scholarly journals Burden and quality of life of mothers of children and adolescents with chronic illnesses: an integrative review

2015 ◽  
Vol 23 (4) ◽  
pp. 769-777 ◽  
Author(s):  
Eliza Cristina Macedo ◽  
Leila Rangel da Silva ◽  
Mirian Santos Paiva ◽  
Maria Natália Pereira Ramos
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Caregiver Burden ◽  
Chronically Ill ◽  
Self Report ◽  
Integrative Review ◽  
World Health ◽  
Life Questionnaire ◽  
World Health Organization Quality

AbstractObjective:to identify and analyze the evidence available regarding evaluation of burden and quality of life of mothers who are caregivers for children and adolescents with chronic illnesses.Method:an integrative review, undertaken in the electronic sources MEDLINE; Academic Search Premier; CINAHL; LILACS; SciELO and PubMed, between 2010 and 2014.Results:among the 22 documents selected, there was a predominance of convenience samples and non-experimental transversal designs, at the levels IV and III2. The caregiver burden scales used were the Zarit Burden Interview and Montgomery-Borgatta Caregiver Burden Scale-Revised along with the following instruments for evaluating quality of life: The World Health Organization Quality of Life-BREF Scale; Self-report questionnaires; The Ulm Quality of Life Inventory for Parents of chronically ill children; Asthma Caregiver Quality of Life Questionnaire; and the Nottingham Health Profile. Quality-of-life appears to be influenced in a complex and interrelated way by the physical and mental health of the mothers who are caregivers, in accordance with their level of independence, social relationships, environment, and the extent to which they see themselves as burdened.Conclusion: the revealing of the results for the evaluation of burden and quality of life of mothers who are caregivers has implications for the planning and implementation of effective interventions, by the multidisciplinary team, if they are to relieve the burden.

Alexithyme Patientenmerkmale und Lebensqualität – Eine Querschnittsstudie an 79 ambulanten Patienten mit Angststörungen

2013 ◽  
Vol 61 (1) ◽  
pp. 17-26 ◽  
Author(s):  
Katrin Leenen ◽  
Michael Rufer ◽  
Hanspeter Moergeli ◽  
Hans-Jörgen Grabe ◽  
Josef Jenewein ◽  
...  
Keyword(s):  
Quality Of Life ◽  
World Health ◽  
Life Questionnaire ◽  
World Health Organization Quality ◽  
Fand Sich ◽  
Quality Of Life Questionnaire ◽  
Organization Quality ◽  
Health Organization ◽  
Tas 20

Aus Untersuchungen in der Normalbevölkerung ist bekannt, dass Menschen mit erhöhten Alexithymiewerten eine verminderte Lebensqualität (LQ) aufweisen. Für Patienten mit psychischen Störungen wurde dieser Zusammenhang jedoch kaum untersucht. Ziel dieser Studie war es, den möglichen Zusammenhang zwischen alexithymen Patientenmerkmalen und der LQ bei Patienten mit Angststörungen zu überprüfen. Bei 79 ambulanten Patienten mit Angststörungen wurden alexithyme Charakteristika mit der Toronto Alexithymia Scale (TAS-20), die LQ mit der Kurzversion des World Health Organization Quality of Life Questionnaire 100 (WHOQOL-BREF) erfasst. Darüber hinaus fand eine Erhebung der psychischen Symptombelastung (SCL-90-R) und depressiven Symptomatik (MADRS) statt. Mittels hierarchischer Regressionsanalysen wurde der Zusammenhang zwischen der alexithymen Charakteristika und den unterschiedlichen LQ-Domänen berechnet. Die Patienten zeigten eine im Vergleich zur Normalbevölkerung deutlich verminderte LQ. Als Hauptergebnis fand sich, auch nach Kontrolle von Depression, Ängstlichkeit und Geschlecht, ein signifikanter Zusammenhang zwischen den beiden TAS-20 Subskalen Schwierigkeiten, Gefühle zu identifizieren und zu beschreiben und vor allem der psychischen LQ. Unsere Ergebnisse sprechen dafür, bei der Diagnostik und Therapieplanung von Patienten mit Angststörungen alexithyme Merkmale einzubeziehen. Im Falle von ausgeprägten alexithymen Merkmalen sollten psychotherapeutische Interventionen zur Verbesserung der Schwierigkeiten Gefühle wahrzunehmen und zu kommunizieren in Betracht gezogen werden.

