◽  
Chronic Diseases ◽  
The Elderly ◽  
Nursing Intervention ◽  
Prolonged Treatment ◽  
Descriptive Phenomenology ◽  
Grieving Process ◽  
Disease Condition ◽  
Psychological Reaction

Background: Psychological problems have an impact on the elderly with chronic diseases thus affecting health status. Objective: The purpose of this study was to identify the response of the elderly in dealing with chronic diseases. Methods: This study uses a descriptive phenomenology method. The population in this study were elderly who lived in Makassar City and had a chronic disease. This study illustrates the experience of 13 older adults aged 60-78 years who experience chronic disease. Results: A response felt by the elderly with chronic diseases for years, a series of grieving processes. The grieving process felt by the elderly is a psychological reaction from the suffering experienced due to symptoms and complaints of chronic illness. The series of grieving process reactions that are displayed are denial, anger, bargaining, despair, and resignation. Conclusion: The old experience with denial, anger, bargaining during chronic illness is normal. Also, the elderly could experience a desperate reaction during chronic illness due to the prolonged treatment process, and resignation reaction was a sign that the elderly were aware of the disease condition which they experienced. Recommendation: nursing intervention is needed related to grieving issues that include aspects of self, physical, social and spiritual for elderly with chronic illness. Keyword: grieving, chronic illness, elderly, family

scholarly journals Sociodemographic Factors Influencing the Use of eHealth in People with Chronic Diseases

2019 ◽  
Vol 16 (4) ◽  
pp. 645 ◽  
Author(s):  
Fabienne Reiners ◽  
Janienke Sturm ◽  
Lisette J.W. Bouw ◽  
Eveline J.M. Wouters
Keyword(s):  
Health Care ◽  
Chronic Disease ◽  
Chronic Diseases ◽  
Rural Areas ◽  
Health Care Services ◽  
Sociodemographic Factors ◽  
Care Services ◽  
Computing Machinery ◽  
Different Types ◽  
Lower Education

Alongside the growing number of older persons, the prevalence of chronic diseases is increasing, leading to higher pressure on health care services. eHealth is considered a solution for better and more efficient health care. However, not every patient is able to use eHealth, for several reasons. This study aims to provide an overview of: (1) sociodemographic factors that influence the use of eHealth; and (2) suggest directions for interventions that will improve the use of eHealth in patients with chronic disease. A structured literature review of PubMed, ScienceDirect, Association for Computing Machinery Digital Library (ACMDL), and Cumulative Index to Nursing and Allied Health Literature (CINAHL) was conducted using four sets of keywords: “chronic disease”, “eHealth”, “factors”, and “suggested interventions”. Qualitative, quantitative, and mixed-method studies were included. Four researchers each assessed quality and extracted data. Twenty-two out of 1639 articles were included. Higher age and lower income, lower education, living alone, and living in rural areas were found to be associated with lower eHealth use. Ethnicity revealed mixed outcomes. Suggested solutions were personalized support, social support, use of different types of Internet devices to deliver eHealth, and involvement of patients in the development of eHealth interventions. It is concluded that eHealth is least used by persons who need it most. Tailored delivery of eHealth is recommended.

scholarly journals Chronic illness and quality of life

2000 ◽  
Vol 56 (4) ◽  
pp. 10-16 ◽  
Author(s):  
C. J. Eales ◽  
A. V. Stewart ◽  
T. D. Noakes
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Chronic Illness ◽  
Chronic Diseases ◽  
Psychological Health ◽  
Major Objective ◽  
Acceptable Quality ◽  
Successful Rehabilitation ◽  
Life Evaluations

The major objective of medical care is to preserve life. If patients cannot be cured and are left with residual chronic diseases then the aim is to provide them with the means to lead a life of quality within the confines of their disease. Rehabilitation in chronic disease means restoring or creating a life of acceptable quality. This is achieved by restoring the patient to optimal physiological and psychological health compatible with the extent of the disease and in doing so improve the quality of life. Improved quality of life is the best indicator of successful rehabilitation. Patients with chronic diseases are increasingly expected to become partners when decisions are made regarding their therapy and therefor their evaluation of the outcome is of great importance. There are a number of shortcomings with quality of life evaluations and the most important one is that it does not seem to be adequately defined. Another major problem is that this evaluation usually focuses on aspects of physical function and few studies include subjective indicators. It is generally felt that the opinion of the spouse or caregiver should be included.