Family burden and quality of life of mothers of children and adolescents with mental retardation or borderline mental capacity

2016 ◽  
Vol 33 (S1) ◽  
pp. S192-S192
Author(s):  
L. Utas Akhan
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Mental Capacity ◽  
World Health ◽  
Family Burden ◽  
Disabled Children ◽  
World Health Organization Quality ◽  
Significant Difference ◽  
The Family

IntroductionStudies have found that the cognitive function levels of intellectually challenged children add a burden to the family and affect quality of life.ObjectivesThe purpose of this study was to determine the family burden felt by mothers of children, ages 6–16, whose mental capacity evaluation indicates an IQ of 35–79 to explore the mother's quality of life and discover the factors that yield an impact in this context.AimsThe main objective of this study therefore was to ascertain the family burden and quality of life experienced by the parents of children with mentally retarded or borderline mental capacity.MethodsThe WISC-R test was used in the research to determine the intellectual capacity of children, 6–16 years of age. The sample comprised 131 children and adolescents between the ages 6–16 with IQs in the interval of 35–79 and their mothers. The parents accompanying their children were assessed using the Family Burden Assessment Scale, the World Health Organization Quality of Life instrument and a sociodemographic questionnaire that was filled out during face-to-face interviews.ResultsThe quality of life of the mothers was found to be average. At the same time, as the IQ level of the children went up, the less the mothers felt they were under a family burden. It was seen that the mothers experienced the most difficulty in the domains of “perception of inadequacy” and “emotional burden.”ConclusionMothers with intellectually disabled children need psychosocial support. Providing all members of the family with counseling services to help them cope with the issues and responsibilities involved in the care of disabled children may make a significant difference in quality of life.Disclosure of interestThe author has not supplied his/her declaration of competing interest.

scholarly journals Magnesium level correlation with clinical status and quality of life in women with hormone related conditions and pregnancy based on real world data

2021 ◽  
Vol 11 (1) ◽  
Author(s):  
Svetlana Orlova ◽  
Galina Dikke ◽  
Gisele Pickering ◽  
Eliso Djobava ◽  
Sofya Konchits ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Clinical Status ◽  
High Response Rate ◽  
World Health ◽  
Life Questionnaire ◽  
Real World Data ◽  
World Health Organization Quality ◽  
Patient Reported ◽  
Health Organization

AbstractThis study was aimed to assess the effectiveness of magnesium (Mg)-vitamin B 6 replenishment and its correlation with clinical status in pregnant women (PW), and quality of life in women with hormone-related conditions (HRCW) and hypomagnesemia (HME). Data collected in four observational studies were pooled and analysed. All women received Mg supplementation for 4 weeks. The proportion of women with normalized Mg level, and the correlation between serum Mg dynamics and number of symptoms/complaints (PW) or changes in World Health Organization quality of life questionnaire scores (WHOQOL; HRCW) were evaluated. 869 PW and 957 HRCW were included in the study. Normalization of serum Mg level to ≥ 0.66 mmol/L occurred in 92.1% of PW and 78.4% of HRCW, and to ≥ 0.8 mmol/L in 73.8% and 58.9%, respectively. Mg normalization was accompanied by a median decrease of 1 symptom and 1 complaint in PW. Serum Mg level increase by 0.1 mmol/L was associated to significant changes in the WHOQOL scores in HRCW. Treatment of HME with the Mg for approximately 4 weeks provided a high response rate of Mg serum level, was associated with an improvement in symptom severity and complaints in PW, and WHOQOL score in HRCW. A 0.8 mmol/L cut-off appeared to be more relevant in terms of patient-reported outcomes.

scholarly journals Comparison of two assessment instruments of quality of life in older adults

2013 ◽  
Vol 16 (2) ◽  
pp. 328-337 ◽  
Author(s):  
Camila Mello dos Santos ◽  
Fernando Neves Hugo ◽  
Andréa Fachel Leal ◽  
Juliana Balbinot Hilgert
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Social Relations ◽  
Functional Limitation ◽  
World Health ◽  
Life Questionnaire ◽  
Physical Pain ◽  
World Health Organization Quality ◽  
Low Magnitude

Objective: To investigate if there is convergent validity between the dimensions of the World Health Organization Quality of Life Questionnaire-Brief Version (WHOQOL-Bref) and the Oral Health Impact Profile-14 (OHIP-14) questionnaire. Methods: In this cross-sectional study, a random sample of 872 elderly Southern-Brazilians was evaluated. Questionnaires assessing socio-demographic data and quality of life in general (WHOQOL-Bref) and oral health-related quality of life (OHIP-14) were used. Analysis of the WHOQOL-Bref and OHIP-14 questionnaires used descriptive statistics. The dimensions of the WHOQOL-Bref and OHIP-14 questionnaires were correlated by affinity. The convergence between WHOQOL-Bref and OHIP-14 dimensions was analyzed by Spearman’s correlation coefficients. Results: The social relations dimension of the WHOQOL-Bref presented the greatest mean (18.24 ± 2.30). The physical pain dimension of the OHIP-14 presented a median of 1.0 (0.0 – 3.0). All correlations between the WHOQOL-Bref and OHIP-14 dimensions were significant, negative and associated with a low magnitude. The correlation between WHOQOL-physical and OHIP-functional limitation, OHIP-physical pain, OHIP-physical disability and OHIP-handicap were – 0.164, – 0.262, – 0.196 and – 0.125 respectively. WHOQOL-psychological was associated with OHIP-psychological discomfort and OHIP-psychological disability, and WHOQOL-social showed an association with OHIP-social disability. Conclusions: All correlations analyzed had a positive association of low magnitude. Despite the fact that the WHOQOL-Bref and OHIP-14 instruments have related dimensions, they measure physical, psychological and social relations differently.

scholarly journals Workplace Violence Against Chinese Frontline Clinicians During the COVID-19 Pandemic and Its Associations With Demographic and Clinical Characteristics and Quality of Life: A Structural Equation Modeling Investigation

2021 ◽  
Vol 12 ◽  
Author(s):  
Yuan Yang ◽  
Yue Li ◽  
Ying An ◽  
Yan-Jie Zhao ◽  
Ling Zhang ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Structural Equation Modeling ◽  
Workplace Violence ◽  
Structural Equation ◽  
Emotional Disturbances ◽  
World Health ◽  
Equation Modeling ◽  
Life Questionnaire ◽  
World Health Organization Quality

Background: Workplace violence is a major concern for clinicians worldwide. There has been little data on the epidemiology of workplace violence against frontline clinicians during the COVID-19 pandemic. This study examined the pattern of workplace violence and its association with quality of life (QOL) against frontline clinicians during the outbreak of COVID-19 pandemic in China.Methods: A cross-sectional online study was conducted in China between March 15 and March 20, 2020. Frontline clinicians' experience with workplace violence was measured with six standardized questions derived from the Workplace Violence Scale, while anxiety, depressive, and insomnia symptoms, and QOL were measured using the General Anxiety Disorder Questionnaire, the Patient Health Questionnaire, the Insomnia Severity Index, and the World Health Organization Quality of Life Questionnaire, respectively. Univariate analyses, multivariable logistic regression analyses, and structural equation modeling (SEM) were conducted.Results: A total of 15,531 clinicians completed the assessment; 2,878 (18.5, 95% CI = 17.92–19.14%) reported workplace violence during the outbreak of the COVID-19 pandemic (verbal violence: 16.1%; physical violence: 6.9%). According to multivariable models, key correlates of workplace violence were male gender, longer work experience, higher education level, smoking, working in the psychiatry or emergency department, working in tertiary hospitals, being involved in direct care of infected patients, having infected family/ friends/ colleagues, and frequently using social communication programs. Clinicians working in inpatient departments were less likely to report workplace violence compared to those working in outpatient departments. SEM analysis revealed that both violence and emotional disturbances (anxiety, depression, and insomnia) directly affected QOL (standardized direct effect = −0.031, and −0.566, respectively, P < 0.05), while emotional disturbances partly mediated the association between work violence and QOL (standardized indirect effect = −0.184, P < 0.05).Conclusion: Frontline clinicians were vulnerable to workplace violence during the COVID-19 pandemic. Due to the negative impact of workplace violence on quality of care and clinicians' QOL, health authorities and policymakers should take effective measures to reduce workplace violence against clinicians.