A Community Model for Arthritis Rehabilitation

1983 ◽  
Vol 50 (4) ◽  
pp. 115-118
Author(s):  
Deborah Brown
Keyword(s):  
Chronic Disease ◽  
Chronic Diseases ◽  
Health Professionals ◽  
Severe Disability ◽  
Team Approach ◽  
Research Programs ◽  
Community Model ◽  
Treatment Education

Arthritis is a widespread chronic disease which can result in severe disability. Arthritis is best managed by a triad of treatment, education, and research. A community model for arthritis rehabilitation, with emphasis on the team approach, is described and illustrated. Central to the design of the model is an arthritis centre which demonstrates exemplary treatment and has a commitment to develop education and research programs. Primary arthritis care is the responsibility of the health professionals in each community, and the arthritis centre provides the support and resources for their programs. The model is suggested as a prototype for the management of other major chronic diseases.

scholarly journals How Does Health Information Influence African American Men’s Health Behavior?

2011 ◽  
Vol 6 (2) ◽  
pp. 156-163 ◽  
Author(s):  
Derek M. Griffith ◽  
Katrina R. Ellis ◽  
Julie Ober Allen
Keyword(s):  
Social Support ◽  
African American ◽  
Health Information ◽  
Thematic Analysis ◽  
Health Professionals ◽  
African American Men ◽  
Medical Professionals ◽  
Common Source ◽  
Health Issues ◽  
Healthy Behaviors

Few researchers have examined where African American men obtain, process, and use health information. A thematic analysis of data from eighteen exploratory focus groups conducted with 154 urban African American men aged 32 years and older revealed that men received health information from a variety of sources, including health professionals, media, and members of their social networks. At times, information raised their awareness of health issues, but trust in the source of the information influenced how this information was perceived. Medical professionals were the most common source of health information, but family members were the most trusted source of health information. Health problems and social support increased men’s motivation to use health information in order to improve their health and healthy behaviors. These findings illustrate that it is critical to identify factors that influence what information men choose to believe and follow or decide to ignore.

scholarly journals SOCIAL NETWORK INFLUENCES ON SENSE OF CONTROL AND ATTRIBUTED DIGNITY IN OLDER AGE: RESEARCH RESULTS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S887-S887
Author(s):  
Raeann G LeBlanc ◽  
Cynthia Jacelon
Keyword(s):  
Social Support ◽  
Social Networks ◽  
Social Network ◽  
Older People ◽  
Thematic Analysis ◽  
Community Dwelling ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Sense Of Control ◽  
Chronic Health

Abstract The purpose of this study was to explore the relationship between the functions of individual social networks, defined here as social support, and the outcomes of sense of control and attributed dignity among a sample of older people living with multiple chronic conditions. This study integrated an explanatory sequential (Quan/Qual) mixed methods design. Descriptive statistics were used to describe social networks. Bivariate correlations and regression statistics were used to examine the relationships of social network support (MOS-Social Support Scale) with the dependent variables of sense of control (Wallhagen Revised PCQ Questionnaire) and attributed dignity (Jacelon Attributed Dignity Scale). Open-ended interviews and thematic analysis were used to expand understanding of the quantitative findings. A cross-sectional sample of eighty-nine community dwelling older people living with multiple chronic health conditions participated. Social support, as a function of one’s social network, predicted the outcome of sense of control (β = .33, p ≤ .01) and attributed dignity (β = .44, p ≤ .001). Correlation statistics and regression models substantiated positive relationships of social supports’ influence on perceived sense of control and attributed dignity. Thematic analysis, based on open-ended interviews (n=12), expanded on the nuances of social influences on sense of control and attributed dignity in managing chronic health conditions through the themes “learning to ask for help”, “only a phone call away” and “smaller circles”. This research proposes new ways of understanding the relationships between perceptions of social support, sense of control and attributed dignity in later life in managing health.

Social Class and Chronic Illness

1973 ◽  
Vol 3 (3) ◽  
pp. 357-368 ◽  
Author(s):  
Patrick W. Conover
Keyword(s):  
Socioeconomic Status ◽  
Chronic Disease ◽  
Chronic Illness ◽  
Social Class ◽  
Chronic Diseases ◽  
National Health ◽  
Health Survey ◽  
National Health Survey ◽  
Central Research ◽  
Income Category

This paper traces a three-stage history of theorization on the causal relationship between social class and chronic illness, focusing in particular on the contributions of Kadushin and Mechanic. Five areas of agreement between Kadushin and Mechanic are presented as a basis for further analysis: (1) the importance of data from the National Health Survey; (2) the necessity for controlling for age as an important variable; (3) the more severe measures of chronic diseases, as shown by criteria of activity limitation or work loss, are clearly class related, with the greatest magnitude of change between the lowest income category and the next highest category; (4) there are no data from other studies that can be counted as opposing the above evidence; (5) there is agreement that it is more likely that persons will accurately report more severe episodes of chronic illness than less severe episodes. Two central research questions are then addressed: What is the true shape of the relationship between socioeconomic status and chronic disease? What are the most reasonable of the possible causes of this relationship? Analysis of new material from the National Health Survey is presented in answer to these questions. The utility of these data for this purpose is defended. Certain relationships are noted: For whites and non-whites, with age adjusted or not adjusted, there is a strong relationship between income and measures of chronic disease. With a threefold division of the income category, the magnitude of the differences between income levels is large. These relationships hold over a wide range of specific chronic diseases. The conclusion is drawn that Kadushin's hypothesis of overreaction to illness by the lower classes is of little significance. More study is needed of the downwardly mobile effects of chronic illness. The effects of poor health and low socioeconomic status are presumed to be circular.