scholarly journals Instrumentos de avaliação de qualidade de vida de pessoas com estomias intestinais: Revisão Integrativa

2019 ◽  
Vol 90 (28) ◽  
Author(s):  
Prisciane Cardoso Silva ◽  
Marina Soares Mota ◽  
Stella Minasi Oliveira
Keyword(s):  
Quality Of Life ◽  
World Health Organization ◽  
World Health ◽  
Life Questionnaire ◽  
World Health Organization Quality ◽  
European Organization ◽  
Quality Of Life Questionnaire ◽  
Organization Quality ◽  
Health Organization

Objetivo: Buscar na literatura instrumentos utilizados para avaliar a qualidade de vida de pessoas com estomias intestinais. Metodologia: Trata-se de uma revisão integrativa realizada no ano de 2019, em bases de dados nacionais e internacionais. Resultados: Foram encontrados 17 artigos, com sete instrumentos utilizados para avaliar a qualidade de vida de pessoas com estomias intestinais: City of Hope Quality of Life-Ostomy Questionnaire, Stoma Self-Efficacy Scale, World Health Organization Quality of Life abreviado, European Organization for Research and Treatment of Cancer Quality of Life Questionnaire, Ostomy-specific (Stoma-QoL) e Escala de Qualidade de Vida de Flanagan. Conclusão: Esta revisão permitiu identificar os instrumentos que estão sendo utilizados para avaliar a QV de pessoas com estomias intestinais. Após a análise dos instrumentos, salienta-se que o City of Hope – Quality of Life – Ostomy Questionnaire é o mais abrangente dentre os instrumentos específicos às pessoas com estomias intestinais.

One Year After Mild Injury: Comparison of Health Status and Quality of Life Between Patients with Whiplash Versus Other Injuries

2013 ◽  
Vol 41 (3) ◽  
pp. 528-538 ◽  
Author(s):  
Martine Hours ◽  
Inès Khati ◽  
Pierrette Charnay ◽  
Laetitia Chossegros ◽  
Hélène Tardy ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Sociodemographic Factors ◽  
Road Accident ◽  
World Health ◽  
Life Questionnaire ◽  
World Health Organization Quality ◽  
Relative Risks ◽  
One Year

Objective.To compare health status, effect on family, occupational consequences, and quality of life (QOL) 1 year after an accident between patients with whiplash versus other mild injuries, and to explore the relationship between initial injury (whiplash vs other) and QOL.Methods.This was a prospective cohort study. The study used data from the ESPARR cohort (a representative cohort of road accident victims) and included 173 individuals with “pure” whiplash and 207 with other mild injuries. QOL at 1-year followup was assessed on the World Health Organization Quality of Life questionnaire. Correlations between explanatory variables and QOL were explored by Poisson regression to provide adjusted relative risks, with ANOVA for the various QOL scores explored.Results.One year post-accident, more patients who had whiplash than other casualties complained of nonrecovery of health status (56% vs 43%) and of the occupational effect of pain (31% vs 23%). QOL and posttraumatic stress disorder (PTSD) were similar in the 2 groups. Impaired QOL did not correlate with whiplash when models were adjusted on sociodemographic variables and history of psychological distress. Whatever the initial lesion, PTSD was a determining factor for poorer QOL.Conclusion.Sociodemographic factors, preaccident psychological history prior to the accident, and PTSD were the main factors influencing QOL, rather than whether the injury was whiplash. PTSD may also be related to pain.

scholarly journals Evaluation tools for quality life improvements for patients with Duchenne Muscular Dystrophy: a systematic review

2020 ◽  
Vol 9 (9) ◽  
pp. e491997397
Author(s):  
Andréa Victória Oliveira Santos ◽  
Lorenna Emília Sena Lopes ◽  
Iani Miranda Pinto ◽  
Stefane dos Santos ◽  
Luiz Eduardo Oliveira de Almeida ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Assessment Tools ◽  
World Health ◽  
Life Questionnaire ◽  
World Health Organization Quality ◽  
Quality Life