scholarly journals Rede social e o apoio social de pessoas com doença renal crônica em diálise peritoneal

2019 ◽  
Vol 7 (15) ◽  
pp. 453
Author(s):  
Alana Duarte Flores ◽  
Juliana Graciela Vestena Zillmer ◽  
Eda Schwartz ◽  
Celmira Lange ◽  
Caroline De Leon Linck ◽  
...  
Keyword(s):  
Social Support ◽  
Qualitative Research ◽  
Peritoneal Dialysis ◽  
Social Network ◽  
Chronic Renal Disease ◽  
Participant Observation ◽  
Support Network ◽  
The Social ◽  
Interview Participant ◽  
Positive Social Interaction

Resumo: Descrever a rede social e o apoio social de pessoas com doença renal crônica em diálise peritoneal. Pesquisa qualitativa, desenvolvida com 20 pessoas em diálise peritoneal, realizada em um serviço de nefrologia de Pelotas, Brasil. A coleta de dados ocorreu entre abril de 2013 e junho de 2014. Os dados foram produzidos por meio de entrevista aberta, semiestruturada e observação participante, sendo posteriormente organizados mediante o programa Etnograph v6 e, submetidos à análise de conteúdo proposta por Laurence Bardin. Estudo aprovado por um Comitê de Ética em Pesquisa mediante parecer nº 538.882. Identificaram-se duas categorias: a primeira, Eles me apoiaram! Apoio Social de pessoas em diálise, em que se abordou os tipos de apoio emocional e afetivo, instrumental, de informação e apoio de interação social positiva e em qual fase do adoecimento era mais frequente. Na segunda categoria, Tecendo interações: rede social de pessoas em diálise, em que se descreve os integrantes e os tipos de vínculos mantidos, sendo a família como eixo central nessa rede.Palavras-chave: Rede social; Apoio social; Insuficiência renal crônica; Diálise; Pesquisa qualitativa. Support network and social support of people with chronic renal disease under peritoneal dialysisAbstract: This study aimed to describe the social network and social support of people with chronic kidney disease under peritoneal dialysis. This is a qualitative research carried out among 20 people under peritoneal dialysis at a nephrology clinic in Pelotas, Brazil. Data collection occurred from April 2013 to June 2014. The data were produced through semi-structured and open interview, participant observation, and later they were organized using the Etnograph v6 program and submitted to content analysis proposed by Laurence Bardin. This study was approved by a Research Ethics Committee, under no. 538,882. Two categories were identified: the first one, They supported me! Social support of people under dialysis, there it was discussed about the types of emotional, affective, instrumental and informational support, about positive social interaction and also about which stage of the disease was more frequent. In the second one: Weaving interactions, social network of people under dialysis, this stage describes the members and the types of bonds that are maintained, having the family as the central axis in this network.Keywords: Social network; Social support; Chronic renal insufficiency; Dialysis; Qualitative research. 

scholarly journals (Dis)satisfaction of health professionals who work with oncology

Rev Rene ◽  
2015 ◽  
Vol 16 (3) ◽  
Author(s):  
Maiara Bordignon ◽  
Lucimare Ferraz ◽  
Carmem Lúcia Colomé Beck ◽  
Simone Coelho Amestoy ◽  
Letícia De Lima Trindade
Keyword(s):  
Job Satisfaction ◽  
Qualitative Research ◽  
Work Environment ◽  
Health Professionals ◽  
Public Hospital ◽  
Structured Interview ◽  
Working Environment ◽  
Health Team ◽  
South Of Brazil ◽  
The Relationship

Objective: identify sources of satisfaction and dissatisfaction at work for health professionals who work with oncology.Methods: Qualitative research conducted with 31 professionals from a multidisciplinary health team who worked in anOncology Inpatient Unit of a public hospital in the south of Brazil, using a semi-structured interview, analyzed accordingto Bardin’s proposal. Results: the main sources of job satisfaction emerged from the relationship between patients andhealth professionals. The dissatisfaction sources were connected to the working environment and conditions. Conclusion:.A humanized look to health professionals who work with oncology, with changes in their work environment seems to berelevant in the context investigated.

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