Introduction: Duchenne Muscular Dystrophy (DMD) is characterized by membrane dissociation, resulting in the breakdown of the musculoskeletal fiber. Objective:  to identify the assessment tools used to measure the quality of life in patients with DMD. Methodology: A systematic review of articles published from 2007 to 2017 on QOL assessment tools in patients with DMD was conducted in the SciELO, PubMED and LILACS databases. Results: 6 articles met the inclusion criteria, using the QOL assessment tools; Life Satisfaction Index for Adolescents; Quality of Life Evaluation Scale; Medical Outcomes Study 36; World Health Organization Quality of Life Instrument; Health Related Quality of Life Questionnaire for Children and Young People and their Parents e Pediatric Quality of Life Inventory. Conclusions: the tools for the evaluation of quality of life in patients with Duchenne Muscular Dystrophy (DMD) are essentials to determinate and to present an effective treatment focused on patient’s priorities and their main difficulties. However the lack of a validated scale specifically focused on this diagnostic interferes in the real score of those patients quality of life.

scholarly journals Comparison of Single Child Family Adolescents and Adolescents with Number of Siblings

2016 ◽  
Vol 1 (2) ◽  
pp. 99-114
Author(s):  
Amara Iqbal ◽  
S. Farhana Kazmi
Keyword(s):  
Quality Of Life ◽  
Personality Type ◽  
Self Esteem ◽  
World Health ◽  
Life Questionnaire ◽  
Only Child ◽  
World Health Organization Quality ◽  
Single Child ◽  
The Difference

The aim of the present study was to ascertain the difference between adolescents belonging to only child family and adolescents belonging to number of siblings. To main objectives of the study were to examine that the difference between self esteem, quality of life and personality type of adolescents belonging to only child family and the association between the self esteem, quality of life and personality type of adolescents belonging to only child family. Population of the present study comprised of hundred (N=100) participants. The sample included fifty (n=50) (only child) adolescent who is the only child of their biological parents and fifty (n=50) adolescents having number of siblings studying in different schools, colleges and universities of Abbottabad, Mansehra, and Haripur. Urdu version of “Riffai Self esteem inventory”, “World health organization quality of life questionnaire” and Eysenck personality questionnaires (2007) were used for data collection. t-test was used to analyze the data. Finding showed that that there is a difference between the scores of participants who were the single child of their parents and subject belonging to number of children family.

Evaluating Burden and Quality of Life among Caregivers of Patients Receiving Peritoneal Dialysis

2019 ◽  
Vol 39 (2) ◽  
pp. 176-180 ◽  
Author(s):  
Augustine Kang ◽  
Zhenli Yu ◽  
Marjorie Foo ◽  
Choong Meng Chan ◽  
Konstadina Griva
Keyword(s):  
Quality Of Life ◽  
Peritoneal Dialysis ◽  
Caregiver Burden ◽  
Psychological Health ◽  
World Health ◽  
Personal Hygiene ◽  
World Health Organization Quality ◽  
Care Giving ◽  
Health Organization

Peritoneal dialysis (PD) is advocated as treatment of choice for most end-stage renal disease (ESRD) patients, including elderly and frail patients. It typically requires caregiver involvement to support care at home. The purpose of this study was to examine changes in burden and quality of life (QOL) in caregivers of prevalent PD patients over 12 months. Data were collected in 44 caregivers of PD patients (mean age 38.4 ± 6.3 years; 60% female) in Singapore at baseline and 12 months. Measures included demographics, the Lay Care-Giving for Adults Receiving Dialysis (LC-GAD), Zarit Burden Interview (ZBI), and the World Health Organization Quality of Life instrument (WHOQOL-BREF). Paired t-tests indicate a significant decrease in task-related aspects of caregiving ( p = 0.04), particularly in relation to personal hygiene ( p < 0.01), over time. Cognitive aspects of caregiving remained unchanged. Perceived burden, however, significantly increased ( p < 0.01), with significantly more caregivers reporting moderate to severe caregiver burden at follow-up (28%) relative to baseline (13%; p < 0.01). There was a significant reduction in psychological health (under WHOQOL) ( p = 0.01). Study findings indicate an increase in caregiver burden and a reduction in psychological health despite a reduction in task-related aspects of caregiving, supporting a further exploration of the “wear-and-tear” hypothesis among this population. Intervention strategies are needed.

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